transfusions and immunizations

[Guest guest]

Laurel,

I really think we are onto something here. I said in an earlier post that

there are *so many* kids being diagnosed with autism these days that special

day classes are being developed specifically for them. There MUST by an

answer--and I bet mito problems are right in there. Hmmmmmmmmmm....

Anyone know a good researcher?

ruth

[Guest guest]

Laurel,

I really think we are onto something here. I said in an earlier post that

there are *so many* kids being diagnosed with autism these days that special

day classes are being developed specifically for them. There MUST by an

answer--and I bet mito problems are right in there. Hmmmmmmmmmm....

Anyone know a good researcher?

ruth

[Guest guest]

Ruth,

My older son has Sensory Integration Dysfunction. Here are some great

link for you and anyone interested.

<A

HREF= " http://netfind.aol.com/search.gw?lk=excite_netfind_us & c=web & start=0 & show

Summary=true & qbe=23915786 & ctag=344DDB30 & s= & perPage=10 & next=next " >joint info

2</A> <A

HREF= " http://netfind.aol.com/search.gw?lk=excite_netfind_us & c=web & qbe=23915786

& ctag=344DDB30 & showSummary=true " >joint compression info</A> <A

HREF= " http://netfind.aol.com/search.gw?search=%22joint+compression%22 & lk=excit

e_netfind_us " >AOL NetFind Results</A> <A

HREF= " http://www.mindspring.com/~mariep/si/sensory.integration.html " >Sensory

Integration " Marie</A> <A HREF= " aol://5863:126/mB:109881 " >Sensory

Integration</A> <A HREF= " http://www.infoseek.com/Topic?tid=1207 " >Infoseek:

The Health Channel</A>

[Guest guest]

Ruth,

My older son has Sensory Integration Dysfunction. Here are some great

link for you and anyone interested.

<A

HREF= " http://netfind.aol.com/search.gw?lk=excite_netfind_us & c=web & start=0 & show

Summary=true & qbe=23915786 & ctag=344DDB30 & s= & perPage=10 & next=next " >joint info

2</A> <A

HREF= " http://netfind.aol.com/search.gw?lk=excite_netfind_us & c=web & qbe=23915786

& ctag=344DDB30 & showSummary=true " >joint compression info</A> <A

HREF= " http://netfind.aol.com/search.gw?search=%22joint+compression%22 & lk=excit

e_netfind_us " >AOL NetFind Results</A> <A

HREF= " http://www.mindspring.com/~mariep/si/sensory.integration.html " >Sensory

Integration " Marie</A> <A HREF= " aol://5863:126/mB:109881 " >Sensory

Integration</A> <A HREF= " http://www.infoseek.com/Topic?tid=1207 " >Infoseek:

The Health Channel</A>

[Guest guest]

Ruth-

Kent has helped me no end to understand what he experiences. I guess it all

boils down to the sensory

imput being so strong that it gets in the way of other things. The tactile

defensiveness is interpreted

by him to be pain. Firm pressure is okay, but light touch was painful to him.

Noise can be so

overwhelming to him that he gets the same symptoms as someone having a panic

attack. We did an

experiement many years ago with eye contact. We were in a restaurant and I asked

him to make eye contact

while talking to me and listening. He said that the movement he saw was so

strong that it made him forget

what he wanted to say and prevented him from making sense out of what I was

saying. All of this has

helped me a great deal in my work with students who have autisim.

Kent has found things that help. He carries a book with him and he reads when

noise becomes bothersome.

Focusing on the book helps. He can also cognitively override some of the sensory

input now.

He is a happy productive adult who is a true friend and a joy to be with.

Laurie

> This is so fascinating. What does your son tell you about his sensory

> integration difficulties? I'm curious because my daughter has tactile

> problems as well and I wonder what it must be like to live in her

> brain..................

[Guest guest]

Ruth-

I agree, our kids do fight hard for their successes. Kent also had motor

planning and propreioceptive

problems. He couldn't walk without being able to see his feet until he was about

7 and then not in the

dark (he needed to orient with the walls, etc.) until about 15. His drive is

evident in his job. He is

somewhat of a profectionist when it comes to giving it his all.

