Doctor visit

January 12, 2006

In a message dated 1/12/2006 2:05:13 PM Eastern Standard Time, andracristina007@... writes:

Hi .

We talked with the doctor about craniosynostosis and the doctor told

us that Matt doesn't have it..he always checked out his fontanel.

Is the cat scan absolutly neccessary?

Andra

In my opinion yes. Not everyone will have the same view. I believe there is no way to be certain unless you have a catscan. I went to a neurosurgeon and he told me my sons head was fine. @@ I could have ripped that mans head off lol. I gave him a cd of the catscan and he wouldnt even look at it. He opened one file and that was it. I was in shock. In the catscan you can see my sons head is lop sided and his cheek is bigger, the eye ball is actually bigger and his ear is but you cant see it in the catscan. He said my son needs nothing. I hate neurosurgeons now lol. I will stay with my plastic surgeon from now on.

U'U'U'U'U'U'U

believe in the power of prayer

__

\.| |./

`.__\| |/__.'

---|__|....|__|---

..'..||__||..`.

/|| |.\

| |

|__|

.....-"`' `"`'`` `"-.jmc

praying for

U'U'U'U'U'U'U

cappskids.org

January 12, 2006

In a message dated 1/12/2006 2:16:29 PM Eastern Standard Time, mommy2Antnalex@... writes:

In my opinion yes. Not everyone will have the same view. I believe there is no way to be certain unless you have a catscan.

Oh have something to add to my email. When I went to hanger I met a lady there. Her baby was diagonised with plagio. They told her that her daughters sutures where fine. I am not sure if she got a catscan or not. Anyways she was mis diagonised. The little girl is 15 months and recently went thrugh surgery for cranio because of being in the helmet therapy first they said her daughter's head will never be "perfect". She was a very angry person. Not at me but angry with what her daughter has been through. I gave her my email address so hopefully she will email me. When she does I will ask if anyone wants to read her story. I am not going to post her story to everyone cause I dont want to scare people with it. It believe this is a very rare thing tho. THis is the only person I have talked to that has had this problem. I dont mean to scare people with this either but this is one reason I believe baby's should have catscans with 3-d reconstruction done.

U'U'U'U'U'U'U

believe in the power of prayer

__

\.| |./

`.__\| |/__.'

---|__|....|__|---

..'..||__||..`.

/|| |.\

| |

|__|

.....-"`' `"`'`` `"-.jmc

praying for

U'U'U'U'U'U'U

cappskids.org

January 12, 2006

In a message dated 1/12/2006 2:16:29 PM Eastern Standard Time, mommy2Antnalex@... writes:

In my opinion yes. Not everyone will have the same view. I believe there is no way to be certain unless you have a catscan.

Oh have something to add to my email. When I went to hanger I met a lady there. Her baby was diagonised with plagio. They told her that her daughters sutures where fine. I am not sure if she got a catscan or not. Anyways she was mis diagonised. The little girl is 15 months and recently went thrugh surgery for cranio because of being in the helmet therapy first they said her daughter's head will never be "perfect". She was a very angry person. Not at me but angry with what her daughter has been through. I gave her my email address so hopefully she will email me. When she does I will ask if anyone wants to read her story. I am not going to post her story to everyone cause I dont want to scare people with it. It believe this is a very rare thing tho. THis is the only person I have talked to that has had this problem. I dont mean to scare people with this either but this is one reason I believe baby's should have catscans with 3-d reconstruction done.

U'U'U'U'U'U'U

believe in the power of prayer

__

\.| |./

`.__\| |/__.'

---|__|....|__|---

..'..||__||..`.

/|| |.\

| |

|__|

.....-"`' `"`'`` `"-.jmc

praying for

U'U'U'U'U'U'U

cappskids.org

January 12, 2006

In a message dated 1/12/2006 2:52:42 PM Eastern Standard Time, taime@... writes:

Hi Andra,

The difference between a helmet and a band is that helmet is passive

and a band is active. Passive helmets sit on the baby's head and

evenutally the head will grow into the shape of the helmet, round.

They rely totally on growth, so they're good for very young infants.

