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If there is a card being prepared to send to Mrs Harlow I would like to add

Ann and my condolences.

Jordan didn't have to be an Olympian to win Gold medals she has a bucket

full of them for the courage she showed us all.

....

Jordan

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If there is a card being prepared to send to Mrs Harlow I would like to add

Ann and my condolences.

Jordan didn't have to be an Olympian to win Gold medals she has a bucket

full of them for the courage she showed us all.

....

Jordan

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If there is a card being prepared to send to Mrs Harlow I would like to add

Ann and my condolences.

Jordan didn't have to be an Olympian to win Gold medals she has a bucket

full of them for the courage she showed us all.

....

Jordan

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HI Crew,

First, I was sorry to hear about Jordan. I can't find the original posting of

when she passed away. Can someone tell me (you can send me a private note)?

She will be missed as one of the ORIGINAL Crew members.

Thanks,

Ken Arcia - President

ALDA Inc.

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HI Crew,

First, I was sorry to hear about Jordan. I can't find the original posting of

when she passed away. Can someone tell me (you can send me a private note)?

She will be missed as one of the ORIGINAL Crew members.

Thanks,

Ken Arcia - President

ALDA Inc.

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HI Crew,

First, I was sorry to hear about Jordan. I can't find the original posting of

when she passed away. Can someone tell me (you can send me a private note)?

She will be missed as one of the ORIGINAL Crew members.

Thanks,

Ken Arcia - President

ALDA Inc.

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Our tears must be one of joy and peace for now we know that Jordan is

" singin' and flyin'! "

This is very dificult to do as Jordan has a special place in my heart,

this news makes me very very sad.

Jordan brought me to this list many years ago, as she did for many

others. She was very special with her kind words and thoughts, and

she

was one off the people that I longed to meet.

I have a birthday card from her that I'll always treasure.

can hear her " singin " and she her " flyin "

Alan

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Our tears must be one of joy and peace for now we know that Jordan is

" singin' and flyin'! "

This is very dificult to do as Jordan has a special place in my heart,

this news makes me very very sad.

Jordan brought me to this list many years ago, as she did for many

others. She was very special with her kind words and thoughts, and

she

was one off the people that I longed to meet.

I have a birthday card from her that I'll always treasure.

can hear her " singin " and she her " flyin "

Alan

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Our tears must be one of joy and peace for now we know that Jordan is

" singin' and flyin'! "

This is very dificult to do as Jordan has a special place in my heart,

this news makes me very very sad.

Jordan brought me to this list many years ago, as she did for many

others. She was very special with her kind words and thoughts, and

she

was one off the people that I longed to meet.

I have a birthday card from her that I'll always treasure.

can hear her " singin " and she her " flyin "

Alan

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Crew-

I was really sad when I got an email from her mother yesterday. I don"t remember how we first got in touch, but we've been pen pals sice 1993...first by snail mail and then (when I finally got a computer) on email. We were in touch often, and we shared so much. But, as Donna said I don't think people realized the pain she was in, especially at the end it got pretty bad....

We both adored "Party of 5" when it was on and would write eachother every week to discuss what happened. She said we were "Party" buddies. Smile. Later when her sight failed her and she could not watch tv anymore we still kept in touch, but discussed books (which she got in braille) and current events. The last email I got was about a month ago, and she was pretty upbeat. And was starting on a new detective novel...

I will miss her (and her emails) terribly, she had an amazing spirit and I so admired her courage. She taught me alot and will always be one of my heroes!!

Goodbye JD- I love you!

Peace- JJ

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Crew-

I was really sad when I got an email from her mother yesterday. I don"t remember how we first got in touch, but we've been pen pals sice 1993...first by snail mail and then (when I finally got a computer) on email. We were in touch often, and we shared so much. But, as Donna said I don't think people realized the pain she was in, especially at the end it got pretty bad....

We both adored "Party of 5" when it was on and would write eachother every week to discuss what happened. She said we were "Party" buddies. Smile. Later when her sight failed her and she could not watch tv anymore we still kept in touch, but discussed books (which she got in braille) and current events. The last email I got was about a month ago, and she was pretty upbeat. And was starting on a new detective novel...

I will miss her (and her emails) terribly, she had an amazing spirit and I so admired her courage. She taught me alot and will always be one of my heroes!!

Goodbye JD- I love you!

Peace- JJ

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Crew-

I was really sad when I got an email from her mother yesterday. I don"t remember how we first got in touch, but we've been pen pals sice 1993...first by snail mail and then (when I finally got a computer) on email. We were in touch often, and we shared so much. But, as Donna said I don't think people realized the pain she was in, especially at the end it got pretty bad....

We both adored "Party of 5" when it was on and would write eachother every week to discuss what happened. She said we were "Party" buddies. Smile. Later when her sight failed her and she could not watch tv anymore we still kept in touch, but discussed books (which she got in braille) and current events. The last email I got was about a month ago, and she was pretty upbeat. And was starting on a new detective novel...

