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In a message dated 5/20/2007 6:06:13 P.M. Eastern Daylight Time,

dlriowa@... writes:

No, I don't. But I also have a fear of chat rooms as most people I know get

all their nasty viruses from online chat rooms. Maybe instant messaging

would be better? I just can't get past worrying about getting a computer

virus to chat online other than the instant messaging.

Laurie R

well i've been online with aol for over 10 yrs and never once got a virus

from a chatroom. if anyone needs to chat i'm usually on in the evenings. My

messenger ID is julzkidz feel free to add me as a friend. HUGSS to you

all.

julie

(http://lilypie.com/)

(http://lilypie.com/)

************************************** See what's free at http://www.aol.com.

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No, I don't. But I also have a fear of chat rooms as most people I know get

all their nasty viruses from online chat rooms. Maybe instant messaging

would be better? I just can't get past worrying about getting a computer

virus to chat online other than the instant messaging.

Laurie R.

On 5/20/07, audielinda <audielinda@...> wrote:

>

> I'm a little disapointed that I can't find a live chat room to speak

> with people who live with dibilitating arthritis and pain. There are

> times I need to speak with people who completely understand, without

> leaving a post. Does anyone know of such a live chat room? please

> respond to my email if possible.

>

> Thanks

>

>

>

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Hi, there are usually several people on line here 24/7. Maybe everyone is

having a pain free day and are out enjoying the sunshine. Wouldn't that be

great? It is terrible to be in pain 24/7. I have been that way for over 2

years now. Hurts to sit, stand, walk, lay, get up or down, turn over in bed

- same old, same old, same old. Same s***, different day. I know how you

feel. Try to hang in there. It's bound to get better. I have found that when

you are on bottom there is only one way to go.

Soft hugs and Prayers,

Fayray

>From: " audielinda " <audielinda@...>

>Reply-

>

>Subject: [ ] disapointed

>Date: Sun, 20 May 2007 21:22:08 -0000

>

>I'm a little disapointed that I can't find a live chat room to speak

>with people who live with dibilitating arthritis and pain. There are

>times I need to speak with people who completely understand, without

>leaving a post. Does anyone know of such a live chat room? please

>respond to my email if possible.

>

>Thanks

>

>

_________________________________________________________________

Catch suspicious messages before you open them—with Windows Live Hotmail.

http://imagine-windowslive.com/hotmail/?locale=en-us & ocid=TXT_TAGHM_migration_HM\

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Fayray and Audielinda, I'm here and I'm better than yesterday. But, aren't

pain free days just fairy tales? LOL I am so glad you guys are here because

I can tell you the truth instead of pretending for my family's sake.

Besides, I get tired of telling people how crappy I feel!!!! And, I'm sure

they get tired of hearing it. For some reason, I am having a hard time

typing today...not just hitting the keys, but hitting the right keys.

Strange!!Hugs to you both, Bev

[ ] disapointed

>>Date: Sun, 20 May 2007 21:22:08 -0000

>>

>>I'm a little disapointed that I can't find a live chat room to speak

>>with people who live with dibilitating arthritis and pain. There are

>>times I need to speak with people who completely understand, without

>>leaving a post. Does anyone know of such a live chat room? please

>>respond to my email if possible.

>>

>>Thanks

>>

>>

>

> _________________________________________________________________

> Catch suspicious messages before you open them-with Windows Live Hotmail.

>

http://imagine-windowslive.com/hotmail/?locale=en-us & ocid=TXT_TAGHM_migration_HM\

_mini_protection_0507

>

>

>

>

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--- In , " audielinda " <audielinda@...>

wrote:

>

> I'm a little disapointed that I can't find a live chat room to

speak

>

I did a search for you. I know nothing about these sites so go there

at your own risk.

Arthritis Medical Information Resources for Patients

www.medconsumer.info/topics/arthritis.htm says has anytime chat room

Fibromyalgia & Chronic Pain, Etc. forums.talkcity.com/tc-Fibromyalgia

WeCare.com-A comprehensive information resource on Fibromyalgia

www.wecare.com

Hope this helps and good luck. Bev

>

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Folks in 2 of the other groups I am in use the following chat room:

http://www.herc.org/chat/

They set up a schedule and just post reminders every week of chat times.

Members of this group could agree to do the same.

For ex. Here are the times for the Multiple Chemical Sensitivity group, I

just pasted their weekly reminder:

" For those interested in a live chat, chatroom times at www.herc.org/chat

Are below. This is the Health and Environment Resource Center site.

