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Clre- as you may hear from many members of this group- don't let this guy do surgery if youdon't trust him- or know his reputation- it can make things SO much WORSE- talk to the ladies here over the next week or so- and make your decision then- you CAN back out at the last minute!!!- you're hormones are likely normal- mine are- adn I have "Cycles"- I just have cramping and no bleeding because my uterus is closed off- I'm having surgery wenesday- I'll have an IUD adn estrogen and antibiotics for 2 weeks- But a Dr can read that this is standard protocol in a journal article- it doesn't mean he know's how to do the surgery- I hope you find the help you need here- adn I wish you the best in whatever you decide!!!!

, Mike, Brenna (VSD, PS- repaired 1/29/98--- typical 3 YO- YIPES!), Baby Angel born still 11/7/00 (at 21 weeks), and Riley & Snoozer the dogs

Join us again next year in remembering the millions of people affected by CHD on 2/14/2001: "A Day for Hearts: Congenital Heart Defects Awareness Day!"

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Hi, Vicki! Welcome to the group! I'm new, too. It sounds like you're at

a healthy point in your thinking about your weight. I, too, would like

to work on accepting myself the way I am., while also learning to eat

in a more natural way for my body (listening to body cues). One thing

I just realized, as I sat here eating breakfast while reading e-mail,

is that I actually avoid being attuned to what my body wants. I really

don't enjoy eating without having some distracting activity to do at

the same time.

I'm going to have to think about this some more.

Anyway, it's good to have you here!

Sue

Portland, Maine, US

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  • 3 weeks later...
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It is funny because I have been thinking about this lately. I am just going to "think out loud" for a bit here if it is ok. On the one hand I think I might look pretty sexy if I was to lose weight because I am not that ugly. In a way I don't want to look good because I don't trust myself...I like the attention too much and not sure what that would lead to. On the other hand I would like to look sexy for my hubby. I saw a show the other day that got me to thinking too. The woman was very pretty and she was wanting to leave some things at her boyfriend's apartment just for convenience....like toothpaste, hair spray....etc. He did not want her to do that. He liked things the way they were. He just wanted her and her body when it was convenient for him. If she had been fat I don't think he would have cared about her. With me being fat , I know that my hubby loves me for me

and not how I look. I know this all sounds crazy but it is just thoughts that I am having. Does anyone have any comments on all this? Also I have issues with my grandmother. She has made me feel rejected all my life but says she loves me very much. She wants me to lose weight and I am wondering if that is keeping me from doing it because I am rebeling against her.

KathyGillian Hood-son wrote: Katcha,This is great. I believe that for many people (not necessarily all), the excess weight is serving a purpose. I often pose the question, "what is the weight doing for you?". It can be tough to answer, but once you figure it out, it's a huge a-ha moment. Has anyone here figured that out for themselves?I think for me part of it was the weight allowed me to find fault with myself which kept me from really being the best I could be. The weight was an excuse, but the truth was I had fear in taking that leap to really put myself out in the world and live my purpose. It's amazing what fear can do to us!Thanks!GillianGillian Hood-son, MS, ACSMHealthier

OutcomesIt's not just about losing weight! Want to eat your favorite foods without gaining weight? Get your copy of our fr*e special report, "6 Simple Steps to Guilt Free Eating" by visiting http://www.healthieroutcomes.com At 07:42 AM 6/20/2007, you wrote: Hi & welcome :) I too would like to weigh less than I currently am,but as I have come to apply IE to my eating I am also getting the'message' more and more that weight is simply the OBVIOUS, but notreal difficulty I must tackle. When I recently finished OvercomingOvereating I knew that my challenge is to figure out why I am the'size' I am. If I don't know those reasons, I will never be able toeffectively change how my body is because I will

still be subject to them.So to short cut a bit here's something that you may want to give a goto - Picture yourself growing fatter and fatter and ask yourself whatbenefits you feel if you do that. Also picture yourself growingthinner and thinner and what does that make you feel like too? Many people seem to feel more powerful and 'visible' thanks to being'heavy' while thin scares them for several reasons. So is you can findand understand the whys of your size(s), then you can focus on thoseinstead of fighting the ghost enemy of 'food' and control etc. ehugs, Katcha

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Here's an interesting idea. Change the word "sexy" to the word "powerful" and see how that feels. "I'd like to feel powerful, but I am afraid of where that would lead..." I think as women we are stuffing down our feelings of power because we don't want to upset the status quo. What would happen if we were healthy, strong, powerful and confident? Interesting question...Check out my latest You Tube video! http://www.youtube.com/applepiemommy

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It's not crazy at all. I think we all want to be loved and wanted for

who we are, not for how we look, how much money we have, how famous we

are, etc. It's also natural to rebel against family members who make

their love conditional, and who say one thing but do something else.