Laurie

> Do you also see how a child with severe motor planning problems and/or severe

> sensory integration difficulties can end up with the diagnosis of autism?

Our kiddos

> sure do deserve a tremendous amount of respect!!

>

[Guest guest]

Laurie,

I'm printing this out and sharing with all my mom's of kids with autism.

Also, I think Lexi's therapist should get a copy--the one who forced her to

wear shoes and now three months later she still screams when she sees her

shoes come out of the closet. I can't imagine what a warrior your son must

be!

ruth

[Guest guest]

,

Thanks for the links. I'll head over there tonight!

ruth

[Guest guest]

Ruth-

My son still prefers to wear long sleeved shirts, even in the summer and he

can't tolerate bare feet.

When young, he had a terrible time switching from short sleeves to long sleeves

as the weather got

colder. He has never been comfortable wearing shorts. It is that old tactile

defensiveness again.

Laurie

> I'm printing this out and sharing with all my mom's of kids with autism.

> Also, I think Lexi's therapist should get a copy--the one who forced her to

> wear shoes and now three months later she still screams when she sees her

> shoes come out of the closet. I can't imagine what a warrior your son must

> be!

>

> ruth

[Guest guest]

Hi,

What about this scenerio....My typical daughter needs a physical to enter

6th grade in PA and it is mandatory by the state I am told. Great insurance

does not cover well visits but it's mandatory. Anyway I have refused

Hepatitis , chicken pox , and now I see that another MMR is required by the

year 2000. Why that is I do not know. I've refused for her because my son

has autism, and has regressed with vaccines....I think as i think back

anyway. Pediatrician assistant tells me she won't let out the door

without these vaccines. But I was told years ago by devolopmental

ped/genitiscists and from what I read that my son could get these viruses

if she gets the vaccines and he does not just by living in the same house.

So what do I do??? Refuse for both of them? But he ended up going by

ambulance to ER when one year all Kindergartner's had to have the hepatitis

vbaccine and and they thought he had hepatitis. Well 2 hospitals screwed

up the test and I guess we will never know. But that help lead us to the

theory of mito disorder due to his high lactate acid levels.

So is it better to refuse for just him or both him and his sister. But what

about them going to school when everyone is getting the MMR vaccine and

they do not. HIs booster DPt 4 years ago at age 5 had him regressed in

speech and sensory issues that I had felt like I just worked so hard to

fix. I really do now think after being on this list that it's the mito

and his reaction to whatever is mixed into the vaccine. The Dr. once said

he would be better getting the chicken pox. But they are 9 and 11 now and I

am getting pressure from the stupid pediatrician. Maybe they have good

immunity because my husband and I had really strong cases of that when we

were kids. Kathy F.

----------

> From: Hilandgang@...

> To: Mitoonelist

> Subject: Re: transfusions and immunizations

> Date: Tuesday, August 17, 1999 10:06 AM

>

> From: Hilandgang@...

>

> Anne,

> Your post just blew my mind! I have never heard of such a thing when the

> symptoms just began to dissipate over the years, but it does make perfect

> sense that it was his body's response to the MMR and DPT shots that gave

him

> the symptoms of autism. This is so interesting--I had never thought of a

> mito disorder as being the root cause of Garrett's problems but it sure

would

> explain alot. I have also noticed two other interesting things about

autism:

> first, the term is used very broadly, describing a host a symptoms and

many

> different levels of severity. Many of the cases where the child was

labeled

> as being autistic turn out to not have autism at all, but their severe

> sensory integration and motor planning and visual/auditory processing

> problems sure make it seem that way. Second observation is that the

number

> of cases of children with this diagnosis has just become astronomical

over

> the past decade or so. We are now seeing entire programs being set up

just

> to meet the needs of these children. Hmmmm.......makes me wonder *why*?

> What is the link? Could there be many more kids with mito problems

> exhibiting symptoms of autism??? Just food for thought.