Active bands like the DOC and STAR redirect the growth of the head

through gentle pressure not felt by the baby. They are good for young

infants and older babies.

Hope that helps.

Thanks! I didnt understand this!

U'U'U'U'U'U'U

believe in the power of prayer

__

\.| |./

`.__\| |/__.'

---|__|....|__|---

..'..||__||..`.

/|| |.\

| |

|__|

.....-"`' `"`'`` `"-.jmc

praying for

U'U'U'U'U'U'U

cappskids.org

January 12, 2006

In a message dated 1/12/2006 2:52:42 PM Eastern Standard Time, taime@... writes:

Hi Andra,

The difference between a helmet and a band is that helmet is passive

and a band is active. Passive helmets sit on the baby's head and

evenutally the head will grow into the shape of the helmet, round.

They rely totally on growth, so they're good for very young infants.

Active bands like the DOC and STAR redirect the growth of the head

through gentle pressure not felt by the baby. They are good for young

infants and older babies.

Hope that helps.

Thanks! I didnt understand this!

U'U'U'U'U'U'U

believe in the power of prayer

__

\.| |./

`.__\| |/__.'

---|__|....|__|---

..'..||__||..`.

/|| |.\

| |

|__|

.....-"`' `"`'`` `"-.jmc

praying for

U'U'U'U'U'U'U

cappskids.org

January 12, 2006

Hi .

We talked with the doctor about craniosynostosis and the doctor told

us that Matt doesn't have it..he always checked out his fontanel.

Is the cat scan absolutly neccessary?

Andra

>

> In a message dated 1/12/2006 2:40:37 AM Eastern Standard Time,

> andracristina007@y... writes:

>

> >

> > Hi everyone.

> > Today we had a doctor appt. for Matt. His doctor told us that

it's

> > possible to outgrow the flatness but he will talk with a

specialist

> > about using a helmet for Matt and he will give us a call.

> > What helmet is the best? How can you choose one? How can you

know

> > which helmet fits for your baby? What is the next step??

>

> First step is getting a catscan. Make sure that is the probelm.

Then would be

> talking to a plastic surgeon have him give you his opinion tthen

get the

> helmet..

>

> I started out with craniosynostosis so I might have a few

different views

> then everyone else = )

>

> U'U'U'U'U'U'U

>

> believe in the power of prayer

> __

> \.| |./

> `.__\| |/__.'

> ---|__|....|__|---

> .'..||__||..`.

> /|| |.\

> | |

> |__|<FONT COLOR= " #ffffff " BACK= " #ffffff " style= " BACKGROUND-COLOR:

#ffffff " SIZE=1 PTSIZE=8 FAMILY= " FIXE

> ....- " `' ` " `'`` ` " -.jmc

> praying for

> U'U'U'U'U'U'U

>

> cappskids.org

>

January 12, 2006

Hi .

We talked with the doctor about craniosynostosis and the doctor told

us that Matt doesn't have it..he always checked out his fontanel.

Is the cat scan absolutly neccessary?

Andra

>

> In a message dated 1/12/2006 2:40:37 AM Eastern Standard Time,

> andracristina007@y... writes:

>

> >

> > Hi everyone.

> > Today we had a doctor appt. for Matt. His doctor told us that

it's

> > possible to outgrow the flatness but he will talk with a

specialist

> > about using a helmet for Matt and he will give us a call.

> > What helmet is the best? How can you choose one? How can you

know

> > which helmet fits for your baby? What is the next step??

>

> First step is getting a catscan. Make sure that is the probelm.

Then would be

> talking to a plastic surgeon have him give you his opinion tthen

get the

> helmet..

>

> I started out with craniosynostosis so I might have a few

different views

> then everyone else = )

>

> U'U'U'U'U'U'U

>

> believe in the power of prayer

> __

> \.| |./

> `.__\| |/__.'

> ---|__|....|__|---

> .'..||__||..`.

> /|| |.\

> | |

> |__|<FONT COLOR= " #ffffff " BACK= " #ffffff " style= " BACKGROUND-COLOR:

#ffffff " SIZE=1 PTSIZE=8 FAMILY= " FIXE

> ....- " `' ` " `'`` ` " -.jmc

> praying for

> U'U'U'U'U'U'U

>

> cappskids.org

>

January 12, 2006

Hi,

Where are you located?

