transfusions and immunizations

[Guest guest]

,

With my 4 children and 13 grandchildren residing in AZ, CA, WA, and OR

mainly they have always tried giving 3 doses of oral polio. I had to go to

different locations or specifically preorder the shot vaccine for polio

shots and go thru a lot of argueing to get it done that way versus the oral.

Just my own personal experiences and where we have resided.

You have a good point in that after the first shot or oral dose they would

have some immunity built up and their chances of contracting polio from the

oral vaccine would probably be less. At least that sounds like logical

thinking to me.

The risk being very low to start with is not a comforting one to me. Like I

tell the medical people administering the vaccines if my child happens to be

that 1-even if the risk was 1 in a million I would be devastated and also I

would be responsible having known there was any risk at all and then putting

my child at risk just because it took extra time, money, or effort to save

them from any risk at all having been informed ahead of time. When I read

how the father of the little boy in Exceptional Parent magazine felt when it

happened to his son I knew I did not want to take any risk at all with any

children. He felt responsible enough to take the time and effort to try and

inform and persuade all adults to be responsible to not put any children at

risk for this horrible thing that happened to them. And he felt angry that

he had not been informed or at least understood that there was this risk. I

admire and respect his efforts.

And I have enough problems to deal with every day, I myself will not

willingly take on any more if I can in anyway prevent them.

And if I myself do not share this infor. then I feel I would be

irresponsible also. Once I share tho anyone can do what they like or feel is

best for them.

S.

Re: transfusions and immunizations

>,

>

>It has been my understanding that the live polio vaccine

>(given orally) is only given once. After that the killed

>virus is given via a shot. On the positive side, I believe

>if they didn't have negative reactions the first time they

>should have some immunity now and the risk is lower. And

>the risk of getting polio from the live vaccine is very low

>to start with.

>

> , Mom to Adelaine

>

>--

>The 's

>Ann Arbor, MI

>j-cooper@...

>http://www.mich.com/~jaj

>

>

[Guest guest]

Thank you ruth for your information. I will be printing this to share with

others, esp. my family. WOW! S.

Re: transfusions and immunizations

>From: Hilandgang@...

>

>Dear ,

>I just read your post and wanted to share my experience as well. Being a

>speech pathologist, I have worked with MANY children who have developed

>autism, brain damage, and physical delays as a result of vaccine injury. I

>could fill your ear (or your screen, as it were) for many hours with tales,

>but I'll cut to the chase. As a result of knowing how vaccines are

cultured

>(steeped in monkey pus and urine, no kidding), I knew before my son was

born

>that there was no way that I would be giving him shots of any kind until he

>was considerably older. I read a really convincing research study out of

>Japan that showed that when they raised the age of when they start giving

>shots to age 2 (as opposed to our 2 months, or even in the hospital now

with

>the Hepatitis , their infant mortaility rate decreased significantly!

>

>Anyway, having that conviction and finding a pediatrician who would support

>me were two different things. But I finally prevailed and I feel that I

>absolutely made the right decision for our family. Mitch has an immune

>system made of steel (was breast fed until 2+) and only started getting his

>shots at age three. When I did start with him, I called Dr Osburn ahead of

>time to make sure they used the DaPT and killed polio. He made

arrangements

>to have both, and that's what Mitch has ahd. As a matter of fact, Dr

Osburn

>has now insisted that we wait with Lexi as long as we can given her

>mitochondrial disorder.

>

>Anyway, that's our little saga. I personally think you are on the right

path

>with this!!

>

>ruth

>

>---------------------------

[Guest guest]

Thank you ruth for your information. I will be printing this to share with

others, esp. my family. WOW! S.

Re: transfusions and immunizations

>From: Hilandgang@...

>

>Dear ,

>I just read your post and wanted to share my experience as well. Being a

>speech pathologist, I have worked with MANY children who have developed

>autism, brain damage, and physical delays as a result of vaccine injury. I

>could fill your ear (or your screen, as it were) for many hours with tales,

>but I'll cut to the chase. As a result of knowing how vaccines are

cultured

>(steeped in monkey pus and urine, no kidding), I knew before my son was

born

>that there was no way that I would be giving him shots of any kind until he

>was considerably older. I read a really convincing research study out of

>Japan that showed that when they raised the age of when they start giving

>shots to age 2 (as opposed to our 2 months, or even in the hospital now

with

>the Hepatitis , their infant mortaility rate decreased significantly!

>

>Anyway, having that conviction and finding a pediatrician who would support

>me were two different things. But I finally prevailed and I feel that I

>absolutely made the right decision for our family. Mitch has an immune

>system made of steel (was breast fed until 2+) and only started getting his

>shots at age three. When I did start with him, I called Dr Osburn ahead of

>time to make sure they used the DaPT and killed polio. He made

arrangements

>to have both, and that's what Mitch has ahd. As a matter of fact, Dr

Osburn

>has now insisted that we wait with Lexi as long as we can given her

>mitochondrial disorder.