I think we've all experienced that at one time or another, or we

wouldn't be here,lol!

Because I'm at my heaviest right now, I have a lot of insecurity about

whether my husband will still think I'm attractive. Especially since

he's an actor and is often surrounded by young, hot women! ( I used to

be a young, very thin actress, but those days are no more, lol!) He

tells me all the time that I am attractive ('cause he's a wonderful

guy), but it's hard for me to believe. I, too, grew up in a family

where it was made very clear that I had to look and behave a certain

way if I wanted to get love and approval. I was told I was loved, but

only when I was a " good girl. " But anyway, a few days ago I was

looking at him as he was getting ready for bed, and he's not quite as

physically defined as he used to be. I thought about it, and, to me,

he's more handsome than ever, and I love him more than life, and he's

an amazing father and husband, so what do I care that his 6-pack is a

3-pack,lol! And then it FINALLY occurred to me that maybe HE FEELS

THE EXACT SAME WAY ABOUT ME!!!!

I also know that when he admires someone, it's not because of how they

look, but what they accomplish. And he's taught me to do the same, by

example. His love is NOT conditional, and never has been.

I guess the key is to find the people in our lives who love us no

matter what, and put our attention on them instead of the naysayers.

>

> It is funny because I have been thinking about this lately. I am

just going to " think out loud " for a bit here if it is ok. On the one

hand I think I might look pretty sexy if I was to lose weight because

I am not that ugly. In a way I don't want to look good because I

don't trust myself...I like the attention too much and not sure what

that would lead to. On the other hand I would like to look sexy for

my hubby. I saw a show the other day that got me to thinking too.

The woman was very pretty and she was wanting to leave some things at

her boyfriend's apartment just for convenience....like toothpaste,

hair spray....etc. He did not want her to do that. He liked things

the way they were. He just wanted her and her body when it was

convenient for him. If she had been fat I don't think he would have

cared about her. With me being fat , I know that my hubby loves me

for me and not how I look. I know this all sounds crazy but it is

just thoughts that I am having.

> Does anyone have any comments on all this?

> Also I have issues with my grandmother. She has made me feel

rejected all my life but says she loves me very much. She wants me to

lose weight and I am wondering if that is keeping me from doing it

because I am rebeling against her.

>

Kathy

>

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Way to go alyzu! Sounds like you are in a good place.alyzu1 wrote: It's not crazy at all. I think we all want to be loved and wanted forwho we are, not for how we look, how much money we have, how famous weare, etc. It's also natural to rebel against family members who maketheir love conditional, and who say one thing but do something else. I think we've all experienced that at one time or another, or wewouldn't be here,lol!Because I'm at my heaviest right now, I have a lot

of insecurity aboutwhether my husband will still think I'm attractive. Especially sincehe's an actor and is often surrounded by young, hot women! ( I used tobe a young, very thin actress, but those days are no more, lol!) Hetells me all the time that I am attractive ('cause he's a wonderfulguy), but it's hard for me to believe. I, too, grew up in a familywhere it was made very clear that I had to look and behave a certainway if I wanted to get love and approval. I was told I was loved, butonly when I was a "good girl." But anyway, a few days ago I waslooking at him as he was getting ready for bed, and he's not quite asphysically defined as he used to be. I thought about it, and, to me,he's more handsome than ever, and I love him more than life, and he'san amazing father and husband, so what do I care that his 6-pack is a3-pack,lol! And then it FINALLY occurred to me that maybe HE FEELSTHE EXACT SAME WAY ABOUT

