Guest guest Posted October 23, 1999 Report Share Posted October 23, 1999 has always had it stated in his IEP that he is to have an aide on the bus - his situation could change at any time and the driver would not always know that. He also has seizures, though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 1999 Report Share Posted October 23, 1999 has always had it stated in his IEP that he is to have an aide on the bus - his situation could change at any time and the driver would not always know that. He also has seizures, though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 1999 Report Share Posted October 23, 1999 has always had it stated in his IEP that he is to have an aide on the bus - his situation could change at any time and the driver would not always know that. He also has seizures, though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 1999 Report Share Posted October 23, 1999 Hi Janelle, There is an aide on my kids' bus. The only reason she's on there though is because has a trach. In the past we didn't automatically have an aide, but I would have started pushing for one due to the fact that both kids are in wheelchairs. Who cares if your child is doing fine now, its that (God forbid) one emergency that the aide is needed that is important!! Keep relaying safety and liability issues to them and maybe they will listen. Good luck... Sue ( & Jack)-worn out parents to the greatest kids on earth in Las Vegas, NV Chris-9: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker -8: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker, trach tube (larynotracheomalasia), g-tube/fundo Visit us! http://u2.lvcm.com/jscb > Just taking a poll. FYI, they are trying to remove my daughter's associate > from bus because she's done well so far this year without any problems. > How many of you have an associate per bus automatically if it is an > handicapped bus? Please I'm needing some statistics about this before our > staffing on Nov 1 to reevaluate s associate on bus. > Thanks > Janelle McGuire Burlington, IOWA > mom to 3.5 yr old with ubiquinone defiecency, agenesis corpus > callosum, > hytonia, nonverbal, nonambulatory, GT, central apnea, laryngomalacia, ETC,ETC > > > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 1999 Report Share Posted October 23, 1999 Hi Janelle, There is an aide on my kids' bus. The only reason she's on there though is because has a trach. In the past we didn't automatically have an aide, but I would have started pushing for one due to the fact that both kids are in wheelchairs. Who cares if your child is doing fine now, its that (God forbid) one emergency that the aide is needed that is important!! Keep relaying safety and liability issues to them and maybe they will listen. Good luck... Sue ( & Jack)-worn out parents to the greatest kids on earth in Las Vegas, NV Chris-9: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker -8: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker, trach tube (larynotracheomalasia), g-tube/fundo Visit us! http://u2.lvcm.com/jscb > Just taking a poll. FYI, they are trying to remove my daughter's associate > from bus because she's done well so far this year without any problems. > How many of you have an associate per bus automatically if it is an > handicapped bus? Please I'm needing some statistics about this before our > staffing on Nov 1 to reevaluate s associate on bus. > Thanks > Janelle McGuire Burlington, IOWA > mom to 3.5 yr old with ubiquinone defiecency, agenesis corpus > callosum, > hytonia, nonverbal, nonambulatory, GT, central apnea, laryngomalacia, ETC,ETC > > > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 1999 Report Share Posted October 23, 1999 Hi Janelle, There is an aide on my kids' bus. The only reason she's on there though is because has a trach. In the past we didn't automatically have an aide, but I would have started pushing for one due to the fact that both kids are in wheelchairs. Who cares if your child is doing fine now, its that (God forbid) one emergency that the aide is needed that is important!! Keep relaying safety and liability issues to them and maybe they will listen. Good luck... Sue ( & Jack)-worn out parents to the greatest kids on earth in Las Vegas, NV Chris-9: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker -8: Leigh's Disease (?), MR (mild), hypotonia, non-walker/talker, trach tube (larynotracheomalasia), g-tube/fundo Visit us! http://u2.lvcm.com/jscb > Just taking a poll. FYI, they are trying to remove my daughter's associate > from bus because she's done well so far this year without any problems. > How many of you have an associate per bus automatically if it is an > handicapped bus? Please I'm needing some statistics about this before our > staffing on Nov 1 to reevaluate s associate on bus. > Thanks > Janelle McGuire Burlington, IOWA > mom to 3.5 yr old with ubiquinone defiecency, agenesis corpus > callosum, > hytonia, nonverbal, nonambulatory, GT, central apnea, laryngomalacia, ETC,ETC > > > Brought to you by www.imdn.org - an on-line support group for those affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 1999 Report Share Posted October 23, 1999 Hi Janelle, There has always been an aide on my son's bus. Also, I am a Special Ed administrator here in NJ and we always have aides on the buses we send