Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hi, I have been a member of this group for a little less then a year. I was diagnosed with Celiac by just a blood test and went GF for 6 months, but towards the end I started getting sick again, so I went to a new dr. who did an endoscopy/biopsy and said I didn't have celiac and it must be Irritable Bowel Syndrome. I went to a different dr. and talked to him because the 2nd dr. wasn't listening to me that I wanted to see what else it could be if not celiac. So the 3rd dr. explained to me that the blood tests that were pos. were not that accurate (IGA and IGG)and the " good " blood tests (endomy?) were negative plus my vili looked normal... Okay, long story short, I just had a colonoscopy and my dr. is thinking it's Crohn's disease because I have a bunch of ulcers in my colon and part of my small intestine. I am waiting for the bopsy results to be sure. I just wanted to say Thank you for everyone's support and messages to myself and to other members. When I was a celiac- you really helped me deal with it and get alot of info. Now I am going to learn to deal with another disease (which by the way- I think I'd rather have Celiac, but hey, beggars can't be choosers- at least I know what's up now). Thanks again, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Hi , Don't write off Celiac completely. If you had a biopsy after 6 months on the gluten free diet, then those results are not going to be accurate. It can sometimes take a long time (up to 5 years according to the book Dangerous Grains) for the intestines to appear damaged again after being gluten free. If you do decide to go back on gluten and continue having problems, then you may want to go back on the diet. It is possible to have Celiac and Crohns, as well as many other diseases. If you do in fact have Celiac and improve on the diet, this does not make you immune to getting other diseases, and if you started feeling bad again, it could have been for another reason, on top of the CD. I guess what I am trying to say, is be careful. Celiacs who eat gluten are setting themselves up for a lifetime of illness. I would hate to see you hurt yourself because the doctors are too clueless to realize what is going on. God bless, nn sillyyak11 wrote: Hi, I have been a member of this group for a little less then a year. I was diagnosed with Celiac by just a blood test and went GF for 6 months, but towards the end I started getting sick again, so I went to a new dr. who did an endoscopy/biopsy and said I didn't have celiac and it must be Irritable Bowel Syndrome. I went to a different dr. and talked to him because the 2nd dr. wasn't listening to me that I wanted to see what else it could be if not celiac. So the 3rd dr. explained to me that the blood tests that were pos. were not that accurate (IGA and IGG)and the "good" blood tests (endomy?) were negative plus my vili looked normal... Okay, long story short, I just had a colonoscopy and my dr. is thinking it's Crohn's disease because I have a bunch of ulcers in my colon and part of my small intestine. I am waiting for the bopsy results to be sure. I just wanted to say Thank you for everyone's support and messages to myself and to other members. When I was a celiac- you really helped me deal with it and get alot of info. Now I am going to learn to deal with another disease (which by the way- I think I'd rather have Celiac, but hey, beggars can't be choosers- at least I know what's up now). Thanks again, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Hi , Don't write off Celiac completely. If you had a biopsy after 6 months on the gluten free diet, then those results are not going to be accurate. It can sometimes take a long time (up to 5 years according to the book Dangerous Grains) for the intestines to appear damaged again after being gluten free. If you do decide to go back on gluten and continue having problems, then you may want to go back on the diet. It is possible to have Celiac and Crohns, as well as many other diseases. If you do in fact have Celiac and improve on the diet, this does not make you immune to getting other diseases, and if you started feeling bad again, it could have been for another reason, on top of the CD. I guess what I am trying to say, is be careful. Celiacs who eat gluten are setting themselves up for a lifetime of illness. I would hate to see you hurt yourself because the doctors are too clueless to realize what is going on. God bless, nn sillyyak11 wrote: Hi, I have been a member of this group for a little less then a year. I was diagnosed with Celiac by just a blood test and went GF for 6 months, but towards the end I started getting sick again, so I went to a new dr. who did an endoscopy/biopsy and said I didn't have celiac and it must be Irritable Bowel Syndrome. I went to a different dr. and talked to him because the 2nd dr. wasn't listening to me that I wanted to see what else it could be if not celiac. So the 3rd dr. explained to me that the blood tests that were pos. were not that accurate (IGA and IGG)and the "good" blood tests (endomy?) were negative plus my vili looked normal... Okay, long story short, I just had a colonoscopy and my dr. is thinking it's Crohn's disease because I have a bunch of ulcers in my colon and part of my small intestine. I am waiting for the bopsy results to be sure. I just wanted to say Thank you for everyone's support and messages to myself and to other members. When I was a celiac- you really helped me deal with it and get alot of info. Now I am going to learn to deal with another disease (which by the way- I think I'd rather have Celiac, but hey, beggars can't be choosers- at least I know what's up now). Thanks again, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 I thought that Celiac, since genetic, is the one your born with, and then if you don't follow a GF diet, you develope Crohn's...and many others--like IBS.... Which came first the Celiac or the Crohn's... I'm sure a GF diet wouldn't hurt either way! :-) Connie > , > > I have a 12 yr old that has both Celiac & Crohn's. We did the biopsy to verify the Celiac and found the Crohn's, who knows which one she had first. Both disease have to be triggered so please proceed with caution. > > Best of Luck to you, Leah > Misdiagnosed celiac > > > Hi, > I have been a member of this group for a little less then a year. I > was diagnosed with Celiac by just a blood test and went GF for 6 > months, but towards the end I started getting sick again, so I went > to a new dr. who did an endoscopy/biopsy and said I didn't have > celiac and it must be Irritable Bowel Syndrome. I went to a > different dr. and talked to him because the 2nd dr. wasn't listening > to me that I wanted to see what else it could be if not celiac. So > the 3rd dr. explained to me that the blood tests that were pos. were > not that accurate (IGA and IGG)and the " good " blood tests (endomy?) > were negative plus my vili looked normal... > Okay, long story short, I just had a colonoscopy and my dr. is > thinking it's Crohn's disease because I have a bunch of ulcers in my > colon and part of my small intestine. I am waiting for the bopsy > results to be sure. > I just wanted to say Thank you for everyone's support and messages to > myself and to other members. When I was a celiac- you really helped > me deal with it and get alot of info. Now I am going to learn to > deal with another disease (which by the way- I think I'd rather have > Celiac, but hey, beggars can't be choosers- at least I know what's up > now). > > Thanks again, > > > > > Quote Link to comment Share on other sites More sharing options...
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