new here :)

[Guest guest]

,

Welcome to the family!

Rae

260/160/150

" If it is to be it is up to me "

[Guest guest]

is another of our members who is having a problem getting list

mail. Anyone replying to her, please CC to her email address,

craftylady711@... so she sees it.

> Though I

> think being home is not helping my weight..LOL!

Gee, you *have* been reading the archives, haven't you? LOL We were just

discussing how tough it is for us, being around food all the time.

> I need to lose probably about 110 lbs.

About 130 for me, if my weight keep going up instead of down.

I don't have

> the best willpower (I just love food) and my biggest downfall is junk

> food...I'm a certified chocoholic!! lol!

I'm not a sweets eater due to a problem with hypoglycemia, and only recently

discovered some decent tasting sugar-free chocolate (50-50 brand), but I

*do* go for the salty (Fritos are my downfall) and just real decent foods. I

always say, my problems aren't from eating junk food, it's from eating too

much of a good thing. Portion control just eludes me because no matter how

much I eat, I'm always hungry for more. I'm one of those people who *could*

sit there and eat an entire head of lettuce in a salad and a whole pound of

pasta in one sitting and just about feel " satisfied " . This is one reason I

couldn't lose weight on the McDougall or Ornish plans - they both say to

" eat until satisfied " of low cal vegetarian foods, but I was never fully

" satisfied " on what a normal person would eat.

This is why I really have to get back into the FoodMover 100% of the time -

drag out the spoons, cups and scale again and MEASURE everything.

>I want to start the diet, and am

> waiting to receive my food mover...can't wait!!

Boy, are you in luck! I just spent a few hours yesterday cleaning up and

adding some stuff to my site -

http://members.tripod.com/sue_in_nj/rich.htm . It still needs a little more

work, but I got a healthy start on it. Be sure to check out the FoodMover

page - you can see the basics of the program and even copy the calorie card

you'll be using to your computer and print it out a few times, crossing out

each food as you eat it. You can get BlastOff week finished and well on

oyur way with your calories card before your FoodMover even arrives.

In the meantime I'm

> keeping track of everything I eat

Journalling is a good idea. It helps keep track of what we eat, when, and

why, if we use it the right way. Sometimes I get sloppy and just write the

foods but not the mood behind the eating.

>and cutting out all the junk food.

Well, as long as you count it, you *can* eat it. A lot of ladies here would

literally die without their chocolate, so it's included. 12 chocolate chips,

1 Hershey Kiss, 1 package of regular hot chocolate, or 1 tablespoon of lite

chocolate syrup all count as one Extra serving. Those 50-50 chocolate

mini-bars I'm now buying has exchanges on the package, since it's primarily

a produt for diabetics, and for that, 8 pieces count as 1 starch and 2 fat

(140 calories). I limit myself to just one a day at certain times of the

month, count it as half an Extra, and life (for hubby, at least) has been

much better.

> I sure hope I can be as successful as the members here.

Heck! So do *I*!! LOL

Sue in NJ ºoº

Old crafter's never die, they just get more bazaar

[Guest guest]

Thanks for the welcome. I probably won't be too active until

starts giving me my emails....reading at the website is such a pain

in the butt, especially having a slow connection and having the extra

steps involved to just read a message thanks to ads!

One big reason I really need to try to cut out the chocolate and

sweets is diabetes runs in my family, my mom and grandmothers on both

sides have/had it. So it's 99.9% chance that I will wind up with

diabetes. Sugar is my biggest problem, I really think if I cut it

out completely the weight would probably fall off me....but I do need

a little sugar fix every now and then just to survive, LOL ) I'm

only on day 5 of my diet and just bought a scale today so now I'll

know how it's working. I think I've lost about 3 lbs this week, I

can just feel it...and I love that feeling!

I do have to learn to drink lots of water...I'm not a big fluid

person, but I know it's the best thing. Guess I better get that

sports bottle out and sit it here on my desk, where I spend most of

my day.

Sue your RS site is great! I'll be spending lots of time there. I

especially need recipes and ideas. Since I love to snack, I really

have to find quick and easy things to snack on that aren't loaded

with fat and calories.

Well, hope gets their act together and starts sending me my

emails soon, in the meantime, I'll try to remember to come here often

and check the board.