I will miss her (and her emails) terribly, she had an amazing spirit and I so admired her courage. She taught me alot and will always be one of my heroes!!

Goodbye JD- I love you!

Peace- JJ

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Carla,

Thanks so much for posting the pic of Jordan and her mom. Although i

personally didn't know Jordan. I do remember reading some of her posts here

on Crew. I remember reading many posts about her. She was a special lady.

I'll be praying for her family.

My thanks to other Crew members who have posted about Jordan.

K.

Jordan

> Lynn, Thank you for letting us know about Jordan. Such sad news. She

> was pretty much responsible for starting this Crew, that was before my

> time. She was the one who took care of me when I joined. I remember

> when the mail was getting to be too much for her as her eye site was

> getting worse. I was thrilled to help na out with the list. It's a

> job at times but completely worth it because of all the good we have to

> offer each other. I didn't know Jordan well, but we did exchange some

> emails and I heard from other people she was supportive of me when I was

> having a rough time with some problems here. I am so sorry to hear

> she's gone and hope all of you who knew her more personally will share

> stories with us. I know the Anchor we took on as our mascot was her

> idea, is there more we can do? Is there something we can do for her

> mother?

> I met Jordan just over a year ago in Houston, Tx at the NF Symposium.

> Kim had a get together at her home and we all had a great time

> getting to know each other. Jordan and her mom were there and she

> looked very cute and her spirit was amazing. She was deaf, blind, and

> in her chair but she just showed so much spirit and happiness to be

> there with her friends. People communicated with her by signing and

> finger spelling into her hands. It was amazing, I can't imagine having

> the strength and determination that she had for such a long time. I'm

> happy to say I did get a copy of the book she co wrote. Missy

> Poke A Dot Braille is a children's book she co wrote with her friend.

> It's a bright and colorful book and the main character is Jordan, she

> looked bright and colorful the day we saw her. Many of us got copies of

> the book. It explains being blind, a bit about Braille and has a short

> description of NF2. I wish I'd been able to know her better. I want to

> hear more about her and what we can do to honor her as she was the

> beginning of the Crew and so proud of the way it's grown. I'm going to

> attach a picture of Jordan and her mom taken at our get together at

> Kim's house.

> I'm very proud to be a part of this group, but it's so sad and I'm not

> sure how to deal with all the losses we are given. What can we do?

>

> Carla

> ps, if you are on digest and cannot access the Egroups files section, I

> will be happy to send Jordan's picture to you.

>

>

>

>

>

----------------------------------------------------------------------------

----

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Carla,

Thanks so much for posting the pic of Jordan and her mom. Although i

personally didn't know Jordan. I do remember reading some of her posts here

on Crew. I remember reading many posts about her. She was a special lady.

I'll be praying for her family.

My thanks to other Crew members who have posted about Jordan.

K.

Jordan

> Lynn, Thank you for letting us know about Jordan. Such sad news. She

> was pretty much responsible for starting this Crew, that was before my

> time. She was the one who took care of me when I joined. I remember

> when the mail was getting to be too much for her as her eye site was

> getting worse. I was thrilled to help na out with the list. It's a

> job at times but completely worth it because of all the good we have to

> offer each other. I didn't know Jordan well, but we did exchange some

> emails and I heard from other people she was supportive of me when I was

> having a rough time with some problems here. I am so sorry to hear

> she's gone and hope all of you who knew her more personally will share

> stories with us. I know the Anchor we took on as our mascot was her

> idea, is there more we can do? Is there something we can do for her

> mother?

> I met Jordan just over a year ago in Houston, Tx at the NF Symposium.

> Kim had a get together at her home and we all had a great time

> getting to know each other. Jordan and her mom were there and she

> looked very cute and her spirit was amazing. She was deaf, blind, and

> in her chair but she just showed so much spirit and happiness to be

> there with her friends. People communicated with her by signing and

> finger spelling into her hands. It was amazing, I can't imagine having

> the strength and determination that she had for such a long time. I'm

> happy to say I did get a copy of the book she co wrote. Missy

> Poke A Dot Braille is a children's book she co wrote with her friend.

> It's a bright and colorful book and the main character is Jordan, she

> looked bright and colorful the day we saw her. Many of us got copies of

> the book. It explains being blind, a bit about Braille and has a short

> description of NF2. I wish I'd been able to know her better. I want to

> hear more about her and what we can do to honor her as she was the

> beginning of the Crew and so proud of the way it's grown. I'm going to

> attach a picture of Jordan and her mom taken at our get together at

> Kim's house.

> I'm very proud to be a part of this group, but it's so sad and I'm not

> sure how to deal with all the losses we are given. What can we do?

>

> Carla

> ps, if you are on digest and cannot access the Egroups files section, I

> will be happy to send Jordan's picture to you.

>

>

>

>

>

----------------------------------------------------------------------------

----

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Dear Crew,

I, too, will miss Jordan. I can't believe how many people she kept in touch

with. How active she remained, taking a trip to Maine, reading, writing

books. How she found such joy in the few remaining things she was able to do?