ME!!!!I also know that when he admires someone, it's not because of how theylook, but what they accomplish. And he's taught me to do the same, byexample. His love is NOT conditional, and never has been.I guess the key is to find the people in our lives who love us nomatter what, and put our attention on them instead of the naysayers.>> It is funny because I have been thinking about this lately. I amjust going to "think out loud" for a bit here if it is ok. On the onehand I think I might look pretty sexy if I was to lose weight becauseI am not that ugly. In a way I don't want to look good because Idon't trust myself...I like the attention too much and not sure whatthat would lead to. On the other hand I would like to look sexy formy

hubby. I saw a show the other day that got me to thinking too. The woman was very pretty and she was wanting to leave some things ather boyfriend's apartment just for convenience....like toothpaste,hair spray....etc. He did not want her to do that. He liked thingsthe way they were. He just wanted her and her body when it wasconvenient for him. If she had been fat I don't think he would havecared about her. With me being fat , I know that my hubby loves mefor me and not how I look. I know this all sounds crazy but it isjust thoughts that I am having. > Does anyone have any comments on all this?> Also I have issues with my grandmother. She has made me feelrejected all my life but says she loves me very much. She wants me tolose weight and I am wondering if that is keeping me from doing itbecause I am rebeling against her. > Kathy>

Be a PS3 game guru.Get your game face on with the latest PS3 news and previews at Yahoo! Games.

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This reminds me of a quote by nne on. I love this quote. It is often wrongly attributed to Mandela, but it is actually from her book, "A Return to Love": "Our deepest fear is not that we are inadequate. Our deepest fear is that we are powerful beyond measure. It is our light, not our darkness that most frightens us.' We ask ourselves, Who am I to be brilliant, gorgeous, talented, fabulous? Actually, who are you not to be? You are a child of God. Your playing small does not serve the world. There's nothing enlightened about shrinking so that other people won't feel insecure around you. We are all meant to shine, as children do. We were born to make manifest the glory of God that is within us. It's not just in some of us; it's in everyone. And as we let our own light shine, we unconsciously give other people permission to do the same. As we're liberated from our own fear, our presence automatically liberates

others." Cheryl

Yahoo! oneSearch: Finally, mobile search that gives answers, not web links.

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This reminds me of a quote by nne on. I love this quote. It is often wrongly attributed to Mandela, but it is actually from her book, "A Return to Love": "Our deepest fear is not that we are inadequate. Our deepest fear is that we are powerful beyond measure. It is our light, not our darkness that most frightens us.' We ask ourselves, Who am I to be brilliant, gorgeous, talented, fabulous? Actually, who are you not to be? You are a child of God. Your playing small does not serve the world. There's nothing enlightened about shrinking so that other people won't feel insecure around you. We are all meant to shine, as children do. We were born to make manifest the glory of God that is within us. It's not just in some of us; it's in everyone. And as we let our own light shine, we unconsciously give other people permission to do the same. As we're liberated from our own fear, our presence automatically liberates

others." Cheryl

Yahoo! oneSearch: Finally, mobile search that gives answers, not web links.

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Thanks!!!!!!!

> >

> > It's not crazy at all. I think we all want to be loved and wanted for

> > who we are, not for how we look, how much money we have, how famous we

> > are, etc. It's also natural to rebel against family members who make

> > their love conditional, and who say one thing but do something else.

> > I think we've all experienced that at one time or another, or we

> > wouldn't be here,lol!

> >

> > Because I'm at my heaviest right now, I have a lot of insecurity about

> > whether my husband will still think I'm attractive. Especially since

> > he's an actor and is often surrounded by young, hot women! ( I used to

> > be a young, very thin actress, but those days are no more, lol!) He

> > tells me all the time that I am attractive ('cause he's a wonderful

> > guy), but it's hard for me to believe. I, too, grew up in a family

> > where it was made very clear that I had to look and behave a certain

> > way if I wanted to get love and approval. I was told I was loved, but

> > only when I was a " good girl. " But anyway, a few days ago I was

> > looking at him as he was getting ready for bed, and he's not quite as

> > physically defined as he used to be. I thought about it, and, to me,

> > he's more handsome than ever, and I love him more than life, and he's

> > an amazing father and husband, so what do I care that his 6-pack is a

> > 3-pack,lol! And then it FINALLY occurred to me that maybe HE FEELS

> > THE EXACT SAME WAY ABOUT ME!!!!

