Re: More info on why TSH testing alone is inadequate.

[Guest guest]

Here's another can of worms to open----It has been a well known fact in medical journals for the last 25 yrs or more that people who get MS 9 times out of 10, were raised in a cold climate, regardless of where they lived when it was discovered in them. Since, slowly, it's looking like so many autoimmune diseases are going to be tied together in some way, doesn't that sound strange to you? Why would that be? I've looked around for the explanation of why they have all come from cold climates, but haven't found one yet. I had even suspected this disease in myself up until around 10 yrs ago, and we all know that where one autoimmune disease exists, often others co-exist. This was even before I was diagnosed with thyroid disease. Does anyone know anything about the cold climate thing and MS that might also tie it to thyroid disease? I TOLD you I was opening up another can of worms. MS's main thing is to demyelinate the myelin sheath or covering over nerves. It is the protectory cover that is the last, closest layer over the nerves on the brain and spinal cord. What is it that demyelinates this sheath? They've found extensive antibodies in this.

Re: More info on why TSH testing alone is inadequate.

Good question.. My immediate answer was Yes.. but then... what about someone like me? I have defective TSH receptors... so the TSH released by my pituitary had no where to go... it would have been free floating until filtered out of my body.... So I could have had high TSH readings... even though I was hyper thyroid.... and later went into thyroid storm....

My understanding is that for someone that has no way of reacting to the TSH the pituitary pretty much just keeps producing in an attempt to get a reaction.. I may be wrong with that.. I'm having trouble finding research on that.

I keep looking though, cause I am wondering what affect TSH has, and what value it has for folks that have had partial or total thyroidectomies. If the thyroid is not there, or dead, like mine, and not responding to the changing TSH values, is the Pituitary's reaction to that to continue to release TSH at the level that SHOULD provide the correct reaction from the gland or does it go into over production... or stop producing.. cause it's getting no reaction from it's attempts???

The chart I references yesterday gives the TSH values and ranges of a NORMAL body. But if the body is no longer normal..... how accurate is that TSH value for us?

This discussion actually had me wondering even more about all of this.

Before the synthetics and testing... they treated by symptoms... and folks did great. It was only after testing and putting every one into this mandatory 'normal' range that Fibromyalgia and Chronic Fatigue Syndrome even came into being. Maybe it is better to treat to symptoms, adjust as the body needs adjusting.

We had someone post earlier this spring about a study concerning individuals and geographic locations... Cold climates having higher hormone levels - increased metabolic rate to maintain adequate body temperatures.. Warm climates having lower hormone levels - decreasing metabolic rates to allow the body to function better with higher air temperatures...

The discussion at that time then became whether or not it might be wise for those of us with distinct seasons to add a bit of extra hormone during the colder winter months to compensate for the colder weather.

So that had me wondering too.... a person with a really good conversion function would be able to kick up the T3 high enough to accommodate changing temperatures... those with poor conversion rates, like me, wouldn't be able to... I think that is why I have to multi-dose the way I do... that my conversion just flat out sucks.

I am doing better now, with adding the selenium and doing the mini meals.. both aiding in conversion....

I still dont' know if this is:

* just me, the individual

* damage to my system from the long term hyper or the thyroid storm

* damage from the long term underdosing on synthetics. (I base my statement of being underdosed on Synthroid dosing being based on body weight for total replacement (my gland was killed by RAI) and the fact that even though my weight shot up more than 150 pounds in two years I was kept at the same 'optimum' dose that my endo had prescribed... So I was underdosed by 150 to 200 mcg per day. For more than 8 years.....

So confusing, because there are so many variables, even within the same individual.

I think that is why it's so important for each of us to understand how our bodies are affected and be aware of what we need to watch for. Cause there is a fair chance that an individual is not going to fit into the 'norm' and will pay for that with an increase in the number and the severity of symptoms.

IMHO, of course

Topper () *always the curious one*

[Guest guest]

You have a better grasp of this, , than I do...

