re: NF2 house location

[Guest guest]

Greg...I agree with you. I was one throwing in the suggestion for a "mcdonald"

house and after reading your mail, why not a permenant residence for some,

but make it a re-treat for others that need a break, spiritual alonenessss

etc. Sometimes we just need a break from it all!! ANYBODY WRITTEN TO OPRAH

ABOUT DOING A SHOW ON NF....I will if no one else has!!!!! Maybe a start

for funding???????????????????

Greg wrote:

I’ve been reading

the suggestions for the nf2 house and we’ve come to the conclusion that

it’s going to be "one" house. Some say in comparison to a Mc

House, but do we have that many NF2’ers that will live together under one

roof from all regions of United States and possibly beyond? Mc’s

Houses are for family members of seriously ill children, it’s not a permanent

residency like what we’re talking about. Someone mentioned early about

funding, and that’s why these Mc Houses are very well put

together, because of the obvious funding. That’s how the NF2 house should

be built. Something else comes to mind and that’s, "why have one house?"

Why one location? How many of us want to relocate? To change doctors? Why

not have more than one house? Have and North, South, East and West NF2

House locations or regions. We could probably build something like this

if we get the support and funding. I think we have to put together questions

and ask ourselves, why do we want this house? If we had to put together

a proposal, what would be in it! What’s the real goal or purpose for wanting

this house, then send it out to every single NF2’er we can track down,

and get some feedback. Find out what they’d like to have in an NF2 house

or what they would want from it. You can’t buy any old place bc you’ll

need to have certain accommodations to support the accessibility of our

needs, i.e. like wheelchairs, etc. I think an NF2 house would be a great

idea. I think it would be the perfect refuge or extended living environment,

however we decide to set it up, and it’s a great way to support each other

in times physical and emotional need. Just my thoughts--

Greg You know we all like the idea of

a house, but do you really think we could ever agree on a site? And if

we did, how many of you would REALLY go to live there? Now be honest;

think if you have future surgery ahead, and your family will not be there

to care for you, etc. --would you really relocate? The devil's

advocate, marie

-----Original

Message-----

To: NF2_Crewegroups

<NF2_Crewegroups>

Date: Tuesday, September 19,

2000 10:04 PM

Subject: Re: re:

NF2 house location

Crew: What does this say? Found it on my email format.

I love the house idea!!!!! Keep on planning. I live in Missouri

and want to go to the ocean or gulf. But I am open to lots of good

areas. (Mountains)

Sue

>

>At 05:36 PM 9/18/00 -0400, you wrote:

> >You know NF Inc recently asked me to do a vision statement, and

pretend

> >money was not an object. I am going to ask them if I can do an addendum,

> >and suggest the "NF2 house!;; Not that I think they are going to

jump on

> >this, but it lets people know we are thinking of it! My question

is, are we

> >thinking of this as a residential place where people live like all

year? Do

> >you think people would be willing to relocate/leave their families/support

> >groups? I am just asking. I think Lynn had very good points in saying

we

> >need to consider the accessability of the area. Someplace flat,

with

> >relatively mild winters would probably be better? As far as near

an NF2

> >center, I think of MGH and HEI first; the winters would be rugged

at MGH.

> >And you could offer me free rent and I would not stay in LA!! But

I wonder

> >how close to HEI it would have to be? Just brainstorming. marie

> > re: NF2 house location

> >

> >

> > >hi Crew -

> > >i think the idea of an NF2 House is great - specially for singles.

> > >do bear in mind that places like SanFrancisco are not easy to

get around in

> > >in wheelchairs or walking on slopes, good weather is important

to many

> >also

> > >for driving or walking or buses,

> > >suggest you do a survey who is interested - what would you need

> >etc......

> > >what help needed, it would be nice to appeal to independent souls

too.

> > >wish you well.

> > >hugs,

> > >LynnBK

> > >

> > >

> > >

> > >

>

>

>

>

>

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Share information about yourself, create your own public profile at

http://profiles.msn.com .