-- In Plagiocephaly , " andracristina007 "

<andracristina007@y...> wrote:

>

> Hi everyone.

> Today we had a doctor appt. for Matt. His doctor told us that it's

> possible to outgrow the flatness but he will talk with a specialist

> about using a helmet for Matt and he will give us a call.

> What helmet is the best? How can you choose one? How can you know

> which helmet fits for your baby? What is the next step??

>

> Talking about the next step... tonight when baby was sleeping in my

> arms, slowly I massaged his head and it's seems a little tiny bit

> different. Is it possible or am I just too tired?

> This subject is very new to me..just last night I found out about it

> so I would apreciate any help from you.

> Thank you

>

January 12, 2006

Hi,

Where are you located?

-- In Plagiocephaly , " andracristina007 "

<andracristina007@y...> wrote:

>

> Hi everyone.

> Today we had a doctor appt. for Matt. His doctor told us that it's

> possible to outgrow the flatness but he will talk with a specialist

> about using a helmet for Matt and he will give us a call.

> What helmet is the best? How can you choose one? How can you know

> which helmet fits for your baby? What is the next step??

>

> Talking about the next step... tonight when baby was sleeping in my

> arms, slowly I massaged his head and it's seems a little tiny bit

> different. Is it possible or am I just too tired?

> This subject is very new to me..just last night I found out about it

> so I would apreciate any help from you.

> Thank you

>

January 12, 2006

In a message dated 1/12/2006 5:36:01 PM Eastern Standard Time, andracristina007@... writes:

I will check it out with his doctor. I will ask him to send us to a plastic surgeon.

I look at him right now and he is so happy and cooing so lovely.It just breaks my heart that he will need to wear a helmet..is that hurting?will he be in pain?

No helmet here yet but I heard it doesnt and it doesnt weigh alot.

U'U'U'U'U'U'U

believe in the power of prayer

__

\.| |./

`.__\| |/__.'

---|__|....|__|---

..'..||__||..`.

/|| |.\

| |

|__|

.....-"`' `"`'`` `"-.jmc

praying for

U'U'U'U'U'U'U

cappskids.org

January 12, 2006

In a message dated 1/12/2006 5:36:01 PM Eastern Standard Time, andracristina007@... writes:

I will check it out with his doctor. I will ask him to send us to a plastic surgeon.

I look at him right now and he is so happy and cooing so lovely.It just breaks my heart that he will need to wear a helmet..is that hurting?will he be in pain?

No helmet here yet but I heard it doesnt and it doesnt weigh alot.

U'U'U'U'U'U'U

believe in the power of prayer

__

\.| |./

`.__\| |/__.'

---|__|....|__|---

..'..||__||..`.

/|| |.\

| |

|__|

.....-"`' `"`'`` `"-.jmc

praying for

U'U'U'U'U'U'U

cappskids.org

January 12, 2006

Hi Andra,

No, it's not alway necessary. Not all plagio babies see specialist and

get CT scans or x-rays. Usually it's done when cranio is suspected.

I'm sure your ped felt that Matt's sutures were opened. :-)

Take care,

> >

> > In a message dated 1/12/2006 2:40:37 AM Eastern Standard Time,

> > andracristina007@y... writes:

> >

> > >

> > > Hi everyone.

> > > Today we had a doctor appt. for Matt. His doctor told us that

> it's

> > > possible to outgrow the flatness but he will talk with a

> specialist

> > > about using a helmet for Matt and he will give us a call.

> > > What helmet is the best? How can you choose one? How can you

> know

> > > which helmet fits for your baby? What is the next step??

> >

> > First step is getting a catscan. Make sure that is the probelm.

> Then would be

> > talking to a plastic surgeon have him give you his opinion tthen

> get the

> > helmet..

> >

> > I started out with craniosynostosis so I might have a few

> different views

> > then everyone else = )

> >

> > U'U'U'U'U'U'U

> >

> > believe in the power of prayer

> > __

> > \.| |./

> > `.__\| |/__.'

> > ---|__|....|__|---

> > .'..||__||..`.