>

>Anyway, that's our little saga. I personally think you are on the right

path

>with this!!

>

>ruth

>

>---------------------------

[Guest guest]

Thank you ruth for your information. I will be printing this to share with

others, esp. my family. WOW! S.

Re: transfusions and immunizations

>From: Hilandgang@...

>

>Dear ,

>I just read your post and wanted to share my experience as well. Being a

>speech pathologist, I have worked with MANY children who have developed

>autism, brain damage, and physical delays as a result of vaccine injury. I

>could fill your ear (or your screen, as it were) for many hours with tales,

>but I'll cut to the chase. As a result of knowing how vaccines are

cultured

>(steeped in monkey pus and urine, no kidding), I knew before my son was

born

>that there was no way that I would be giving him shots of any kind until he

>was considerably older. I read a really convincing research study out of

>Japan that showed that when they raised the age of when they start giving

>shots to age 2 (as opposed to our 2 months, or even in the hospital now

with

>the Hepatitis , their infant mortaility rate decreased significantly!

>

>Anyway, having that conviction and finding a pediatrician who would support

>me were two different things. But I finally prevailed and I feel that I

>absolutely made the right decision for our family. Mitch has an immune

>system made of steel (was breast fed until 2+) and only started getting his

>shots at age three. When I did start with him, I called Dr Osburn ahead of

>time to make sure they used the DaPT and killed polio. He made

arrangements

>to have both, and that's what Mitch has ahd. As a matter of fact, Dr

Osburn

>has now insisted that we wait with Lexi as long as we can given her

>mitochondrial disorder.

>

>Anyway, that's our little saga. I personally think you are on the right

path

>with this!!

>

>ruth

>

>---------------------------

[Guest guest]

ruth, I agree and I still like the basic notebk idea but everyone is so tied

up with survival in our families it takes all our energy-at least in my case

for sure, but this with our group talking to the MDA is good as like the

other day when I asked UMDF if irritable bowel syndrome was related to mito

and they said not that they know of and yet several on this list were saying

it seemed that way to them-maybe it is a matter of semantics. But that kind

of infor. needs to be gathered and catagorized and disseminated by those

foundations. I feel guilty always looking like I'm suggesting or agreeing

with ideas yet I myself can't do much to help DO them.

It's like trying to get the open coupon and deal with the

metabolic/abuse/child care issues, fighting for our own understanding and

treatments and hunting for regular and alternative help for all of us is in

itself so overwhelming.

And then many don't understand that while we are trying to help our kids we

ourselves are also metabolically challenged which many times means

intellectually and emotionally also.

Wouldn't it be great if some guru sat where all our emails went thru and did

nothing but pick them clean of all the infor and did categorize and publish

it? S.

Re: transfusions and immunizations

>

>

>>From: Hilandgang@...

>>

>>I wonder what it would take to get all of us parents with these little

>>nuggets of info to present a panel at the UMDF conference. I seriously

>have

>>learned more on this list in a month than I did from my daughters 13

>>*specialists* in 16 months. Just a thought...............

>>

>>ruth

>>

>>---------------------------

[Guest guest]

ruth, I agree and I still like the basic notebk idea but everyone is so tied

up with survival in our families it takes all our energy-at least in my case

for sure, but this with our group talking to the MDA is good as like the

other day when I asked UMDF if irritable bowel syndrome was related to mito

and they said not that they know of and yet several on this list were saying

it seemed that way to them-maybe it is a matter of semantics. But that kind

of infor. needs to be gathered and catagorized and disseminated by those

foundations. I feel guilty always looking like I'm suggesting or agreeing

with ideas yet I myself can't do much to help DO them.

It's like trying to get the open coupon and deal with the

metabolic/abuse/child care issues, fighting for our own understanding and

treatments and hunting for regular and alternative help for all of us is in

itself so overwhelming.

And then many don't understand that while we are trying to help our kids we

ourselves are also metabolically challenged which many times means

intellectually and emotionally also.

Wouldn't it be great if some guru sat where all our emails went thru and did

nothing but pick them clean of all the infor and did categorize and publish

it? S.

Re: transfusions and immunizations

>

>

>>From: Hilandgang@...

>>

>>I wonder what it would take to get all of us parents with these little

>>nuggets of info to present a panel at the UMDF conference. I seriously

>have

>>learned more on this list in a month than I did from my daughters 13

>>*specialists* in 16 months. Just a thought...............

>>

>>ruth

>>

>>---------------------------

[Guest guest]

ruth,

My husband and I were discussing this whole issue of why so many more " sick "

people period but esp the # of kids needing special help, more ADHD, more

autism, more LD, and we feel like it is that there are just more people

existing-meaning more existing also that have the mito disorders (whatever

they are being labeled) and marrying other mito people producing ALL mito

kids etc. Even when you think only one of your kids has mito, it is usually

that that kid is the most severely affected or whatever the other kid(s) get

labeled it isn't recognized as being a mito disorder.

Also, look at the variety of mito disorders and other genetic defects so

that many families have more than one thing going on. And one defect can

exacerbate the other(s).