I have a friend with MS.. in rough shape. I've not seen her face to face since I started all my search with thyroid and adrenal... but after what you've just said, thinking back, I wonder if she might not be wise to check her thyroid levels.

I'll have to give her a call one of these days and see how she's doing.. Last I heard she was losing insurance and facing more than a thousand dollars in medications a month.... It would be so sad to find out that she may have other issues that make her symptoms as bad as they are.. Many of those I remember in her are the same as low thyroid/adrenal.. .but I never really thought much of it thinking that MS is a specific diagnosis and would not be in question. I did call her with the info that came out about Nutri-Sweet... just in case.. She doesn't use it....

I wish I could march every one that I know in for labs... I see so many folks with so many symptoms and complaints that have never been checked. And we know that much of this can be a result of bad diet, genetics and environmental exposures.... it should be standard instead of waiting until some one is really ill from it....

*sigh*

Having said that... I joined a group for lymphedema, hoping to learn more about what I can do to relieve my symptoms, etc.... The other members of the group are dealing with symptoms MUCH more profound that mine that I'm shy about bringing up these little red patches, etc... but the therapies in their file section have done wonders for my legs... I need to work up enough courage to intro myself and speak for those of us that found out sooner...

See, there is a rule, for every one person that asks a question in a group, there are seven more with the same question that are too shy to ask... I need to be the brave one and speak for the others, like me, that don't have legs that have swelled to 3 feet and want to find out how to maintain their bodies now....

sigh...

Can you believe it? Me, too shy to speak up in a group!! hehehehehe

But, yes ... I'd like to dive in your worm can and see what we can come up with...

Topper ()

On Thu, 9 Sep 2004 12:14:07 -0500 " " writes:

Here's another can of worms to open----It has been a well known fact in medical journals for the last 25 yrs or more that people who get MS 9 times out of 10, were raised in a cold climate, regardless of where they lived when it was discovered in them. Since, slowly, it's looking like so many autoimmune diseases are going to be tied together in some way, doesn't that sound strange to you? Why would that be? I've looked around for the explanation of why they have all come from cold climates, but haven't found one yet. I had even suspected this disease in myself up until around 10 yrs ago, and we all know that where one autoimmune disease exists, often others co-exist. This was even before I was diagnosed with thyroid disease. Does anyone know anything about the cold climate thing and MS that might also tie it to thyroid disease? I TOLD you I was opening up another can of worms. MS's main thing is to demyelinate the myelin sheath or covering over nerves. It is the protectory cover that is the last, closest layer over the nerves on the brain and spinal cord. What is it that demyelinates this sheath? They've found extensive antibodies in this.

[Guest guest]

You have a better grasp of this, , than I do...

I have a friend with MS.. in rough shape. I've not seen her face to face since I started all my search with thyroid and adrenal... but after what you've just said, thinking back, I wonder if she might not be wise to check her thyroid levels.

I'll have to give her a call one of these days and see how she's doing.. Last I heard she was losing insurance and facing more than a thousand dollars in medications a month.... It would be so sad to find out that she may have other issues that make her symptoms as bad as they are.. Many of those I remember in her are the same as low thyroid/adrenal.. .but I never really thought much of it thinking that MS is a specific diagnosis and would not be in question. I did call her with the info that came out about Nutri-Sweet... just in case.. She doesn't use it....

I wish I could march every one that I know in for labs... I see so many folks with so many symptoms and complaints that have never been checked. And we know that much of this can be a result of bad diet, genetics and environmental exposures.... it should be standard instead of waiting until some one is really ill from it....

*sigh*

Having said that... I joined a group for lymphedema, hoping to learn more about what I can do to relieve my symptoms, etc.... The other members of the group are dealing with symptoms MUCH more profound that mine that I'm shy about bringing up these little red patches, etc... but the therapies in their file section have done wonders for my legs... I need to work up enough courage to intro myself and speak for those of us that found out sooner...

