what would you do?

[Guest guest]

Hi . Forgot to add this. While we were repositioning Brielle,

I did all the work as if we were going to band her. I got the letter

and script and insurance approval. We also had a casting appt. I

just didn't want to wait for all the paperwork to go through and take

a few more weeks if we decided to band her. We set a date for the

end of June, she was at the end of her 6month when we would

reevaluate her with the specialists and see if enough progress was

made. When the time came, we canceled our appt. for the casting.

Good luck, P.S. don't make yourself crazy over this, either way band

or not it will be fine. Debbie and Brielle

-- In Plagiocephaly , " Carol G. " <GATTVA@A...> wrote:

> ,

> At 5 months you are still able to try repositioning. I would do

> aggressive repo for a month and see what you think after that, that

> should be long enough to say if the repo alone will be doing the

trick

> or if you should go ahead and band. There is plenty of info here in

the

> files section to help you with repo. At least then you can say you

> tried and then if he needs a band you will know it is right and if

he

> is mild it will be just a short few weeks and you'll be done. If

you do

> not think you can commit( due to time or daycare,etc) to the

rigorous

> repo. schedule then you might want to go with the band and be done.

> CAROLG

>

>

>

>

>

>

>

>

> > We met with a plastic surgeon today. Our 5 mos old son has a

flat

> > head in the back. Basically he said the decision on whether to

get a

> > helmet was up to us. His measurements were .97 and ours were

both

> > around .75 (I guess they look for what genetically he would

likely

> > be). There is very little asymmetry. I guess I'm wondering what

> > people think when the case is borderline...helmet or no helmet?

I

> > don't want to do something that isn't necessary but also don't

want

> to

> > not do it and regret it later. Any advice or insight?

[Guest guest]

Hi . Forgot to add this. While we were repositioning Brielle,

I did all the work as if we were going to band her. I got the letter

and script and insurance approval. We also had a casting appt. I

just didn't want to wait for all the paperwork to go through and take

a few more weeks if we decided to band her. We set a date for the

end of June, she was at the end of her 6month when we would

reevaluate her with the specialists and see if enough progress was

made. When the time came, we canceled our appt. for the casting.

Good luck, P.S. don't make yourself crazy over this, either way band

or not it will be fine. Debbie and Brielle

-- In Plagiocephaly , " Carol G. " <GATTVA@A...> wrote:

> ,

> At 5 months you are still able to try repositioning. I would do

> aggressive repo for a month and see what you think after that, that

> should be long enough to say if the repo alone will be doing the

trick

> or if you should go ahead and band. There is plenty of info here in

the

> files section to help you with repo. At least then you can say you

> tried and then if he needs a band you will know it is right and if

he

> is mild it will be just a short few weeks and you'll be done. If

you do

> not think you can commit( due to time or daycare,etc) to the

rigorous

> repo. schedule then you might want to go with the band and be done.

> CAROLG

>

>

>

>

>

>

>

>

> > We met with a plastic surgeon today. Our 5 mos old son has a

flat

> > head in the back. Basically he said the decision on whether to

get a

> > helmet was up to us. His measurements were .97 and ours were

both

> > around .75 (I guess they look for what genetically he would

likely

> > be). There is very little asymmetry. I guess I'm wondering what

> > people think when the case is borderline...helmet or no helmet?

I

> > don't want to do something that isn't necessary but also don't

want

> to

> > not do it and regret it later. Any advice or insight?

[Guest guest]

Do it- no regrets.

Stacey Shubra

Sandbridge Realty

stacey@...

Office 757.426.6262 Ext. 303

Toll Free 800.933.4800

Fax 757.721.3505

-----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of juliemurray_1Sent: Wednesday, September 07, 2005 7:17 PMPlagiocephaly Subject: What would you do?We met with a plastic surgeon today. Our 5 mos old son has a flat head in the back. Basically he said the decision on whether to get a helmet was up to us. His measurements were .97 and ours were both around .75 (I guess they look for what genetically he would likely be). There is very little asymmetry. I guess I'm wondering what people think when the case is borderline...helmet or no helmet? I don't want to do something that isn't necessary but also don't want to not do it and regret it later. Any advice or insight?

[Guest guest]

Do it- no regrets.

Stacey Shubra

Sandbridge Realty

stacey@...

Office 757.426.6262 Ext. 303

Toll Free 800.933.4800

Fax 757.721.3505

-----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of juliemurray_1Sent: Wednesday, September 07, 2005 7:17 PMPlagiocephaly Subject: What would you do?We met with a plastic surgeon today. Our 5 mos old son has a flat head in the back. Basically he said the decision on whether to get a helmet was up to us. His measurements were .97 and ours were both around .75 (I guess they look for what genetically he would likely be). There is very little asymmetry. I guess I'm wondering what people think when the case is borderline...helmet or no helmet? I don't want to do something that isn't necessary but also don't want to not do it and regret it later. Any advice or insight?

[Guest guest]

sorry we don't have brachy and dont have a band yet so can't comment on that but we have a 15 and 17 mm assymetry with plagio and we had been repositioning since 3-4 months old and I actually saw improvement but not having measurements I cant say for sure if we actually got some or it is just visual but everyone who has seen him has seen the imrpovement so I tend to think he did get improvement but the 15 and 17 was what he measured AFTER the improvement at 7 mo old. We stopped seeing improvement around 6 mo which is what ppl tend to say, that repoing doesnt help as much after 6 mo. After his 7 month measurements we realised we missed a big part of repositioning though, the side he eats on and started changing that. I think any improvement over that month was minimal though. So now he is going to band.

What ppl on the boards tend to recommend is set a deadline to reevaluate the repositioning and take lots of pictures to compare to see if there is improvement. Both made a lot of sense since the window of oppurtunity to band is small. My recommendation though is remember to reposition all aspects, sleep, stroller, carseat, AND the side they eat on lol

From the info I have seen posted on the boards here though it sounds like your dd is moderate to severe though so at her age I am not sure if you can get enough improvement. But I didnt find this board till my son was almost 6 months so didnt know all the repo tips ppl have posted on here, check the files. Maybe more radical repoing would have helped my son more

On 7/14/07, forelliej <forelliej@...> wrote:

My nearly 5mo old dd has been diagnosed with severe brachy and mildplagio. Her CI is 93.6, her standard deviation is 4.31. Her skullassymetry is 17mm, eyes 7mm, and ears 11mm. Is there anyone who cancomment on the type of results repositioning or non-banding therapies

can have? Are there those out there who did not have any changeswithout a band? What would you do in our situation? Any comments andor suggestions would be greatly appreciated.

