Guest guest Posted November 13, 2007 Report Share Posted November 13, 2007 I am having swelling on the pads of my feet. Has anyone else experienced this, and if you have, what do you do for relief? hugs, gloria --- In , " libby_Porker " <stuffy69er@...> wrote: > > In my reading I have noted that RA should be treated 'early'. This > limits the damage and can sometimes cause the disease to go into > remission. > > I have been having symtoms since April. . I am not seeing a > rheumatologist until January. Is this early enough?? > > It started in my fingers now it is in my: > > Toes > bottoms of feet > ankles > knees > hips > shoulders > elbows > hands - fingers > wrists > neck > lower back > > This seems serious. I am already debilitated. > Is there hope for me? > > Libby > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2007 Report Share Posted November 13, 2007 Hi all, The pads of my feet are swelling. Has anyone else experienced this, and if you have, what are your suggestions for relief? Hugs from OK, Gloria --- In , " libby_Porker " <stuffy69er@...> wrote: > > In my reading I have noted that RA should be treated 'early'. This > limits the damage and can sometimes cause the disease to go into > remission. > > I have been having symtoms since April. . I am not seeing a > rheumatologist until January. Is this early enough?? > > It started in my fingers now it is in my: > > Toes > bottoms of feet > ankles > knees > hips > shoulders > elbows > hands - fingers > wrists > neck > lower back > > This seems serious. I am already debilitated. > Is there hope for me? > > Libby > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2007 Report Share Posted November 13, 2007 Libby, the earlier the better in most cases, but if you are being treated with at least something like prednisone or a NSAID you should be fine. Many RA patients are functioning. I don't like to be a scare monger, but even with early intervention I was unable to work after three years into my diagnosis. Now that I am 12 years out I need bilateral knee replacements, hand joint replacements, my elbows don't bend, neither do my wrists. I am one of those more extreme cases however. Within a few months of symptoms I was on DMARDS, was on biologics when they were available...lots of PT...it didn't matter. My joint damage did not occur until after the first year of inflammation, and it wasn't until I had symptoms for seven months that any of my joints were noticably swollen. You will be fine Shandi libby_Porker <stuffy69er@...> wrote: In my reading I have noted that RA should be treated 'early'. This limits the damage and can sometimes cause the disease to go into remission. I have been having symtoms since April. . I am not seeing a rheumatologist until January. Is this early enough?? It started in my fingers now it is in my: Toes bottoms of feet ankles knees hips shoulders elbows hands - fingers wrists neck lower back This seems serious. I am already debilitated. Is there hope for me? Libby --------------------------------- Be a better pen pal. Text or chat with friends inside . See how. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2007 Report Share Posted November 13, 2007 Hi, Libby. Welcome to the group! Yes, there is hope. Plenty of it. Just be sure to keep your January appointment. You've asked an important question. Most people do experience a significant delay from the onset of symptoms to the time of diagnosis and then treatment. Some researchers and rheumatologists are urging that RA be treated more like a medical emergency. Ideally, one should be treated with DMARDs in the first few months; however, even those with long-standing disease benefit from aggressive therapy and tight control of the disease. I'll post more on this topic separately. Not an MD On Nov 13, 2007 12:34 AM, libby_Porker <stuffy69er@...> wrote: > In my reading I have noted that RA should be treated 'early'. This > limits the damage and can sometimes cause the disease to go into > remission. > > I have been having symtoms since April. . I am not seeing a > rheumatologist until January. Is this early enough?? > > It started in my fingers now it is in my: > > Toes > bottoms of feet > ankles > knees > hips > shoulders > elbows > hands - fingers > wrists > neck > lower back > > This seems serious. I am already debilitated. > Is there hope for me? > > Libby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2007 Report Share Posted November 13, 2007 Hi Libby! I have fibromyalgia too so for quite awhile many of my symptoms and stiffness was attributed to that. By the time I made my three month visits to the rheumatologist the joints that were red swollen and warm were not always showing redness and warmth to them. The RF test kept coming back negative but the other tests (Westgren, CRP, and Sed Rate were all elevated). So it was about two maybe two years before my treatment began and in my case it didn't seem to make it any worse. The medications are helping somewhat but I'm in quite a flare at the moment:) --- libby_Porker <stuffy69er@...