[Guest guest]

Greg...I agree with you. I was one throwing in the suggestion for a "mcdonald"

house and after reading your mail, why not a permenant residence for some,

but make it a re-treat for others that need a break, spiritual alonenessss

etc. Sometimes we just need a break from it all!! ANYBODY WRITTEN TO OPRAH

ABOUT DOING A SHOW ON NF....I will if no one else has!!!!! Maybe a start

for funding???????????????????

Greg wrote:

I’ve been reading

the suggestions for the nf2 house and we’ve come to the conclusion that

it’s going to be "one" house. Some say in comparison to a Mc

House, but do we have that many NF2’ers that will live together under one

roof from all regions of United States and possibly beyond? Mc’s

Houses are for family members of seriously ill children, it’s not a permanent

residency like what we’re talking about. Someone mentioned early about

funding, and that’s why these Mc Houses are very well put

together, because of the obvious funding. That’s how the NF2 house should

be built. Something else comes to mind and that’s, "why have one house?"

Why one location? How many of us want to relocate? To change doctors? Why

not have more than one house? Have and North, South, East and West NF2

House locations or regions. We could probably build something like this

if we get the support and funding. I think we have to put together questions

and ask ourselves, why do we want this house? If we had to put together

a proposal, what would be in it! What’s the real goal or purpose for wanting

this house, then send it out to every single NF2’er we can track down,

and get some feedback. Find out what they’d like to have in an NF2 house

or what they would want from it. You can’t buy any old place bc you’ll

need to have certain accommodations to support the accessibility of our

needs, i.e. like wheelchairs, etc. I think an NF2 house would be a great

idea. I think it would be the perfect refuge or extended living environment,

however we decide to set it up, and it’s a great way to support each other

in times physical and emotional need. Just my thoughts--

Greg You know we all like the idea of

a house, but do you really think we could ever agree on a site? And if

we did, how many of you would REALLY go to live there? Now be honest;

think if you have future surgery ahead, and your family will not be there

to care for you, etc. --would you really relocate? The devil's

advocate, marie

-----Original

Message-----

To: NF2_Crewegroups

<NF2_Crewegroups>

Date: Tuesday, September 19,

2000 10:04 PM

Subject: Re: re:

NF2 house location

Crew: What does this say? Found it on my email format.

I love the house idea!!!!! Keep on planning. I live in Missouri

and want to go to the ocean or gulf. But I am open to lots of good

areas. (Mountains)

Sue

>

>At 05:36 PM 9/18/00 -0400, you wrote:

> >You know NF Inc recently asked me to do a vision statement, and

pretend

> >money was not an object. I am going to ask them if I can do an addendum,

> >and suggest the "NF2 house!;; Not that I think they are going to

jump on

> >this, but it lets people know we are thinking of it! My question

is, are we

> >thinking of this as a residential place where people live like all

year? Do

> >you think people would be willing to relocate/leave their families/support

> >groups? I am just asking. I think Lynn had very good points in saying

we

> >need to consider the accessability of the area. Someplace flat,

with

> >relatively mild winters would probably be better? As far as near

an NF2

> >center, I think of MGH and HEI first; the winters would be rugged

at MGH.

> >And you could offer me free rent and I would not stay in LA!! But

I wonder

> >how close to HEI it would have to be? Just brainstorming. marie

> > re: NF2 house location

> >

> >

> > >hi Crew -

> > >i think the idea of an NF2 House is great - specially for singles.

> > >do bear in mind that places like SanFrancisco are not easy to

get around in

> > >in wheelchairs or walking on slopes, good weather is important

to many

> >also

> > >for driving or walking or buses,

> > >suggest you do a survey who is interested - what would you need

> >etc......

> > >what help needed, it would be nice to appeal to independent souls

too.

> > >wish you well.

> > >hugs,

> > >LynnBK

> > >

> > >

> > >

> > >

>

>

>

>

>

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

http://profiles.msn.com .

