introduction

[Guest guest]

Welcome to the group and .

This group has become a lifeline of information and friends in the short

time that I joined which has only been a few months. These people have

provided medical information and moral support for which I am very grateful

and above all the humour you will find here is priceless and is just what

one needs when we are having a bad day.

I too am an only child and am going through a rough time with my Mom who is

hospitalized with severe emphasema and pulmonary disease and I now have to

address the fact that a Nursing Home may be in the near future for her. It

is going to devastate her and be very tough on me so you can bet I will be

drawing strength and support down the road from my PLS-friends.

My thoughts are with you and your husband and am glad you have found the

website. May the support of knowing others care help you through these

difficult times.

Sincerely, Jo (Thunder Bay, Ontario, Canada)

Introduction

> My name is , and my husband has just been diagnosed with PLS after a

long long round of tests and a first diagnosis of ALS. We live in Tennessee,

but we are seeking treatment at the Carolinas ALS institute. Our first visit

was on the 28th of October, when Dr. Rosenfeld gave us the news that

had PLS instead of ALS. We still haven't decided if it's good or bad news,

frankly. But we are going to enroll in just about any study we find, and are

going to try to make the best of things. is 34 and I am 35. We have

no children, though we desperately wanted them. I went through many many

infertility treatments. But now I guess it's a blessing.

>

> Anyway, I just wanted to say hello and hope that I will find some support.

I'm sorely in need of it. My mother has terminal cancer and my father is

slowly dying in a nursing home, and I am an only child. Feeling pretty

isolated, to say the least!

>

> So, it's nice to " meet " you, and I hope to hear from you soon.

>

> Peace, and may all be auspicious,

>

>

>

> Ohm Ma Ni Pad Me Hum

> " May all being be free from suffering and the causes of suffering "

>

>

>

[Guest guest]

Rita: Very well said! You are so wise!

Hugs, Laurel

Re: Introduction

Hi :

Welcome to the group, this is the place to be. I am 66 years old, live

in New Hampshire. I was in my early 30's when things started to happen.

Took me 2 1/2 years to get a diagnosis. I was one of the lucky ones.

For years my progression has been very slow, and I have been fortunate

enough to have met at least 25 PLSer's in the past few years, and have

learned at this disease strikes many people in different ways, some

slower like myself, and other's get hit hard and fast as you will learn

as you get to know us all better. We all have different approaches to

how to handle having PLS and mine is eliminate as much stress as

possible from your life, don't fight it as it can't be reversed, but can

be controlled if you listen to your body.

You as a caregiver have a big role in how he handles having PLS. Live

life as normal as you can, don't make an invalid out of him. Let him do

the things he can do, regardless if you think you can do it better or

faster (like my dear husband does). If he needs you, be there, but

don't coddle him, if you understand what I am saying. This is not a

life threatening disease, just life changing. Just take it one day at a

time. There is life after a PLS diagnosis.

Good Luck!

Rita

Luv & Hugs!

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

Lord Keep Your Arm Around My Shoulder And Your Hand Over My Mouth

When you worry it's like sitting in a rocking chair, it gives you a good

ride, but it doesn't get you any where.

*************************************

[Guest guest]

Rita: Very well said! You are so wise!

Hugs, Laurel

Re: Introduction

Hi :

Welcome to the group, this is the place to be. I am 66 years old, live

in New Hampshire. I was in my early 30's when things started to happen.

Took me 2 1/2 years to get a diagnosis. I was one of the lucky ones.

For years my progression has been very slow, and I have been fortunate

enough to have met at least 25 PLSer's in the past few years, and have

learned at this disease strikes many people in different ways, some

slower like myself, and other's get hit hard and fast as you will learn

as you get to know us all better. We all have different approaches to

how to handle having PLS and mine is eliminate as much stress as

possible from your life, don't fight it as it can't be reversed, but can

be controlled if you listen to your body.

You as a caregiver have a big role in how he handles having PLS. Live

life as normal as you can, don't make an invalid out of him. Let him do

the things he can do, regardless if you think you can do it better or

faster (like my dear husband does). If he needs you, be there, but

don't coddle him, if you understand what I am saying. This is not a

life threatening disease, just life changing. Just take it one day at a

time. There is life after a PLS diagnosis.

Good Luck!

Rita

Luv & Hugs!