> wrote: > In my reading I have noted that RA should be treated > 'early'. This > limits the damage and can sometimes cause the > disease to go into > remission. > > I have been having symtoms since April. . I am not > seeing a > rheumatologist until January. Is this early enough?? > > It started in my fingers now it is in my: > > Toes > bottoms of feet > ankles > knees > hips > shoulders > elbows > hands - fingers > wrists > neck > lower back > > This seems serious. I am already debilitated. > Is there hope for me? > > Libby > > > ________________________________________________________________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2007 Report Share Posted November 13, 2007 When I was in this same situation, I googled my rheumy and found out that he had an email address. I emailed him and asked for suggestions on what to do until my appointment with him in 3 or 4 months. He subsequently called me and said that he was going to get me an earlier appointment. What a rheumy! You could try to find out if he has an email address. If not, you could call his office and tell them to notify you if they have a cancellation. If nothing works, then January will be here before you know it. Good luck! Sue On Tuesday, November 13, 2007, at 01:34 AM, libby_Porker wrote: > In my reading I have noted that RA should be treated 'early'. This > limits the damage and can sometimes cause the disease to go into > remission. > > I have been having symtoms since April. . I am not seeing a > rheumatologist until January. Is this early enough?? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2007 Report Share Posted November 13, 2007 Hi Libby, I was in the same situation. The RA had spread to every joint in my body by the time I had my appointment with the Rheumatologist. They wanted me to wait about 5 months before I could get an appointment. When I quit going to work because of the pain the was a miraculous opening at the office. I would advise you to call everyday and ask if there is an earlier appointment. The good news is that there is hope. Like I said I was just as bad but am doing better now ( i think). Good Luck!! Larissa > > In my reading I have noted that RA should be treated 'early'. This > > limits the damage and can sometimes cause the disease to go into > > remission. > > > > I have been having symtoms since April. . I am not seeing a > > rheumatologist until January. Is this early enough?? > > > > It started in my fingers now it is in my: > > > > Toes > > bottoms of feet > > ankles > > knees > > hips > > shoulders > > elbows > > hands - fingers > > wrists > > neck > > lower back > > > > This seems serious. I am already debilitated. > > Is there hope for me? > > > > Libby > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2007 Report Share Posted November 14, 2007 I have a sore hip, shoulder and elbows. The bursa are all swollen and full of fluid. They hurt, burn and when I walk sometimes feel like something is broken. That is what you are laying on. I have chronic bursistis. No clue what to do about it as they have given me steriod injections and the last ones did not work. So no more of that for me. Toni _Re: How early is early? _ ( /message/106374;_ylc=X3oDMTJybm1sOG1xBF\ 9TAzk3MzU5NzE1BGdycElkAzEwMTQ3OARncnBzcElkAzE3MDU wNjE0OTgEbXNnSWQDMTA2Mzc0BHNlYwNkbXNnBHNsawN2bXNnBHN0aW1lAzExOTUwMzc2NTQ-) Posted by: " NELLIESTAR@... " _NELLIESTAR@... _ (mailto:NELLIESTAR@...?Subject= Re:%20How%20early%20is%20early?) _nelliestar1 _ (nelliestar1) Tue Nov 13, 2007 11:48 am (PST) Does anyone have a sore hip at night when they lie on it? Also, my hip hurts to walk on it, especially in the AM. This started out of the blue. Anyone know why? My hips NEVER hurt before, now it is every day. Discouraging! I am always worried abourt AVN because I have been on 7.5 prednisone for years. But seem to have no side effects from it, in fact I am losing weight, fast. They think I might have a folic acid or B-12 deficiency. (Sorry if I am repeating myself, I am on several lists). THANKS, and hugs, Pris ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2007 Report Share Posted November 14, 2007 I have a sore hip at night. In fact I have 2 sore hips, 2 sore shoulders and 2 sore wrists. I recently got a new matress. . . a tempurpedic one. It makes SO much difference. When