Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 Even though we had great improvement, we didn't see the full improvement wehad hoped for so we went to a nutritional biochemist. She took one look atthe dark circles under his eyes and ordered a RAST test for Food allergies.She only tested about 12 of the basic foods he was eating. How did you find a nutritional biochemist? Who can order the RAST test, a pediatrician or allergist? I'm so convinced my 2 year old has other allergies besides eggs, especially since his excema won't clear up and he always has an URI. Thanks for the info! Dabney Mom to two beautiful Russian angels, Katya 6 (Cleft lip/palate, kidney reflux), Perm Russia, Nina 4 (Celiac Disease, SCAD, mood disorder), Tver Russia, a little prince Evan, 2 and a baby girl Ella 4 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 Marcie, I have read that children (not adults) heal within 6 months. It seems to me some children take longer, but that might be because they are not truly gluten-free or they have medical problems. In your son's case, he has had other medical problems. For SOME people, dairy and soy allergies can be particularly nasty, and they can damage the intestines also, even causing flattened villi. When you say he had no immediate allergies, but he had delayed allergies, I guess you mean he had no anaphylactic allergies. How snazzy that your son will be seen by Dr. Fasano. He is one of the top celiac specialists in the country. You do what you think is best, but I wouldn't put my son through a gluten challenge. I read about one child who got seizures when he got accidental gluten. I also read about people that did a gluten challenge sometimes would develop another autoimmune condition. I think those make a statement about how stressful a gluten challenge would be. Jo Anne RE: allergy testing Hi,Didn't we just have a post about Hunt's saying it's 4 cheese tomato saucewas not gluten free?As for the allergies, we have a 3 year old who stopped growing at age two.Our pediatrician was not much help and we decided to go with a gluten freediet to see if it would help. What an improvement: skin rashes disappeared,ravenous appetite slowed down, bowels were normal, he was able to focus, wecould actually start potty training, his immune system improved and-- mostimportantly-- he started growing! He was always anemic and the color of hisskin improved as well. However, we did have relapses. Mostly from eatingout, but a couple of the "I don't know where this came from..."Even though we had great improvement, we didn't see the full improvement wehad hoped for so we went to a nutritional biochemist. She took one look atthe dark circles under his eyes and ordered a RAST test for Food allergies.She only tested about 12 of the basic foods he was eating. She gave me someliterature on food allergies and they mimic celiac. He came back with noimmediate allergies but some delayed allergies. He had a score of just over5 for peanuts which means he had to limit to one to two servings a week.Anything over 15 means you have to cut it out all together. Soybeans wasalmost 16. Eggs were 100! I was a bit skeptical but we have taken eggs andsoybean out of his diet completely and he is a different child! Now we aregoing to test for other foods. So now I'm a believer in blood tests forallergies. I also read that skin pricks can't give an accurate reading oftype 3 allergy responses.The CBC also showed that he was still anemic (even with giving himmultivitamins and additional iron supplements that the pediatrician ordered)and malnourished. She seems to think that cutting out the allergic foods andtaking the right supplements will help. Does anyone know how long aftergoing gluten free does it take for the gut to repair itself? He's beengluten free since January.My other question is do you think I should consider adding gluten back tohis diet down the road? Pretty much everything that I cut out of his diet tomake it gluten free probably had eggs in it. I wonder if I'm doing the rightthing. I'd appreciate the input of anyone out there who's dealt withanything like this.We have an appointment with Dr. Fasano in January.Marcie Concepcion Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 Marcie, I have read that children (not adults) heal within 6 months. It seems to me some children take longer, but that might be because they are not truly gluten-free or they have medical problems. In your son's case, he has had other medical problems. For SOME people, dairy and soy allergies can be particularly nasty, and they can damage the intestines also, even causing flattened villi. When you say he had no immediate allergies, but he had delayed allergies, I guess you mean he had no anaphylactic allergies. How snazzy that your son will be seen by Dr. Fasano. He is one of the top celiac specialists in the country. You do what you think is best, but I wouldn't put my son through a gluten challenge. I read about one child who got seizures when he got accidental gluten. I also read about people that did a gluten challenge sometimes would develop another autoimmune condition. I think those make a statement about how stressful a gluten challenge would be. Jo Anne RE: allergy testing Hi,Didn't we just have a post about Hunt's saying it's 4 cheese tomato saucewas not gluten free?As for the allergies, we have a 3 year old who stopped growing at age two.Our pediatrician was not much help and we decided to go with a gluten freediet to see if it would help. What