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

Lord Keep Your Arm Around My Shoulder And Your Hand Over My Mouth

When you worry it's like sitting in a rocking chair, it gives you a good

ride, but it doesn't get you any where.

*************************************

[Guest guest]

Rita: Very well said! You are so wise!

Hugs, Laurel

Re: Introduction

Hi :

Welcome to the group, this is the place to be. I am 66 years old, live

in New Hampshire. I was in my early 30's when things started to happen.

Took me 2 1/2 years to get a diagnosis. I was one of the lucky ones.

For years my progression has been very slow, and I have been fortunate

enough to have met at least 25 PLSer's in the past few years, and have

learned at this disease strikes many people in different ways, some

slower like myself, and other's get hit hard and fast as you will learn

as you get to know us all better. We all have different approaches to

how to handle having PLS and mine is eliminate as much stress as

possible from your life, don't fight it as it can't be reversed, but can

be controlled if you listen to your body.

You as a caregiver have a big role in how he handles having PLS. Live

life as normal as you can, don't make an invalid out of him. Let him do

the things he can do, regardless if you think you can do it better or

faster (like my dear husband does). If he needs you, be there, but

don't coddle him, if you understand what I am saying. This is not a

life threatening disease, just life changing. Just take it one day at a

time. There is life after a PLS diagnosis.

Good Luck!

Rita

Luv & Hugs!

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

Lord Keep Your Arm Around My Shoulder And Your Hand Over My Mouth

When you worry it's like sitting in a rocking chair, it gives you a good

ride, but it doesn't get you any where.

*************************************

[Guest guest]

Hi ,

Welcome to our group. You might find some interesting information about other

PLSers at the PLS Awareness site:

www.geocities.com/mdmfoo/pls.html

Just click on PLSers Data.

Also, the als-pls.org site has a research page that will show you some research

that in now being done. I need to update the site to include Dr. Fink's work,

but it has the Northwestern/Siddique blood marker study and the studies at NIH.

How is your husband affected at this time?

My first reaction to the PLS diagnosis was similar to yours. After a while you

adjust and accept the diagnosis. Time is our best friend with PLS. But only if

we do something valuable with the time we are given. So " Live the Day " and do

whatever you can for research.

Thomson

Solana Beach, Ca

Visit www.als-pls.org

and www.geocities.com/mdmfoo/pls.html

Introduction

My name is , and my husband has just been diagnosed with PLS after a

long long round of tests and a first diagnosis of ALS. We live in Tennessee, but

we are seeking treatment at the Carolinas ALS institute. Our first visit was on

the 28th of October, when Dr. Rosenfeld gave us the news that had PLS

instead of ALS. We still haven't decided if it's good or bad news, frankly. But

we are going to enroll in just about any study we find, and are going to try to

make the best of things. is 34 and I am 35. We have no children, though

we desperately wanted them. I went through many many infertility treatments. But

now I guess it's a blessing.

Anyway, I just wanted to say hello and hope that I will find some support. I'm

sorely in need of it. My mother has terminal cancer and my father is slowly

dying in a nursing home, and I am an only child. Feeling pretty isolated, to say

the least!

So, it's nice to " meet " you, and I hope to hear from you soon.

Peace, and may all be auspicious,

Ohm Ma Ni Pad Me Hum

" May all being be free from suffering and the causes of suffering "

[Guest guest]

Hi ,

Welcome to our group. You might find some interesting information about other

PLSers at the PLS Awareness site:

www.geocities.com/mdmfoo/pls.html

Just click on PLSers Data.

Also, the als-pls.org site has a research page that will show you some research

that in now being done. I need to update the site to include Dr. Fink's work,

but it has the Northwestern/Siddique blood marker study and the studies at NIH.

How is your husband affected at this time?

My first reaction to the PLS diagnosis was similar to yours. After a while you

adjust and accept the diagnosis. Time is our best friend with PLS. But only if

we do something valuable with the time we are given. So " Live the Day " and do

whatever you can for research.

Thomson

Solana Beach, Ca

Visit www.als-pls.org

and www.geocities.com/mdmfoo/pls.html

Introduction

My name is , and my husband has just been diagnosed with PLS after a

long long round of tests and a first diagnosis of ALS. We live in Tennessee, but

we are seeking treatment at the Carolinas ALS institute. Our first visit was on

the 28th of October, when Dr. Rosenfeld gave us the news that had PLS

instead of ALS. We still haven't decided if it's good or bad news, frankly. But

we are going to enroll in just about any study we find, and are going to try to

make the best of things. is 34 and I am 35. We have no children, though

we desperately wanted them. I went through many many infertility treatments. But

now I guess it's a blessing.