Michele

http://www.tendercrafts.com

[Guest guest]

---Hi , Your list of behaviors and traits you were not sure

were AS could all be As related,...every single on...My son was

showing the signs you described at 3yo too. I live in NC, and there

is a developmental evaluation center (DEC) that tests preschool age

children. Once they get school age, they are evaluated through the

school system. I took my son to the DEC to have him tested, hearing,

speech, and social, (my husband refused to get a psych eval for him

because he was afraid of a ADHD diagnosis and meds.((I think he's an

aspie too)). They picked up on the speech delay but did not pick up

on any other autistic behaviors. I knew there was something more to

it, that they were missing something. I got him speech therapy and

he started talking better afterwards. Because my husband has been so

insistant that my son's problems were my bad parenting skills,( and

I believed him), he is just going through the evaluation process now

at 8yo. How I regret the wasted years he could have gotten help, but

we had no clue it was autism. Because you are doing something about

it now, your son has great potential!!! There is alot of info on the

web about asperger's, autistic spectrum disorder, PDD etc. Read,

read, and read some more. One thing I have found out, nothing

happens quickly, it takes timme to find someone to eval him. It

takes weeks to get in to see them. Then it takes more weeks to

evaluate them. Then more time to develop a prelimenary plan. There

is no specific plan of care, all has to be fine tuned to your

child's special needs, find out what works with him and what

doesn't. It will also give you time to adjust. I feel overwhelmed

with my 8yo and 6yo. I can imagine with three young-uns......We're

all in this together....Gerri

In , " " <noctisangelicus@g...>

wrote:

>

> Hello! It's nice to join you all here. My name is , I have

> three young boys ages 4, 3 and one year. My middle son Jonah, who

> will be four years old in May, has been struggling with

> developmental delays and emotional problems since birth. At first

I

> thought it was just a speech delay, but as time has gone things

got

> worse and worse...eventually his former ped as well as a new

parent

> support group advocate began to suspect that he had possible

> Asperger's and or Sensory Integration issues. If anyone has any

> advice for children as young as three getting diagnosed I would be

> deeply grateful! Currently I am trying to find a psychologist that

> will evaluate him, so far two have told me that they don't deal

with

> children so young. I feel its imparative that I get him in soon

> before he starts school so that he can get the best start

possible.

> For those of you with children diganosed early on, what were they

> symptoms that pointed to aspergers?

>

> These are some of Jonah's, which I am unsure are related to AS:

> *A slow talker...did not speak in sentances until almost three

years

> old. Is difficult to understand today, although is vocabulary is

> decent. Strangers often don't understand what he is saying.

> *Fear of fast movements, terrified of swings at the park, being

> roughed around with, or being held upside down or above anyone's

> head in play.

> *Inability to read social cues- Does not understand when someone

is

> upset, at him or in general. Shows no sympathy, and tunes you out

if

> you try to correct his behavior. Will not make eye contact. He

does

> not understand the flow of events...for example, if he wants

> something to drink and I have to rinse out his cup, he will have a

> meltdown because he thinks I am not going to fill it again as he

> watches me just rinse it. Cannot predict what comes next.

> *Becomes hysterical over things like: Zipper in his coat not being

> zipped...one sock on, one off...shoes not on properly or tied,

every

> button must be buttoned all the way to the top. If one shoe comes

> off, its the end of the world and he shuts down.

> *Becomes hysterical over things not going his way, incrediably

> impatient and hostile.

> *Has a seemingly uncontrollable tick. He blinks his eyes very hard

> over and over, especially when upset.

> *Gets into everything, soaps, shampoos, anything gooey...nothing

in

> the house is safe unless it is locked up.

> *Hits his brothers constantly, and the cats. Doesn't understand

that

> it's wrong.

> *Doesn't register right from wrong...shows no reaction when he

does

> something really bad and is confronted on it.

> *Cares little about other's feelings. He will repeat, " I have to

be

> nice? " but doesn't seem to register it, or how it relates to him.

> *Is upset by change in schedules. Becomes withdrawn and Unhappy

when

> seperated from him older brother (whom he depends heavily on).

>

> Any advice is appreciated!

