Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Good for you!!! I've learned that too, if they aren't going to do what you need them to do.. don't waste your time or money. I once got into the greatest yelling match when I demanded my co pay back... I got it too! AND let the insurance company know that they shouldn't pay for the call. At the moment I can't even remember what my gripe was.. just standing there demanding my money back. See? Too hot in the house last night and didn't get good sleep... so now I have holes in my brain!!!! hehehehehhehehehehehe Topper () On Sun, 25 Jul 2004 19:10:20 -0500 "Toni" writes: Kathy,Trust me this one is going to be asked when I walk in the door what hisviews are on keeping someone on thyroid medication who has hashi's. If hedoesn't believe in it I'm walking right back out.ToniList Owner of:http://groups.yahoo.com/group/GDHWS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Good for you!!! I've learned that too, if they aren't going to do what you need them to do.. don't waste your time or money. I once got into the greatest yelling match when I demanded my co pay back... I got it too! AND let the insurance company know that they shouldn't pay for the call. At the moment I can't even remember what my gripe was.. just standing there demanding my money back. See? Too hot in the house last night and didn't get good sleep... so now I have holes in my brain!!!! hehehehehhehehehehehe Topper () On Sun, 25 Jul 2004 19:10:20 -0500 "Toni" writes: Kathy,Trust me this one is going to be asked when I walk in the door what hisviews are on keeping someone on thyroid medication who has hashi's. If hedoesn't believe in it I'm walking right back out.ToniList Owner of:http://groups.yahoo.com/group/GDHWS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Good for you!!! I've learned that too, if they aren't going to do what you need them to do.. don't waste your time or money. I once got into the greatest yelling match when I demanded my co pay back... I got it too! AND let the insurance company know that they shouldn't pay for the call. At the moment I can't even remember what my gripe was.. just standing there demanding my money back. See? Too hot in the house last night and didn't get good sleep... so now I have holes in my brain!!!! hehehehehhehehehehehe Topper () On Sun, 25 Jul 2004 19:10:20 -0500 "Toni" writes: Kathy,Trust me this one is going to be asked when I walk in the door what hisviews are on keeping someone on thyroid medication who has hashi's. If hedoesn't believe in it I'm walking right back out.ToniList Owner of:http://groups.yahoo.com/group/GDHWS/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Let's all get together and yank out their thyroids. Any takers? Re: Hi again Well, it looks like the docs I have been dealing with don't know anything about treating hashi's. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Let's all get together and yank out their thyroids. Any takers? Re: Hi again Well, it looks like the docs I have been dealing with don't know anything about treating hashi's. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 That sounds like over half the docs in my area, for almost ANY reason. I've seen many people put into comas by doctors. : ) Re: Hi again The best parallel would be like a diabetic. They give them insulin till they blood sugar level is normal, then they take them off and wait till they are heading to a coma, then remedicate! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 That sounds like over half the docs in my area, for almost ANY reason. I've seen many people put into comas by doctors. : ) Re: Hi again The best parallel would be like a diabetic. They give them insulin till they blood sugar level is normal, then they take them off and wait till they are heading to a coma, then remedicate! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 I could sic some of my antibodies on them - bet I could do some real damage... and imagine what would happen if we all joined forces. :-) -Marina > Let's all get together and yank out their thyroids. Any takers? > > > > Re: Hi again > > > Well, it looks like the docs I have been dealing with don't know anything about treating hashi's. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 I could sic some of my antibodies on them - bet I could do some real damage... and imagine what would happen if we all joined forces. :-) -Marina > Let's all get together and yank out their thyroids. Any takers? > > > > Re: Hi again > > > Well, it looks like the docs I have been dealing with don't know anything about treating hashi's. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 He could hit me ONE time, but since he wouldn't have any arms and legs left to hit me again, there definitely wouldn't be a second time. He'd have to go on disability, I guess. Re: Hi again Yes, he was also nailed for failure to do physical exams. There were other charges, too. (I think maybe he hit a nurse, too, but I am not sure about that.