Anyway, I just wanted to say hello and hope that I will find some support. I'm

sorely in need of it. My mother has terminal cancer and my father is slowly

dying in a nursing home, and I am an only child. Feeling pretty isolated, to say

the least!

So, it's nice to " meet " you, and I hope to hear from you soon.

Peace, and may all be auspicious,

Ohm Ma Ni Pad Me Hum

" May all being be free from suffering and the causes of suffering "

[Guest guest]

That " no coddling " advice is by far the hardest to take, but I'm learing. Only

the second time he's hurt me in our almost 5 year marriage was when I called a

doctor to ask about his cough. The doctor insisted he see , and

had a complete hissy, saying he's already losing enough of his independence

without me going " behind my back. " Ouch. I haven't made that mistake since. If

he needs me, he'll ask. Other than that he's on his own, sister!

Peace, and may all be auspicious

Ohm Ma Ni Pad Me Hum

" May all beings be free from suffering and the causes of suffering "

Re: Introduction

Hi :

Welcome to the group, this is the place to be. I am 66 years old, live

in New Hampshire. I was in my early 30's when things started to happen.

Took me 2 1/2 years to get a diagnosis. I was one of the lucky ones.

For years my progression has been very slow, and I have been fortunate

enough to have met at least 25 PLSer's in the past few years, and have

learned at this disease strikes many people in different ways, some

slower like myself, and other's get hit hard and fast as you will learn

as you get to know us all better. We all have different approaches to

how to handle having PLS and mine is eliminate as much stress as

possible from your life, don't fight it as it can't be reversed, but can

be controlled if you listen to your body.

You as a caregiver have a big role in how he handles having PLS. Live

life as normal as you can, don't make an invalid out of him. Let him do

the things he can do, regardless if you think you can do it better or

faster (like my dear husband does). If he needs you, be there, but

don't coddle him, if you understand what I am saying. This is not a

life threatening disease, just life changing. Just take it one day at a

time. There is life after a PLS diagnosis.

Good Luck!

Rita

Luv & Hugs!

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

Lord Keep Your Arm Around My Shoulder And Your Hand Over My Mouth

When you worry it's like sitting in a rocking chair, it gives you a good

ride, but it doesn't get you any where.

*************************************

[Guest guest]

That " no coddling " advice is by far the hardest to take, but I'm learing. Only

the second time he's hurt me in our almost 5 year marriage was when I called a

doctor to ask about his cough. The doctor insisted he see , and

had a complete hissy, saying he's already losing enough of his independence

without me going " behind my back. " Ouch. I haven't made that mistake since. If

he needs me, he'll ask. Other than that he's on his own, sister!

Peace, and may all be auspicious

Ohm Ma Ni Pad Me Hum

" May all beings be free from suffering and the causes of suffering "

Re: Introduction

Hi :

Welcome to the group, this is the place to be. I am 66 years old, live

in New Hampshire. I was in my early 30's when things started to happen.

Took me 2 1/2 years to get a diagnosis. I was one of the lucky ones.

For years my progression has been very slow, and I have been fortunate

enough to have met at least 25 PLSer's in the past few years, and have

learned at this disease strikes many people in different ways, some

slower like myself, and other's get hit hard and fast as you will learn

as you get to know us all better. We all have different approaches to

how to handle having PLS and mine is eliminate as much stress as

possible from your life, don't fight it as it can't be reversed, but can

be controlled if you listen to your body.

You as a caregiver have a big role in how he handles having PLS. Live

life as normal as you can, don't make an invalid out of him. Let him do

the things he can do, regardless if you think you can do it better or

faster (like my dear husband does). If he needs you, be there, but

don't coddle him, if you understand what I am saying. This is not a

life threatening disease, just life changing. Just take it one day at a

time. There is life after a PLS diagnosis.

Good Luck!

Rita

Luv & Hugs!

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

Lord Keep Your Arm Around My Shoulder And Your Hand Over My Mouth

When you worry it's like sitting in a rocking chair, it gives you a good

ride, but it doesn't get you any where.

*************************************

[Guest guest]

Thanks for the websites, ! As for 's condition, he believes he'll

probably be wheelchair bound within the next year. It's his legs most affected.