>

>

>

[Guest guest]

---Hi , Your list of behaviors and traits you were not sure

were AS could all be As related,...every single on...My son was

showing the signs you described at 3yo too. I live in NC, and there

is a developmental evaluation center (DEC) that tests preschool age

children. Once they get school age, they are evaluated through the

school system. I took my son to the DEC to have him tested, hearing,

speech, and social, (my husband refused to get a psych eval for him

because he was afraid of a ADHD diagnosis and meds.((I think he's an

aspie too)). They picked up on the speech delay but did not pick up

on any other autistic behaviors. I knew there was something more to

it, that they were missing something. I got him speech therapy and

he started talking better afterwards. Because my husband has been so

insistant that my son's problems were my bad parenting skills,( and

I believed him), he is just going through the evaluation process now

at 8yo. How I regret the wasted years he could have gotten help, but

we had no clue it was autism. Because you are doing something about

it now, your son has great potential!!! There is alot of info on the

web about asperger's, autistic spectrum disorder, PDD etc. Read,

read, and read some more. One thing I have found out, nothing

happens quickly, it takes timme to find someone to eval him. It

takes weeks to get in to see them. Then it takes more weeks to

evaluate them. Then more time to develop a prelimenary plan. There

is no specific plan of care, all has to be fine tuned to your

child's special needs, find out what works with him and what

doesn't. It will also give you time to adjust. I feel overwhelmed

with my 8yo and 6yo. I can imagine with three young-uns......We're

all in this together....Gerri

In , " " <noctisangelicus@g...>

wrote:

>

> Hello! It's nice to join you all here. My name is , I have

> three young boys ages 4, 3 and one year. My middle son Jonah, who

> will be four years old in May, has been struggling with

> developmental delays and emotional problems since birth. At first

I

> thought it was just a speech delay, but as time has gone things

got

> worse and worse...eventually his former ped as well as a new

parent

> support group advocate began to suspect that he had possible

> Asperger's and or Sensory Integration issues. If anyone has any

> advice for children as young as three getting diagnosed I would be

> deeply grateful! Currently I am trying to find a psychologist that

> will evaluate him, so far two have told me that they don't deal

with

> children so young. I feel its imparative that I get him in soon

> before he starts school so that he can get the best start

possible.

> For those of you with children diganosed early on, what were they

> symptoms that pointed to aspergers?

>

> These are some of Jonah's, which I am unsure are related to AS:

> *A slow talker...did not speak in sentances until almost three

years

> old. Is difficult to understand today, although is vocabulary is

> decent. Strangers often don't understand what he is saying.

> *Fear of fast movements, terrified of swings at the park, being

> roughed around with, or being held upside down or above anyone's

> head in play.

> *Inability to read social cues- Does not understand when someone

is

> upset, at him or in general. Shows no sympathy, and tunes you out

if

> you try to correct his behavior. Will not make eye contact. He

does

> not understand the flow of events...for example, if he wants

> something to drink and I have to rinse out his cup, he will have a

> meltdown because he thinks I am not going to fill it again as he

> watches me just rinse it. Cannot predict what comes next.

> *Becomes hysterical over things like: Zipper in his coat not being

> zipped...one sock on, one off...shoes not on properly or tied,

every

> button must be buttoned all the way to the top. If one shoe comes

> off, its the end of the world and he shuts down.

> *Becomes hysterical over things not going his way, incrediably

> impatient and hostile.

> *Has a seemingly uncontrollable tick. He blinks his eyes very hard

> over and over, especially when upset.

> *Gets into everything, soaps, shampoos, anything gooey...nothing

in

> the house is safe unless it is locked up.

> *Hits his brothers constantly, and the cats. Doesn't understand

that

> it's wrong.

> *Doesn't register right from wrong...shows no reaction when he

does

> something really bad and is confronted on it.

> *Cares little about other's feelings. He will repeat, " I have to

be

> nice? " but doesn't seem to register it, or how it relates to him.

> *Is upset by change in schedules. Becomes withdrawn and Unhappy

when

> seperated from him older brother (whom he depends heavily on).

>

> Any advice is appreciated!

>

>

>

[Guest guest]

,

I live in Chicago and my son was diagnosed at the age of four at the

University of Chicago by a neuro developmental psych. It was his speality.

Just so you know it may be hard to get a correct diagnosis this young.

Although I was blessed to have Jordan diagnosed it was only due to the

specialty of the doctor. Where do you live then maybe we can all brain storm

and help you find where to go?

Ann

( ) New here

Hello! It's nice to join you all here. My name is , I have

three young boys ages 4, 3 and one year. My middle son Jonah, who

will be four years old in May, has been struggling with

developmental delays and emotional problems since birth. At first I

thought it was just a speech delay, but as time has gone things got

worse and worse...eventually his former ped as well as a new parent

support group advocate began to suspect that he had possible

Asperger's and or Sensory Integration issues. If anyone has any

advice for children as young as three getting diagnosed I would be

deeply grateful! Currently I am trying to find a psychologist that

will evaluate him, so far two have told me that they don't deal with

children so young. I feel its imparative that I get him in soon

before he starts school so that he can get the best start possible.