> > I also know that when he admires someone, it's not because of how they

> > look, but what they accomplish. And he's taught me to do the same, by

> > example. His love is NOT conditional, and never has been.

> > I guess the key is to find the people in our lives who love us no

> > matter what, and put our attention on them instead of the naysayers.

>

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Guest guest

Thanks!!!!!!!

> >

> > It's not crazy at all. I think we all want to be loved and wanted for

> > who we are, not for how we look, how much money we have, how famous we

> > are, etc. It's also natural to rebel against family members who make

> > their love conditional, and who say one thing but do something else.

> > I think we've all experienced that at one time or another, or we

> > wouldn't be here,lol!

> >

> > Because I'm at my heaviest right now, I have a lot of insecurity about

> > whether my husband will still think I'm attractive. Especially since

> > he's an actor and is often surrounded by young, hot women! ( I used to

> > be a young, very thin actress, but those days are no more, lol!) He

> > tells me all the time that I am attractive ('cause he's a wonderful

> > guy), but it's hard for me to believe. I, too, grew up in a family

> > where it was made very clear that I had to look and behave a certain

> > way if I wanted to get love and approval. I was told I was loved, but

> > only when I was a " good girl. " But anyway, a few days ago I was

> > looking at him as he was getting ready for bed, and he's not quite as

> > physically defined as he used to be. I thought about it, and, to me,

> > he's more handsome than ever, and I love him more than life, and he's

> > an amazing father and husband, so what do I care that his 6-pack is a

> > 3-pack,lol! And then it FINALLY occurred to me that maybe HE FEELS

> > THE EXACT SAME WAY ABOUT ME!!!!

> > I also know that when he admires someone, it's not because of how they

> > look, but what they accomplish. And he's taught me to do the same, by

> > example. His love is NOT conditional, and never has been.

> > I guess the key is to find the people in our lives who love us no

> > matter what, and put our attention on them instead of the naysayers.

>

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Guest guest

Thanks!!!!!!!

> >

> > It's not crazy at all. I think we all want to be loved and wanted for

> > who we are, not for how we look, how much money we have, how famous we

> > are, etc. It's also natural to rebel against family members who make

> > their love conditional, and who say one thing but do something else.

> > I think we've all experienced that at one time or another, or we

> > wouldn't be here,lol!

> >

> > Because I'm at my heaviest right now, I have a lot of insecurity about

> > whether my husband will still think I'm attractive. Especially since

> > he's an actor and is often surrounded by young, hot women! ( I used to

> > be a young, very thin actress, but those days are no more, lol!) He

> > tells me all the time that I am attractive ('cause he's a wonderful

> > guy), but it's hard for me to believe. I, too, grew up in a family

> > where it was made very clear that I had to look and behave a certain

> > way if I wanted to get love and approval. I was told I was loved, but

> > only when I was a " good girl. " But anyway, a few days ago I was

> > looking at him as he was getting ready for bed, and he's not quite as

> > physically defined as he used to be. I thought about it, and, to me,

> > he's more handsome than ever, and I love him more than life, and he's

> > an amazing father and husband, so what do I care that his 6-pack is a

> > 3-pack,lol! And then it FINALLY occurred to me that maybe HE FEELS

> > THE EXACT SAME WAY ABOUT ME!!!!

> > I also know that when he admires someone, it's not because of how they

> > look, but what they accomplish. And he's taught me to do the same, by

> > example. His love is NOT conditional, and never has been.

> > I guess the key is to find the people in our lives who love us no

> > matter what, and put our attention on them instead of the naysayers.

>

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Cheryl, what a lovely quote, thanks for sharing it. It is great

thought fodder :)

And if one doesn't 'be all you can be' in this life time, like WHEN?!?

And what a waste to not maximize one's talents and attributes. I must

say it is difficult to have others shrink away from you when you are

doing well though. How sad that achievement is 'shamed' too often.

Shine on everyone!!