He also has a cough that won't go away. That drives him bananas. But we think

right now it's post-nasal drip since he is the allergy king.

His right arm is more affected than left, though both are weakening in grip for

sure. His lifting ability is pretty much completely gone. He can't lift his own

walker. Another thing that's getting on his nerves. Pretty much everything his

body does is getting on his nerves lately, but it's understandable since he's a

former Ai Ki Do student, police officer, and avid backpacker, cyclist and

runner. This time last year he was on a trail marked " Moderate to Difficult "

with a 60 pound pack on his back. I keep trying to remind him that sometime,

someday, when he and I both are more accepting of the situation, we will learn

to get enjoyment out of life just like before, just in different ways.

Peace, and may all be auspicious

Ohm Ma Ni Pad Me Hum

" May all beings be free from suffering and the causes of suffering "

Introduction

My name is , and my husband has just been diagnosed with PLS after a

long long round of tests and a first diagnosis of ALS. We live in Tennessee, but

we are seeking treatment at the Carolinas ALS institute. Our first visit was on

the 28th of October, when Dr. Rosenfeld gave us the news that had PLS

instead of ALS. We still haven't decided if it's good or bad news, frankly. But

we are going to enroll in just about any study we find, and are going to try to

make the best of things. is 34 and I am 35. We have no children, though

we desperately wanted them. I went through many many infertility treatments. But

now I guess it's a blessing.

Anyway, I just wanted to say hello and hope that I will find some support.

I'm sorely in need of it. My mother has terminal cancer and my father is slowly

dying in a nursing home, and I am an only child. Feeling pretty isolated, to say

the least!

So, it's nice to " meet " you, and I hope to hear from you soon.

Peace, and may all be auspicious,

Ohm Ma Ni Pad Me Hum

" May all being be free from suffering and the causes of suffering "

[Guest guest]

Thanks for the websites, ! As for 's condition, he believes he'll

probably be wheelchair bound within the next year. It's his legs most affected.

He also has a cough that won't go away. That drives him bananas. But we think

right now it's post-nasal drip since he is the allergy king.

His right arm is more affected than left, though both are weakening in grip for

sure. His lifting ability is pretty much completely gone. He can't lift his own

walker. Another thing that's getting on his nerves. Pretty much everything his

body does is getting on his nerves lately, but it's understandable since he's a

former Ai Ki Do student, police officer, and avid backpacker, cyclist and

runner. This time last year he was on a trail marked " Moderate to Difficult "

with a 60 pound pack on his back. I keep trying to remind him that sometime,

someday, when he and I both are more accepting of the situation, we will learn

to get enjoyment out of life just like before, just in different ways.

Peace, and may all be auspicious

Ohm Ma Ni Pad Me Hum

" May all beings be free from suffering and the causes of suffering "

Introduction

My name is , and my husband has just been diagnosed with PLS after a

long long round of tests and a first diagnosis of ALS. We live in Tennessee, but

we are seeking treatment at the Carolinas ALS institute. Our first visit was on

the 28th of October, when Dr. Rosenfeld gave us the news that had PLS

instead of ALS. We still haven't decided if it's good or bad news, frankly. But

we are going to enroll in just about any study we find, and are going to try to

make the best of things. is 34 and I am 35. We have no children, though

we desperately wanted them. I went through many many infertility treatments. But

now I guess it's a blessing.

Anyway, I just wanted to say hello and hope that I will find some support.

I'm sorely in need of it. My mother has terminal cancer and my father is slowly

dying in a nursing home, and I am an only child. Feeling pretty isolated, to say

the least!

So, it's nice to " meet " you, and I hope to hear from you soon.

Peace, and may all be auspicious,

Ohm Ma Ni Pad Me Hum

" May all being be free from suffering and the causes of suffering "

[Guest guest]

Thanks for the websites, ! As for 's condition, he believes he'll

probably be wheelchair bound within the next year. It's his legs most affected.

He also has a cough that won't go away. That drives him bananas. But we think

right now it's post-nasal drip since he is the allergy king.

His right arm is more affected than left, though both are weakening in grip for

sure. His lifting ability is pretty much completely gone. He can't lift his own

walker. Another thing that's getting on his nerves. Pretty much everything his

body does is getting on his nerves lately, but it's understandable since he's a

former Ai Ki Do student, police officer, and avid backpacker, cyclist and

runner. This time last year he was on a trail marked " Moderate to Difficult "

with a 60 pound pack on his back. I keep trying to remind him that sometime,

someday, when he and I both are more accepting of the situation, we will learn

to get enjoyment out of life just like before, just in different ways.