For those of you with children diganosed early on, what were they

symptoms that pointed to aspergers?

These are some of Jonah's, which I am unsure are related to AS:

*A slow talker...did not speak in sentances until almost three years

old. Is difficult to understand today, although is vocabulary is

decent. Strangers often don't understand what he is saying.

*Fear of fast movements, terrified of swings at the park, being

roughed around with, or being held upside down or above anyone's

head in play.

*Inability to read social cues- Does not understand when someone is

upset, at him or in general. Shows no sympathy, and tunes you out if

you try to correct his behavior. Will not make eye contact. He does

not understand the flow of events...for example, if he wants

something to drink and I have to rinse out his cup, he will have a

meltdown because he thinks I am not going to fill it again as he

watches me just rinse it. Cannot predict what comes next.

*Becomes hysterical over things like: Zipper in his coat not being

zipped...one sock on, one off...shoes not on properly or tied, every

button must be buttoned all the way to the top. If one shoe comes

off, its the end of the world and he shuts down.

*Becomes hysterical over things not going his way, incrediably

impatient and hostile.

*Has a seemingly uncontrollable tick. He blinks his eyes very hard

over and over, especially when upset.

*Gets into everything, soaps, shampoos, anything gooey...nothing in

the house is safe unless it is locked up.

*Hits his brothers constantly, and the cats. Doesn't understand that

it's wrong.

*Doesn't register right from wrong...shows no reaction when he does

something really bad and is confronted on it.

*Cares little about other's feelings. He will repeat, " I have to be

nice? " but doesn't seem to register it, or how it relates to him.

*Is upset by change in schedules. Becomes withdrawn and Unhappy when

seperated from him older brother (whom he depends heavily on).

Any advice is appreciated!

[Guest guest]

Ann, I live in Washington state...southern part, near Portland, Oregon. So

far I am having little luck finding anyone who will even be willing to see

him due to his age. I had no idea it was this hard!

On 12/2/05, Easter Seals <easterseals@...> wrote:

>

> ,

>

> I live in Chicago and my son was diagnosed at the age of four at the

> University of Chicago by a neuro developmental psych. It was his

> speality.

> Just so you know it may be hard to get a correct diagnosis this young.

> Although I was blessed to have Jordan diagnosed it was only due to the

> specialty of the doctor. Where do you live then maybe we can all brain

> storm

> and help you find where to go?

> Ann

>

> ( ) New here

>

> Hello! It's nice to join you all here. My name is , I have

> three young boys ages 4, 3 and one year. My middle son Jonah, who

> will be four years old in May, has been struggling with

> developmental delays and emotional problems since birth. At first I

> thought it was just a speech delay, but as time has gone things got

> worse and worse...eventually his former ped as well as a new parent

> support group advocate began to suspect that he had possible

> Asperger's and or Sensory Integration issues. If anyone has any

> advice for children as young as three getting diagnosed I would be

> deeply grateful! Currently I am trying to find a psychologist that

> will evaluate him, so far two have told me that they don't deal with

> children so young. I feel its imparative that I get him in soon

> before he starts school so that he can get the best start possible.

> For those of you with children diganosed early on, what were they

> symptoms that pointed to aspergers?

>

> These are some of Jonah's, which I am unsure are related to AS:

> *A slow talker...did not speak in sentances until almost three years

> old. Is difficult to understand today, although is vocabulary is

> decent. Strangers often don't understand what he is saying.

> *Fear of fast movements, terrified of swings at the park, being

> roughed around with, or being held upside down or above anyone's

> head in play.

> *Inability to read social cues- Does not understand when someone is

> upset, at him or in general. Shows no sympathy, and tunes you out if

> you try to correct his behavior. Will not make eye contact. He does

> not understand the flow of events...for example, if he wants

> something to drink and I have to rinse out his cup, he will have a

> meltdown because he thinks I am not going to fill it again as he

> watches me just rinse it. Cannot predict what comes next.

> *Becomes hysterical over things like: Zipper in his coat not being

> zipped...one sock on, one off...shoes not on properly or tied, every

> button must be buttoned all the way to the top. If one shoe comes

> off, its the end of the world and he shuts down.

> *Becomes hysterical over things not going his way, incrediably

> impatient and hostile.

> *Has a seemingly uncontrollable tick. He blinks his eyes very hard

> over and over, especially when upset.