>

> ruth

>

> ---------------------------

[Guest guest]

Hi,

What about this scenerio....My typical daughter needs a physical to enter

6th grade in PA and it is mandatory by the state I am told. Great insurance

does not cover well visits but it's mandatory. Anyway I have refused

Hepatitis , chicken pox , and now I see that another MMR is required by the

year 2000. Why that is I do not know. I've refused for her because my son

has autism, and has regressed with vaccines....I think as i think back

anyway. Pediatrician assistant tells me she won't let out the door

without these vaccines. But I was told years ago by devolopmental

ped/genitiscists and from what I read that my son could get these viruses

if she gets the vaccines and he does not just by living in the same house.

So what do I do??? Refuse for both of them? But he ended up going by

ambulance to ER when one year all Kindergartner's had to have the hepatitis

vbaccine and and they thought he had hepatitis. Well 2 hospitals screwed

up the test and I guess we will never know. But that help lead us to the

theory of mito disorder due to his high lactate acid levels.

So is it better to refuse for just him or both him and his sister. But what

about them going to school when everyone is getting the MMR vaccine and

they do not. HIs booster DPt 4 years ago at age 5 had him regressed in

speech and sensory issues that I had felt like I just worked so hard to

fix. I really do now think after being on this list that it's the mito

and his reaction to whatever is mixed into the vaccine. The Dr. once said

he would be better getting the chicken pox. But they are 9 and 11 now and I

am getting pressure from the stupid pediatrician. Maybe they have good

immunity because my husband and I had really strong cases of that when we

were kids. Kathy F.

----------

> From: Hilandgang@...

> To: Mitoonelist

> Subject: Re: transfusions and immunizations

> Date: Tuesday, August 17, 1999 10:06 AM

>

> From: Hilandgang@...

>

> Anne,

> Your post just blew my mind! I have never heard of such a thing when the

> symptoms just began to dissipate over the years, but it does make perfect

> sense that it was his body's response to the MMR and DPT shots that gave

him

> the symptoms of autism. This is so interesting--I had never thought of a

> mito disorder as being the root cause of Garrett's problems but it sure

would

> explain alot. I have also noticed two other interesting things about

autism:

> first, the term is used very broadly, describing a host a symptoms and

many

> different levels of severity. Many of the cases where the child was

labeled

> as being autistic turn out to not have autism at all, but their severe

> sensory integration and motor planning and visual/auditory processing

> problems sure make it seem that way. Second observation is that the

number

> of cases of children with this diagnosis has just become astronomical

over

> the past decade or so. We are now seeing entire programs being set up

just

> to meet the needs of these children. Hmmmm.......makes me wonder *why*?

> What is the link? Could there be many more kids with mito problems

> exhibiting symptoms of autism??? Just food for thought.

>

> ruth

>

> ---------------------------

[Guest guest]

Kathy,

here's a little known but true fact. Your kids do not need to have their

shots to go into public school. On the back of that handy dandy little card

they give you to fill out showing his immunization record, is a place for you

to sign if you are choosing not to vaccinate your child. The reasons they

list are for religious or personal beliefs, and then they do say that if

there is an outbreak of the disease (say measles) that they can require you

to keep you kids at home until the danger has past. I have done this with my

son for two years, and it works for us. My daughter's ped also refused to

give her the shots because of her weak immune system. You might want to look

into this. Just a thought.

ruth

[Guest guest]

Ruth-

I believe that this depends on the state in which you live. There are some

slight variations from state

to state. I know that in our state it is not this simple.

Laurie

> here's a little known but true fact. Your kids do not need to have their

> shots to go into public school. On the back of that handy dandy little card

> they give you to fill out showing his immunization record, is a place for you

> to sign if you are choosing not to vaccinate your child. The reasons they

> list are for religious or personal beliefs, and then they do say that if

> there is an outbreak of the disease (say measles) that they can require you

> to keep you kids at home until the danger has past. I have done this with my

> son for two years, and it works for us. My daughter's ped also refused to

> give her the shots because of her weak immune system. You might want to look

> into this. Just a thought.

[Guest guest]

Ruth-

I believe that this depends on the state in which you live. There are some

slight variations from state

to state. I know that in our state it is not this simple.