> > /|| |.\

> > | |

> > |__|<FONT COLOR= " #ffffff " BACK= " #ffffff " style= " BACKGROUND-COLOR:

> #ffffff " SIZE=1 PTSIZE=8 FAMILY= " FIXE

> > ....- " `' ` " `'`` ` " -.jmc

> > praying for

> > U'U'U'U'U'U'U

> >

> > cappskids.org

> >

>

January 12, 2006

Hi Andra,

No, it's not alway necessary. Not all plagio babies see specialist and

get CT scans or x-rays. Usually it's done when cranio is suspected.

I'm sure your ped felt that Matt's sutures were opened. :-)

Take care,

> >

> > In a message dated 1/12/2006 2:40:37 AM Eastern Standard Time,

> > andracristina007@y... writes:

> >

> > >

> > > Hi everyone.

> > > Today we had a doctor appt. for Matt. His doctor told us that

> it's

> > > possible to outgrow the flatness but he will talk with a

> specialist

> > > about using a helmet for Matt and he will give us a call.

> > > What helmet is the best? How can you choose one? How can you

> know

> > > which helmet fits for your baby? What is the next step??

> >

> > First step is getting a catscan. Make sure that is the probelm.

> Then would be

> > talking to a plastic surgeon have him give you his opinion tthen

> get the

> > helmet..

> >

> > I started out with craniosynostosis so I might have a few

> different views

> > then everyone else = )

> >

> > U'U'U'U'U'U'U

> >

> > believe in the power of prayer

> > __

> > \.| |./

> > `.__\| |/__.'

> > ---|__|....|__|---

> > .'..||__||..`.

> > /|| |.\

> > | |

> > |__|<FONT COLOR= " #ffffff " BACK= " #ffffff " style= " BACKGROUND-COLOR:

> #ffffff " SIZE=1 PTSIZE=8 FAMILY= " FIXE

> > ....- " `' ` " `'`` ` " -.jmc

> > praying for

> > U'U'U'U'U'U'U

> >

> > cappskids.org

> >

>

January 12, 2006

HI April.

Can you tell me please what is the difference between a helmet and a

band? Which one is better?

I took a look on the Cranial Tech site and they seem to be pretty

good...how much did it cost you?

Do you have any site adds so i can check them up?

Andra

> >

> > Hi everyone.

> > Today we had a doctor appt. for Matt. His doctor told us that

it's

> > possible to outgrow the flatness but he will talk with a

specialist

> > about using a helmet for Matt and he will give us a call.

> > What helmet is the best? How can you choose one? How can you

know

> > which helmet fits for your baby? What is the next step??

> >

> > Talking about the next step... tonight when baby was sleeping in

my

> > arms, slowly I massaged his head and it's seems a little tiny

bit

> > different. Is it possible or am I just too tired?

> > This subject is very new to me..just last night I found out

about it

> > so I would apreciate any help from you.

> > Thank you

> >

>

January 12, 2006

HI April.

Can you tell me please what is the difference between a helmet and a

band? Which one is better?

I took a look on the Cranial Tech site and they seem to be pretty

good...how much did it cost you?

Do you have any site adds so i can check them up?

Andra

> >

> > Hi everyone.

> > Today we had a doctor appt. for Matt. His doctor told us that

it's

> > possible to outgrow the flatness but he will talk with a

specialist

> > about using a helmet for Matt and he will give us a call.

> > What helmet is the best? How can you choose one? How can you

know

> > which helmet fits for your baby? What is the next step??

> >

> > Talking about the next step... tonight when baby was sleeping in

my

> > arms, slowly I massaged his head and it's seems a little tiny

bit

> > different. Is it possible or am I just too tired?

> > This subject is very new to me..just last night I found out

about it

> > so I would apreciate any help from you.