[Guest guest]

Greg...I agree with you. I was one throwing in the suggestion for a "mcdonald"

house and after reading your mail, why not a permenant residence for some,

but make it a re-treat for others that need a break, spiritual alonenessss

etc. Sometimes we just need a break from it all!! ANYBODY WRITTEN TO OPRAH

ABOUT DOING A SHOW ON NF....I will if no one else has!!!!! Maybe a start

for funding???????????????????

Greg wrote:

I’ve been reading

the suggestions for the nf2 house and we’ve come to the conclusion that

it’s going to be "one" house. Some say in comparison to a Mc

House, but do we have that many NF2’ers that will live together under one

roof from all regions of United States and possibly beyond? Mc’s

Houses are for family members of seriously ill children, it’s not a permanent

residency like what we’re talking about. Someone mentioned early about

funding, and that’s why these Mc Houses are very well put

together, because of the obvious funding. That’s how the NF2 house should

be built. Something else comes to mind and that’s, "why have one house?"

Why one location? How many of us want to relocate? To change doctors? Why

not have more than one house? Have and North, South, East and West NF2

House locations or regions. We could probably build something like this

if we get the support and funding. I think we have to put together questions

and ask ourselves, why do we want this house? If we had to put together

a proposal, what would be in it! What’s the real goal or purpose for wanting

this house, then send it out to every single NF2’er we can track down,

and get some feedback. Find out what they’d like to have in an NF2 house

or what they would want from it. You can’t buy any old place bc you’ll

need to have certain accommodations to support the accessibility of our

needs, i.e. like wheelchairs, etc. I think an NF2 house would be a great

idea. I think it would be the perfect refuge or extended living environment,

however we decide to set it up, and it’s a great way to support each other

in times physical and emotional need. Just my thoughts--

Greg You know we all like the idea of

a house, but do you really think we could ever agree on a site? And if

we did, how many of you would REALLY go to live there? Now be honest;

think if you have future surgery ahead, and your family will not be there

to care for you, etc. --would you really relocate? The devil's

advocate, marie

-----Original

Message-----

To: NF2_Crewegroups

<NF2_Crewegroups>

Date: Tuesday, September 19,

2000 10:04 PM

Subject: Re: re:

NF2 house location

Crew: What does this say? Found it on my email format.

I love the house idea!!!!! Keep on planning. I live in Missouri

and want to go to the ocean or gulf. But I am open to lots of good

areas. (Mountains)

Sue

>

>At 05:36 PM 9/18/00 -0400, you wrote:

> >You know NF Inc recently asked me to do a vision statement, and

pretend

> >money was not an object. I am going to ask them if I can do an addendum,

> >and suggest the "NF2 house!;; Not that I think they are going to

jump on

> >this, but it lets people know we are thinking of it! My question

is, are we

> >thinking of this as a residential place where people live like all

year? Do

> >you think people would be willing to relocate/leave their families/support

> >groups? I am just asking. I think Lynn had very good points in saying

we

> >need to consider the accessability of the area. Someplace flat,

with

> >relatively mild winters would probably be better? As far as near

an NF2

> >center, I think of MGH and HEI first; the winters would be rugged

at MGH.

> >And you could offer me free rent and I would not stay in LA!! But

I wonder

> >how close to HEI it would have to be? Just brainstorming. marie

> > re: NF2 house location

> >

> >

> > >hi Crew -

> > >i think the idea of an NF2 House is great - specially for singles.

> > >do bear in mind that places like SanFrancisco are not easy to

get around in

> > >in wheelchairs or walking on slopes, good weather is important

to many

> >also

> > >for driving or walking or buses,

> > >suggest you do a survey who is interested - what would you need

> >etc......

> > >what help needed, it would be nice to appeal to independent souls

too.

> > >wish you well.

> > >hugs,

> > >LynnBK

> > >

> > >

> > >

> > >

>

>

>

>

>

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

http://profiles.msn.com .