Peace, and may all be auspicious

Ohm Ma Ni Pad Me Hum

" May all beings be free from suffering and the causes of suffering "

Introduction

My name is , and my husband has just been diagnosed with PLS after a

long long round of tests and a first diagnosis of ALS. We live in Tennessee, but

we are seeking treatment at the Carolinas ALS institute. Our first visit was on

the 28th of October, when Dr. Rosenfeld gave us the news that had PLS

instead of ALS. We still haven't decided if it's good or bad news, frankly. But

we are going to enroll in just about any study we find, and are going to try to

make the best of things. is 34 and I am 35. We have no children, though

we desperately wanted them. I went through many many infertility treatments. But

now I guess it's a blessing.

Anyway, I just wanted to say hello and hope that I will find some support.

I'm sorely in need of it. My mother has terminal cancer and my father is slowly

dying in a nursing home, and I am an only child. Feeling pretty isolated, to say

the least!

So, it's nice to " meet " you, and I hope to hear from you soon.

Peace, and may all be auspicious,

Ohm Ma Ni Pad Me Hum

" May all being be free from suffering and the causes of suffering "

[Guest guest]

Hi :

Frustration is one of the biggest obstacles to overcome, not only for the

person with PLS but also caregivers, family and friends. It must be

extremely hard for being he was so active before this. My heart

goes out to you both. I have been active all my life also, but the

difference is I will soon be 60 years old and have had a relatively good

life. When you are young you must feel as though you are being robbed of so

much.

The group is a great place to vent your frustrations as we are all in the

same boat.

Take care.

Jo! (Thunder Bay, Ontario)

Introduction

>

>

> My name is , and my husband has just been diagnosed with PLS

after a long long round of tests and a first diagnosis of ALS. We live in

Tennessee, but we are seeking treatment at the Carolinas ALS institute. Our

first visit was on the 28th of October, when Dr. Rosenfeld gave us the news

that had PLS instead of ALS. We still haven't decided if it's good

or bad news, frankly. But we are going to enroll in just about any study we

find, and are going to try to make the best of things. is 34 and I

am 35. We have no children, though we desperately wanted them. I went

through many many infertility treatments. But now I guess it's a blessing.

>

> Anyway, I just wanted to say hello and hope that I will find some

support. I'm sorely in need of it. My mother has terminal cancer and my

father is slowly dying in a nursing home, and I am an only child. Feeling

pretty isolated, to say the least!

>

> So, it's nice to " meet " you, and I hope to hear from you soon.

>

> Peace, and may all be auspicious,

>

>

>

> Ohm Ma Ni Pad Me Hum

> " May all being be free from suffering and the causes of suffering "

>

>

>

[Guest guest]

Hi :

Frustration is one of the biggest obstacles to overcome, not only for the

person with PLS but also caregivers, family and friends. It must be

extremely hard for being he was so active before this. My heart

goes out to you both. I have been active all my life also, but the

difference is I will soon be 60 years old and have had a relatively good

life. When you are young you must feel as though you are being robbed of so

much.

The group is a great place to vent your frustrations as we are all in the

same boat.

Take care.

Jo! (Thunder Bay, Ontario)

Introduction

>

>

> My name is , and my husband has just been diagnosed with PLS

after a long long round of tests and a first diagnosis of ALS. We live in

Tennessee, but we are seeking treatment at the Carolinas ALS institute. Our

first visit was on the 28th of October, when Dr. Rosenfeld gave us the news

that had PLS instead of ALS. We still haven't decided if it's good

or bad news, frankly. But we are going to enroll in just about any study we

find, and are going to try to make the best of things. is 34 and I

am 35. We have no children, though we desperately wanted them. I went

through many many infertility treatments. But now I guess it's a blessing.

>

> Anyway, I just wanted to say hello and hope that I will find some

support. I'm sorely in need of it. My mother has terminal cancer and my

father is slowly dying in a nursing home, and I am an only child. Feeling

pretty isolated, to say the least!

>

> So, it's nice to " meet " you, and I hope to hear from you soon.

