Guest guest Posted September 14, 2000 Report Share Posted September 14, 2000 In a message dated 9/14/00 3:31:07 PM Eastern Daylight Time, cinnyd@... writes: << What does sex and nf2 have to do together, are you serious Mikey? >> genetically screwed (nf2) (sex) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2000 Report Share Posted September 14, 2000 Mark, Marie, and all Crewbies, What a great title for a conference: No closure exists for NF2 patients who must endure constant health challenges, surgery, and often debilitating side effects. It is grieving of the magnitude that few understand. I'll look forward to the outcome of that conference. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2000 Report Share Posted October 15, 2000 Oh thanks, I met , will be glad to see her again!! As a matter of fact we discussed how I could keep from confusing her with you!! Marie Re: ALDA Con > Schneiderwill be there, she's not on crew but is a formercrewbie from >ohio. > >Marie Drew wrote: > >> Well folks, I have been working to get an NF Inc sponsored Hospitality >> Suite. Supposedly it is a done deal, but I have not received the name of >> the room or the location yet. We are hoping to have it open the mornings of >> Thursday, Friday and Saturday; we will have coffee/juice/tea available, with >> donuts, etc. for a continental breakfast. It should be open about 7:30 am> >> It will be open in the evenings Thursday, Friday with snacks and soft drinks >> available. At least this is the game plan, again I have not yet received >> confirmation. On Saturday at 5, we will have our pizza party, allowing >> plenty of time for people to join in and then go to the Karoke. >> If I get word soon, I will post it, otherwise look for signs!! These are >> the folks that I know are coming for sure: >> Ruth and Ken Brack >> Marie Drew >> Meri Garst >> ie Lange >> Green >> Nick Hutto >> Tev Dorfman >> Barbara and >> >> Possibles, but no confirmed: >> Jeanette Brattan and Greg >> na and Brad >> Jim Heath and Bonnie were coming, but I doubt it now with his surgery, but >> then you never know about Jim!! >> >> Anyone I forgot?? >> Marie >> Marie Drew > > > > > Quote Link to comment Share on other sites More sharing options...
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