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 He could hit me ONE time, but since he wouldn't have any arms and legs left to hit me again, there definitely wouldn't be a second time. He'd have to go on disability, I guess. Re: Hi again Yes, he was also nailed for failure to do physical exams. There were other charges, too. (I think maybe he hit a nurse, too, but I am not sure about that.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 He could hit me ONE time, but since he wouldn't have any arms and legs left to hit me again, there definitely wouldn't be a second time. He'd have to go on disability, I guess. Re: Hi again Yes, he was also nailed for failure to do physical exams. There were other charges, too. (I think maybe he hit a nurse, too, but I am not sure about that.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Yes, I just realized that I've got that downloaded. I was going over it again, and yes, they did shoot him down for his rejection of the Mainstream guidelines. Re: Hi again Here 'tis. http://www.azmdboard.org/docimages/MD%2022164%20Non-confidential%20Final%20Order%20001HI5.pdf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Yes, I just realized that I've got that downloaded. I was going over it again, and yes, they did shoot him down for his rejection of the Mainstream guidelines. Re: Hi again Here 'tis. http://www.azmdboard.org/docimages/MD%2022164%20Non-confidential%20Final%20Order%20001HI5.pdf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Yes, I just realized that I've got that downloaded. I was going over it again, and yes, they did shoot him down for his rejection of the Mainstream guidelines. Re: Hi again Here 'tis. http://www.azmdboard.org/docimages/MD%2022164%20Non-confidential%20Final%20Order%20001HI5.pdf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Count me in.. I'll be the one that sits on them so that they can't get away!!!! Topper () On Mon, 26 Jul 2004 12:07:51 -0500 " " writes: Let's all get together and yank out their thyroids. Any takers? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Count me in.. I'll be the one that sits on them so that they can't get away!!!! Topper () On Mon, 26 Jul 2004 12:07:51 -0500 " " writes: Let's all get together and yank out their thyroids. Any takers? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Did anyone see the movie 'Species II'? The weapon that they used to kill the alien was a spray made using the blood of a guy that had sickle cell trait.. We should make up and antibody spray.... It activates only when sprayed on people that have been spit on by a person with Hashi's first.. that way we won't infect the whole planet.. just those that are abusive toward thyroid patients.. give them a taste of what we have to deal with. It's only short term though, not permanent... it will sputter out after 10 or 15 years.. after all... we wouldn't want them to suffer any longer then most of us have, right? .... you think I'm kidding? I know where we can get squirt guns by the gross! I wish it were financially feasible for us to have a march... could you imagine a thousand of us marching and chanting? Topper () On Mon, 26 Jul 2004 17:14:52 -0000 "marinara0404" writes: I could sic some of my antibodies on them - bet I could do some real damage... and imagine what would happen if we all joined forces. :-)-Marina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Did anyone see the movie 'Species II'? The weapon that they used to kill the alien was a spray made using the blood of a guy that had sickle cell trait.. We should make up and antibody spray.... It activates only when sprayed on people that have been spit on by a person with Hashi's first.. that way we won't infect the whole planet.. just those that are abusive toward thyroid patients.. give them a taste of what we have to deal with. It's only short term though, not permanent... it will sputter out after 10 or 15 years.. after all... we wouldn't want them to suffer any longer then most of us have, right? .... you think I'm kidding? I know where we can get squirt guns by the gross! I wish it were financially feasible for us to have a march... could you imagine a thousand of us marching and chanting? Topper () On Mon, 26 Jul 2004 17:14:52 -0000 "marinara0404" writes: I could sic some of my antibodies on them - bet I could do some real damage... and imagine what would happen if we all joined forces. :-)-Marina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Why settle for a thousand----- Million!!!!!!! Feisty*thinking big* Re: Re: Hi again Did anyone see the movie 'Species II'? The weapon that they used to kill the alien was a spray