Re: Re: FMS - Are there remissions?

[Guest guest]

I've actually heard of them and have had them...just not in a long while.

Tigger

Re: Re: Checking In ...

Hi ,

Thank you,, yes, it hasnt been easy - but what ever is with FMS?? lol ... each day is Very slow - minute by minute as I am very uneasy and uncertain of many things - just taking it slowly and trying to regain some of my strength again. Going off of the meds may have been some sort of relief to my system - I really dont know the answer or why I am finding things better w/o them... but at this point I am not questioning it ... we know there are no cures and no getting over FMS - so .. maybe a remission of some kind or a 'good spell' I dont know ... but right now I feel better then I have in months and that is all I care about and all I am focusing on - to try and have as many good days as possible.

karis~1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

[Guest guest]

Hi All, my first post. I was diagnosed about a year ago with FMS after pain in my shoulders was starting to limit my ability to use my right arm with left arm following close behind.

I'm posting on this thread as I have two positives to report on remission/partial cure whatever you would like to call it.

My doctor confirmed FMS with pressure points after I suspected it from my research and took in a list of 12 symptoms that seemed to fit the profile (he had only previously heard about a few of them). He offered zero options for dealing with the situation other than an anti-depressant. After doing research on the web I found a doctor's site that told about thousands of patients who found relief from Mucinex - now over the counter. He discovered it by accident when treating an FMS patient for bronchitis and then tried it on other FMS patients with great success. I asked my doctor about it and he said it wouldn't hurt anything to try but that other people he knew did not get help from it. I DID! My shoulder pains which kept me from raising my arm above my nose was mostly gone within three weeks. My memory and ability to concentrate greatly improved as well.

The web doc (cannot remember site or name) said that most patients felt relief taking as little as 300 mg a day but some needed as much as 3,000 which is harmless for most people but you should check with your doctor. I used 600 mg a day and began to see results immediately. Mucinex was developed in the early 1900s to break up and get rid of mucus and most doctors prescribe it for pneumonia or bronchitis. The doc said he believed (but couldn't be sure) that the mucinex helped release oxalates that some people build up around muscle tissues because they lack an enzyme to break it down and eliminate it. The Mucinex must be continued to maintain relief and I only take one 300 mg tablet a day to be pain free. Chocolate seemed to be my problem - it is very high in oxalates as are other foods such as tea and spinach. It's not very expensive and they recently had a big marketing campaign so you can find it on the shelf at most drugstores with cold medicines.

Secondly, just today I received my magazine from the Life Extension Foundation that has a case study of a woman "cured" of her fibromyalgia enough to resume a normal life using supplements and hormone replacement mostly. Many of this magazines articles end up on their web site so you might check out www.lef.org to see what you can find. You can do a search on fibromyalgia to see what supplements they recommend. To get their magazine you need to be a member at $75 per year.

Sure hope this info can help someone out there. I sure don't miss the pain and lack of concentration.

Diane Jaana Mäkipää wrote:

Karis, thanks for clarifying things -- now i am very curious about remissions.

Has anyone heard of or had remissions from FMS? if so, how long would they typically last? is this something we ALL might get to experience at some point?

Aloooooooooha!-JaanaModerator / Member De-Bouncerator / humble Group servant

Re: Re: Checking In ...

Hi ,

Thank you,, yes, it hasnt been easy - but what ever is with FMS?? lol ... each day is Very slow - minute by minute as I am very uneasy and uncertain of many things - just taking it slowly and trying to regain some of my strength again. Going off of the meds may have been some sort of relief to my system - I really dont know the answer or why I am finding things better w/o them... but at this point I am not questioning it ... we know there are no cures and no getting over FMS - so .. maybe a remission of some kind or a 'good spell' I dont know ... but right now I feel better then I have in months and that is all I care about and all I am focusing on - to try and have as many good days as possible.

karis~1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.__________________________________________________

[Guest guest]

Hi All, my first post. I was diagnosed about a year ago with FMS after pain in my shoulders was starting to limit my ability to use my right arm with left arm following close behind.

