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Subject: The Growing Menace of Diabetest, Part 2

> Diabetes bears an inverse relationship to income, for poverty usually

> means less access to fresh food, exercise and health care. New York's

> poverty rate, 20.3 percent, is much higher than the nation's, 12.7

> percent.

>

> African-Americans and Latinos, particularly Mexican-Americans and

> Puerto Ricans, incur diabetes at close to twice the rate of whites.

> More than half of all New Yorkers are black or Hispanic, and the

> Hispanic population is growing rapidly, as it is around the nation.

>

> Some Asian-Americans and Pacific Islanders also appear more prone, and

> they can develop the disease at much lower weights. Asians constitute

> one-tenth of New York's population, more than twice their proportion

> nationwide.

>

> The nature of these groups' susceptibility remains under study, but

> researchers generally blame an interplay of genetic and socioeconomic

> forces. Many researchers believe that higher proportions of these

> groups have a " thrifty gene " that enabled ancestors who farmed and

> hunted to stockpile fat during times of plenty so they would not

> starve during periods of want. In modern America, with food beckoning

> on every corner, the gene works perversely, causing them to accumulate

> unhealthy quantities of fat.

>

> But the velocity of new cases among all races has accelerated

> significantly from just a few decades ago. Genetics cannot explain

> this surge, because the human gene pool does not change that fast.

> Instead, the culprit is thought to be behavior: faulty diet and

> inactivity. Dr. Vinicor, of the Centers for Disease Control, likes to

> use this expression: " Genetics may load the cannon, but human behavior

> pulls the trigger. "

>

> Of the country's spike in diabetes cases over the last two decades,

> C.D.C. studies suggest that about 60 percent stem from demographic

> changes: a population increasingly comprising older people and ethnic

> groups with a higher risk.

>

> The studies ascribe the other 40 percent to lifestyle changes: the

> fundamental shift that has people eating jumbo meals and shunning

> exercise as if it were illegal. At every turn, technology has made

> physical activity unnecessary or unappealing. Gym class has largely

> been deleted from schools. Fewer than a third of junior high schools

> require physical education at all, the C.D.C. says.

>

> On the whole, New York's corpulence is below the national average,

> with 20 percent of adults qualifying as obese, compared with 30

> percent for the country, the C.D.C. says. But the figure is much

> higher in poor areas like the South Bronx and East Harlem.

>

> When the health department studied diabetes in the city's 34 major

> neighborhoods, the distribution echoed demographic patterns: Diabetes

> left only a light imprint on more affluent, white areas like the Upper

> West Side and Brooklyn Heights. The prevalence was about average in

> working-class Ridgewood, Queens, and almost nil on the Upper East

> Side.

>

> But that apparent immunity is weakening. Of those 34 neighborhoods, 22

> already have diabetes rates above the national average, and the

> numbers are rising all over as the city continually remakes itself.

>

> " New York is switching from a mom-and-pop type of environment to a

> chain-store type of environment, a proliferation of fast food, even in

> high-rent neighborhoods they haven't had access to before, like the

> East Village and Lower Manhattan, " said Muennig, an assistant

> professor of health policy and management at Columbia.

>

> If changes in daily living can bring on diabetes, they can also delay

> it, though it is uncertain for how long.

>

> A federal program studied people around the country at high risk of

> getting diabetes, and concluded that 58 percent of new cases could be

> postponed by shifts in behavior - most notably, shedding pounds.

>

> But Dr. Frieden, New York's health commissioner, says meaningful

> prevention cannot be achieved at the city level. " I can urge people

> until I'm blue in the face to walk and take the stairs and eat less,

> and it won't make much difference, " he said.

>

> His emphasis is on trying to better treat those who already have

> diabetes, an ambitious goal in its own right. Most primary care

> doctors treat too many patients to provide the attention that

> diabetics need, or to check for the disease, he said. Specialists are

> scarce. And compliance among patients is notoriously poor.

>

> Even the most basic step in controlling the disease - watching one's

> blood sugar - is too much for many diabetics. Doctors recommend that

> two to four times a year, patients take a so-called A1c test, which

> gauges the average sugar level over the prior 90 days and is more

> revealing than daily at-home measurements.

>

> But in 2002 , the health department found that 89 percent of diabetics

> did not know their A1c levels. Of those who did, presumably the most

> conscientious, four out of five had readings over the level the

> American Diabetes Association says separates well-controlled from

> poorly controlled diabetes.

>

> The patients in the survey were not much better at knowing their blood

> pressure and cholesterol, which are also crucial for diabetics to

> control.

>

> " Diabetes is an interesting beast, " said Dr. K. Berger, who

> heads the diabetes division at the health department. " It's probably

> one of the easier conditions to diagnose but one of the hardest to

> manage. "

>

> Shortages and Shipwrecks

>

> There is an underappreciated truth about disease: it will harm you

> even if you never get it. Disease reverberates outward, and if the

> illness gets big enough, it brushes everyone. Diabetes is big enough.