>

> Peace, and may all be auspicious,

>

>

>

> Ohm Ma Ni Pad Me Hum

> " May all being be free from suffering and the causes of suffering "

>

>

>

[Guest guest]

Hi :

Frustration is one of the biggest obstacles to overcome, not only for the

person with PLS but also caregivers, family and friends. It must be

extremely hard for being he was so active before this. My heart

goes out to you both. I have been active all my life also, but the

difference is I will soon be 60 years old and have had a relatively good

life. When you are young you must feel as though you are being robbed of so

much.

The group is a great place to vent your frustrations as we are all in the

same boat.

Take care.

Jo! (Thunder Bay, Ontario)

Introduction

>

>

> My name is , and my husband has just been diagnosed with PLS

after a long long round of tests and a first diagnosis of ALS. We live in

Tennessee, but we are seeking treatment at the Carolinas ALS institute. Our

first visit was on the 28th of October, when Dr. Rosenfeld gave us the news

that had PLS instead of ALS. We still haven't decided if it's good

or bad news, frankly. But we are going to enroll in just about any study we

find, and are going to try to make the best of things. is 34 and I

am 35. We have no children, though we desperately wanted them. I went

through many many infertility treatments. But now I guess it's a blessing.

>

> Anyway, I just wanted to say hello and hope that I will find some

support. I'm sorely in need of it. My mother has terminal cancer and my

father is slowly dying in a nursing home, and I am an only child. Feeling

pretty isolated, to say the least!

>

> So, it's nice to " meet " you, and I hope to hear from you soon.

>

> Peace, and may all be auspicious,

>

>

>

> Ohm Ma Ni Pad Me Hum

> " May all being be free from suffering and the causes of suffering "

>

>

>

[Guest guest]

Hi ,

I can understand Mike's feelings even though I am 64 years old. A little

more than a year ago I was still hoping to make it back on to the Appalacian

trail someday. I was not in great shape or anything - just someone who loved

to walk and thought her legs would never fail her.

Now I am waiting for approval of my request for an electric wheelchair. When

I am sitting down sometimes I still find it hard to believe that I cannot get

up and walk across the room.

Jane from Florida

[Guest guest]

Hi ,

I can understand Mike's feelings even though I am 64 years old. A little

more than a year ago I was still hoping to make it back on to the Appalacian

trail someday. I was not in great shape or anything - just someone who loved

to walk and thought her legs would never fail her.

Now I am waiting for approval of my request for an electric wheelchair. When

I am sitting down sometimes I still find it hard to believe that I cannot get

up and walk across the room.

Jane from Florida

[Guest guest]

Hi ,

I can understand Mike's feelings even though I am 64 years old. A little

more than a year ago I was still hoping to make it back on to the Appalacian

trail someday. I was not in great shape or anything - just someone who loved

to walk and thought her legs would never fail her.

Now I am waiting for approval of my request for an electric wheelchair. When

I am sitting down sometimes I still find it hard to believe that I cannot get

up and walk across the room.

Jane from Florida

[Guest guest]

That's biggest " mourning " I think. I guess right now it's all so new

that we'll be vacillating between grief and panic. At least I know I am. I have

never been very good at watching anyone suffer. It hurts me in my heart so very

much that it's often to my detriment. Work has become extremely difficult

because I can't seem to get my mind off of , my mom, my dad, and of

course....me. I am so scared sometimes. I am scared that I'm going to have a

nervous breakdown or something and be completely unable to help anyone at all.

But it's all early in the process, so I'm sure I'll adjust day by day.

I'm glad I found you guys, though. At least there are others who " get it. " I'm

sorry there has to be others at all though. What a mean disease. Of course, what

disease isn't??

Peace, and may all be auspicious,

Ohm Ma Ni Pad Me Hum

" May all beings be free from suffering and the causes of suffering. "

Re: Introduction

Hi ,

I can understand Mike's feelings even though I am 64 years old. A little

more than a year ago I was still hoping to make it back on to the Appalacian

trail someday. I was not in great shape or anything - just someone who loved

to walk and thought her legs would never fail her.

Now I am waiting for approval of my request for an electric wheelchair. When

I am sitting down sometimes I still find it hard to believe that I cannot get

up and walk across the room.

Jane from Florida

[Guest guest]

That's biggest " mourning " I think. I guess right now it's all so new

that we'll be vacillating between grief and panic. At least I know I am. I have

never been very good at watching anyone suffer. It hurts me in my heart so very

much that it's often to my detriment. Work has become extremely difficult

because I can't seem to get my mind off of , my mom, my dad, and of

course....me. I am so scared sometimes. I am scared that I'm going to have a

nervous breakdown or something and be completely unable to help anyone at all.