I'm posting on this thread as I have two positives to report on remission/partial cure whatever you would like to call it.

My doctor confirmed FMS with pressure points after I suspected it from my research and took in a list of 12 symptoms that seemed to fit the profile (he had only previously heard about a few of them). He offered zero options for dealing with the situation other than an anti-depressant. After doing research on the web I found a doctor's site that told about thousands of patients who found relief from Mucinex - now over the counter. He discovered it by accident when treating an FMS patient for bronchitis and then tried it on other FMS patients with great success. I asked my doctor about it and he said it wouldn't hurt anything to try but that other people he knew did not get help from it. I DID! My shoulder pains which kept me from raising my arm above my nose was mostly gone within three weeks. My memory and ability to concentrate greatly improved as well.

The web doc (cannot remember site or name) said that most patients felt relief taking as little as 300 mg a day but some needed as much as 3,000 which is harmless for most people but you should check with your doctor. I used 600 mg a day and began to see results immediately. Mucinex was developed in the early 1900s to break up and get rid of mucus and most doctors prescribe it for pneumonia or bronchitis. The doc said he believed (but couldn't be sure) that the mucinex helped release oxalates that some people build up around muscle tissues because they lack an enzyme to break it down and eliminate it. The Mucinex must be continued to maintain relief and I only take one 300 mg tablet a day to be pain free. Chocolate seemed to be my problem - it is very high in oxalates as are other foods such as tea and spinach. It's not very expensive and they recently had a big marketing campaign so you can find it on the shelf at most drugstores with cold medicines.

Secondly, just today I received my magazine from the Life Extension Foundation that has a case study of a woman "cured" of her fibromyalgia enough to resume a normal life using supplements and hormone replacement mostly. Many of this magazines articles end up on their web site so you might check out www.lef.org to see what you can find. You can do a search on fibromyalgia to see what supplements they recommend. To get their magazine you need to be a member at $75 per year.

Sure hope this info can help someone out there. I sure don't miss the pain and lack of concentration.

Diane Jaana Mäkipää wrote:

Karis, thanks for clarifying things -- now i am very curious about remissions.

Has anyone heard of or had remissions from FMS? if so, how long would they typically last? is this something we ALL might get to experience at some point?

Aloooooooooha!-JaanaModerator / Member De-Bouncerator / humble Group servant

Re: Re: Checking In ...

Hi ,

Thank you,, yes, it hasnt been easy - but what ever is with FMS?? lol ... each day is Very slow - minute by minute as I am very uneasy and uncertain of many things - just taking it slowly and trying to regain some of my strength again. Going off of the meds may have been some sort of relief to my system - I really dont know the answer or why I am finding things better w/o them... but at this point I am not questioning it ... we know there are no cures and no getting over FMS - so .. maybe a remission of some kind or a 'good spell' I dont know ... but right now I feel better then I have in months and that is all I care about and all I am focusing on - to try and have as many good days as possible.

karis~1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.__________________________________________________

[Guest guest]

Hi All, my first post. I was diagnosed about a year ago with FMS after pain in my shoulders was starting to limit my ability to use my right arm with left arm following close behind.

I'm posting on this thread as I have two positives to report on remission/partial cure whatever you would like to call it.

My doctor confirmed FMS with pressure points after I suspected it from my research and took in a list of 12 symptoms that seemed to fit the profile (he had only previously heard about a few of them). He offered zero options for dealing with the situation other than an anti-depressant. After doing research on the web I found a doctor's site that told about thousands of patients who found relief from Mucinex - now over the counter. He discovered it by accident when treating an FMS patient for bronchitis and then tried it on other FMS patients with great success. I asked my doctor about it and he said it wouldn't hurt anything to try but that other people he knew did not get help from it. I DID! My shoulder pains which kept me from raising my arm above my nose was mostly gone within three weeks. My memory and ability to concentrate greatly improved as well.