out. Laurel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 1999 Report Share Posted October 23, 1999 Hi Janelle, There has always been an aide on my son's bus. Also, I am a Special Ed administrator here in NJ and we always have aides on the buses we send out. Laurel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 1999 Report Share Posted October 24, 1999 Janelle, Wow, I am even impressed you got an associate on the bus with your child!!! My son had such behaviors last year and I wanted someone to ride and do a behavior analysis and I got no one. Head of elementary special ed rode with him 4 times. I end up training the bus drivers. I am not sure of why your daughter needed the aide. Was it for mediacl reasons? My friends daughter sits in the back of the bus and just had a seizure on the bus and arrived lethargic. But left home just fine. She got accused of sending her daughter to school sick!! NO clue!! I'd be asking myself and the aide-what is she doing for her? If you OK no aide then what happens if whatever happened before that you got one. I'll share this. My wrap around aide took a week vacation and my son regressed terribly when left with 3 aides in he=is classroom. The problem is that she is in charge of him-the xchool district people should be learning from her-but they think he is hers.PERIOD. Well I've just spent 2 weeks coming up with behavior plans around problems with eating. They all told me to call the Dr. I believe he regressed because they screwed up. So make sure if you lose this person, who did she train-the bus driver? Or will she go downhill when her support system gets taken away from her. Kathy F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 1999 Report Share Posted October 24, 1999 Janelle, Wow, I am even impressed you got an associate on the bus with your child!!! My son had such behaviors last year and I wanted someone to ride and do a behavior analysis and I got no one. Head of elementary special ed rode with him 4 times. I end up training the bus drivers. I am not sure of why your daughter needed the aide. Was it for mediacl reasons? My friends daughter sits in the back of the bus and just had a seizure on the bus and arrived lethargic. But left home just fine. She got accused of sending her daughter to school sick!! NO clue!! I'd be asking myself and the aide-what is she doing for her? If you OK no aide then what happens if whatever happened before that you got one. I'll share this. My wrap around aide took a week vacation and my son regressed terribly when left with 3 aides in he=is classroom. The problem is that she is in charge of him-the xchool district people should be learning from her-but they think he is hers.PERIOD. Well I've just spent 2 weeks coming up with behavior plans around problems with eating. They all told me to call the Dr. I believe he regressed because they screwed up. So make sure if you lose this person, who did she train-the bus driver? Or will she go downhill when her support system gets taken away from her. Kathy F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 1999 Report Share Posted October 24, 1999 Janelle, Wow, I am even impressed you got an associate on the bus with your child!!! My son had such behaviors last year and I wanted someone to ride and do a behavior analysis and I got no one. Head of elementary special ed rode with him 4 times. I end up training the bus drivers. I am not sure of why your daughter needed the aide. Was it for mediacl reasons? My friends daughter sits in the back of the bus and just had a seizure on the bus and arrived lethargic. But left home just fine. She got accused of sending her daughter to school sick!! NO clue!! I'd be asking myself and the aide-what is she doing for her? If you OK no aide then what happens if whatever happened before that you got one. I'll share this. My wrap around aide took a week vacation and my son regressed terribly when left with 3 aides in he=is classroom. The problem is that she is in charge of him-the xchool district people should be learning from her-but they think he is hers.PERIOD. Well I've just spent 2 weeks coming up with behavior plans around problems with eating. They all told me to call the Dr. I believe he regressed because they screwed up. So make sure if you lose this person, who did she train-the bus driver? Or will she go downhill when her support system gets taken away from her. Kathy F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 1999 Report Share Posted October 25, 1999 All of the special ed. busses in our district have an assistant as well as a bus driver on each bus. We have 25,000 students in our district with a large special ed. population. When was an inclusion student at her neighborhood school and rode the regular bus with a special stop at our house, there was no assistant. Now that she is in a special ed. class at another school, there is an assistant on the bus. There is no way, with the issues that your daughter has that I would feel that a driver could take care of her needs and still drive-you just never know what is going to happen. Good Luck, ML -- Lou mom to ,14 Complex I & III (our happy,little entertainer); Jeff 16 and Greg 10 (typical active boys) ---------- >From: Sei1126@... >To: Mitoonelist >Subject: Associates on handicapped buses >Date: Sat, Oct 23, 1999, 9:07 AM > > From: Sei1126@... > > Just taking a poll. FYI, they