But it's all early in the process, so I'm sure I'll adjust day by day.

I'm glad I found you guys, though. At least there are others who " get it. " I'm

sorry there has to be others at all though. What a mean disease. Of course, what

disease isn't??

Peace, and may all be auspicious,

Ohm Ma Ni Pad Me Hum

" May all beings be free from suffering and the causes of suffering. "

Re: Introduction

Hi ,

I can understand Mike's feelings even though I am 64 years old. A little

more than a year ago I was still hoping to make it back on to the Appalacian

trail someday. I was not in great shape or anything - just someone who loved

to walk and thought her legs would never fail her.

Now I am waiting for approval of my request for an electric wheelchair. When

I am sitting down sometimes I still find it hard to believe that I cannot get

up and walk across the room.

Jane from Florida

[Guest guest]

,

This can be quite overwhelming but a friend wrote, " How do you eat an

elephant? " The answer is ....one bite at a time. When I have a job that's

too big to handle, I take small " bites " of it and do the best I can. I can

no longer cut a cabbage head in half so I find a spot on it and just make

small cuts. Eventually it all gets cut up! Silly way to relate to such an

awsome reality of an illness but it works for me. Try to focus on the good

things that are still in your life. Find some humor in everyday things. My

husband and I have lots to live for and laugh about....ourselves in

particular. He goes in for brain tumor surgery Nov. 29th and we are

prepared for a long recovery. He and I still find joy in each day. (This is

his second time around for this surgery.)

Peace and blessings,

Vivian

[Guest guest]

Patti,

I was diagnosed with infiltrating ductal carcinoma in May 1990 and I am

doing fine. You could call the American Cancer Society and they will send

out lots of info. Komen Foundation may have some also. In the meantime

go to www.webmd.com and type it in there. Also there is a good book call

Choices by n Morra dn Eve Potts. If you go to www.half.com and type

that in it should pull up the latest edition. Its the 3rd one I believe. I

want to get it when I get a chance. It has ALL cancers but also explains

everything in detail and has questions to ask the dr etc. I have the first

two editions but they are becoming outdated with all the new treatments etc.

May 6th does seem like a long time. Is there anyway you could get them to

push the date up? If your aunt is stressed out I would call and let them

know. Its the not knowing and waiting that is extremely hard. She is very

lucky to have you. I will keep you both in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:

http://www.geocities.com/chucky5741/bcornament.html

also check out my other ornaments and lots of nice gifts at:

http://www.cancerclub.com

introduction

> Hi my name is Patti. Yesterday my aunt found out that she has

> infiltrating duct carcinoma. I don't know that much about breast

> cancer, so I was wondering if someone could please send me some

> information on it. One thing that I am curious about is, she found

> out yesterday and they can't get her into see a surgeon until May

> 6th. Doesn't that seem like a long time to wait? Or am I just

> emotional, would not be the first for me re: over re-acting. What

> kinds of things should we expect.

>

> Thank you in advance for any help you can give.

>

> Patti

>

>

>

>

>

>

>

[Guest guest]

Patti,

I was diagnosed with infiltrating ductal carcinoma in May 1990 and I am

doing fine. You could call the American Cancer Society and they will send

out lots of info. Komen Foundation may have some also. In the meantime

go to www.webmd.com and type it in there. Also there is a good book call

Choices by n Morra dn Eve Potts. If you go to www.half.com and type

that in it should pull up the latest edition. Its the 3rd one I believe. I

want to get it when I get a chance. It has ALL cancers but also explains

everything in detail and has questions to ask the dr etc. I have the first

two editions but they are becoming outdated with all the new treatments etc.

May 6th does seem like a long time. Is there anyway you could get them to

push the date up? If your aunt is stressed out I would call and let them

know. Its the not knowing and waiting that is extremely hard. She is very

lucky to have you. I will keep you both in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:

http://www.geocities.com/chucky5741/bcornament.html

also check out my other ornaments and lots of nice gifts at:

http://www.cancerclub.com

introduction

> Hi my name is Patti. Yesterday my aunt found out that she has

> infiltrating duct carcinoma. I don't know that much about breast

> cancer, so I was wondering if someone could please send me some

> information on it. One thing that I am curious about is, she found

> out yesterday and they can't get her into see a surgeon until May

> 6th. Doesn't that seem like a long time to wait? Or am I just

> emotional, would not be the first for me re: over re-acting. What

> kinds of things should we expect.