> *Gets into everything, soaps, shampoos, anything gooey...nothing in

> the house is safe unless it is locked up.

> *Hits his brothers constantly, and the cats. Doesn't understand that

> it's wrong.

> *Doesn't register right from wrong...shows no reaction when he does

> something really bad and is confronted on it.

> *Cares little about other's feelings. He will repeat, " I have to be

> nice? " but doesn't seem to register it, or how it relates to him.

> *Is upset by change in schedules. Becomes withdrawn and Unhappy when

> seperated from him older brother (whom he depends heavily on).

>

> Any advice is appreciated!

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

,

It's Ann again. I wanted to get back to you. I am not familiar with that

area much to advise you on where to find a good doctor for diagnosis. I can

tell you some of the things Jordan my son did. Lined up toys, mostly videos

his favorites, If one was moved out of place or switched he would know even

though he couldn't read yet. He would memorize the order of them. When he

was excited he would bounce allot and draw his mouth in the shape of an " o " .

He hand flapped when he was two until now but not all the time. His talking

was on schedule for his age. Very tempermental and very sensitive to

haircuts. He would cry and said they hurt. At your sons age the biggest

issue would be to try asnd find an OT to evaluate for Densory dysfunction

issues. A PT can evaluate for Motor issues. A formal diagnosis is great

early but the main issue is getting him help which these therapists can do.

I hope this helps a little.

Take Care,

Ann

( ) New here

>

> Hello! It's nice to join you all here. My name is , I have

> three young boys ages 4, 3 and one year. My middle son Jonah, who

> will be four years old in May, has been struggling with

> developmental delays and emotional problems since birth. At first I

> thought it was just a speech delay, but as time has gone things got

> worse and worse...eventually his former ped as well as a new parent

> support group advocate began to suspect that he had possible

> Asperger's and or Sensory Integration issues. If anyone has any

> advice for children as young as three getting diagnosed I would be

> deeply grateful! Currently I am trying to find a psychologist that

> will evaluate him, so far two have told me that they don't deal with

> children so young. I feel its imparative that I get him in soon

> before he starts school so that he can get the best start possible.

> For those of you with children diganosed early on, what were they

> symptoms that pointed to aspergers?

>

> These are some of Jonah's, which I am unsure are related to AS:

> *A slow talker...did not speak in sentances until almost three years

> old. Is difficult to understand today, although is vocabulary is

> decent. Strangers often don't understand what he is saying.

> *Fear of fast movements, terrified of swings at the park, being

> roughed around with, or being held upside down or above anyone's

> head in play.

> *Inability to read social cues- Does not understand when someone is

> upset, at him or in general. Shows no sympathy, and tunes you out if

> you try to correct his behavior. Will not make eye contact. He does

> not understand the flow of events...for example, if he wants

> something to drink and I have to rinse out his cup, he will have a

> meltdown because he thinks I am not going to fill it again as he

> watches me just rinse it. Cannot predict what comes next.

> *Becomes hysterical over things like: Zipper in his coat not being

> zipped...one sock on, one off...shoes not on properly or tied, every

> button must be buttoned all the way to the top. If one shoe comes

> off, its the end of the world and he shuts down.

> *Becomes hysterical over things not going his way, incrediably

> impatient and hostile.

> *Has a seemingly uncontrollable tick. He blinks his eyes very hard

> over and over, especially when upset.

> *Gets into everything, soaps, shampoos, anything gooey...nothing in

> the house is safe unless it is locked up.

> *Hits his brothers constantly, and the cats. Doesn't understand that

> it's wrong.

> *Doesn't register right from wrong...shows no reaction when he does

> something really bad and is confronted on it.

> *Cares little about other's feelings. He will repeat, " I have to be

> nice? " but doesn't seem to register it, or how it relates to him.

> *Is upset by change in schedules. Becomes withdrawn and Unhappy when

> seperated from him older brother (whom he depends heavily on).

>

> Any advice is appreciated!

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Welcome Lee Ann!

This is a good group of people with some excellent information.

You've come to a fantastic place to educate yourself and be a part of

a like-minded community!

I'm sorry to hear of how you discovered you have hyperthyroidism.

That must have been frightening. I couldn't even imagine. Thank

goodness for your cardiac nurse testing the thyroid levels! I

couldn't think of positive results occurring for someone having a

heart attack with undiagnosed hyperthyroidism.