made using the blood of a guy that had sickle cell trait.. We should make up and antibody spray.... It activates only when sprayed on people that have been spit on by a person with Hashi's first.. that way we won't infect the whole planet.. just those that are abusive toward thyroid patients.. give them a taste of what we have to deal with. It's only short term though, not permanent... it will sputter out after 10 or 15 years.. after all... we wouldn't want them to suffer any longer then most of us have, right? .... you think I'm kidding? I know where we can get squirt guns by the gross! I wish it were financially feasible for us to have a march... could you imagine a thousand of us marching and chanting? Topper () On Mon, 26 Jul 2004 17:14:52 -0000 "marinara0404" writes: I could sic some of my antibodies on them - bet I could do some real damage... and imagine what would happen if we all joined forces. :-)-Marina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Why settle for a thousand----- Million!!!!!!! Feisty*thinking big* Re: Re: Hi again Did anyone see the movie 'Species II'? The weapon that they used to kill the alien was a spray made using the blood of a guy that had sickle cell trait.. We should make up and antibody spray.... It activates only when sprayed on people that have been spit on by a person with Hashi's first.. that way we won't infect the whole planet.. just those that are abusive toward thyroid patients.. give them a taste of what we have to deal with. It's only short term though, not permanent... it will sputter out after 10 or 15 years.. after all... we wouldn't want them to suffer any longer then most of us have, right? .... you think I'm kidding? I know where we can get squirt guns by the gross! I wish it were financially feasible for us to have a march... could you imagine a thousand of us marching and chanting? Topper () On Mon, 26 Jul 2004 17:14:52 -0000 "marinara0404" writes: I could sic some of my antibodies on them - bet I could do some real damage... and imagine what would happen if we all joined forces. :-)-Marina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 I didn't find the part that doctors believe they should be stopped either, Toni. Jan Toni wrote: > No one said that. It merely says that some doctors believe that is > the correct thing to do, but current research has shown that it isn't > correct. > > Toni > List Owner of: > http://groups.yahoo.com/group/GDHWS/ > This is for guide dog handlers with residual vision. > And > http://groups.yahoo.com/group/ToniAtGDB/ > This mailing list is to share my experiences in getting my next guide dog. > * Re: Hi again > > someone else read this article also please. I don't see where anyone > reccomended stopping meds when someone becomes in range. I may need more > coffee. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 That is my reaction too, . Actually I remember someone not from the US years ago at the About.com forums who had this happen to them, but once - the fact that she happened to find more than one crazy doctor like that is the worst luck ever. Jan wrote: > Are we talking about the same thing here, though, Toni, because you > said that it was AFTER you were treated and the levels brought up, > that you were pulled off of thyroid hormone completely. Is the > article you're referring to talking about diagnosing people as not > being hypo after testing and before medication and also keeping them > on medication, but undertreating them? This is a whole different > problem that all of us here are familiar with. I simply have never > heard of a doctor who puts someone ON the hormone, then, when their > levels reach normal, they declare them cured, and take them OFF the > hormone, altogether. This just blows my mind! Hashi's does have it's > ups and downs, but that doesn't mean that the treatment stops altogether. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 Yes, these are separate issues - when someone not on meds has normal levels, the majority of traditional doctors will not treat. The reason is that without the labs to support treatment, these docs could even be sued later. Now, when someone on meds has normal labs, that is taken as evidence that the dosage of meds the patient is on is working and should be maintained for health. Jan Toni wrote: > , > This is a direct quote from the article. My point is and has been > that some docs believe that when your levels are normal that you don't > need thyroid meds. Are these two separate issues? I'm not sure. I > am merely pointing out this article to show that although research > shows this should be treated anyway many docs don't believe it > necessary. That's not to say this is appropriate. > > " There are, however, some endocrinologists, as well as holistic MDs, > osteopaths and other practitioners, who