>

> This reminds me of a quote by nne on. I love this

quote. It is often wrongly attributed to Mandela, but it is

actually from her book, " A Return to Love " :

>

> " Our deepest fear is not that we are inadequate. Our deepest fear

is that we are powerful beyond measure. It is our light, not our

darkness that most frightens us.' We ask ourselves, Who am I to be

brilliant, gorgeous, talented, fabulous? Actually, who are you not to

be? You are a child of God. Your playing small does not serve the

world. There's nothing enlightened about shrinking so that other

people won't feel insecure around you. We are all meant to shine, as

children do. We were born to make manifest the glory of God that is

within us. It's not just in some of us; it's in everyone. And as we

let our own light shine, we unconsciously give other people permission

to do the same. As we're liberated from our own fear, our presence

automatically liberates others. "

>

> Cheryl

>

>

> ---------------------------------

> Yahoo! oneSearch: Finally, mobile search that gives answers, not

web links.

>

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Cheryl, what a lovely quote, thanks for sharing it. It is great

thought fodder :)

And if one doesn't 'be all you can be' in this life time, like WHEN?!?

And what a waste to not maximize one's talents and attributes. I must

say it is difficult to have others shrink away from you when you are

doing well though. How sad that achievement is 'shamed' too often.

Shine on everyone!!

>

> This reminds me of a quote by nne on. I love this

quote. It is often wrongly attributed to Mandela, but it is

actually from her book, " A Return to Love " :

>

> " Our deepest fear is not that we are inadequate. Our deepest fear

is that we are powerful beyond measure. It is our light, not our

darkness that most frightens us.' We ask ourselves, Who am I to be

brilliant, gorgeous, talented, fabulous? Actually, who are you not to

be? You are a child of God. Your playing small does not serve the

world. There's nothing enlightened about shrinking so that other

people won't feel insecure around you. We are all meant to shine, as

children do. We were born to make manifest the glory of God that is

within us. It's not just in some of us; it's in everyone. And as we

let our own light shine, we unconsciously give other people permission

to do the same. As we're liberated from our own fear, our presence

automatically liberates others. "

>

> Cheryl

>

>

> ---------------------------------

> Yahoo! oneSearch: Finally, mobile search that gives answers, not

web links.

>

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Guest guest

Cheryl, what a lovely quote, thanks for sharing it. It is great

thought fodder :)

And if one doesn't 'be all you can be' in this life time, like WHEN?!?

And what a waste to not maximize one's talents and attributes. I must

say it is difficult to have others shrink away from you when you are

doing well though. How sad that achievement is 'shamed' too often.

Shine on everyone!!

>

> This reminds me of a quote by nne on. I love this

quote. It is often wrongly attributed to Mandela, but it is

actually from her book, " A Return to Love " :

>

> " Our deepest fear is not that we are inadequate. Our deepest fear

is that we are powerful beyond measure. It is our light, not our

darkness that most frightens us.' We ask ourselves, Who am I to be

brilliant, gorgeous, talented, fabulous? Actually, who are you not to

be? You are a child of God. Your playing small does not serve the

world. There's nothing enlightened about shrinking so that other

people won't feel insecure around you. We are all meant to shine, as

children do. We were born to make manifest the glory of God that is

within us. It's not just in some of us; it's in everyone. And as we

let our own light shine, we unconsciously give other people permission

to do the same. As we're liberated from our own fear, our presence

automatically liberates others. "

>

> Cheryl

>

>

> ---------------------------------

> Yahoo! oneSearch: Finally, mobile search that gives answers, not

web links.

>

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Guest guest

Thank you so much Gillian and all the others who have responded to my

posts and welcomed me. I was wondering if anyone could suggest any

sort of excercizes or a " workbook " of sorts that would help me to work

on the IE process (for example, topics to contemplate/journal about).

I currently have very bad health insurance, but I start graduate

school in the fall and will have excellent insurance that covers

mental health as well. Therapy has really helped me to work though

problems with depression, anxiety, and food in the past, but at the

same time, I don't want to tell myself that I'll wait until September

to really work on IE. I hope I can find a therapist who will work

with me on IE. Is there a list anywhere of therapists that are

comitted to that type of approach to food issues? Thanks again for

all your support. Just being part of this community has made me feel

braver.