-- -respectful model to;

-11-7-2ph-11/06

[Guest guest]

, I would definately band with those measurements, even if your daughter did round out some the likely hood that it would round out enough to bring her back into normal limits is slim.. My daughter measured 93 CI, 19mm skull, 9mm ears, and 3mm eyes at 7 months old and that was after 2 months of repositional therapy. She has now graduated after wearing the band for 12 weeks and was a 9mm skull, 3mm ears, and 3mm eyes. I forgot to ask what her new CI number was. We love her new round head and are glad we choose to go with the band eventhough we had to drive 7 hours each way to the closest clinic. - Mom to Madisonforelliej <forelliej@...> wrote: My nearly 5mo old dd has been diagnosed with severe brachy and mildplagio. Her CI is 93.6, her standard deviation is 4.31. Her skullassymetry is 17mm, eyes 7mm, and ears 11mm. Is there anyone who cancomment on the type of results repositioning or non-banding therapiescan have? Are there those out there who did not have any changeswithout a band? What would you do in our situation? Any comments andor suggestions would be greatly appreciated.

TV dinner still cooling?Check out "Tonight's Picks" on TV.

[Guest guest]

Hi ,

my dd had severe brachy (started around 97%) and very little asymmetry

(4.5 mm). She wore a starband starting at 6 mo and had great results.

4 mo after banding we checked again and there was no additional

improvement (by this time she was walking, tummy sleeping...). So I

attribute all her correction to the band.

Repositioning is usually only effective until 6 mo old, because by

then babies are mostly moving on their own and won't stay in the

position you would like. Given this and the severity of your childs

head (brachy/plagio combo) I would band as soon as possible.

Is there a specific reason you are trying to avoid banding? Of course

none of us wants to do this but it is really effective, and not nearly

as difficult as it seems. Once you get started it becomes part of your

routine. The results are amazing, and it is the only way I know of to

ensure correction.

take care. -christine

sydney 18 mo starband grad

>

> My nearly 5mo old dd has been diagnosed with severe brachy and mild

> plagio. Her CI is 93.6, her standard deviation is 4.31. Her skull

> assymetry is 17mm, eyes 7mm, and ears 11mm. Is there anyone who can

> comment on the type of results repositioning or non-banding therapies

> can have? Are there those out there who did not have any changes

> without a band? What would you do in our situation? Any comments and

> or suggestions would be greatly appreciated.

>

>

[Guest guest]

- We chose to band so I don't have any real info on what to do other than banding. For us the decision came down to if we did nothing and her head didn't change or "round out on it's own" would we be happy? The window for correction is only open for a short period of time and I didn't want to have any regrets. If we banded and she didn't get better at least I knew we did all we could to help her. You have to do what you know to be best for your baby. Listen to your gut.

As far as the band goes - it's really not that bad. I know it can be expensive, daunting and scary. But honestly once it's there it becomes such an everyday thing. And the time FLIES!!!!

Keep us updated about your daughter!

Jen and Luli - 19 mo.

Left Tort - Right Plagio - Hanger Band Grad - CA

tallulah jayne

www.babiesonline.com/babies/j/jens5th/

What would you do?

My nearly 5mo old dd has been diagnosed with severe brachy and mild

plagio. Her CI is 93.6, her standard deviation is 4.31. Her skull

assymetry is 17mm, eyes 7mm, and ears 11mm. Is there anyone who can

comment on the type of results repositioning or non-banding therapies

can have? Are there those out there who did not have any changes

without a band? What would you do in our situation? Any comments and

or suggestions would be greatly appreciated.

AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

I would say to leave well enough alone. If he regresses or something

the fish oil will always be there.

>

> My son was just recently (w/in the past 2 months) suspected as

being

> apraxic, since then we have been able to use therapies to help that

> specific issue and he is blossoming wonderfully he went from

nonverbal

> to constant babling, saying so many words, 2 - 3 new words a week

in

> past two weeks. trying to say words on his own and mimicking

> awesomely. I had wanted to start him on the proefa prior to this

burst

> of words, and now that it is comming I'm conflicting as to weather

I

> should try it now or wait, I won't be able to tell if it was him or

> the fish oil... just wondering from 1 parent to another what would

you

> do?

> thanks for all help in advance,

> CeCelia

>

[Guest guest]

I also agree. How old is your child? If he is 2 or under, leave it alone for

now.

[ ] Re: what would you do?

I would say to leave well enough alone. If he regresses or something

the fish oil will always be there.

>

> My son was just recently (w/in the past 2 months) suspected as

being

> apraxic, since then we have been able to use therapies to help that

> specific issue and he is blossoming wonderfully he went from

nonverbal

> to constant babling, saying so many words, 2 - 3 new words a week

in

> past two weeks. trying to say words on his own and mimicking

> awesomely. I had wanted to start him on the proefa prior to this

burst

> of words, and now that it is comming I'm conflicting as to weather

I

> should try it now or wait, I won't be able to tell if it was him or

> the fish oil... just wondering from 1 parent to another what would

you

> do?

> thanks for all help in advance,

> CeCelia

>

[Guest guest]

he is 3 1/2 he'll be 4 in Jan.

thanks for the advice

>

> My son was just recently (w/in the past 2 months) suspected as

being

> apraxic, since then we have been able to use therapies to help that

> specific issue and he is blossoming wonderfully he went from

nonverbal

> to constant babling, saying so many words, 2 - 3 new words a week

in

> past two weeks. trying to say words on his own and mimicking

> awesomely. I had wanted to start him on the proefa prior to this

burst

> of words, and now that it is comming I'm conflicting as to weather

I

> should try it now or wait, I won't be able to tell if it was him or

> the fish oil... just wondering from 1 parent to another what would

you

> do?