an improvement: skin rashes disappeared,ravenous appetite slowed down, bowels were normal, he was able to focus, wecould actually start potty training, his immune system improved and-- mostimportantly-- he started growing! He was always anemic and the color of hisskin improved as well. However, we did have relapses. Mostly from eatingout, but a couple of the "I don't know where this came from..."Even though we had great improvement, we didn't see the full improvement wehad hoped for so we went to a nutritional biochemist. She took one look atthe dark circles under his eyes and ordered a RAST test for Food allergies.She only tested about 12 of the basic foods he was eating. She gave me someliterature on food allergies and they mimic celiac. He came back with noimmediate allergies but some delayed allergies. He had a score of just over5 for peanuts which means he had to limit to one to two servings a week.Anything over 15 means you have to cut it out all together. Soybeans wasalmost 16. Eggs were 100! I was a bit skeptical but we have taken eggs andsoybean out of his diet completely and he is a different child! Now we aregoing to test for other foods. So now I'm a believer in blood tests forallergies. I also read that skin pricks can't give an accurate reading oftype 3 allergy responses.The CBC also showed that he was still anemic (even with giving himmultivitamins and additional iron supplements that the pediatrician ordered)and malnourished. She seems to think that cutting out the allergic foods andtaking the right supplements will help. Does anyone know how long aftergoing gluten free does it take for the gut to repair itself? He's beengluten free since January.My other question is do you think I should consider adding gluten back tohis diet down the road? Pretty much everything that I cut out of his diet tomake it gluten free probably had eggs in it. I wonder if I'm doing the rightthing. I'd appreciate the input of anyone out there who's dealt withanything like this.We have an appointment with Dr. Fasano in January.Marcie Concepcion Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 Marcie, I have read that children (not adults) heal within 6 months. It seems to me some children take longer, but that might be because they are not truly gluten-free or they have medical problems. In your son's case, he has had other medical problems. For SOME people, dairy and soy allergies can be particularly nasty, and they can damage the intestines also, even causing flattened villi. When you say he had no immediate allergies, but he had delayed allergies, I guess you mean he had no anaphylactic allergies. How snazzy that your son will be seen by Dr. Fasano. He is one of the top celiac specialists in the country. You do what you think is best, but I wouldn't put my son through a gluten challenge. I read about one child who got seizures when he got accidental gluten. I also read about people that did a gluten challenge sometimes would develop another autoimmune condition. I think those make a statement about how stressful a gluten challenge would be. Jo Anne RE: allergy testing Hi,Didn't we just have a post about Hunt's saying it's 4 cheese tomato saucewas not gluten free?As for the allergies, we have a 3 year old who stopped growing at age two.Our pediatrician was not much help and we decided to go with a gluten freediet to see if it would help. What an improvement: skin rashes disappeared,ravenous appetite slowed down, bowels were normal, he was able to focus, wecould actually start potty training, his immune system improved and-- mostimportantly-- he started growing! He was always anemic and the color of hisskin improved as well. However, we did have relapses. Mostly from eatingout, but a couple of the "I don't know where this came from..."Even though we had great improvement, we didn't see the full improvement wehad hoped for so we went to a nutritional biochemist. She took one look atthe dark circles under his eyes and ordered a RAST test for Food allergies.She only tested about 12 of the basic foods he was eating. She gave me someliterature on food allergies and they mimic celiac. He came back with noimmediate allergies but some delayed allergies. He had a score of just over5 for peanuts which means he had to limit to one to two servings a week.Anything over 15 means you have to cut it out all together. Soybeans wasalmost 16. Eggs were 100! I was a bit skeptical but we have taken eggs andsoybean out of his diet completely and he is a different child! Now we aregoing to test for other foods. So now I'm a believer in blood tests forallergies. I also read that skin pricks can't give an accurate reading oftype 3 allergy responses.The CBC also showed that he was still anemic (even with giving himmultivitamins and additional iron supplements that the pediatrician ordered)and malnourished. She seems to think that cutting out the allergic foods andtaking the right supplements will help. Does anyone know how long aftergoing gluten free does it take for the gut to repair itself? He's beengluten free since January.My other question is do you think I should consider adding gluten back tohis diet down the road? Pretty much everything that I cut out of his diet tomake it gluten free probably had eggs in it. I wonder if I'm doing the rightthing. I'd appreciate the input of anyone out there who's dealt withanything like this.We have an appointment with Dr. Fasano in January.Marcie Concepcion Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.