Perhaps that is how we can best pay tribute to Jordan...to also appreciate

the time we have and the abilities we have today.

But it won't be easy. I too will miss the emails between us.

My best wishes to her family

Barbara lin

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--- vjpcook@... wrote:

> Wow! why did I not know of Jordan's passing? When?

> At least she got her

> acknowledgment in the NF newsletter. I, too, wish

> her free-flying. Vicki

>

I never knew Jordan, but had heard of her through the

Crew's posts. Our thoughts and prayers are with her

family, as well as those of you who were friends with

her. If a copy of her book is available, I am

interested in buying one as well.

__________________________________________________

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--- vjpcook@... wrote:

> Wow! why did I not know of Jordan's passing? When?

> At least she got her

> acknowledgment in the NF newsletter. I, too, wish

> her free-flying. Vicki

>

I never knew Jordan, but had heard of her through the

Crew's posts. Our thoughts and prayers are with her

family, as well as those of you who were friends with

her. If a copy of her book is available, I am

interested in buying one as well.

__________________________________________________

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dear Crew -

passing this on to you from Steve ........

hugs, LynnBK

> Dear Lynn,

Please forward this to the Crew. Thanks,

Hug,

Steve

Dear Crew,

For those of you who don't know me, a little background. Jordan Harlow and

I, with nne Schnieder, took the beginning steps to what became the

Crew. That was my first contact with Jordan. After that, we three, with

some later help, took the reins of the Crew to get it going on the right

track. Your numbers are evidence that our fondest wishes for the Crew are

being realized. I am glad Jordan knew about it and wish nne had been

able to see it this far.

Working together with Jordan led to a respect we teasingly called a mutual

fan club. I write today to say goodbye, I find that it is an approach that

eases my grieving.

Jordan,

The world of NF2 seems to often bring out the best in people. I see here,

much more frequently than in everyday walks of life, people who demonstrate

the highest virtues in rare and special combination, humility, caring, in

telligence and wisdom, the understandings of the value of the important

things in life, and the ablity to be genuine and strong. You, as much as

anyone I know, are at the very pinnacle of exemplifying these things. I am

fortunate to have not only worked alongside you to begin the Crew, but even

more, to have had you at the becon of my computer for your advice,

understanding, and profound friendship. I dearly wish we had been able to

cross the 2000 mile chasm to meet in person. I would have liked to give you

a huge hug, and let you know with my expression, sign, and touch how very

much you meant to me. Deep down, I believe you did know that, anyway.

Since you lost visual access to the computer, I have been too negligent in

keeping communication open. That doesn't mean I didn't think of you. Surely

I did. In my mind, I rationalized my quiet by telling myself that you knew

how strongly I respected and cared for you even without contact, since I had

made it clear while we had it.

Cheri Jordan, there will come a day when we WILL meet face to face, hopefully

with full faces each. And I will get my long awaited-hug, and get to rub my

beard against your cheek as we teased one another before. You remain near to

my heart and always will. In some important ways, you're there for good.

See you one day. <sniff>

Love,

Steve

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dear Crew -

passing this on to you from Steve ........

hugs, LynnBK

> Dear Lynn,

Please forward this to the Crew. Thanks,

Hug,

Steve

Dear Crew,

For those of you who don't know me, a little background. Jordan Harlow and

I, with nne Schnieder, took the beginning steps to what became the

Crew. That was my first contact with Jordan. After that, we three, with

some later help, took the reins of the Crew to get it going on the right

track. Your numbers are evidence that our fondest wishes for the Crew are

being realized. I am glad Jordan knew about it and wish nne had been

able to see it this far.

Working together with Jordan led to a respect we teasingly called a mutual

fan club. I write today to say goodbye, I find that it is an approach that

eases my grieving.

Jordan,

The world of NF2 seems to often bring out the best in people. I see here,

much more frequently than in everyday walks of life, people who demonstrate

the highest virtues in rare and special combination, humility, caring, in

telligence and wisdom, the understandings of the value of the important

things in life, and the ablity to be genuine and strong. You, as much as

anyone I know, are at the very pinnacle of exemplifying these things. I am

fortunate to have not only worked alongside you to begin the Crew, but even

more, to have had you at the becon of my computer for your advice,

understanding, and profound friendship. I dearly wish we had been able to

cross the 2000 mile chasm to meet in person. I would have liked to give you

a huge hug, and let you know with my expression, sign, and touch how very

much you meant to me. Deep down, I believe you did know that, anyway.

Since you lost visual access to the computer, I have been too negligent in

keeping communication open. That doesn't mean I didn't think of you. Surely

I did. In my mind, I rationalized my quiet by telling myself that you knew

how strongly I respected and cared for you even without contact, since I had

made it clear while we had it.

Cheri Jordan, there will come a day when we WILL meet face to face, hopefully

with full faces each. And I will get my long awaited-hug, and get to rub my

beard against your cheek as we teased one another before. You remain near to

my heart and always will. In some important ways, you're there for good.

See you one day. <sniff>

Love,

Steve

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