> thanks for all help in advance,

> CeCelia

>

[Guest guest]

,

> CeCelia,

The first thing I would do is to follow this suspected apraxia into a

proper diagnosis. Find a group that can privately test for this using

Preschool Language scale 4 (PLS-4) and Goldman Fistoe Test of

Articulations (GFTA). These will help define a few paramaters such as

where you child is in relation to other children of relative age. The

PLS-4 tests receptive and expressive language skills and the audtory

comprehension subtest can be used to evaluate receptive skills with

reagrd to attention, semantic, structure, and integrative thinking

skills. The Expressive communication subtest evaluates expressive

skill level for vocal and social communications, etc. It will list a

child's relative score (raw score vs a standard score) and place your

child in a percentage rank. The articulations test evaluates word

level by showing the child photos or pictures that contain target

sounds for beginning, middle and ending of words and also demonstrates

areas of weakness such as substitutions and omissions in speech. The

phonological processes can exhibit difficultity with motor plannng and

sequencing multi-syllable words which can be characteristics of aprazia

of speech. These types of tests are not the only way to measure and DX

apraxia of speech but it's a good start. I wished we had done them

sooner because the futther along a child gets the more then can worsen

or remain the same and the speech language of pathology at our school

completely missed the apraxia and did not work on the specific areas of

weakness that we pointed out - therfore our son remained in the 1% on

his PSL-4 and ranked at the 13% for GFTA-2. Not great skill level. It

pays to ensure you are getting the right SLT to work on the right areas

of the disorder/delay.

April Larsen

[Guest guest]

The Preschool language scale tests in that range as does a few others -

which names escape me at this time. They lasted about an hour of play

and picture showing. I think enjoyed it.

April

[Guest guest]

Hi,

I'm so glad you are finally feeling better! I don't see why you have to get

permission from your former rheumy to see a colleague. It is your medical

care. However, what I would do, is let him know why you wish to do that. If

you thought a lot of him before this, at least let him know what happened to

make you change your mind and give him the chance to explain. Drs. are far from

perfect. I had a similar situation sort of years ago. It took 13 years for

Drs. to DX Diverticula Disease and Colitis as I was too young. My Dr. at the

time was Chief of Gastroenterology and could not or would not label me with

diverticulitis as I was too young. One weekend, his colleague came in and said,

" I don't care what anyone thinks, this girl has diverticulitis " . I'll

never ever forget that. From then on, I was on the mend and hospital free! I

changed Drs. Yes, it was awkward, but they aren't the ones getting poked and

prodded, tested, and thrown in the hospital for a week at a time. Best of luck

to you, keep us posted!

Heidi in Mass.

To those who believe, no explanation is necessary; to those who dont, no

explanation is possible

In a message dated 6/17/2008 1:30:10 P.M. Eastern Daylight Time,

McNacks@... writes:

Hi Everyone, I just got home this morning from spending a full WEEK in the

hospital over a big toe flare. Sunday a week ago I started to feel something

funny in my left big toe, Monday a week ago I had an important fumeral to go

to that I could not miss. That night I went to the primary, he thought it was

a spider bite and gave me a script for keflex and steriods, I advised thim

that I don't do steriods unless direly important and that I would hold off on

them, took the script for the keflex that day 2 times. Tuesday when I woke up

my toe was alot worse so I added the prednisone then, by Wednesday moring I

was up at 4 am waiting for the dr office to open, I called at 9 and they told

me to go to the ER, at this point it looked like a potatoe with black spots

and the redness was spreading. I went to the ER, they admitted me, diagnosis

seemed to be either a spider bite, gout, ra flare or a skin infection. After a

day of super strong iv antibiotics the internist that I was assigned knew it

wasn't a skin infection. My rheumy (who I have been with for 9 years now and

thought the world of) came to the hospital on thursday, marked in my record

book that I wasn't in my room and left. I was in the room from Wednesday to

this morning, only leaving for an MRI on Friday at 12 noon for 1 hour. Not

only was I there in the room on thursday but so was my husband. I was so hurt

when I found out that I can't even put it in words, I honestly thought this doc

was the tops. The internist was wonderful but was looking for a confirmation

from the rheumy that it was a flare, the MRI on firday showed synovial

inflamation, I had another rheumy from the office, another partner come in

friday,

saturday and sunday and say everyday that he didn't think it was RA related.

The internist finally started iv steriods on saturday night and the

turnaround began, I was able to leave today, the toe looks alot better and

feels

better too, I'll be on steriods for another 10 days along with the antibiotic.

Yesterday I had anot her rheumy from the office that came in, looked at me,

said " you know this is ra related " and I was so releaved, I knew it, the jerk

over the weekend is the only one who didn't. My question, I am so disappointed

you can't believe in my rheumy, I'd like to change to the rheumy that I met

yesterday, same practice, just a different doctor. We had discussed how every

time I take Remicade, I end up with a problem, small or large afterwards, he

said he'd have me off it then (my doc just wanted to increase it) and on

Rituxan, has anyone tried that yet? I called today because I need to make a

follow up appt for 2 weeks from now and they have to ask my old rheumy if I can

go

to the new guy, stinks doesn't it. I'd appreciate your comments. Thank you,

in pa

[Non-text portions of this message have been removed]

**************Gas prices getting you down? Search AOL Autos for

fuel-efficient used cars.

(http://autos.aol.com/used?ncid=aolaut00050000000007)

[Guest guest]

Hi Everyone, I just got home this morning from spending a full WEEK in the

hospital over a big toe flare. Sunday a week ago I started to feel something

funny in my left big toe, Monday a week ago I had an important fumeral to go to

that I could not miss. That night I went to the primary, he thought it was a

spider bite and gave me a script for keflex and steriods, I advised thim that I

don't do steriods unless direly important and that I would hold off on them,

took the script for the keflex that day 2 times. Tuesday when I woke up my toe

was alot worse so I added the prednisone then, by Wednesday moring I was up at 4

am waiting for the dr office to open, I called at 9 and they told me to go to

the ER, at this point it looked like a potatoe with black spots and the redness

was spreading. I went to the ER, they admitted me, diagnosis seemed to be

either a spider bite, gout, ra flare or a skin infection. After a day of super

strong iv antibiotics the internist that I was assigned knew it wasn't a skin

infection. My rheumy (who I have been with for 9 years now and thought the

world of) came to the hospital on thursday, marked in my record book that I

wasn't in my room and left. I was in the room from Wednesday to this morning,

only leaving for an MRI on Friday at 12 noon for 1 hour. Not only was I there

in the room on thursday but so was my husband. I was so hurt when I found out

that I can't even put it in words, I honestly thought this doc was the tops.

The internist was wonderful but was looking for a confirmation from the rheumy

that it was a flare, the MRI on firday showed synovial inflamation, I had

another rheumy from the office, another partner come in friday, saturday and

sunday and say everyday that he didn't think it was RA related. The internist

finally started iv steriods on saturday night and the turnaround began, I was

able to leave today, the toe looks alot better and feels better too, I'll be on

steriods for another 10 days along with the antibiotic. Yesterday I had another

rheumy from the office that came in, looked at me, said " you know this is ra

related " and I was so releaved, I knew it, the jerk over the weekend is the only

one who didn't. My question, I am so disappointed you can't believe in my

rheumy, I'd like to change to the rheumy that I met yesterday, same practice,

just a different doctor. We had discussed how every time I take Remicade, I end

up with a problem, small or large afterwards, he said he'd have me off it then

(my doc just wanted to increase it) and on Rituxan, has anyone tried that yet?