believe that Hashimoto's > disease -- as confirmed by the presence of thyroid antibodies -- along > with symptoms, are enough to warrant treatment with small amounts of > thyroid hormone. > > The practice of treating patients who have Hashimoto's thyroiditis but > normal range thyroid function tests is supported by a study, reported > on in the March 2001 issue of the journal Thyroid. In this study, > German researchers reported that use of levothyroxine treatment for > cases of Hashimoto's autoimmune thyroiditis where TSH had not yet > elevated beyond normal range (people who were considered " euthyroid " ) > could reduce the incidence and degree of autoimmune disease progression. > > In the study of 21 patients with euthyroid Hashimoto's Thyroiditis > (normal range TSH, but elevated antibodies), half of the patients were > treated with levothyroxine for a year, the other half were not > treated. After 1 year of therapy with levothyroxine, the antibody > levels and lymphocytes (evidence of inflammation) decreased > significantly only in the group receiving the medication. Among the > untreated group, the antibody levels rose or remained the same. > > The researchers concluded that preventative treatment of normal TSH > range patients with Hashimoto's disease reduced the various markers of > autoimmune thyroiditis, and speculated that that such treatment might > even be able to stop the progression of Hashimoto's disease, or > perhaps even prevent development of the hypothyroidism. " ©2004 About, > Inc. All rights reserved. A PRIMEDIA Company. > http://thyroid.about.com/cs/hypothyroidism/a/hashivshypo.htm > > > Toni > List Owner of: > http://groups.yahoo.com/group/GDHWS/ > This is for guide dog handlers with residual vision. > And > http://groups.yahoo.com/group/ToniAtGDB/ > This mailing list is to share my experiences in getting my next guide dog. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 Yes, these are separate issues - when someone not on meds has normal levels, the majority of traditional doctors will not treat. The reason is that without the labs to support treatment, these docs could even be sued later. Now, when someone on meds has normal labs, that is taken as evidence that the dosage of meds the patient is on is working and should be maintained for health. Jan Toni wrote: > , > This is a direct quote from the article. My point is and has been > that some docs believe that when your levels are normal that you don't > need thyroid meds. Are these two separate issues? I'm not sure. I > am merely pointing out this article to show that although research > shows this should be treated anyway many docs don't believe it > necessary. That's not to say this is appropriate. > > " There are, however, some endocrinologists, as well as holistic MDs, > osteopaths and other practitioners, who believe that Hashimoto's > disease -- as confirmed by the presence of thyroid antibodies -- along > with symptoms, are enough to warrant treatment with small amounts of > thyroid hormone. > > The practice of treating patients who have Hashimoto's thyroiditis but > normal range thyroid function tests is supported by a study, reported > on in the March 2001 issue of the journal Thyroid. In this study, > German researchers reported that use of levothyroxine treatment for > cases of Hashimoto's autoimmune thyroiditis where TSH had not yet > elevated beyond normal range (people who were considered " euthyroid " ) > could reduce the incidence and degree of autoimmune disease progression. > > In the study of 21 patients with euthyroid Hashimoto's Thyroiditis > (normal range TSH, but elevated antibodies), half of the patients were > treated with levothyroxine for a year, the other half were not > treated. After 1 year of therapy with levothyroxine, the antibody > levels and lymphocytes (evidence of inflammation) decreased > significantly only in the group receiving the medication. Among the > untreated group, the antibody levels rose or remained the same. > > The researchers concluded that preventative treatment of normal TSH > range patients with Hashimoto's disease reduced the various markers of > autoimmune thyroiditis, and speculated that that such treatment might > even be able to stop the progression of Hashimoto's disease, or > perhaps even prevent development of the hypothyroidism. " ©2004 About, > Inc. All rights reserved. A PRIMEDIA Company. > http://thyroid.about.com/cs/hypothyroidism/a/hashivshypo.htm > > > Toni > List Owner of: > http://groups.yahoo.com/group/GDHWS/ > This is for guide dog handlers with residual vision. > And > http://groups.yahoo.com/group/ToniAtGDB/ > This mailing list is to share my experiences in getting my next guide dog. Quote Link to comment Share on other sites More sharing options...
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