The web doc (cannot remember site or name) said that most patients felt relief taking as little as 300 mg a day but some needed as much as 3,000 which is harmless for most people but you should check with your doctor. I used 600 mg a day and began to see results immediately. Mucinex was developed in the early 1900s to break up and get rid of mucus and most doctors prescribe it for pneumonia or bronchitis. The doc said he believed (but couldn't be sure) that the mucinex helped release oxalates that some people build up around muscle tissues because they lack an enzyme to break it down and eliminate it. The Mucinex must be continued to maintain relief and I only take one 300 mg tablet a day to be pain free. Chocolate seemed to be my problem - it is very high in oxalates as are other foods such as tea and spinach. It's not very expensive and they recently had a big marketing campaign so you can find it on the shelf at most drugstores with cold medicines.

Secondly, just today I received my magazine from the Life Extension Foundation that has a case study of a woman "cured" of her fibromyalgia enough to resume a normal life using supplements and hormone replacement mostly. Many of this magazines articles end up on their web site so you might check out www.lef.org to see what you can find. You can do a search on fibromyalgia to see what supplements they recommend. To get their magazine you need to be a member at $75 per year.

Sure hope this info can help someone out there. I sure don't miss the pain and lack of concentration.

Diane Jaana Mäkipää wrote:

Karis, thanks for clarifying things -- now i am very curious about remissions.

Has anyone heard of or had remissions from FMS? if so, how long would they typically last? is this something we ALL might get to experience at some point?

Aloooooooooha!-JaanaModerator / Member De-Bouncerator / humble Group servant

Re: Re: Checking In ...

Hi ,

Thank you,, yes, it hasnt been easy - but what ever is with FMS?? lol ... each day is Very slow - minute by minute as I am very uneasy and uncertain of many things - just taking it slowly and trying to regain some of my strength again. Going off of the meds may have been some sort of relief to my system - I really dont know the answer or why I am finding things better w/o them... but at this point I am not questioning it ... we know there are no cures and no getting over FMS - so .. maybe a remission of some kind or a 'good spell' I dont know ... but right now I feel better then I have in months and that is all I care about and all I am focusing on - to try and have as many good days as possible.

karis~1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.__________________________________________________

[Guest guest]

I have remissions before..but they were early on when I was younger. I did get 3 weeks 2 years ago and I did everything I had not been able to do. THen One moring I was back to the old me

Patsy

-- Re: FMS - Are there remissions?

Karis, thanks for clarifying things -- now i am very curious about remissions.

Has anyone heard of or had remissions from FMS? if so, how long would they typically last? is this something we ALL might get to experience at some point?

Aloooooooooha!-JaanaModerator / Member De-Bouncerator / humble Group servant

Re: Re: Checking In ...

Hi ,

Thank you,, yes, it hasnt been easy - but what ever is with FMS?? lol ... each day is Very slow - minute by minute as I am very uneasy and uncertain of many things - just taking it slowly and trying to regain some of my strength again. Going off of the meds may have been some sort of relief to my system - I really dont know the answer or why I am finding things better w/o them... but at this point I am not questioning it .... we know there are no cures and no getting over

[Guest guest]

For me my remissions are are in the Fall & Winter, I know that sounds strange but the Humidity KILLS me

Jacquie

-- Re: FMS - Are there remissions?

Karis, thanks for clarifying things -- now i am very curious about remissions.

Has anyone heard of or had remissions from FMS? if so, how long would they typically last? is this something we ALL might get to experience at some point?

Aloooooooooha!-JaanaModerator / Member De-Bouncerator / humble Group servant

Re: Re: Checking In ...

Hi ,

Thank you,, yes, it hasnt been easy - but what ever is with FMS?? lol ... each day is Very slow - minute by minute as I am very uneasy and uncertain of many things - just taking it slowly and trying to regain some of my strength again. Going off of the meds may have been some sort of relief to my system - I really dont know the answer or why I am finding things better w/o them... but at this point I am not questioning it .... we know there are no cures and no getting over

Creations4U

Font: Tempus Sans ITC

No tut just playing

Tubes from tube share

Head Lynn B.