I called today because I need to make a follow up appt for 2 weeks from now and

they have to ask my old rheumy if I can go to the new guy, stinks doesn't it.

I'd appreciate your comments. Thank you, in pa

[Guest guest]

Hi , I'm glad you're home and on the mend.  I hope you feel better soon. 

I'd call the office and ask to make a follow up with the new guy and just say

you'd like to see him b/c he managed you in the hospital and you discussed new

options for care.

[ ] what would you do?

Hi Everyone, I just got home this morning from spending a full WEEK in the

hospital over a big toe flare. Sunday a week ago I started to feel something

funny in my left big toe, Monday a week ago I had an important fumeral to go to

that I could not miss. That night I went to the primary, he thought it was a

spider bite and gave me a script for keflex and steriods, I advised thim that I

don't do steriods unless direly important and that I would hold off on them,

took the script for the keflex that day 2 times. Tuesday when I woke up my toe

was alot worse so I added the prednisone then, by Wednesday moring I was up at 4

am waiting for the dr office to open, I called at 9 and they told me to go to

the ER, at this point it looked like a potatoe with black spots and the redness

was spreading. I went to the ER, they admitted me, diagnosis seemed to be either

a spider bite, gout, ra flare or a skin infection. After a day of super strong

iv antibiotics the

internist that I was assigned knew it wasn't a skin infection. My rheumy (who I

have been with for 9 years now and thought the world of) came to the hospital on

thursday, marked in my record book that I wasn't in my room and left. I was in

the room from Wednesday to this morning, only leaving for an MRI on Friday at 12

noon for 1 hour. Not only was I there in the room on thursday but so was my

husband. I was so hurt when I found out that I can't even put it in words, I

honestly thought this doc was the tops. The internist was wonderful but was

looking for a confirmation from the rheumy that it was a flare, the MRI on

firday showed synovial inflamation, I had another rheumy from the office,

another partner come in friday, saturday and sunday and say everyday that he

didn't think it was RA related. The internist finally started iv steriods on

saturday night and the turnaround began, I was able to leave today, the toe

looks alot better and feels better

too, I'll be on steriods for another 10 days along with the antibiotic.

Yesterday I had another rheumy from the office that came in, looked at me, said

" you know this is ra related " and I was so releaved, I knew it, the jerk over

the weekend is the only one who didn't. My question, I am so disappointed you

can't believe in my rheumy, I'd like to change to the rheumy that I met

yesterday, same practice, just a different doctor. We had discussed how every

time I take Remicade, I end up with a problem, small or large afterwards, he

said he'd have me off it then (my doc just wanted to increase it) and on

Rituxan, has anyone tried that yet? I called today because I need to make a

follow up appt for 2 weeks from now and they have to ask my old rheumy if I can

go to the new guy, stinks doesn't it. I'd appreciate your comments. Thank you,

in pa

[Guest guest]

I did that but they have to ask my old doc if I can switch. How about that!

[ ] what would you do?

Hi Everyone, I just got home this morning from spending a full WEEK in the

hospital over a big toe flare. Sunday a week ago I started to feel something

funny in my left big toe, Monday a week ago I had an important fumeral to go to

that I could not miss. That night I went to the primary, he thought it was a

spider bite and gave me a script for keflex and steriods, I advised thim that I

don't do steriods unless direly important and that I would hold off on them,

took the script for the keflex that day 2 times. Tuesday when I woke up my toe

was alot worse so I added the prednisone then, by Wednesday moring I was up at 4

am waiting for the dr office to open, I called at 9 and they told me to go to

the ER, at this point it looked like a potatoe with black spots and the redness

was spreading. I went to the ER, they admitted me, diagnosis seemed to be either

a spider bite, gout, ra flare or a skin infection. After a day of super strong

iv antibiotics the

internist that I was assigned knew it wasn't a skin infection. My rheumy (who

I have been with for 9 years now and thought the world of) came to the hospital

on thursday, marked in my record book that I wasn't in my room and left. I was

in the room from Wednesday to this morning, only leaving for an MRI on Friday at

12 noon for 1 hour. Not only was I there in the room on thursday but so was my

husband. I was so hurt when I found out that I can't even put it in words, I

honestly thought this doc was the tops. The internist was wonderful but was

looking for a confirmation from the rheumy that it was a flare, the MRI on

firday showed synovial inflamation, I had another rheumy from the office,

another partner come in friday, saturday and sunday and say everyday that he

didn't think it was RA related. The internist finally started iv steriods on

saturday night and the turnaround began, I was able to leave today, the toe

looks alot better and feels better

too, I'll be on steriods for another 10 days along with the antibiotic.

Yesterday I had another rheumy from the office that came in, looked at me, said

" you know this is ra related " and I was so releaved, I knew it, the jerk over

the weekend is the only one who didn't. My question, I am so disappointed you

can't believe in my rheumy, I'd like to change to the rheumy that I met

yesterday, same practice, just a different doctor. We had discussed how every

time I take Remicade, I end up with a problem, small or large afterwards, he

said he'd have me off it then (my doc just wanted to increase it) and on

Rituxan, has anyone tried that yet? I called today because I need to make a

follow up appt for 2 weeks from now and they have to ask my old rheumy if I can

go to the new guy, stinks doesn't it. I'd appreciate your comments. Thank you,

in pa

[Guest guest]

It's just that I raved about this guy to anyone who would listen!!! If he had

come in on thursday, he would have looked at it and prescribed the steriods

right away, that would have saved me 3 days in the hospital. I am just so

disappointed in him, he was not there for me after being with him 9 years.

Re: [ ] what would you do?

Hi,

I'm so glad you are finally feeling better! I don't see why you have to get

permission from your former rheumy to see a colleague. It is your medical

care. However, what I would do, is let him know why you wish to do that. If

you thought a lot of him before this, at least let him know what happened to

make you change your mind and give him the chance to explain. Drs. are far

from

perfect. I had a similar situation sort of years ago. It took 13 years for

Drs. to DX Diverticula Disease and Colitis as I was too young. My Dr. at the

time was Chief of Gastroenterology and could not or would not label me with

diverticulitis as I was too young. One weekend, his colleague came in and

said,

" I don't care what anyone thinks, this girl has diverticulitis " . I'll

never ever forget that. From then on, I was on the mend and hospital free! I

changed Drs. Yes, it was awkward, but they aren't the ones getting poked and

prodded, tested, and thrown in the hospital for a week at a time. Best of luck

to you, keep us posted!