Saturday: 7 PM ET... 6 PM CT... 5 PM Mtn... 4 PM Pac

Monday: 8 PM ET... 7 PM CT... 6 PM Mtn... 5 PM Pac

Wednesday: 8 PM ET... 7 PM CT... 6 PM Mtn... 5 PM Pac

This chatroom is not associated with any group. It is unmoderated and no

Password is required. "

-- [ ] disapointed

I'm a little disapointed that I can't find a live chat room to speak

with people who live with dibilitating arthritis and pain. There are

times I need to speak with people who completely understand, without

leaving a post. Does anyone know of such a live chat room? please

respond to my email if possible.

Thanks

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Hi

thanks for responding. I have to admitt i didn't know how this site works and

isn't my main email. so i never thought to check my email. I have

177 unread email all from this site. I feel much better knowing this site is

easier to use than i originally thought.

I totally agree with how you feel. I'm glad to be able to speak with people

who I can be honest with. I tired of always PRETENDING everything is hunky

dory. It's not as we all know it. Just had another ER visit yesterday. I was

so embarresed when work called an ambulance because all of a sudden I couldn't

walk. All I did was get out of my chair and my right leg must have gotten a

pinched nerve in it because I couldn't control it. I had to drag it and my cane

wasn't enough to support my weight. I had trouble getting from my desk chair to

my wheel chair.

Everyone asked me if I was ok and how I'm feeling. I had to bite my tongue so

I didn't become beligerant. I felt like screeming I can't control my leg, I'm

in pain you all don't have any concept of on a daily basis, and you have the

gaul to ask me how I feel. Once again the ER pumped me up with the good stuff

and sent me home. that's all they can really do.

Well anyways, i do feel better this morning. able to walk with my cane and

have the rest of the weekend off, so i can take it easy.

hope you have a relaxing weekend

linda

ny & Beverly Carroll <johnnybeverly@...> wrote:

Fayray and Audielinda, I'm here and I'm better than yesterday. But,

aren't

pain free days just fairy tales? LOL I am so glad you guys are here because

I can tell you the truth instead of pretending for my family's sake.

Besides, I get tired of telling people how crappy I feel!!!! And, I'm sure

they get tired of hearing it. For some reason, I am having a hard time

typing today...not just hitting the keys, but hitting the right keys.

Strange!!Hugs to you both, Bev

[ ] disapointed

>>Date: Sun, 20 May 2007 21:22:08 -0000

>>

>>I'm a little disapointed that I can't find a live chat room to speak

>>with people who live with dibilitating arthritis and pain. There are

>>times I need to speak with people who completely understand, without

>>leaving a post. Does anyone know of such a live chat room? please

>>respond to my email if possible.

>>

>>Thanks

>>

>>

>

> __________________________________________________________

> Catch suspicious messages before you open them-with Windows Live Hotmail.

>

http://imagine-windowslive.com/hotmail/?locale=en-us & ocid=TXT_TAGHM_migration_HM\

_mini_protection_0507

>

>

>

>

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Guest guest

That could not be the same Soc.Security I know. Have you appealed the decision?

with a lawyer? You should not have to put up with that @% & #!!! I remember my

sis having severe trouble with her back (not the same as yours), but she could

not stand for 15 min w/o pain & needing to lay down. Her problem was surgically

fixed. I hope you can appeal and/or refile. God bless.

Good Morning Rose,

I wish you luck in getting Disability. Not sure where you are, but in Ohio you

have to be able to work 6 months out of the year even if it is on again off

again. I am 48 andI have a desk job and spinal stenosis which affects my entire

body. I've been with the company for 20 years, but the past two years have been

horrible with my condition. Since I don't meet the 6 month provision I am forced

to continue to work even though I can't sit for long, hold a pen or type long

without my hands/arms and legs cramping up. Disability see's nothing wrong with

me going into the ladies room to lay down for a half hour at a time to ease the

pressure off my back which helps to stop the cramping. They also don't care that

I am constantly doped up on vicoden and valium. And I have a half hour drive to

work. I've seen two surgeons who agree I am not a canidate for surgery because

the risk of peralysis is too high. I've been through spinal blocks, PT and

countless times in the ER.

I don't mean to discourage you, I REALLY DO WISH YOU WELL AND HOPE YOU GET THE

DISABILITY. I have to admit, every time I hear someone gets it I get a twinge of

jealousy, but than I get back into reality and am happy that the person was able

to get it. At least one more person is able to get some relief.

hope you have a relaxing holiday weekend.

linda

---------------------------------

Building a website is a piece of cake.

Small Business gives you all the tools to get online.

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Guest guest

wrote:

I wish you luck in getting Disability. Not sure where you are, but in Ohio

you have to be able to work 6 months out of the year even if it is on again off

again.

responds,

Wait a minute!!!! Do you mean that Ohio requires you to work 6 months out of

the year to

be eligible for Disability???? That's crazy. Because if that's true, no one in

your state

would qualify for SSDI or SSI.

Hoping I am reading this wrong.

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