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Guest guest

Thank you so much Gillian and all the others who have responded to my

posts and welcomed me. I was wondering if anyone could suggest any

sort of excercizes or a " workbook " of sorts that would help me to work

on the IE process (for example, topics to contemplate/journal about).

I currently have very bad health insurance, but I start graduate

school in the fall and will have excellent insurance that covers

mental health as well. Therapy has really helped me to work though

problems with depression, anxiety, and food in the past, but at the

same time, I don't want to tell myself that I'll wait until September

to really work on IE. I hope I can find a therapist who will work

with me on IE. Is there a list anywhere of therapists that are

comitted to that type of approach to food issues? Thanks again for

all your support. Just being part of this community has made me feel

braver.

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Guest guest

Hi Lynn,

Have you read any IE books? Of course the Intuitive Eating one is the

most 'meaty' but I think that Overcoming Overeating is a good

introduction book. I bought my copy used (in good condition) online

for almost nothing. It really helped me to get to know what this

different approach to saner, healthier eating was all about. Another

thing I did and would recommend is to post each day for at least a

month as a means to get in touch with what is happening to you as you

get into this process. I think you will find that every thing that is

'new and different' to you has probably been experienced by any one

else who has gone thru this process too. And the bonus is that when

you get 'stuck' or confused about anything, everyone else helps you!

By the way, I'm 56 so we just prove its never too late to make a

positive change!

Best wishes and ehugs, Katcha

>

>

> Hi everyone,

>

> I'm a new member of this group as of yesterday, June 20, '07. I have

> been on the diet merry-go-round since my late teens and I'm going to be

> 60 years old in September! You name it-I've tried it. I even went so far

> as to have gastric bypass surgery four years ago. I've since put back

> approximately 45 pounds. [:-s]

>

> I heard about Intuitive Eating, from a therapist, a number of years ago

> but wasn't ready to change my way of thinking. I am ready now and open

> to any suggestions that would help me.

>

> Thanks a bunch,

>

> Lynn

>

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Guest guest

Hi Lynn,

Have you read any IE books? Of course the Intuitive Eating one is the

most 'meaty' but I think that Overcoming Overeating is a good

introduction book. I bought my copy used (in good condition) online

for almost nothing. It really helped me to get to know what this

different approach to saner, healthier eating was all about. Another

thing I did and would recommend is to post each day for at least a

month as a means to get in touch with what is happening to you as you

get into this process. I think you will find that every thing that is

'new and different' to you has probably been experienced by any one

else who has gone thru this process too. And the bonus is that when

you get 'stuck' or confused about anything, everyone else helps you!

By the way, I'm 56 so we just prove its never too late to make a

positive change!

Best wishes and ehugs, Katcha

>

>

> Hi everyone,

>

> I'm a new member of this group as of yesterday, June 20, '07. I have

> been on the diet merry-go-round since my late teens and I'm going to be

> 60 years old in September! You name it-I've tried it. I even went so far

> as to have gastric bypass surgery four years ago. I've since put back

> approximately 45 pounds. [:-s]

>

> I heard about Intuitive Eating, from a therapist, a number of years ago

> but wasn't ready to change my way of thinking. I am ready now and open

> to any suggestions that would help me.

>

> Thanks a bunch,

>

> Lynn

>

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Guest guest

Hi Lynn,

Have you read any IE books? Of course the Intuitive Eating one is the

most 'meaty' but I think that Overcoming Overeating is a good

introduction book. I bought my copy used (in good condition) online

for almost nothing. It really helped me to get to know what this

different approach to saner, healthier eating was all about. Another

thing I did and would recommend is to post each day for at least a

month as a means to get in touch with what is happening to you as you

get into this process. I think you will find that every thing that is

'new and different' to you has probably been experienced by any one

else who has gone thru this process too. And the bonus is that when

you get 'stuck' or confused about anything, everyone else helps you!

By the way, I'm 56 so we just prove its never too late to make a

positive change!