[Guest guest]

I do think Gillian is a spokesperson for NF2, who is connected with NF INC. Who knows, maybe Oprah would love to have her on her show.

Greg...I agree with you. I was one throwing in the suggestion for a "mcdonald" house and after reading your mail, why not a permenant residence for some, but make it a re-treat for others that need a break, spiritual alonenessss etc. Sometimes we just need a break from it all!! ANYBODY WRITTEN TO OPRAH ABOUT DOING A SHOW ON NF....I will if no one else has!!!!! Maybe a start for funding??????????????????? Greg wrote:

I’ve been reading the suggestions for the nf2 house and we’ve come to the conclusion that it’s going to be "one" house. Some say in comparison to a Mc House, but do we have that many NF2’ers that will live together under one roof from all regions of United States and possibly beyond? Mc’s Houses are for family members of seriously ill children, it’s not a permanent residency like what we’re talking about. Someone mentioned early about funding, and that’s why these Mc Houses are very well put together, because of the obvious funding. That’s how the NF2 house should be built. Something else comes to mind and that’s, "why have one house?" Why one location? How many of us want to relocate? To change doctors? Why not have more than one house? Have and North, South, East and West NF2 House locations or regions. We could probably build something like this if we get the support and funding. I think we have to put together questions and ask ourselves, why do we want this house? If we had to put together a proposal, what would be in it! What’s the real goal or purpose for wanting this house, then send it out to every single NF2’er we can track down, and get some feedback. Find out what they’d like to have in an NF2 house or what they would want from it. You can’t buy any old place bc you’ll need to have certain accommodations to support the accessibility of our needs, i.e. like wheelchairs, etc. I think an NF2 house would be a great idea. I think it would be the perfect refuge or extended living environment, however we decide to set it up, and it’s a great way to support each other in times physical and emotional need. Just my thoughts-- Greg You know we all like the idea of a house, but do you really think we could ever agree on a site? And if we did, how many of you would REALLY go to live there? Now be honest; think if you have future surgery ahead, and your family will not be there to care for you, etc. --would you really relocate? The devil's advocate, marie re: NF2 house location > > > > > > >hi Crew - > > >i think the idea of an NF2 House is great - specially for singles. > > >do bear in mind that places like SanFrancisco are not easy to get around in > > >in wheelchairs or walking on slopes, good weather is important to many > >also > > >for driving or walking or buses, > > >suggest you do a survey who is interested - what would you need > >etc...... > > >what help needed, it would be nice to appeal to independent souls too. > > >wish you well. > > >hugs, > > >LynnBK > > > > > > > > > > > > > > > > >

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com .

[Guest guest]

I do think Gillian is a spokesperson for NF2, who is connected with NF INC. Who knows, maybe Oprah would love to have her on her show.

Greg...I agree with you. I was one throwing in the suggestion for a "mcdonald" house and after reading your mail, why not a permenant residence for some, but make it a re-treat for others that need a break, spiritual alonenessss etc. Sometimes we just need a break from it all!! ANYBODY WRITTEN TO OPRAH ABOUT DOING A SHOW ON NF....I will if no one else has!!!!! Maybe a start for funding??????????????????? Greg wrote:

I’ve been reading the suggestions for the nf2 house and we’ve come to the conclusion that it’s going to be "one" house. Some say in comparison to a Mc House, but do we have that many NF2’ers that will live together under one roof from all regions of United States and possibly beyond? Mc’s Houses are for family members of seriously ill children, it’s not a permanent residency like what we’re talking about. Someone mentioned early about funding, and that’s why these Mc Houses are very well put together, because of the obvious funding. That’s how the NF2 house should be built. Something else comes to mind and that’s, "why have one house?" Why one location? How many of us want to relocate? To change doctors? Why not have more than one house? Have and North, South, East and West NF2 House locations or regions. We could probably build something like this if we get the support and funding. I think we have to put together questions and ask ourselves, why do we want this house? If we had to put together a proposal, what would be in it! What’s the real goal or purpose for wanting this house, then send it out to every single NF2’er we can track down, and get some feedback. Find out what they’d like to have in an NF2 house or what they would want from it. You can’t buy any old place bc you’ll need to have certain accommodations to support the accessibility of our needs, i.e. like wheelchairs, etc. I think an NF2 house would be a great idea. I think it would be the perfect refuge or extended living environment, however we decide to set it up, and it’s a great way to support each other in times physical and emotional need. Just my thoughts-- Greg You know we all like the idea of a house, but do you really think we could ever agree on a site? And if we did, how many of you would REALLY go to live there? Now be honest; think if you have future surgery ahead, and your family will not be there to care for you, etc. --would you really relocate? The devil's advocate, marie re: NF2 house location > > > > > > >hi Crew - > > >i think the idea of an NF2 House is great - specially for singles. > > >do bear in mind that places like SanFrancisco are not easy to get around in > > >in wheelchairs or walking on slopes, good weather is important to many > >also > > >for driving or walking or buses, > > >suggest you do a survey who is interested - what would you need > >etc...... > > >what help needed, it would be nice to appeal to independent souls too. > > >wish you well. > > >hugs, > > >LynnBK > > > > > > > > > > > > > > > > >

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[Guest guest]

I agree that several would be ideal, but do you think we can find that many NF2ers that are interested in a permanent living arrangement? marie

re: NF2 house location > > > > > > >hi Crew - > > >i think the idea of an NF2 House is great - specially for singles. > > >do bear in mind that places like SanFrancisco are not easy to get around in > > >in wheelchairs or walking on slopes, good weather is important to many > >also > > >for driving or walking or buses, > > >suggest you do a survey who is interested - what would you need > >etc...... > > >what help needed, it would be nice to appeal to independent souls too. > > >wish you well. > > >hugs, > > >LynnBK > > > > > > > > > > > > > > > > >

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[Guest guest]

I agree that several would be ideal, but do you think we can find that many NF2ers that are interested in a permanent living arrangement? marie

re: NF2 house location > > > > > > >hi Crew - > > >i think the idea of an NF2 House is great - specially for singles. > > >do bear in mind that places like SanFrancisco are not easy to get around in > > >in wheelchairs or walking on slopes, good weather is important to many > >also > > >for driving or walking or buses, > > >suggest you do a survey who is interested - what would you need > >etc...... > > >what help needed, it would be nice to appeal to independent souls too. > > >wish you well. > > >hugs, > > >LynnBK > > > > > > > > > > > > > > > > >

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[Guest guest]

I agree that several would be ideal, but do you think we can find that many NF2ers that are interested in a permanent living arrangement? marie

re: NF2 house location > > > > > > >hi Crew - > > >i think the idea of an NF2 House is great - specially for singles. > > >do bear in mind that places like SanFrancisco are not easy to get around in > > >in wheelchairs or walking on slopes, good weather is important to many > >also > > >for driving or walking or buses, > > >suggest you do a survey who is interested - what would you need > >etc...... > > >what help needed, it would be nice to appeal to independent souls too. > > >wish you well. > > >hugs, > > >LynnBK > > > > > > > > > > > > > > > > >

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[Guest guest]

My bags are packed, Marie.

My mom and I were talking the other day about it, she thinks it's a great idea! My feeling is that the best thing to do to start is just start small on an idea, it can be overwhelming to get "the future" all lined up before we even know what it will be, you know? 's idea was what and I were thinking about too, just a big ol' house at first, then see how it goes. A test group I guess you can say. A bunch of us sharing a big house, then I forgot who mentioned it, but it can also be a place for people to stay if they need a place while they have surgery, OR just need to plain ol' get away to "where everybody knows your name".)