I sleep on it I sleep through the night, on my old matress I was waking up in pain. No I not some a-hole coming on here trying to sell stuff, this matress really has made a difference in my life. > > Does anyone have a sore hip at night when they lie on it? > Also, my hip hurts to walk on it, especially in the AM. This started out of > the blue. > Anyone know why? > My hips NEVER hurt before, now it is every day. > Discouraging! > I am always worried abourt AVN because I have been on 7.5 prednisone for > years. But seem to have no side effects from it, in fact I am losing weight, fast. > They think I might have a folic acid or B-12 deficiency. (Sorry if I am > repeating myself, I am on several lists). > THANKS, and hugs, > Pris > > > > > > > ************************************** > See what's new at http://www.aol.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2007 Report Share Posted November 15, 2007 My room is the coldest room in my house, and I have not noticed it affecting the matress. Your body heat also affects the matress, it is part of the reason why it molds to your body - so I think this might counteract the room temperature a little. I don't think it would really be a big deal unless your room was freezing. All I know is that it really works for me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 I tried out the various models of Tempurpedic during an awefull flare. The higher end ones are very comfortable. I then tried the Sleep Number bed. If you can find a shop in your area, I recommend trying them out. First, fill the bed to 100% (the sales person will help you with this). Second, lay down on the rock hard bed and slowly release the air (again, the sales person will do this for you). As the air comes out of the bed, pay attention as to how it feels to you. Once you feel the most comfortable, that will be your sleep number!! When I was trying them out a few years ago, I went into the shop after an appointment I had with my NeuroSurgeon. My back had been killing me for months right along with the my joints from the RA. But, as the sales perons released the air, I knew when to tell him to stop. It was at the point where the pain in my spine eased up!! So, that was the bed I ended up getting. Like the Tempurpedic mattress, the Sleep Number has various options on mattress size, different size air pumps with various levels of quietness, platforms, dual control, single control, two air chambers verses one, so on and so forth!! The best thing about it, I can adjust the air in the chamber to what is comfortable to me at that moment. Then, for those days that I am in so much pain that it is too difficult to get out of bed, I canfill the mattress to max capacity (so my arm doesn't sink into the mattress) and raise the head of the bed. So, what I'm trying to say is, I think the Sleep Number bed rocks!! Ok, I wonder when theey are going to send me my check for that endorsement!!LOL It also hasd helped with my being able to get sleep and with some of my hip pains. Hugs, Marina > > > > I have a sore hip at night. In fact I have 2 sore hips, 2 sore > > shoulders and 2 sore wrists. I recently got a new matress. . . a > > tempurpedic one. It makes SO much difference. When I sleep on it I > > sleep through the night, on my old matress I was waking up in pain. > > > > No I not some a-hole coming on here trying to sell stuff, this > > matress really has made a difference in my life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 My tempurpedic mattress us the official tempurpedic mattress. The other day I did notice it was a bit less comfortable in colder temps. My bf insisted on having both windows open in my room. I live in Canada and it was -15 ish out. I had the worst nights sleep. It was probably a combination of factors - sharing the bed, the cold temperature's affect on my joints, and it's affect on the bed. In any case if the bed gets really cold it will not be good but it is good at room temperature. I'd say try them both out (sleep number and tempurpedic), a good bed can really help for sure. And try to sleep in a warm room. . . I think cold is BAD for RA. > > > > > > I have a sore hip at night. In fact I have 2 sore hips, 2 sore > > > shoulders and 2 sore wrists. I recently got a new matress. . . a > > > tempurpedic one. It makes SO much difference. When I sleep on it I > > > sleep through the night, on my old matress I was waking up in > pain. > > > > > > No I not some a-hole coming on here trying to sell stuff, this > > > matress really has made a difference in my life. > Quote Link to comment Share on other sites More sharing options...
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