>

> Predicting the path of a disease is always speculative, but without

> bold intervention diabetes threatens to hamper some of society's most

> basic functions.

>

> For instance, no one with diabetes can join the military, though

> service members whose disease is diagnosed after enlisting can

> sometimes stay. No insulin-dependent diabetic can become a commercial

> pilot.

>

> Shereen Arent, director of legal advocacy for the American Diabetes

> Association, says she already fields 150 calls a month from diabetics

> who complain that they are being discriminated against in the

> workplace, double the number just a couple of years ago. She mentioned

> a typical case, a man rejected for a job at a baked-bean factory in

> Texas as a safety risk. " If this continues, " she said, " we're in big

> trouble. "

>

> Dr. Lorber is an endocrinologist in Queens who thinks a lot

> about the disease's present and future. " The work force 50 years from

> now is going to look fat, one-legged, blind, a diminution of

> able-bodied workers at every level, " he said, presuming that current

> trends persist.

>

> As more women contract diabetes in their reproductive years, Dr.

> Lorber said, more babies will be born with birth defects. Those needy

> babies will be raised by parents increasingly crippled by their

> diabetes.

>

> " At a time when we are trying to shift health care out of hospitals,

> with diabetics you don't have a choice, " he said. " Nursing homes are

> going to be crammed to the gills with amputees in rehab. Kidney

> dialysis centers will multiply like rabbits. We will have a tremendous

> amount of people not blind but with low vision. And we have lousy

> facilities in this country for low-vision problems. These people will

> not be able to function in society without significant aid. "

>

> Cost pressures have been slashing the number of hospital beds, and

> some exasperated doctors are known to denigrate advanced diabetics as

> " shipwrecks, " because they have so many health problems and virtually

> live in the hospital.

>

> Not only will the future mean too few beds and unsupportable drains on

> Medicaid and Medicare, Mr. Muennig said, but if an emergency strikes -

> a terrorist attack, an earthquake - the city health system's ability

> to respond may be compromised because all the beds will be full of

> diabetics.

>

> Most schools do not have full-time nurses. Some public schools, Ms.

> Arent said, try to turn away children with diabetes, even though that

> is illegal. Others ban them from field trips and sports teams. And

> this is now, when diabetes is still relatively rare among children.

>

> If trends continue, people will live through years blighted by

> disability, then die too young. Diabetes is thought to shave 5 to 10

> years off a life.

>

> " Life expectancy usually decreases because there's a plague or there's

> a massive economic trauma, " Mr. Muennig said. " In this case, we will

> see a decline in life expectancy due to a chronic condition. "

>

> In 2003, diabetes vaulted past stroke and AIDS from the sixth-leading

> cause of death in New York to the fourth. It was fifth, slightly

> behind stroke, in 2004. But the health department says it believes the

> actual toll is much worse because doctors who fill out death

> certificates may ascribe the death to a complication rather than to

> the diabetes at its root. Lorna Thorpe, deputy health commissioner,

> combed through medical charts and concluded that diabetes should be

> third, trailing cardiovascular disease and cancer.

>

> Laurie Raps is a claims representative for Social Security on Staten

> Island, 31 years on the job. From her perspective, interviewing people

> embarking on full-time disability, she has seen the disease's long

> tentacles. When she started, she saw people in their 50's and 60's,

> hobbled by the usual problems of age: [19]arthritis, herniated discs,

> heart conditions. Now, every week, she gets diabetic after diabetic,

> people as young as 30.

>

> In fact, a 2004 study by UnumProvident, a major provider of disability

> insurance, found that the number of workers filing claims for Type 2

> diabetes doubled between 2001 and 2003.

>

> " It's a double whammy, " Ms. Raps said. " You don't have these people

> working and paying into the system, and then you have these people

> collecting from the system. "

>

> Ten years ago, Ms. Raps developed diabetes. Her husband has it. Both

> her parents have it, their lives being washed away.

>

> " When I look at the people who sit before me with disability claims, I

> have to check the birth date in their records, " she said. " They look

> 10 or 20 years older. Diabetes does that. It wears you down and wears

> you down. We're looking at a future of people 10 or 20 years older in

> sickness than they are. What kind of future is that? "

>

> 'A 15-Year-Old Is Immortal'

>

> " I'm and I've had diabetes for 13 years. "

>

> " I'm Dominique and I've had diabetes for seven years. "

>

> " I'm ph and I've had diabetes for two months. "

>

> The brisk introductions went on, the ritual start to the monthly

> meeting of a support group called Sugar Babes Place. All the members

> had diabetes. All were children.

>

> Sugar Babes is the idea of Dr. Yolaine St. Louis, chief of pediatric

> endocrinology at Bronx-Lebanon Hospital Center. When she started

> practicing medicine 16 years ago, the only children she saw with

> diabetes had Type 1.

>

> Now, of Sugar Babes' 90 official members, roughly 40 percent have Type

> 2. One is 8. Another is 7.