See, there is a rule, for every one person that asks a question in a group, there are seven more with the same question that are too shy to ask... I need to be the brave one and speak for the others, like me, that don't have legs that have swelled to 3 feet and want to find out how to maintain their bodies now....

sigh...

Can you believe it? Me, too shy to speak up in a group!! hehehehehe

But, yes ... I'd like to dive in your worm can and see what we can come up with...

Topper ()

On Thu, 9 Sep 2004 12:14:07 -0500 " " writes:

Here's another can of worms to open----It has been a well known fact in medical journals for the last 25 yrs or more that people who get MS 9 times out of 10, were raised in a cold climate, regardless of where they lived when it was discovered in them. Since, slowly, it's looking like so many autoimmune diseases are going to be tied together in some way, doesn't that sound strange to you? Why would that be? I've looked around for the explanation of why they have all come from cold climates, but haven't found one yet. I had even suspected this disease in myself up until around 10 yrs ago, and we all know that where one autoimmune disease exists, often others co-exist. This was even before I was diagnosed with thyroid disease. Does anyone know anything about the cold climate thing and MS that might also tie it to thyroid disease? I TOLD you I was opening up another can of worms. MS's main thing is to demyelinate the myelin sheath or covering over nerves. It is the protectory cover that is the last, closest layer over the nerves on the brain and spinal cord. What is it that demyelinates this sheath? They've found extensive antibodies in this.

[Guest guest]

You have a better grasp of this, , than I do...

I have a friend with MS.. in rough shape. I've not seen her face to face since I started all my search with thyroid and adrenal... but after what you've just said, thinking back, I wonder if she might not be wise to check her thyroid levels.

I'll have to give her a call one of these days and see how she's doing.. Last I heard she was losing insurance and facing more than a thousand dollars in medications a month.... It would be so sad to find out that she may have other issues that make her symptoms as bad as they are.. Many of those I remember in her are the same as low thyroid/adrenal.. .but I never really thought much of it thinking that MS is a specific diagnosis and would not be in question. I did call her with the info that came out about Nutri-Sweet... just in case.. She doesn't use it....

I wish I could march every one that I know in for labs... I see so many folks with so many symptoms and complaints that have never been checked. And we know that much of this can be a result of bad diet, genetics and environmental exposures.... it should be standard instead of waiting until some one is really ill from it....

*sigh*

Having said that... I joined a group for lymphedema, hoping to learn more about what I can do to relieve my symptoms, etc.... The other members of the group are dealing with symptoms MUCH more profound that mine that I'm shy about bringing up these little red patches, etc... but the therapies in their file section have done wonders for my legs... I need to work up enough courage to intro myself and speak for those of us that found out sooner...

See, there is a rule, for every one person that asks a question in a group, there are seven more with the same question that are too shy to ask... I need to be the brave one and speak for the others, like me, that don't have legs that have swelled to 3 feet and want to find out how to maintain their bodies now....

sigh...

Can you believe it? Me, too shy to speak up in a group!! hehehehehe

But, yes ... I'd like to dive in your worm can and see what we can come up with...

Topper ()

On Thu, 9 Sep 2004 12:14:07 -0500 " " writes:

Here's another can of worms to open----It has been a well known fact in medical journals for the last 25 yrs or more that people who get MS 9 times out of 10, were raised in a cold climate, regardless of where they lived when it was discovered in them. Since, slowly, it's looking like so many autoimmune diseases are going to be tied together in some way, doesn't that sound strange to you? Why would that be? I've looked around for the explanation of why they have all come from cold climates, but haven't found one yet. I had even suspected this disease in myself up until around 10 yrs ago, and we all know that where one autoimmune disease exists, often others co-exist. This was even before I was diagnosed with thyroid disease. Does anyone know anything about the cold climate thing and MS that might also tie it to thyroid disease? I TOLD you I was opening up another can of worms. MS's main thing is to demyelinate the myelin sheath or covering over nerves. It is the protectory cover that is the last, closest layer over the nerves on the brain and spinal cord. What is it that demyelinates this sheath? They've found extensive antibodies in this.