Laurie

> here's a little known but true fact. Your kids do not need to have their

> shots to go into public school. On the back of that handy dandy little card

> they give you to fill out showing his immunization record, is a place for you

> to sign if you are choosing not to vaccinate your child. The reasons they

> list are for religious or personal beliefs, and then they do say that if

> there is an outbreak of the disease (say measles) that they can require you

> to keep you kids at home until the danger has past. I have done this with my

> son for two years, and it works for us. My daughter's ped also refused to

> give her the shots because of her weak immune system. You might want to look

> into this. Just a thought.

[Guest guest]

Kathy:

I am not sure if this is possible, but could they draw blood and test their

antibodies for various childhood diseases, they after you get their results,

decide if they need the shot and perhaps some MD out there would have a

recommendation as to what level to give them. Sorry, if I can not

articulate this concept with the correct biological terminology...I took

Business and Marketing in school and biology & chemistry confuse me.

Amy (mom to the younger (20mos), possible mito, global developmental

delay, microcepaly, GI reflux and GI delay in emptying, CVI, and the best

smile and giggle)

Re: transfusions and immunizations

>> Date: Tuesday, August 17, 1999 10:06 AM

>>

>> From: Hilandgang@...

>>

>> Anne,

>> Your post just blew my mind! I have never heard of such a thing when the

>

>> symptoms just began to dissipate over the years, but it does make perfect

>

>> sense that it was his body's response to the MMR and DPT shots that gave

>him

>> the symptoms of autism. This is so interesting--I had never thought of a

>

>> mito disorder as being the root cause of Garrett's problems but it sure

>would

>> explain alot. I have also noticed two other interesting things about

>autism:

>> first, the term is used very broadly, describing a host a symptoms and

>many

>> different levels of severity. Many of the cases where the child was

>labeled

>> as being autistic turn out to not have autism at all, but their severe

>> sensory integration and motor planning and visual/auditory processing

>> problems sure make it seem that way. Second observation is that the

>number

>> of cases of children with this diagnosis has just become astronomical

>over

>> the past decade or so. We are now seeing entire programs being set up

>just

>> to meet the needs of these children. Hmmmm.......makes me wonder *why*?

>

>> What is the link? Could there be many more kids with mito problems

>> exhibiting symptoms of autism??? Just food for thought.

>>

>> ruth

>>

>> ---------------------------

[Guest guest]

Kathy:

I am not sure if this is possible, but could they draw blood and test their

antibodies for various childhood diseases, they after you get their results,

decide if they need the shot and perhaps some MD out there would have a

recommendation as to what level to give them. Sorry, if I can not

articulate this concept with the correct biological terminology...I took

Business and Marketing in school and biology & chemistry confuse me.

Amy (mom to the younger (20mos), possible mito, global developmental

delay, microcepaly, GI reflux and GI delay in emptying, CVI, and the best

smile and giggle)

Re: transfusions and immunizations

>> Date: Tuesday, August 17, 1999 10:06 AM

>>

>> From: Hilandgang@...

>>

>> Anne,

>> Your post just blew my mind! I have never heard of such a thing when the

>

>> symptoms just began to dissipate over the years, but it does make perfect

>

>> sense that it was his body's response to the MMR and DPT shots that gave

>him

>> the symptoms of autism. This is so interesting--I had never thought of a

>

>> mito disorder as being the root cause of Garrett's problems but it sure

>would

>> explain alot. I have also noticed two other interesting things about

>autism:

>> first, the term is used very broadly, describing a host a symptoms and

>many

>> different levels of severity. Many of the cases where the child was

>labeled

>> as being autistic turn out to not have autism at all, but their severe

>> sensory integration and motor planning and visual/auditory processing

>> problems sure make it seem that way. Second observation is that the

>number

>> of cases of children with this diagnosis has just become astronomical

>over

>> the past decade or so. We are now seeing entire programs being set up

>just

>> to meet the needs of these children. Hmmmm.......makes me wonder *why*?

>

>> What is the link? Could there be many more kids with mito problems

>> exhibiting symptoms of autism??? Just food for thought.

>>

>> ruth

>>

>> ---------------------------