are trying to remove my daughter's associate > from bus because she's done well so far this year without any problems. > How many of you have an associate per bus automatically if it is an > handicapped bus? Please I'm needing some statistics about this before our > staffing on Nov 1 to reevaluate s associate on bus. > Thanks > Janelle McGuire Burlington, IOWA > mom to 3.5 yr old with ubiquinone defiecency, agenesis corpus > callosum, > hytonia, nonverbal, nonambulatory, GT, central apnea, laryngomalacia, ETC,ETC > > > Brought to you by www.imdn.org - an on-line support group for those > affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 1999 Report Share Posted October 25, 1999 All of the special ed. busses in our district have an assistant as well as a bus driver on each bus. We have 25,000 students in our district with a large special ed. population. When was an inclusion student at her neighborhood school and rode the regular bus with a special stop at our house, there was no assistant. Now that she is in a special ed. class at another school, there is an assistant on the bus. There is no way, with the issues that your daughter has that I would feel that a driver could take care of her needs and still drive-you just never know what is going to happen. Good Luck, ML -- Lou mom to ,14 Complex I & III (our happy,little entertainer); Jeff 16 and Greg 10 (typical active boys) ---------- >From: Sei1126@... >To: Mitoonelist >Subject: Associates on handicapped buses >Date: Sat, Oct 23, 1999, 9:07 AM > > From: Sei1126@... > > Just taking a poll. FYI, they are trying to remove my daughter's associate > from bus because she's done well so far this year without any problems. > How many of you have an associate per bus automatically if it is an > handicapped bus? Please I'm needing some statistics about this before our > staffing on Nov 1 to reevaluate s associate on bus. > Thanks > Janelle McGuire Burlington, IOWA > mom to 3.5 yr old with ubiquinone defiecency, agenesis corpus > callosum, > hytonia, nonverbal, nonambulatory, GT, central apnea, laryngomalacia, ETC,ETC > > > Brought to you by www.imdn.org - an on-line support group for those > affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 1999 Report Share Posted October 25, 1999 All of the special ed. busses in our district have an assistant as well as a bus driver on each bus. We have 25,000 students in our district with a large special ed. population. When was an inclusion student at her neighborhood school and rode the regular bus with a special stop at our house, there was no assistant. Now that she is in a special ed. class at another school, there is an assistant on the bus. There is no way, with the issues that your daughter has that I would feel that a driver could take care of her needs and still drive-you just never know what is going to happen. Good Luck, ML -- Lou mom to ,14 Complex I & III (our happy,little entertainer); Jeff 16 and Greg 10 (typical active boys) ---------- >From: Sei1126@... >To: Mitoonelist >Subject: Associates on handicapped buses >Date: Sat, Oct 23, 1999, 9:07 AM > > From: Sei1126@... > > Just taking a poll. FYI, they are trying to remove my daughter's associate > from bus because she's done well so far this year without any problems. > How many of you have an associate per bus automatically if it is an > handicapped bus? Please I'm needing some statistics about this before our > staffing on Nov 1 to reevaluate s associate on bus. > Thanks > Janelle McGuire Burlington, IOWA > mom to 3.5 yr old with ubiquinone defiecency, agenesis corpus > callosum, > hytonia, nonverbal, nonambulatory, GT, central apnea, laryngomalacia, ETC,ETC > > > Brought to you by www.imdn.org - an on-line support group for those > affected by mitochondrial disease. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 1999 Report Share Posted October 25, 1999 Hello, I received some e-mail addressed to someone other than myself. Is this just some of the messages for the Mitoonelist? I was just wondering. I have MRS and I jerk a lot, sometimes no-one can see me do it, but I feel it. My friend timed me one time, and I jerked about every 16 seconds after I went into a deep sleep. This past Friday morning I woke, soooo swelled-up, you couldn't even recognize me. I loose my voice all the time and have terrible headaches. If this is a message board, somebody, please respond to my message. I need some support. I've been suffering for years. Thank you, and I hope that everyone will correspond with me. Claudette cpfingston@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 1999 Report Share Posted October 25, 1999 Hello, I received some e-mail addressed to someone other than myself. Is this just some of the messages for the Mitoonelist? I was just wondering. I have MRS and I jerk a lot, sometimes no-one can see me do it, but I feel it. My friend timed me one time, and I jerked about every 16 seconds after I went into a deep sleep. This past Friday morning I woke, soooo swelled-up, you couldn't even recognize me. I loose my voice all the time and have terrible headaches. If this is a message board, somebody, please respond to my message. I need some support. I've been suffering for years. Thank you, and I hope that everyone will correspond with me. Claudette cpfingston@... Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.