Heidi in Mass.

To those who believe, no explanation is necessary; to those who dont, no

explanation is possible

In a message dated 6/17/2008 1:30:10 P.M. Eastern Daylight Time,

McNacks@... writes:

Hi Everyone, I just got home this morning from spending a full WEEK in the

hospital over a big toe flare. Sunday a week ago I started to feel something

funny in my left big toe, Monday a week ago I had an important fumeral to go

to that I could not miss. That night I went to the primary, he thought it was

a spider bite and gave me a script for keflex and steriods, I advised thim

that I don't do steriods unless direly important and that I would hold off on

them, took the script for the keflex that day 2 times. Tuesday when I woke up

my toe was alot worse so I added the prednisone then, by Wednesday moring I

was up at 4 am waiting for the dr office to open, I called at 9 and they told

me to go to the ER, at this point it looked like a potatoe with black spots

and the redness was spreading. I went to the ER, they admitted me, diagnosis

seemed to be either a spider bite, gout, ra flare or a skin infection. After a

day of super strong iv antibiotics the internist that I was assigned knew it

wasn't a skin infection. My rheumy (who I have been with for 9 years now and

thought the world of) came to the hospital on thursday, marked in my record

book that I wasn't in my room and left. I was in the room from Wednesday to

this morning, only leaving for an MRI on Friday at 12 noon for 1 hour. Not

only was I there in the room on thursday but so was my husband. I was so hurt

when I found out that I can't even put it in words, I honestly thought this

doc

was the tops. The internist was wonderful but was looking for a confirmation

from the rheumy that it was a flare, the MRI on firday showed synovial

inflamation, I had another rheumy from the office, another partner come in

friday,

saturday and sunday and say everyday that he didn't think it was RA related.

The internist finally started iv steriods on saturday night and the

turnaround began, I was able to leave today, the toe looks alot better and

feels

better too, I'll be on steriods for another 10 days along with the antibiotic.

Yesterday I had anot her rheumy from the office that came in, looked at me,

said " you know this is ra related " and I was so releaved, I knew it, the jerk

over the weekend is the only one who didn't. My question, I am so disappointed

you can't believe in my rheumy, I'd like to change to the rheumy that I met

yesterday, same practice, just a different doctor. We had discussed how every

time I take Remicade, I end up with a problem, small or large afterwards, he

said he'd have me off it then (my doc just wanted to increase it) and on

Rituxan, has anyone tried that yet? I called today because I need to make a

follow up appt for 2 weeks from now and they have to ask my old rheumy if I

can go

to the new guy, stinks doesn't it. I'd appreciate your comments. Thank you,

in pa

[Guest guest]

Hi -

I would change docs. No question. But is there a chacne you were in the

bathroom or something?

Anyway- I am on Rituxan- and it has been working better than any of the

others- I tried Remicade, Orencia, EMbrel etc. They all stoppped working

after 6 months. But the Rituxan is still going strong after 1.5 years. I

have to get an infusion every 3-4 months tho- instead of 1-2 timers a year.

I am just weird, I guess.!

But you need to go to who ever you feel most comfortable with.

Jill

On 6/17/08, McNally <McNacks@...> wrote:

>

> Hi Everyone, I just got home this morning from spending a full WEEK in

> the hospital over a big toe flare. Sunday a week ago I started to feel

> something funny in my left big toe, Monday a week ago I had an important

> fumeral to go to that I could not miss. That night I went to the primary, he

> thought it was a spider bite and gave me a script for keflex and steriods, I

> advised thim that I don't do steriods unless direly important and that I

> would hold off on them, took the script for the keflex that day 2 times.

> Tuesday when I woke up my toe was alot worse so I added the prednisone then,

> by Wednesday moring I was up at 4 am waiting for the dr office to open, I

> called at 9 and they told me to go to the ER, at this point it looked like a

> potatoe with black spots and the redness was spreading. I went to the ER,

> they admitted me, diagnosis seemed to be either a spider bite, gout, ra

> flare or a skin infection. After a day of super strong iv antibiotics the

> internist that I was assigned knew it wasn't a skin infection. My rheumy

> (who I have been with for 9 years now and thought the world of) came to the

> hospital on thursday, marked in my record book that I wasn't in my room and

> left. I was in the room from Wednesday to this morning, only leaving for an

> MRI on Friday at 12 noon for 1 hour. Not only was I there in the room on

> thursday but so was my husband. I was so hurt when I found out that I can't

> even put it in words, I honestly thought this doc was the tops. The

> internist was wonderful but was looking for a confirmation from the rheumy

> that it was a flare, the MRI on firday showed synovial inflamation, I had

> another rheumy from the office, another partner come in friday, saturday and

> sunday and say everyday that he didn't think it was RA related. The

> internist finally started iv steriods on saturday night and the turnaround

> began, I was able to leave today, the toe looks alot better and feels better

> too, I'll be on steriods for another 10 days along with the antibiotic.

> Yesterday I had another rheumy from the office that came in, looked at me,

> said " you know this is ra related " and I was so releaved, I knew it, the

> jerk over the weekend is the only one who didn't. My question, I am so

> disappointed you can't believe in my rheumy, I'd like to change to the

> rheumy that I met yesterday, same practice, just a different doctor. We had

> discussed how every time I take Remicade, I end up with a problem, small or

> large afterwards, he said he'd have me off it then (my doc just wanted to

> increase it) and on Rituxan, has anyone tried that yet? I called today

> because I need to make a follow up appt for 2 weeks from now and they have

> to ask my old rheumy if I can go to the new guy, stinks doesn't it. I'd

> appreciate your comments. Thank you, in pa

>

>

[Guest guest]

Jo-Ann,

I am 25 mi N or Reading near PottsVILLE.... :-)

Where is your rheumy located?

*~ Kami ~*

Re: [ ] what would you do?

hi ,

I agree with the other responses, that you have a right to change doctors.

your response to your dr can be diplomatic as someone has already suggested....

to follow up with the other person who saw you in the hospital. It's too bad

someone you trusted just blew this off.

I was on remicade for a while and had immune problems while on it. I ended up

with pleurisy! twice. It sounds like something from the 50's and is painful.