> > Thank you

> >

>

January 12, 2006

I will check it out with his doctor. I will ask him to send us to a plastic surgeon. I look at him right now and he is so happy and cooing so lovely.It just breaks my heart that he will need to wear a helmet..is that hurting?will he be in pain?mommy2Antnalex@... wrote: In a message dated 1/12/2006 2:05:13 PM Eastern Standard Time, andracristina007@... writes: Hi .We talked with the doctor about craniosynostosis and the doctor told us that Matt

doesn't have it..he always checked out his fontanel.Is the cat scan absolutly neccessary?Andra In my opinion yes. Not everyone will have the same view. I believe there is no way to be certain unless you have a catscan. I went to a neurosurgeon and he told me my sons head was fine. @@ I could have ripped that mans head off lol. I gave him a cd of the catscan and he wouldnt even look at it. He opened one file and that was it. I was in shock. In the catscan you can see my sons head is lop sided and his cheek is bigger, the eye ball is actually bigger and his ear is but you cant see it in the catscan. He said my son needs nothing. I hate neurosurgeons now lol. I will stay with my plastic surgeon from now on. U'U'U'U'U'U'Ubelieve in the power of prayer__\.| |./`.__\| |/__.'---|__|....|__|---.'..||__||..`./|| |.\| ||__|....-"`' `"`'`` `"-.jmcpraying for U'U'U'U'U'U'Ucappskids.org

Photos Got holiday prints? See all the ways to get quality prints in your hands ASAP.

January 12, 2006

I will check it out with his doctor. I will ask him to send us to a plastic surgeon. I look at him right now and he is so happy and cooing so lovely.It just breaks my heart that he will need to wear a helmet..is that hurting?will he be in pain?mommy2Antnalex@... wrote: In a message dated 1/12/2006 2:05:13 PM Eastern Standard Time, andracristina007@... writes: Hi .We talked with the doctor about craniosynostosis and the doctor told us that Matt

doesn't have it..he always checked out his fontanel.Is the cat scan absolutly neccessary?Andra In my opinion yes. Not everyone will have the same view. I believe there is no way to be certain unless you have a catscan. I went to a neurosurgeon and he told me my sons head was fine. @@ I could have ripped that mans head off lol. I gave him a cd of the catscan and he wouldnt even look at it. He opened one file and that was it. I was in shock. In the catscan you can see my sons head is lop sided and his cheek is bigger, the eye ball is actually bigger and his ear is but you cant see it in the catscan. He said my son needs nothing. I hate neurosurgeons now lol. I will stay with my plastic surgeon from now on. U'U'U'U'U'U'Ubelieve in the power of prayer__\.| |./`.__\| |/__.'---|__|....|__|---.'..||__||..`./|| |.\| ||__|....-"`' `"`'`` `"-.jmcpraying for U'U'U'U'U'U'Ucappskids.org

Photos Got holiday prints? See all the ways to get quality prints in your hands ASAP.

January 12, 2006

Hi

I'm in Grand Rapids, Michigan.

> >

> > Hi everyone.

> > Today we had a doctor appt. for Matt. His doctor told us that

it's

> > possible to outgrow the flatness but he will talk with a

specialist

> > about using a helmet for Matt and he will give us a call.

> > What helmet is the best? How can you choose one? How can you

know

> > which helmet fits for your baby? What is the next step??

> >

> > Talking about the next step... tonight when baby was sleeping in

my

> > arms, slowly I massaged his head and it's seems a little tiny

bit

> > different. Is it possible or am I just too tired?

> > This subject is very new to me..just last night I found out

about it

> > so I would apreciate any help from you.

> > Thank you

> >

>

January 12, 2006

Hi

I'm in Grand Rapids, Michigan.

> >

> > Hi everyone.

> > Today we had a doctor appt. for Matt. His doctor told us that

it's

> > possible to outgrow the flatness but he will talk with a

specialist

> > about using a helmet for Matt and he will give us a call.

> > What helmet is the best? How can you choose one? How can you

know

> > which helmet fits for your baby? What is the next step??

> >

> > Talking about the next step... tonight when baby was sleeping in

my

> > arms, slowly I massaged his head and it's seems a little tiny

bit

> > different. Is it possible or am I just too tired?

> > This subject is very new to me..just last night I found out

about it

> > so I would apreciate any help from you.

> > Thank you

> >

>

January 12, 2006

>

> Hi .

> We talked with the doctor about craniosynostosis and the doctor told

> us that Matt doesn't have it..he always checked out his fontanel.