When I lived in So. Cal. I found it to be very expensive living on my own, so I'd rent a nice big two bedroom apartment, and then take in a renter. They'd pay 1/2 the utilities, 1/2 the rent, and I could then manage just fine. If we do not get someone to help fund this right away (I don't expect it to be free lodging ...do many of us have that now anyway?), if 5 or 6 share, then 5 or 6 split the expenses. I think a nice place can be rented to start off, even bought eventually too. Then like Greg said, perhaps this can start sprouting up in other states near NF clinics, expanding to larger places, but we have to start "one" first.

I vote for Florida for the first "test" group... and I have no problem at all moving out there either. First, I need to take care of some medical things I've already started out here (Ugh!), but please save me a place, because I'll definitely move if we decide to do this.

Jennette

----- Original Message ----- From: Marie Drew

I agree that several would be ideal, but do you think we can find that many NF2ers that are interested in a permanent living arrangement? marie

[Guest guest]

My bags are packed, Marie.

My mom and I were talking the other day about it, she thinks it's a great idea! My feeling is that the best thing to do to start is just start small on an idea, it can be overwhelming to get "the future" all lined up before we even know what it will be, you know? 's idea was what and I were thinking about too, just a big ol' house at first, then see how it goes. A test group I guess you can say. A bunch of us sharing a big house, then I forgot who mentioned it, but it can also be a place for people to stay if they need a place while they have surgery, OR just need to plain ol' get away to "where everybody knows your name".)

When I lived in So. Cal. I found it to be very expensive living on my own, so I'd rent a nice big two bedroom apartment, and then take in a renter. They'd pay 1/2 the utilities, 1/2 the rent, and I could then manage just fine. If we do not get someone to help fund this right away (I don't expect it to be free lodging ...do many of us have that now anyway?), if 5 or 6 share, then 5 or 6 split the expenses. I think a nice place can be rented to start off, even bought eventually too. Then like Greg said, perhaps this can start sprouting up in other states near NF clinics, expanding to larger places, but we have to start "one" first.

I vote for Florida for the first "test" group... and I have no problem at all moving out there either. First, I need to take care of some medical things I've already started out here (Ugh!), but please save me a place, because I'll definitely move if we decide to do this.

Jennette

----- Original Message ----- From: Marie Drew

I agree that several would be ideal, but do you think we can find that many NF2ers that are interested in a permanent living arrangement? marie

[Guest guest]

Gillian has a brother who has NF1, but she is spokeperson for NF Inc. marie

re: NF2 house location > > > > > > >hi Crew - > > >i think the idea of an NF2 House is great - specially for singles. > > >do bear in mind that places like SanFrancisco are not easy to get around in > > >in wheelchairs or walking on slopes, good weather is important to many > >also > > >for driving or walking or buses, > > >suggest you do a survey who is interested - what would you need > >etc...... > > >what help needed, it would be nice to appeal to independent souls too. > > >wish you well. > > >hugs, > > >LynnBK > > > > > > > > > > > > > > > > >

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[Guest guest]

Gillian has a brother who has NF1, but she is spokeperson for NF Inc. marie

re: NF2 house location > > > > > > >hi Crew - > > >i think the idea of an NF2 House is great - specially for singles. > > >do bear in mind that places like SanFrancisco are not easy to get around in > > >in wheelchairs or walking on slopes, good weather is important to many > >also > > >for driving or walking or buses, > > >suggest you do a survey who is interested - what would you need > >etc...... > > >what help needed, it would be nice to appeal to independent souls too. > > >wish you well. > > >hugs, > > >LynnBK > > > > > > > > > > > > > > > > >

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[Guest guest]

Gillian has a brother who has NF1, but she is spokeperson for NF Inc. marie

re: NF2 house location > > > > > > >hi Crew - > > >i think the idea of an NF2 House is great - specially for singles. > > >do bear in mind that places like SanFrancisco are not easy to get around in > > >in wheelchairs or walking on slopes, good weather is important to many > >also > > >for driving or walking or buses, > > >suggest you do a survey who is interested - what would you need > >etc...... > > >what help needed, it would be nice to appeal to independent souls too. > > >wish you well. > > >hugs, > > >LynnBK > > > > > > > > > > > > > > > > >