>

> It scares Dr. St. Louis. It scares many doctors who see the same

> thing, because they know it does not have to be. Type 2 was supposed

> to be an old person's disease. Diabetes still increases with age in an

> almost linear fashion - today, one in five New Yorkers age 65 and

> older have it - but the starting point used to be mostly in their

> 50's.

>

> Dr. Alan Shapiro, a pediatrician with the Children's Health Fund and

> Montefiore Medical Center who has spent 13 years ministering to

> children in the South Bronx, said there was an easy way to illustrate

> the change. When he began, there was a " failure-to-thrive " clinic,

> meant to address the undernourished, because so many children were

> dangerously thin and small.

>

> " Now I don't think we hardly ever see a failure-to-thrive case, " he

> said.

>

> In the clinic's place is an obesity program. Dr. Shapiro never saw

> children with Type 2 diabetes in his early years in medicine. Now, the

> program has about 10 cases.

>

> One concern he and fellow doctors have is the surge in children who

> take antipsychotic drugs for anxiety and conditions like [20]autism.

> Some newer drugs can promote weight gain and thus elevate the risk of

> diabetes. Dr. Shapiro has an autistic patient who he feels needs the

> new medication. But since taking it, the young man has markedly put on

> weight and, at 18, developed diabetes.

>

> This extension of the disease to the young is where health care

> professionals feel society and public policy have most glaringly

> failed. Diabetes, they say, should never have gotten there.

>

> There has been little research into the long-term impact of Type 2

> diabetes on children. But doctors have a rough idea. The harsh

> consequences that can accompany diabetes tend to arrive 10 to 15 years

> after onset.

>

> If people contract diabetes when they are 15, 10 or even 5, they may

> well start developing complications, not on the cusp of retirement but

> in the prime of their lives.

>

> There is a big difference between losing a limb at 21 and at 70. There

> is a big difference between going on dialysis at 30 and at 65.

>

> " I heard a horror story a few weeks ago, " Dr. Lorber said, " of a girl

> who was born [21]deaf, got diabetes at 11 or 12 and went blind from

> diabetes at 30. "

>

> The C.D.C. has projected that a child found to have Type 2 diabetes at

> age 10 will see his life shortened by 19 years.

>

> " Imagine if kids were showing up at emergency rooms in cardiac

> arrest, " said Dr. L. Katz, director of the Prevention Research

> Center at the Yale University School of Medicine. " ly, I think

> that's the next big thing. It's that dramatic. If diabetes doesn't

> respect age, why should coronary disease? Lord knows, I hope this

> never happens. But this is what keeps me up at night. "

>

> Yet children can be the most reluctant to accept the truths of their

> condition.

>

> " A lot of them are in denial, " Dr. St. Louis said. " They have blood

> sugars of 300, 400, and they tell me right to my face they don't have

> diabetes. 'You're wrong,' they say. 'I don't feel anything.' I tell

> them what can happen down the road, and they shrug. A 15-year-old

> doesn't care what's going to happen at 35 or 45. A 15-year-old is

> immortal. "

>

> The doctor was telling the Sugar Babes that everyone should have two

> compact blood-sugar meters, one for home and one for school. Then she

> warned them, " If your sugar is bad and you don't do anything, you're

> going to be dropping down all over the Bronx. "

>

> Interest was tepid. Some children couldn't keep their eyes off the

> waiting dinner arranged at a buffet table by the wall. No rapt

> attention from ph, 12, who had begged not to come, until his

> mother put her foot down. He moaned that he had schoolwork.

>

> " Look at that, " said Dorothy -Swaby, a diabetes nurse educator

> who worked with Dr. St. Louis, nodding at a girl who was talking on

> her phone. " We're educating about diabetes, and she's on her

> cellphone. Typical teenager. "

>

> As time ran out, hula hoops were brought out. Dr. St. Louis was trying

> to identify activities other than video games and TV that the children

> might try. Last meeting, they held a jump-rope contest.

>

> " They have 10,000 excuses why they can't do something, " the doctor

> said. " So you have to give them ideas and then hope. "

>

> The meeting wound up. The hoops were stashed away. Some of the

> children stepped toward the buffet table and began to eat.

>

>

> --

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.1.371 / Virus Database: 267.14.15/223 - Release Date: 1/6/2006

>

>

Posted

Yes, Mike that pothered me too, but when you look at the person who wrote

it, he/she probably has not had any association with persons of disability.

Re: long, interesting article

Amen. I was a bit disturbed by the attitude of some of the medicos that

amputees and the blind couldn't lead a normal life. But the overall

focus and message of the article is clear and dead on.

Mike

> Very good article!

>

>

>

>

>

>

Posted

Yes, Mike that pothered me too, but when you look at the person who wrote

it, he/she probably has not had any association with persons of disability.

Re: long, interesting article

Amen. I was a bit disturbed by the attitude of some of the medicos that

amputees and the blind couldn't lead a normal life. But the overall

focus and message of the article is clear and dead on.

Mike

> Very good article!

>

>

>

>

>

>

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