Best wishes and ehugs, Katcha

>

>

> Hi everyone,

>

> I'm a new member of this group as of yesterday, June 20, '07. I have

> been on the diet merry-go-round since my late teens and I'm going to be

> 60 years old in September! You name it-I've tried it. I even went so far

> as to have gastric bypass surgery four years ago. I've since put back

> approximately 45 pounds. [:-s]

>

> I heard about Intuitive Eating, from a therapist, a number of years ago

> but wasn't ready to change my way of thinking. I am ready now and open

> to any suggestions that would help me.

>

> Thanks a bunch,

>

> Lynn

>

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  • 3 weeks later...
Guest guest

Hi, my name is Barbara and this is the first time that I have written. I have struggled with my weight, compulsive overeating and bulimea for the past 24 years. I have recently seen a dietician who recommended intuitive eating as a way to maintain a 65 lb. weight loss. It has been scary so far, but I am excited about this new way of thinking and eating. I would love any feedback and support as I go along on this journey.Don't get caught with egg on your face.    Play Chicktionary! 

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  • 4 years later...
Guest guest

,

 

Has your mom accepted that your dad has LBD?  I wonder if you can get her to

read literature/information about the disease.  There's a lot of information

out there.  I go to the Lewy Body Dementia Association and Mayo Clinic on the

web for the information.  Do you have a support group in your area for LBD?  

Unfortunately, I do not for my area.   I hate that your family is going

through this horrific disease that robs those that have it of a peaceful

future.   My dad has it--mom is the caregiver.  I am called in to assist at

times when I can.  My dad is older than yours and is not able to roam around

outside the house.  You're family are in my thoughts and prayers.  Keep us

updated on your situation. God bless.

Pamela Hutchins 

________________________________

To: LBDcaregivers

Sent: Thursday, March 1, 2012 3:19 PM

Subject: new member

 

hello all, I'm . My dad was diagnosed with LBD after becoming

increasingly paranoid & hallucinating.

He was on every drug LBD patients aren't supposed to take until we found a

wonderful neurologist at UNC that diagnosed his LBD. He has recently (earlier

this week) slipped back into the extreme paranoia/hallucinations and we're not

sure if it's him not taking his pills (my mother doesn't always watch him) or if

the meds just aren't holding him. He was just started on heavy doses of

seraquil (10 pills a day!) to combat the paranoia & hallucinations but it's not

helping yet.

I think one of my parent's main issues is their age gap, my mom is 7 years

younger & still working full time while my dad has been retired for 5 years. My

dad has gotten to the point where he needs constant supervision & cannot ride in

a car without outbursts & grabbing the steering wheel so he's home alone for

8-12 hours at a time on a farm. His cognitive abilities are still very much

there but he is hallucinating 90% of the time, he can pull it together enough to

have a 2 minute conversation with someone on the phone & sound normal, but

that's about it.

I'm the closest child, I live 2 hours away but I'm also the youngest (I'm 29)

and I'm having a hard time convincing my mother to work from home & help take

care of my dad, he's calmer when she stays with him. She would rather him go

into a geriatric psych ward. It's extremely frustrating for my sister & I that

my mom is not willing to help my father in any way, claiming she's not a

caregiver. I also have two step siblings who are 20 years older than me who

live 10-12 hours away & it's hard to handle half siblings & my mother together.

His 2 sisters live 2 hours away but they don't really understand what's going on

even though they've seen him at his worst.

My parents have a horse farm & my mom's best friend lives above their garage &

helps take care of the farm and most of his paranoia & hallucinations are

directed towards her (she's opening back accounts in their name, sneaking into

the house at night trying to stab my dad with needles, stealing their new truck,

etc) and every time she comes & goes (she refuses to come into the main house

anymore) it sets him off. We do our best to not talk about anything that will

trigger his paranoia but sometimes it's out of our control (a week ago

neighborhood kids took my parent's canoe into their pond on their day off

school, which set him off)

I am hoping that the new higher levels of seraquil & the possibility of adding

clonipan will help level him out again, he did have about 8 months of being

almost back to normal after his initial diagnosis. There is no LBD support

group in Charlotte (where I live) but there is one in Greensboro, where my

parents live.

Any advice on spousal caregiving for my mom? My boyfriend & I sat her down &

went over the suggestions on interacting on the LBD website & she said she's

trying to remain calm & not yell at him or get to aggravated with him after

talking to us.

Thanks!

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