It's an inflammation of the lung lining. Prednisone is the only thing that

helped, as it was a virus....large doses like 40 mg.

Anyway, I am off the remicade and won't go back on it. I take diclofenac and

5mg of prednisone a day to help my arthritis. Good luck by the way, I live in PA

also.

Jo-Ann

-------------- Original message --------------

From: " McNally " <McNacks@...>

Hi Everyone, I just got home this morning from spending a full WEEK in the

hospital over a big toe flare. Sunday a week ago I started to feel something

funny in my left big toe, Monday a week ago I had an important fumeral to go to

that I could not miss. That night I went to the primary, he thought it was a

spider bite and gave me a script for keflex and steriods, I advised thim that I

don't do steriods unless direly important and that I would hold off on them,

took the script for the keflex that day 2 times. Tuesday when I woke up my toe

was alot worse so I added the prednisone then, by Wednesday moring I was up at 4

am waiting for the dr office to open, I called at 9 and they told me to go to

the ER, at this point it looked like a potatoe with black spots and the redness

was spreading. I went to the ER, they admitted me, diagnosis seemed to be either

a spider bite, gout, ra flare or a skin infection. After a day of super strong

iv antibiotics the internist that I was assigned kne

w it wasn't a skin infection. My rheumy (who I have been with for 9 years now

and thought the world of) came to the hospital on thursday, marked in my record

book that I wasn't in my room and left. I was in the room from Wednesday to this

morning, only leaving for an MRI on Friday at 12 noon for 1 hour. Not only was I

there in the room on thursday but so was my husband. I was so hurt when I found

out that I can't even put it in words, I honestly thought this doc was the tops.

The internist was wonderful but was looking for a confirmation from the rheumy

that it was a flare, the MRI on firday showed synovial inflamation, I had

another rheumy from the office, another partner come in friday, saturday and

sunday and say everyday that he didn't think it was RA related. The internist

finally started iv steriods on saturday night and the turnaround began, I was

able to leave today, the toe looks alot better and feels better too, I'll be on

steriods for another 10 days along with the antib

iotic. Yesterday I had another rheumy from the office that came in, looked at

me, said " you know this is ra related " and I was so releaved, I knew it, the

jerk over the weekend is the only one who didn't. My question, I am so

disappointed you can't believe in my rheumy, I'd like to change to the rheumy

that I met yesterday, same practice, just a different doctor. We had discussed

how every time I take Remicade, I end up with a problem, small or large

afterwards, he said he'd have me off it then (my doc just wanted to increase it)

and on Rituxan, has anyone tried that yet? I called today because I need to make

a follow up appt for 2 weeks from now and they have to ask my old rheumy if I

can go to the new guy, stinks doesn't it. I'd appreciate your comments. Thank

you, in pa

[Guest guest]

,

First, I am SO happy you are home and doing better. :-)

I think you need to be honest with the doctor's office. Tell then you feel that

he dropped the ball with your care and about the associate as well. If they

won't let you switch, ask them WHY and ask to speak to the doctor.

Best of luck to you!

*~ Kami ~*

[ ] what would you do?

Hi Everyone, I just got home this morning from spending a full WEEK in the

hospital over a big toe flare. Sunday a week ago I started to feel something

funny in my left big toe, Monday a week ago I had an important fumeral to go to

that I could not miss. That night I went to the primary, he thought it was a

spider bite and gave me a script for keflex and steriods, I advised thim that I

don't do steriods unless direly important and that I would hold off on them,

took the script for the keflex that day 2 times. Tuesday when I woke up my toe

was alot worse so I added the prednisone then, by Wednesday moring I was up at 4

am waiting for the dr office to open, I called at 9 and they told me to go to

the ER, at this point it looked like a potatoe with black spots and the redness

was spreading. I went to the ER, they admitted me, diagnosis seemed to be either

a spider bite, gout, ra flare or a skin infection. After a day of super strong

iv antibiotics the internist that I was assigned knew it wasn't a skin

infection. My rheumy (who I have been with for 9 years now and thought the world

of) came to the hospital on thursday, marked in my record book that I wasn't in

my room and left. I was in the room from Wednesday to this morning, only leaving

for an MRI on Friday at 12 noon for 1 hour. Not only was I there in the room on

thursday but so was my husband. I was so hurt when I found out that I can't even

put it in words, I honestly thought this doc was the tops. The internist was

wonderful but was looking for a confirmation from the rheumy that it was a

flare, the MRI on firday showed synovial inflamation, I had another rheumy from

the office, another partner come in friday, saturday and sunday and say everyday

that he didn't think it was RA related. The internist finally started iv

steriods on saturday night and the turnaround began, I was able to leave today,

the toe looks alot better and feels better too, I'll be on steriods for another

10 days along with the antibiotic. Yesterday I had another rheumy from the

office that came in, looked at me, said " you know this is ra related " and I was

so releaved, I knew it, the jerk over the weekend is the only one who didn't. My

question, I am so disappointed you can't believe in my rheumy, I'd like to

change to the rheumy that I met yesterday, same practice, just a different

doctor. We had discussed how every time I take Remicade, I end up with a

problem, small or large afterwards, he said he'd have me off it then (my doc

just wanted to increase it) and on Rituxan, has anyone tried that yet? I called

today because I need to make a follow up appt for 2 weeks from now and they have

to ask my old rheumy if I can go to the new guy, stinks doesn't it. I'd

appreciate your comments. Thank you, in pa

[Guest guest]

I got the call yesterday afternoon, they are switching me, the gal on the phone

was very nice, I am thinking of writing him a letter stating how much I thought

of him but then he let me down when I really needed him after 9 years. I'll be

nice in the letter but I really want him to know, it may help someone in the

future. mary in pa

[ ] what would you do?