I'm only 28, but have lived through the white knuckled roller coaster

of hyperthyroidism. I very well could have died last year without

some help. ithyroid.com had information that saved my life... no

joke. Working with that information and my doctor, I am now back

within normal ranges all with supplement and diet modifications... I

comfortably hold an extra five pounds on my frame after spending the

better part of last year trying to gain weight.

It can be scary (when those hormone levels get high, it messes with

your head), it can be life threatening, but most importantly, it can

be overcome. Feel free to write anytime to vent, look for support,

advice, etc. Like I said, there is a variety of people on this

group that have used all kinds of treatment modalities. Whatever you

and your doctor decide, you'll probably find someone here who has

followed that path, too!

Take care, and good luck,

-Tana

>

> Hello All!!

>

> I'm Lee Ann...I was just diagnoised with hyperthyroidism last week

> after having a heart attack while driving to work! I have been

told

> that it was the thyroid that caused all this. I had been

experiencing

> horrible headaches in my eyes and terrible light sensitivity when

all

> this started to occure. I am only 46 and experienced the most

> frightening thing ever when the heart attack hit when I was on the

> expressway. I was able to get myself off the road and parked and

call

> 911. It was the cardiac nurse that was rounding in the emergency

room

> that added the thyroid testing to my labs, that is how we

descovered

> the high t3 and t4 and a low tsh level.

>

> This is all so new to me, any help or support you can give me would

be

> greatly appreciated!

>

> ~~Lee Ann~~

>

[Guest guest]

Hi Lee Ann and welcome to the group.

You are taking the right step in educating yourself. Too often doctors rush us

into treatment that we don't really need. Radioactive Iodine does stop the

hyperthyroidism. Unfortunately it also destroys your thryoid. There is no

option/possibility of remission. With anti-thyroid drugs, stress management (a

biggie, I think) beta blockers to protect your heart, and dietary modifications,

you can be well on your way towards remission. This is not a fast process. But

it does seem to work.

How terrifying it must have been to have a heart attack. And while driving!

Amazing how well you managed. And how lucky you were to be tested at the

hospital.

Www.ithyroid.com is a good place to start reading. There is a lot of material

there and you may find it too much to absorb all at once. I know I did. But

read and find out as much as you can.

Ask any questions that occur to you.

Kate

New Here

Hello All!!

I'm Lee Ann...I was just diagnoised with hyperthyroidism last week

after having a heart attack while driving to work! I have been told

that it was the thyroid that caused all this. I had been experiencing

horrible headaches in my eyes and terrible light sensitivity when all

this started to occure. I am only 46 and experienced the most

frightening thing ever when the heart attack hit when I was on the

expressway. I was able to get myself off the road and parked and call

911. It was the cardiac nurse that was rounding in the emergency room

that added the thyroid testing to my labs, that is how we descovered

the high t3 and t4 and a low tsh level.

This is all so new to me, any help or support you can give me would be

greatly appreciated!

~~Lee Ann~~

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7:24 AM

[Guest guest]

Hi everyone - I have a dual diagnosis of RA and Fibromyalgia. Does

anyone else have dual diagnosis such as this and if so how do you deal

with both?

Take care,

Kathi

[Guest guest]

Kathi

I have the same dual diagnosis. Some days it is hard to know which pain you are

dealing with. I take meds that work for both as well as my cancer pain. Such as

Injectable MTX, Lyrica, Cymbalta, Humira, Ambien, Oxycontin and Vicodin. I also

always keep a box of Nauzene from Wal-Mart on my kitchen counter as that help

with stomach upset, whether it be from the meds, or one of the diseases and it

also does not taste to bad. These are not miracle cures and believe me there are

still days where I can barely get out of bed in the mornings.

Vicki

Iowa

[Guest guest]

What My doctor told me is, since for 2 years they diagnosed me with FMS., when

there is FMS, it is there for a reason, he thinks it is a symptom of another

problem, and that problem after waiting for a diagnosis, is RA

Kathy

[ ] new here

Hi everyone - I have a dual diagnosis of RA and Fibromyalgia. Does

anyone else have dual diagnosis such as this and if so how do you deal

with both?