> Is the cat scan absolutly neccessary?

> Andra

>

Andra,

Neither of my banded babies got CT Scans or saw specialists for their

plagio.

January 12, 2006

Hi Andra,

The difference between a helmet and a band is that helmet is passive

and a band is active. Passive helmets sit on the baby's head and

evenutally the head will grow into the shape of the helmet, round.

They rely totally on growth, so they're good for very young infants.

Active bands like the DOC and STAR redirect the growth of the head

through gentle pressure not felt by the baby. They are good for young

infants and older babies.

Hope that helps.

> > >

> > > Hi everyone.

> > > Today we had a doctor appt. for Matt. His doctor told us that

> it's

> > > possible to outgrow the flatness but he will talk with a

> specialist

> > > about using a helmet for Matt and he will give us a call.

> > > What helmet is the best? How can you choose one? How can you

> know

> > > which helmet fits for your baby? What is the next step??

> > >

> > > Talking about the next step... tonight when baby was sleeping in

> my

> > > arms, slowly I massaged his head and it's seems a little tiny

> bit

> > > different. Is it possible or am I just too tired?

> > > This subject is very new to me..just last night I found out

> about it

> > > so I would apreciate any help from you.

> > > Thank you

> > >

> >

>

January 12, 2006

>

> Hi .

> We talked with the doctor about craniosynostosis and the doctor told

> us that Matt doesn't have it..he always checked out his fontanel.

> Is the cat scan absolutly neccessary?

> Andra

>

Andra,

Neither of my banded babies got CT Scans or saw specialists for their

plagio.

January 12, 2006

Hi Andra,

The difference between a helmet and a band is that helmet is passive

and a band is active. Passive helmets sit on the baby's head and

evenutally the head will grow into the shape of the helmet, round.

They rely totally on growth, so they're good for very young infants.

Active bands like the DOC and STAR redirect the growth of the head

through gentle pressure not felt by the baby. They are good for young

infants and older babies.

Hope that helps.

> > >

> > > Hi everyone.

> > > Today we had a doctor appt. for Matt. His doctor told us that

> it's

> > > possible to outgrow the flatness but he will talk with a

> specialist

> > > about using a helmet for Matt and he will give us a call.

> > > What helmet is the best? How can you choose one? How can you

> know

> > > which helmet fits for your baby? What is the next step??

> > >

> > > Talking about the next step... tonight when baby was sleeping in

> my

> > > arms, slowly I massaged his head and it's seems a little tiny

> bit

> > > different. Is it possible or am I just too tired?

> > > This subject is very new to me..just last night I found out

> about it

> > > so I would apreciate any help from you.

> > > Thank you

> > >

> >

>

January 12, 2006

Hi,

No, bands/helmets don't hurt the baby at all. A lot of babies love

their bands. You'll see it won't be so bad once you see your baby in a

band. They all look so cute!

> In a message dated 1/12/2006 2:05:13 PM Eastern Standard Time,

andracristina007@y... writes:

>

> Hi .

> We talked with the doctor about craniosynostosis and the doctor told

> us that Matt doesn't have it..he always checked out his fontanel.

> Is the cat scan absolutly neccessary?

> Andra

>

> In my opinion yes. Not everyone will have the same view. I believe

there is no way to be certain unless you have a catscan. I went to a

neurosurgeon and he told me my sons head was fine. @@ I could have

ripped that mans head off lol. I gave him a cd of the catscan and he

wouldnt even look at it. He opened one file and that was it. I was in

shock. In the catscan you can see my sons head is lop sided and his

cheek is bigger, the eye ball is actually bigger and his ear is but

you cant see it in the catscan. He said my son needs nothing. I hate

neurosurgeons now lol. I will stay with my plastic surgeon from now on.

>

> U'U'U'U'U'U'U

>

> believe in the power of prayer

> __

> \.| |./

> `.__\| |/__.'

> ---|__|....|__|---

> .'..||__||..`.

> /|| |.\

> | |

> |__|

> ....- " `' ` " `'`` ` " -.jmc

> praying for

> U'U'U'U'U'U'U

>

> cappskids.org

>

> For more plagio info

January 12, 2006