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[Guest guest]

True, but as someone mentioned, it could serve two purposes. One, as a place for extended living for those that want to be with other nf2'ers bc they need support of others and two, as a place for those recouping from surgeries that also need assistance for daily living things. After that, it all gets very complex to actually make something like this work. The NF2 house could have a theme that's very flexible to meet various needs. NF2 is unique, why shouldn't the "house" be that way too. Heck, it could be a combination of things. A place for families to stay, while someone with NF2 is in the hospital, which is what the idea behind the Mc House, then a division of two types of living areas. The first could be a place for those who are able to live without assistance, or "independent living" and the second, a place for those to live that are recouping from surgery or that would require an assisted living arrangement. IT would be like a nursing home type of thing. It's stretching it a bit, but it's just an idea of how you could accommodate for the various needs of different NF2'ers. But to really find out what you need, you have to ask as many people with NF2 that you can locate. Just another thought.

Greg

I agree that several would be ideal, but do you think we can find that many NF2ers that are interested in a permanent living arrangement? marie

re: NF2 house location > > > > > > >hi Crew - > > >i think the idea of an NF2 House is great - specially for singles. > > >do bear in mind that places like SanFrancisco are not easy to get around in > > >in wheelchairs or walking on slopes, good weather is important to many > >also > > >for driving or walking or buses, > > >suggest you do a survey who is interested - what would you need > >etc...... > > >what help needed, it would be nice to appeal to independent souls too. > > >wish you well. > > >hugs, > > >LynnBK > > > > > > > > > > > > > > > > >

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[Guest guest]

True, but as someone mentioned, it could serve two purposes. One, as a place for extended living for those that want to be with other nf2'ers bc they need support of others and two, as a place for those recouping from surgeries that also need assistance for daily living things. After that, it all gets very complex to actually make something like this work. The NF2 house could have a theme that's very flexible to meet various needs. NF2 is unique, why shouldn't the "house" be that way too. Heck, it could be a combination of things. A place for families to stay, while someone with NF2 is in the hospital, which is what the idea behind the Mc House, then a division of two types of living areas. The first could be a place for those who are able to live without assistance, or "independent living" and the second, a place for those to live that are recouping from surgery or that would require an assisted living arrangement. IT would be like a nursing home type of thing. It's stretching it a bit, but it's just an idea of how you could accommodate for the various needs of different NF2'ers. But to really find out what you need, you have to ask as many people with NF2 that you can locate. Just another thought.

Greg

I agree that several would be ideal, but do you think we can find that many NF2ers that are interested in a permanent living arrangement? marie

re: NF2 house location > > > > > > >hi Crew - > > >i think the idea of an NF2 House is great - specially for singles. > > >do bear in mind that places like SanFrancisco are not easy to get around in > > >in wheelchairs or walking on slopes, good weather is important to many > >also > > >for driving or walking or buses, > > >suggest you do a survey who is interested - what would you need > >etc...... > > >what help needed, it would be nice to appeal to independent souls too. > > >wish you well. > > >hugs, > > >LynnBK > > > > > > > > > > > > > > > > >

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[Guest guest]

Hi,

I am just catching up on e-mails after 10 days. Greg sounds like he has a

great idea---regional houses which would not uproot people so drastically.

There is so much interest that I hope you will persevere and see this trough.

Good luck. Vicki

[Guest guest]

Hi,

I am just catching up on e-mails after 10 days. Greg sounds like he has a

great idea---regional houses which would not uproot people so drastically.

There is so much interest that I hope you will persevere and see this trough.

Good luck. Vicki

[Guest guest]

Hi,

I am just catching up on e-mails after 10 days. Greg sounds like he has a

great idea---regional houses which would not uproot people so drastically.

There is so much interest that I hope you will persevere and see this trough.

Good luck. Vicki