Take care,

Kathi

[Guest guest]

Thanks for the info, Vicki. I'm currently on MTX and have been trying

Lyrica, but with the stress from work the Lyrica isn't helping. I also

have upset stomach quite a bit, so I will try the Nauzene and see if

that will give some relief. How is your doctor with your dual

diagnosisi? My RA dr doesn't act like she agrees with Fibro so she

will only treat me for the RA when I see her :/

>

> Kathi

> I have the same dual diagnosis. Some days it is hard to know which

pain you are dealing with. I take meds that work for both as well as my

cancer pain. Such as Injectable MTX, Lyrica, Cymbalta, Humira, Ambien,

Oxycontin and Vicodin. I also always keep a box of Nauzene from Wal-

Mart on my kitchen counter as that help with stomach upset, whether it

be from the meds, or one of the diseases and it also does not taste to

bad. These are not miracle cures and believe me there are still days

where I can barely get out of bed in the mornings.

> Vicki

> Iowa

>

>

[Guest guest]

I am lucky in that my rhuemy does treat me for both RA and fibromalgia. She

doesn't agree with my gp foctor as far as the apin meds go, but I go but what

helps me and right now they help. LOL. MTX can also cause stomach upset so if

the Nauzene, which by the way is not expensive at all, does not help you may

want to go to the injectable type. I use it and my stomach has gotten better.

Vicki

Iowa

Meds are kicking in so think I will go lay down. Until Later " God Be With You

All "

[Guest guest]

So far I've been on the highest pill form of MTX and dealing with the

stomach and intestinal problems. But I've had so many flare ups with

the Fibro that when I don't get rest thru those then the RA flare ups

hit on top of all of that. Vicious cycyle ;/

>

> I am lucky in that my rhuemy does treat me for both RA and

fibromalgia. She doesn't agree with my gp foctor as far as the apin

meds go, but I go but what helps me and right now they help. LOL. MTX

can also cause stomach upset so if the Nauzene, which by the way is not

expensive at all, does not help you may want to go to the injectable

type. I use it and my stomach has gotten better.

> Vicki

> Iowa

>

> Meds are kicking in so think I will go lay down. Until Later " God

Be With You All "

>

>

[Guest guest]

Kathi,

You're new, right? If you have posted before and I missed you, please

forgive me.

You have come to the right place to ask that question. I am sure you

will get many responses. So many of the members here have both.

I am so sorry for your diagnosis. I think that you will get some good

support here. This is a very caring group of people.

God bless,

Shirley

>

> Hi everyone - I have a dual diagnosis of RA and Fibromyalgia. Does

> anyone else have dual diagnosis such as this and if so how do you

deal

> with both?

>

> Take care,

> Kathi

>

[Guest guest]

Hi Shirley - yes, I am new to the group. Thank you so much for the

warm greeting, I really appreciate it. I've had RA for about 11

years and Fibro for about 16. I've been on MTX for the last year,

previously on Prednisone (which I thought was my wonder drug, but

turned into a nightmare for me physically). My doctor isn't a fan of

the Fibro diagnosis, believing that it is just a symptom and not a

disease. However, I know the difference in flare ups and she won't

accept that...very frustrating.

Kathi

> >

> > Hi everyone - I have a dual diagnosis of RA and Fibromyalgia.

Does

> > anyone else have dual diagnosis such as this and if so how do you

> deal

> > with both?

> >

> > Take care,

> > Kathi

> >

>

[Guest guest]

Kathi,

That is a real shame that your rheummy does not recognised your

fibro. Honey, if this continues, you might want to consider a change

in doctors. Listen to your body, you are the only expert in that

area.

I don't have fibro, but my rheummy absolutely does treat fibo also.

Shirley

>

> Hi Shirley - yes, I am new to the group. Thank you so much for

the

> warm greeting, I really appreciate it. I've had RA for about 11

> years and Fibro for about 16. I've been on MTX for the last year,

> previously on Prednisone (which I thought was my wonder drug, but

> turned into a nightmare for me physically). My doctor isn't a fan

of

> the Fibro diagnosis, believing that it is just a symptom and not a

> disease. However, I know the difference in flare ups and she

won't

> accept that...very frustrating.

>

> Kathi

>

[Guest guest]

Shirley - my husband and I have discussed my frustration with my RA's

attitude and we are currently looking for a fibro doctor in our area

(I'm in Grand Rapids MI). Sadly, the only doctor who took my illness

seriously was a PA at my family doctor's office.

> >

> > Hi Shirley - yes, I am new to the group. Thank you so much for

> the

> > warm greeting, I really appreciate it. I've had RA for about 11

> > years and Fibro for about 16. I've been on MTX for the last

year,

> > previously on Prednisone (which I thought was my wonder drug, but

> > turned into a nightmare for me physically). My doctor isn't a

fan

> of

> > the Fibro diagnosis, believing that it is just a symptom and not

a

> > disease. However, I know the difference in flare ups and she

> won't

> > accept that...very frustrating.