Doll Body by: Jewel

[Guest guest]

For me my remissions are are in the Fall & Winter, I know that sounds strange but the Humidity KILLS me

Jacquie

-- Re: FMS - Are there remissions?

Karis, thanks for clarifying things -- now i am very curious about remissions.

Has anyone heard of or had remissions from FMS? if so, how long would they typically last? is this something we ALL might get to experience at some point?

Aloooooooooha!-JaanaModerator / Member De-Bouncerator / humble Group servant

Re: Re: Checking In ...

Hi ,

Thank you,, yes, it hasnt been easy - but what ever is with FMS?? lol ... each day is Very slow - minute by minute as I am very uneasy and uncertain of many things - just taking it slowly and trying to regain some of my strength again. Going off of the meds may have been some sort of relief to my system - I really dont know the answer or why I am finding things better w/o them... but at this point I am not questioning it .... we know there are no cures and no getting over

Creations4U

Font: Tempus Sans ITC

No tut just playing

Tubes from tube share

Head Lynn B.

Doll Body by: Jewel

[Guest guest]

Patsy and Jacquie~ I used to have remissions. In fact

I kept the fibro under control or " in remission " for

several years until my back injury. Now I just can't

get myself back on track. The physical injuries to my

back and leg, the arthrtis, ddd, spinal stenosis ~all

of that combined with the fibro is just too much. I

looked in the mirror today after my shower and noticed

a woman who is getting old with very dark circles and

dull skin. This may sound conceited but I used to glow

sort of ~ bubble over with joy, health, and optimism.

But now my life just gets darker every day.The joy I

have now is thru my kids~I thank God every day for

them. Remissions? Yes they are possible but I think I

used all mine up. Be well; Jan

--- Jacquie wrote:

> For me my remissions are are in the Fall & Winter, I

> know that sounds

> strange but the Humidity KILLS me

>

> Jacquie

>

> -- Re: FMS - Are there remissions?

>

> Karis, thanks for clarifying things -- now i am very

> curious about

> remissions.

>

> Has anyone heard of or had remissions from FMS? if

> so, how long would they

> typically last? is this something we ALL might get

> to experience at some

> point?

>

> Aloooooooooha!

> -Jaana

> Moderator / Member De-Bouncerator / humble Group

> servant

>

> Re: Re: Checking In ...

>

>

> Hi ,

>

> Thank you,, yes, it hasnt been easy - but what ever

> is with FMS?? lol ... each day is Very slow - minute

> by minute as I am very uneasy and uncertain of many

> things - just taking it slowly and trying to regain

> some of my strength again. Going off of the meds

> may have been some sort of relief to my system - I

> really dont know the answer or why I am finding

> things better w/o them... but at this point I am not

> questioning it .... we know there are no cures and

> no getting over

__________________________________________________

[Guest guest]

I've had really good days now and then, but never longer than that. Don't know if that is considered a remission or not? For every good day I have, seems like there are ten bad one waiting around the corner. Like now. I had a decent day Monday. Got out of the house. Now I am in so much pain I don't know if I want to scream or cry. I have over 20 Salonpas on my body, but it is helping me so who cares if I smell like a giant stick of spearmint gum? My husband was working in his step mom's garden all day and he came home with quite a sunburn. He is very dark skinned Portuguese, so he doesn't burn too easy. It never occurs to him to wear sun screen! I put some Salonpas on him and he says it is helping the burn. Whoever mentioned Salonpas to me, I could KISS you. If I remembered who it was, I'd buy you a drink! Lol! This stuff has really been a help to me.

~*Kerrie*~

We are here to do good, help others, then shut up and go HOME!~~Sylvia Brownewww.sylvia.org

Re: FMS - Are there remissions?

Karis, thanks for clarifying things -- now i am very curious about remissions.

Has anyone heard of or had remissions from FMS? if so, how long would they typically last? is this something we ALL might get to experience at some point?

Aloooooooooha!-JaanaModerator / Member De-Bouncerator / humble Group servant