Kathy on survey question

[Guest guest]

Thanks Kathy.

I was wondering what you or they suspect he MIGHT have in the way of a

mito-does anyone even guess what particular mito disorder he may have, do

you think he has mito, do any of the Dr.s think so?

I can't remember if you have other children and do they have mito suspected

or diagnosed?

S.

survey

>Date: Monday, April 27, 1998 1:00 PM

>

>I was wondering if all families with any AD(H)D in any family member had

>the same mito suspected or confirmed disorder(s). I was thinking we could

>take a survey on here and find out. If those with AD(H)D in their families

>would respond I would appreciate it.

>

>Also, many mito disorders affect the brain, but different mito disorders

>seem to affect the brain in different ways. I was wondering (going on the

>premise that AD(H)D IS a mito disorder) exactly how it is affecting those

>patients brains. I understand that there is a variance in which cells and

>how many get affected and to what degree, but obviously it seems to me that

>there still seem to be at least loose categories of brain involvement. And

>also some problems are structural as in areas of the brain actually being

>destroyed (Leigh's and Alzheimer's), while others are chemical (problems

>with hormones, blood sugar and oxygen levels).

>It seems to me that we know that the low levels of chemicals eventually

>destroy brain cells? It has been proven that AD(H)D patients have low

>levels of glucose and oxygen to the brain (at the least-certain areas) and

>it is known that families with AD(H)D in them generally also have

>Alzheimer's patients. The mito specialists are surmizing that the

>Alzheimer's patients are those who have undiagnosed/untreated milder forms

>of some mito disorder. They also think AD(H)D is a milder form of some mito

>disorder. If families with AD(H)D could have a diagnosis of exactly what

>the defect is causing their problem then maybe thru treatment they could

>prevent the brain deterioration/cell destruction that leads to some of them

>being diagnosed with Alzheimer's in late life.

>Are AD(H)D patients brains not able to get proper glucose and oxygen

>because of a problem with the brain cells themselves or just not getting

>them because of problems elsewhere in the body? I remember when I did get

>the glucose and oxygen my brain was able to function fine some years ago,

>but I wonder how much actual structural damage has or is happening now as

>more and more time goes by with improper amts so that I may end up like

>other family members with Alzheimer's. Scarey thought.

>If we could determine WHICH mito disorder these patients have they could be

>treated more rationally. I just think if we did the survey on here and

>happened to come up with a majority of AD(H)D families with the same or

>very similar disorder(s) we might get a clue.

>Hopeful shot in the dark but worth a try to me. S.

>

>

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