> >

> > Kathi

> >

>

[Guest guest]

Kathi,

I wish you all the luck in the world finding a great doctor that

takes all of you illnesses seriously.

Shirley

> > >

> > > Hi Shirley - yes, I am new to the group. Thank you so much

for

> > the

> > > warm greeting, I really appreciate it. I've had RA for about

11

> > > years and Fibro for about 16. I've been on MTX for the last

> year,

> > > previously on Prednisone (which I thought was my wonder drug,

but

> > > turned into a nightmare for me physically). My doctor isn't a

> fan

> > of

> > > the Fibro diagnosis, believing that it is just a symptom and

not

> a

> > > disease. However, I know the difference in flare ups and she

> > won't

> > > accept that...very frustrating.

> > >

> > > Kathi

> > >

> >

>

[Guest guest]

Oh yes, I have both:( Its not easy to deal with. I take Neurontin for

neuropathy pain, and it suppose to help with fibro pain. For the RA, I

am on humira, methotrexate, naproxen. I do take Prednisone for a short

time, when I'm in a flare. I also take Lortab for pain, along with

Flexeril for my neck and shoulder pain.

It isn't easy to deal with a chronic illness. Having pain all the time,

changes a person. I just listen to my rheumy, and do what is necessary

to live my life the best I can. I would love to wake up pain free, but

that don't happen. Its tolerable, and that is all I expect now.

Take care, and hope you find something that works for you, Tawny

--- In , " grammcrackers2 " <grammcrackers2@...>

wrote:

>

> Hi everyone - I have a dual diagnosis of RA and Fibromyalgia. Does

> anyone else have dual diagnosis such as this and if so how do you deal

> with both?

>

> Take care,

> Kathi

>

[Guest guest]

Thanks Tawny. I'm not on as many drugs as many of you are, but I did

have severe effects from Prednisone. Just recently my doctors added

Flexeril and Xanax to my list, but that is still alot less than most.

I think dealing with the ignorance of our diseases is a very hard part

of trying to live with it. I am so thankful I found this group,

though. All of you are so amazing !

[Guest guest]

Sorry you had side effects of the prednisone. I take it only for a very

short time.

I hope the Flexeril helps you, it helps me a lot. I have very limited

movement in my neck. Like when I'm driving, I have a horrible time,

thank God fo mirrors. The Flexeril makes me able to get by.

I'm glad you found the group, you will find so much information. You

take care, and know I'm here if you need to chat, Tawny

--- In , " grammcrackers2 " <grammcrackers2@...>

wrote:

>

> Thanks Tawny. I'm not on as many drugs as many of you are, but I did

> have severe effects from Prednisone. Just recently my doctors added

> Flexeril and Xanax to my list, but that is still alot less than most.

> I think dealing with the ignorance of our diseases is a very hard part

> of trying to live with it. I am so thankful I found this group,

> though. All of you are so amazing !

>

[Guest guest]

Hi Kathy - I have a dual diagnosis of RA and FMS. It took me quite a

while to figure out which one it was that was flaring. I've learned

when the FMS is flaring it feels like a huge V-shape area of pain up

my whole back and when the RA is flaring, its my joints only. When

they are both flaring at the same time, I could just bawl my eyes out,

but I take my meds and hide out in bed until it passes or at least

gets under control - moist heat helps some, too.

I take Neurontin for the FMS; MTX, Folic Acid, Sulfasalazine and

(since I quit participating in the clinical study)I am now back on

10mg Prednisone in the mornings all for the RA. I take Percocet for

pain, Skelaxin for PLMS, Celexa in the morning and Xanax at night for

anxiety and depression. Then there's Dyazide for HBP and Levoxyl for

Hypothyroid.

It always looks worse written out like this. If the economy wasn't so

bad, I might buy stock in the pharmaceutical industry. Mostly I deal

with it all one day at a time - one hour at a time when needed and

sometimes even one minute at a time. I call my Rheumy if the meds he's

given me aren't working after an acceptable length of time - the way I

figure it is WE are paying for THEIR services and if we're not happy,

then they need to know, right?

Hope all my babble has helped to answer your question. Hang in there

and keep posting. This group has been a lifeline to me.....Doreen

>

> Hi everyone - I have a dual diagnosis of RA and Fibromyalgia. Does

> anyone else have dual diagnosis such as this and if so how do you

> deal with both?

>

> Take care,

> Kathi

>