>

> Thank you in advance for any help you can give.

>

> Patti

>

>

>

>

>

>

>

[Guest guest]

Patti,

I was diagnosed with infiltrating ductal carcinoma in May 1990 and I am

doing fine. You could call the American Cancer Society and they will send

out lots of info. Komen Foundation may have some also. In the meantime

go to www.webmd.com and type it in there. Also there is a good book call

Choices by n Morra dn Eve Potts. If you go to www.half.com and type

that in it should pull up the latest edition. Its the 3rd one I believe. I

want to get it when I get a chance. It has ALL cancers but also explains

everything in detail and has questions to ask the dr etc. I have the first

two editions but they are becoming outdated with all the new treatments etc.

May 6th does seem like a long time. Is there anyway you could get them to

push the date up? If your aunt is stressed out I would call and let them

know. Its the not knowing and waiting that is extremely hard. She is very

lucky to have you. I will keep you both in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:

http://www.geocities.com/chucky5741/bcornament.html

also check out my other ornaments and lots of nice gifts at:

http://www.cancerclub.com

introduction

> Hi my name is Patti. Yesterday my aunt found out that she has

> infiltrating duct carcinoma. I don't know that much about breast

> cancer, so I was wondering if someone could please send me some

> information on it. One thing that I am curious about is, she found

> out yesterday and they can't get her into see a surgeon until May

> 6th. Doesn't that seem like a long time to wait? Or am I just

> emotional, would not be the first for me re: over re-acting. What

> kinds of things should we expect.

>

> Thank you in advance for any help you can give.

>

> Patti

>

>

>

>

>

>

>

[Guest guest]

nne, sorry for the delayed response. Thank you for your info. I have spoken with my aunt and she went to the surgeon and sat and waited on an on-call basis. Good news, the tumor is only 1.2 centimeters big. So they are planning a lumpectomy and short treatment of radiation or chemo. Not sure when all of this is going to start, but thank you very much for your information. I will be forwarding all of this on to my aunt, and looking it up my self. My mother works in a hospital and they gave her two movies for us to watch and pass on to my aunt. 1. Between Us - A first Ai Kit for Your Heart & Soul 2. Beyond Flowers, What to Say and Do When Someone You Know Has Breast cancer. So I will be sitting down and watching a couple of movies tonight and getting them in the mail tomorrow.

Again, thank you for your response. I am sure that I will have more questions as time goes on.

Patti

-- introduction> Hi my name is Patti. Yesterday my aunt found out that she has> infiltrating duct carcinoma. I don't know that much about breast> cancer, so I was wondering if someone could please send me some> information on it. One thing that I am curious about is, she found> out yesterday and they can't get her into see a surgeon until May> 6th. Doesn't that seem like a long time to wait? Or am I just> emotional, would not be the first for me re: over re-acting. What> kinds of things should we expect.>> Thank you in advance for any help you can give.>> Patti>>>>>>>

[Guest guest]

nne, sorry for the delayed response. Thank you for your info. I have spoken with my aunt and she went to the surgeon and sat and waited on an on-call basis. Good news, the tumor is only 1.2 centimeters big. So they are planning a lumpectomy and short treatment of radiation or chemo. Not sure when all of this is going to start, but thank you very much for your information. I will be forwarding all of this on to my aunt, and looking it up my self. My mother works in a hospital and they gave her two movies for us to watch and pass on to my aunt. 1. Between Us - A first Ai Kit for Your Heart & Soul 2. Beyond Flowers, What to Say and Do When Someone You Know Has Breast cancer. So I will be sitting down and watching a couple of movies tonight and getting them in the mail tomorrow.

Again, thank you for your response. I am sure that I will have more questions as time goes on.

Patti

-- introduction> Hi my name is Patti. Yesterday my aunt found out that she has> infiltrating duct carcinoma. I don't know that much about breast> cancer, so I was wondering if someone could please send me some> information on it. One thing that I am curious about is, she found> out yesterday and they can't get her into see a surgeon until May> 6th. Doesn't that seem like a long time to wait? Or am I just> emotional, would not be the first for me re: over re-acting. What> kinds of things should we expect.>> Thank you in advance for any help you can give.>> Patti>>>>>>>