Guest guest Posted August 24, 2001 Report Share Posted August 24, 2001 Gail, You need to contact your local public school system and have them explain their special services available. Although our school system has its faults, they are legally bound to take care of children with special needs (mental, physical, or medical). If you're in the US, I dare say your public school system will also. They will test Hannah & gather lots of records. Be prepared, it can be emotionally trying, at least it was for us because 's scores were low for his age. That is hard to hear, but it is the avenue to getting services that will help your child. Kathy in Tennessee Mom to - 6 - Keto kid since 02/00, Med free, seizures 95% reduced Mom to 'lil sis, a - 3 " Even to your old age and gray hairs I am He, I am He who will sustain you. I have made you and I will carry you; I will sustain you and I will rescue you. " Isaiah 46:4 On Sat, 25 Aug 2001 00:22:51 -0000 Toga@... writes: > The truth is that I don't want to homeschool. I thought that was our > only possibility to get her educated. We had her enrolled in a > private Christian school and I know that there is no way they can > provide a full time aide for her. But, I didn't realize that she > could have an aide in the public school system. Hannah has missed so > > much on account of her previous seizures and when she was good for > so > long we thought that we finally had things under control for her. > Today she probably had about 30 very quick atonic seizures which we > were able to protect her from getting hurt. I get afraid of public > situations like school for fear that she will be seriously hurt. > When > she was at her worst we had to feed her and hold her on the toilet, > etc. she had no balance or coordination, just to wobbly and her > muscles would go limp. Would the school be able to properly take > care > of her? I just want her to be with other kids her own age, she has > had to be home with me so much. Thanks for your response Gail > > Would she be able to attend public school if she had a full time > aide in the > > class room? Until improved on the diet, he had a full time > aide in the > > regular class room as well as being pulled out of class for > individual > > teaching. The school was reluctant, even though it was obvious > that he > > needed it, until I casually mentioned that should he have a > seizure > at > > school as a result of a lack of monitoring, I would hold them > responsible. > > The day he started the diet there was suddenly an aide available. > > With > > special needs kids, it is not really just up to the regular > classroom > > teacher to keep an eye on the child. The school is required to > provide a > > safe environment for your child's education. If it is not > possible > for the > > school to provide this, then they are responsible for providing an > > alternative. Through the years I have learned 's rights, and > I > am not > > willing to hear " no " from the school when what I request is > reasonable. > > I would not want to send to a school for special needs > children because > > it is important for him to be socialized with other children. He > is going > > into fourth grade, and the other children in his classroom > obviously know > > that he is different, but they look out for him and they like him. > > He has a > > very loving personality. > > Good luck, but remember that if you home school it may not be as > easy to get > > the help you need from the public sector. Because of the school, > has > > met up with a wonderful occupational therapist. > > --'s mom > > > > More ?'s for Tom C. > > > > > > > Thanks for your reply. Hannah just turned 6 two days ago. > > > We thought the diet had given her a chance at a normal > > > life. For 8.5 mths she was not having any seizures, then > > > one day last week they started again. Today has been pretty > > > bad and I have let it get the best of me. > > > > > > We were all set to send her to school on Monday (we kept her > > > out an extra year) before all > > > this started. Her seizures are very short but she gets hurt > > > with the falls. Even with a helmet on, I think it would be > > > to much for the teacher to keep an eye on her. She can have > > > a 100 of these very quick atonic seizures daily. My husband has > > > resolved that I am going to have to home school her. I guess > > > my question to you is, how is it possible that your daughter > > > can attend school? Are there special schools for disabled > > > children? > > > > > > Hannah is the youngest of 4 children. She appeared to be a > > > healthy, normal child until age 3.5 and she began falling > > > and having head nods and loss of trunkal muscle. She has only > > > been on three AED's but they have not helped in controlling > > > her seizures. So, I am not sure what we will be doing. Her > > > Dr. is gone till Monday! Thanks for your help - Gail > > > > > > > > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just > a > last > > resort! " > > > > > > List is for parent to parent support only. > > > It is important to get medical advice from a > professional > > keto team! > > > Subscribe: ketogenic-subscribe@y... > > > Unsubscribe: ketogenic-unsubscribe@y... > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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