Hi Everyone, I just got home this morning from spending a full WEEK in the

hospital over a big toe flare. Sunday a week ago I started to feel something

funny in my left big toe, Monday a week ago I had an important fumeral to go to

that I could not miss. That night I went to the primary, he thought it was a

spider bite and gave me a script for keflex and steriods, I advised thim that I

don't do steriods unless direly important and that I would hold off on them,

took the script for the keflex that day 2 times. Tuesday when I woke up my toe

was alot worse so I added the prednisone then, by Wednesday moring I was up at 4

am waiting for the dr office to open, I called at 9 and they told me to go to

the ER, at this point it looked like a potatoe with black spots and the redness

was spreading. I went to the ER, they admitted me, diagnosis seemed to be either

a spider bite, gout, ra flare or a skin infection. After a day of super strong

iv antibiotics the internist that I was assigned knew it wasn't a skin

infection. My rheumy (who I have been with for 9 years now and thought the world

of) came to the hospital on thursday, marked in my record book that I wasn't in

my room and left. I was in the room from Wednesday to this morning, only leaving

for an MRI on Friday at 12 noon for 1 hour. Not only was I there in the room on

thursday but so was my husband. I was so hurt when I found out that I can't even

put it in words, I honestly thought this doc was the tops. The internist was

wonderful but was looking for a confirmation from the rheumy that it was a

flare, the MRI on firday showed synovial inflamation, I had another rheumy from

the office, another partner come in friday, saturday and sunday and say everyday

that he didn't think it was RA related. The internist finally started iv

steriods on saturday night and the turnaround began, I was able to leave today,

the toe looks alot better and feels better too, I'll be on steriods for another

10 days along with the antibiotic. Yesterday I had another rheumy from the

office that came in, looked at me, said " you know this is ra related " and I was

so releaved, I knew it, the jerk over the weekend is the only one who didn't. My

question, I am so disappointed you can't believe in my rheumy, I'd like to

change to the rheumy that I met yesterday, same practice, just a different

doctor. We had discussed how every time I take Remicade, I end up with a

problem, small or large afterwards, he said he'd have me off it then (my doc

just wanted to increase it) and on Rituxan, has anyone tried that yet? I called

today because I need to make a follow up appt for 2 weeks from now and they have

to ask my old rheumy if I can go to the new guy, stinks doesn't it. I'd

appreciate your comments. Thank you, in pa

[Guest guest]

Hi Jill,

I may have been in the bathroom but my husband was there from 12 noon to 8 that

night, so there was always someone in the room.

I looked up the cautions for rituxan last night and kinda scared me, did you

have any reactions at all? What was your pain level before, if you dont' mind

my asking. I'm only mild/moderate and wondering if I should just stay on the

mtx. Are you on mtx along with it? Any other comments are appreciated. Thanks

for taking the time. mary in pa

Re: [ ] what would you do?

Hi -

I would change docs. No question. But is there a chacne you were in the

bathroom or something?

Anyway- I am on Rituxan- and it has been working better than any of the

others- I tried Remicade, Orencia, EMbrel etc. They all stoppped working

after 6 months. But the Rituxan is still going strong after 1.5 years. I

have to get an infusion every 3-4 months tho- instead of 1-2 timers a year.

I am just weird, I guess.!

But you need to go to who ever you feel most comfortable with.

Jill

On 6/17/08, McNally <McNacks@...> wrote:

>

> Hi Everyone, I just got home this morning from spending a full WEEK in

> the hospital over a big toe flare. Sunday a week ago I started to feel

> something funny in my left big toe, Monday a week ago I had an important

> fumeral to go to that I could not miss. That night I went to the primary, he

> thought it was a spider bite and gave me a script for keflex and steriods, I

> advised thim that I don't do steriods unless direly important and that I

> would hold off on them, took the script for the keflex that day 2 times.

> Tuesday when I woke up my toe was alot worse so I added the prednisone then,

> by Wednesday moring I was up at 4 am waiting for the dr office to open, I

> called at 9 and they told me to go to the ER, at this point it looked like a

> potatoe with black spots and the redness was spreading. I went to the ER,

> they admitted me, diagnosis seemed to be either a spider bite, gout, ra

> flare or a skin infection. After a day of super strong iv antibiotics the

> internist that I was assigned knew it wasn't a skin infection. My rheumy

> (who I have been with for 9 years now and thought the world of) came to the

> hospital on thursday, marked in my record book that I wasn't in my room and

> left. I was in the room from Wednesday to this morning, only leaving for an

> MRI on Friday at 12 noon for 1 hour. Not only was I there in the room on

> thursday but so was my husband. I was so hurt when I found out that I can't

> even put it in words, I honestly thought this doc was the tops. The

> internist was wonderful but was looking for a confirmation from the rheumy

> that it was a flare, the MRI on firday showed synovial inflamation, I had

> another rheumy from the office, another partner come in friday, saturday and

> sunday and say everyday that he didn't think it was RA related. The

> internist finally started iv steriods on saturday night and the turnaround

> began, I was able to leave today, the toe looks alot better and feels better

> too, I'll be on steriods for another 10 days along with the antibiotic.

> Yesterday I had another rheumy from the office that came in, looked at me,

> said " you know this is ra related " and I was so releaved, I knew it, the

> jerk over the weekend is the only one who didn't. My question, I am so

> disappointed you can't believe in my rheumy, I'd like to change to the

> rheumy that I met yesterday, same practice, just a different doctor. We had

> discussed how every time I take Remicade, I end up with a problem, small or

> large afterwards, he said he'd have me off it then (my doc just wanted to

> increase it) and on Rituxan, has anyone tried that yet? I called today

> because I need to make a follow up appt for 2 weeks from now and they have

> to ask my old rheumy if I can go to the new guy, stinks doesn't it. I'd

> appreciate your comments. Thank you, in pa

>

>

[Guest guest]

kami,

My Rheumy has two offices. One is in Wyomissing, near Reading and the other

Pottstown. His name is Dr. Perilstein. 610-378-1658 for the

Wyomissing office. I highly recommend him. I've seen him for 13 years. He's

very calm, conservative and a good listener. He's been practicing a long time

and is very knowledgeable even with Fibro. (if you should decide to change

doctors) Good luck

Jo-Ann

--------- Re: [ ] what would you do?

hi ,

I agree with the other responses, that you have a right to change doctors. your

response to your dr can be diplomatic as someone has already suggested.... to

follow up with the other person who saw you in the hospital. It's too bad

someone you trusted just blew this off.

I was on remicade for a while and had immune problems while on it. I ended up

with pleurisy! twice. It sounds like something from the 50's and is painful.

It's an inflammation of the lung lining. Prednisone is the only thing that

helped, as it was a virus....large doses like 40 mg.

Anyway, I am off the remicade and won't go back on it. I take diclofenac and 5mg

of prednisone a day to help my arthritis. Good luck by the way, I live in PA

also.

Jo-Ann

-------------- Original message --------------

From: " McNally " <McNacks@...>

Hi Everyone, I just got home this morning from spending a full WEEK in the

hospital over a big toe flare. Sunday a week ago I started to feel something

funny in my left big toe, Monday a week ago I had an important fumeral to go to

that I could not miss. That night I went to the primary, he thought it was a

spider bite and gave me a script for keflex and steriods, I advised thim that I

don't do steriods unless direly important and that I would hold off on them,

took the script for the keflex that day 2 times. Tuesday when I woke up my toe

was alot worse so I added the prednisone then, by Wednesday moring I was up at 4

am waiting for the dr office to open, I called at 9 and they told me to go to

the ER, at this point it looked like a potatoe with black spots and the redness

was spreading. I went to the ER, they admitted me, diagnosis seemed to be either

a spider bite, gout, ra flare or a skin infection. After a day of super strong

iv antibiotics the internist that I was assigned kne

w it wasn't a skin infection. My rheumy (who I have been with for 9 years now

and thought the world of) came to the hospital on thursday, marked in my record

book that I wasn't in my room and left. I was in the room from Wednesday to this

morning, only leaving for an MRI on Friday at 12 noon for 1 hour. Not only was I

there in the room on thursday but so was my husband. I was so hurt when I found

out that I can't even put it in words, I honestly thought this doc was the tops.

The internist was wonderful but was looking for a confirmation from the rheumy

that it was a flare, the MRI on firday showed synovial inflamation, I had

another rheumy from the office, another partner come in friday, saturday and

sunday and say everyday that he didn't think it was RA related. The internist

finally started iv steriods on saturday night and the turnaround began, I was

able to leave today, the toe looks alot better and feels better too, I'll be on

steriods for another 10 days along with the antib

iotic. Yesterday I had another rheumy from the office that came in, looked at

me, said " you know this is ra related " and I was so releaved, I knew it, the

jerk over the weekend is the only one who didn't. My question, I am so

disappointed you can't believe in my rheumy, I'd like to change to the rheumy

that I met yesterday, same practice, just a different doctor. We had discussed

how every time I take Remicade, I end up with a problem, small or large

afterwards, he said he'd have me off it then (my doc just wanted to increase it)

and on Rituxan, has anyone tried that yet? I called today because I need to make

a follow up appt for 2 weeks from now and they have to ask my old rheumy if I

can go to the new guy, stinks doesn't it. I'd appreciate your comments. Thank

you, in pa

[Guest guest]

When we started the Rituxan - I had a pretty high pain level. I hate the

1-10 scale. I picture a 10 being in a car wreck with all your limbs cut off-

so my pain was at a 7? The Rituxan has brought it down to an average of a 4.

Except for my right wrist with has severe degenerative joint problems and

needs surgery. Anyway- the only side effect from Rituxan- during the

infusion, a few times I got a tickle in my throat and the nurse slowed down

the drip. Thats all- its going really well for me.

Good luck on your decision!

Jill

On 6/18/08, McNally <McNacks@...> wrote:

>

> Hi Jill,

>

> I may have been in the bathroom but my husband was there from 12 noon to 8

> that night, so there was always someone in the room.

>

> I looked up the cautions for rituxan last night and kinda scared me, did

> you have any reactions at all? What was your pain level before, if you dont'

> mind my asking. I'm only mild/moderate and wondering if I should just stay

> on the mtx. Are you on mtx along with it? Any other comments are

> appreciated. Thanks for taking the time. mary in pa

> Re: [ ] what would you do?

>

> Hi -

>

> I would change docs. No question. But is there a chacne you were in the

> bathroom or something?

>

> Anyway- I am on Rituxan- and it has been working better than any of the

> others- I tried Remicade, Orencia, EMbrel etc. They all stoppped working

> after 6 months. But the Rituxan is still going strong after 1.5 years. I

> have to get an infusion every 3-4 months tho- instead of 1-2 timers a year.

> I am just weird, I guess.!

>

> But you need to go to who ever you feel most comfortable with.

>

> Jill

>

> On 6/17/08, McNally <McNacks@... <McNacks%40comcast.net>>

> wrote:

> >

> > Hi Everyone, I just got home this morning from spending a full WEEK in

> > the hospital over a big toe flare. Sunday a week ago I started to feel

> > something funny in my left big toe, Monday a week ago I had an important

> > fumeral to go to that I could not miss. That night I went to the primary,

> he

> > thought it was a spider bite and gave me a script for keflex and

> steriods, I

> > advised thim that I don't do steriods unless direly important and that I

> > would hold off on them, took the script for the keflex that day 2 times.

> > Tuesday when I woke up my toe was alot worse so I added the prednisone

> then,

> > by Wednesday moring I was up at 4 am waiting for the dr office to open, I

> > called at 9 and they told me to go to the ER, at this point it looked

> like a

> > potatoe with black spots and the redness was spreading. I went to the ER,

> > they admitted me, diagnosis seemed to be either a spider bite, gout, ra

> > flare or a skin infection. After a day of super strong iv antibiotics the

> > internist that I was assigned knew it wasn't a skin infection. My rheumy

> > (who I have been with for 9 years now and thought the world of) came to

> the

> > hospital on thursday, marked in my record book that I wasn't in my room

> and

> > left. I was in the room from Wednesday to this morning, only leaving for

> an

> > MRI on Friday at 12 noon for 1 hour. Not only was I there in the room on

> > thursday but so was my husband. I was so hurt when I found out that I

> can't

> > even put it in words, I honestly thought this doc was the tops. The

> > internist was wonderful but was looking for a confirmation from the

> rheumy

> > that it was a flare, the MRI on firday showed synovial inflamation, I had

> > another rheumy from the office, another partner come in friday, saturday

> and

> > sunday and say everyday that he didn't think it was RA related. The

> > internist finally started iv steriods on saturday night and the

> turnaround

> > began, I was able to leave today, the toe looks alot better and feels

> better

> > too, I'll be on steriods for another 10 days along with the antibiotic.

> > Yesterday I had another rheumy from the office that came in, looked at

> me,

> > said " you know this is ra related " and I was so releaved, I knew it, the

> > jerk over the weekend is the only one who didn't. My question, I am so

> > disappointed you can't believe in my rheumy, I'd like to change to the

> > rheumy that I met yesterday, same practice, just a different doctor. We

> had

> > discussed how every time I take Remicade, I end up with a problem, small

> or

> > large afterwards, he said he'd have me off it then (my doc just wanted to

> > increase it) and on Rituxan, has anyone tried that yet? I called today

> > because I need to make a follow up appt for 2 weeks from now and they

> have

> > to ask my old rheumy if I can go to the new guy, stinks doesn't it. I'd

> > appreciate your comments. Thank you, in pa

> >

> >