Remember, many of these genetic defects are dominantly inherited so they can

spread like wildfire unlike the recessive disorders. S.

Re: transfusions and immunizations

>From: Hilandgang@...

>

>Anne,

>Your post just blew my mind! I have never heard of such a thing when the

>symptoms just began to dissipate over the years, but it does make perfect

>sense that it was his body's response to the MMR and DPT shots that gave

him

>the symptoms of autism. This is so interesting--I had never thought of a

>mito disorder as being the root cause of Garrett's problems but it sure

would

>explain alot. I have also noticed two other interesting things about

autism:

> first, the term is used very broadly, describing a host a symptoms and

many

>different levels of severity. Many of the cases where the child was

labeled

>as being autistic turn out to not have autism at all, but their severe

>sensory integration and motor planning and visual/auditory processing

>problems sure make it seem that way. Second observation is that the number

>of cases of children with this diagnosis has just become astronomical over

>the past decade or so. We are now seeing entire programs being set up just

>to meet the needs of these children. Hmmmm.......makes me wonder *why*?

>What is the link? Could there be many more kids with mito problems

>exhibiting symptoms of autism??? Just food for thought.

>

>ruth

>

>---------------------------

[Guest guest]

All of these behaviors (and more) are displayed by the children in my family

(siblings, children, and grandchildren).

Why don't they make eye contact? I find that one hard to deal with. I want

them to look at me to know they are listening, but they act like it hurts?

S.

Re: transfusions and immunizations

>

>

>Alice-

>

>Kent was very sensory sensitive, to the point he didn't want to be held.

That isn't something that mom's

>like to deal with, at least not this mom. Once he was a toddler, he

preferred to sit under furniture and

>watch what was going on. In pre-school, they said he was anitsocial,

because he wouldn't sit with the

>group. He didn't make eye contact and didn't like to be touched. He was

compulsive about many things - he

>needed all his shoes lined up just right or had to have all his cars lined

up. He was fastinated by

>rolling objects and would roll marbles for very long periods of time. He

also had a very hard time with

>transitions. From hearing so many kids with mito who are diagnosed with

autisim or autistic like

>symptoms, I really think it was due to the mito.

>

>Laurie

>

>> My son was labled MR with autistic like behaviors. This determination

was

>> changed when he became an adult and a Neuro from Boston determined that

he

>> was not Autisic and that the previous neuros were in error. Hmmmmm.

This

>> thread really makes me wonder.

>

>

>

>

>---------------------------

[Guest guest]

Laurie, thank you for sharing all this and helping me understand better. It

always hurt my feelings that wouldn't want me to touch her or talk to

her or look at me (even now) at 27.

Also, when I picked up Jordan (her 5 yr old son) the other day he said to

me, it hurts when you pick me up, yet I had done this gently under his arms

to put him in the cart.

Now I also understand the can't look at me thing more too.

I see Shenan reading to block things.

Tylynn runs to his room and turns on the TV. In fact, yest. we talked about

how he always wants something happening and if it's not-he makes it. Like

slapping something (counter or car door) or making some repetitive noise,

etc. He says he will count trees as we drive by or make some pattern with

his arm movement or anything to keep something going.

I think with some of us we keep things going and keep moving to keep

concious tho-I do this (if I stop I go out). and others do this to block out

too much coming in like Kody making equal loud noises to some disturbing

noise going in to block it.

Thank you. S.

Re: transfusions and immunizations

>

>

>Ruth-

>

>Kent has helped me no end to understand what he experiences. I guess it all

boils down to the sensory

>imput being so strong that it gets in the way of other things. The tactile

defensiveness is interpreted

>by him to be pain. Firm pressure is okay, but light touch was painful to

him. Noise can be so

>overwhelming to him that he gets the same symptoms as someone having a

panic attack. We did an

>experiement many years ago with eye contact. We were in a restaurant and I

asked him to make eye contact

>while talking to me and listening. He said that the movement he saw was so

strong that it made him forget

>what he wanted to say and prevented him from making sense out of what I was

saying. All of this has

>helped me a great deal in my work with students who have autisim.

>

>Kent has found things that help. He carries a book with him and he reads

when noise becomes bothersome.

>Focusing on the book helps. He can also cognitively override some of the

sensory input now.

>

>He is a happy productive adult who is a true friend and a joy to be with.

>

>Laurie

>

>> This is so fascinating. What does your son tell you about his sensory

>> integration difficulties? I'm curious because my daughter has tactile

>> problems as well and I wonder what it must be like to live in her

>> brain..................

>

>

>

>

>---------------------------

[Guest guest]

Personal opinion-don't get them either one vaccinated. I thought the only

danger in vaccines for anyone else is when the person gets the live polio by

mouth. Then there is live polio virus in your home for an unvaccinated

person to get.

You can sign an exemption from the shots at the school and if there is an

outbreak of something contagious your children have to stay home until it

dies down. S.

Re: transfusions and immunizations

>> Date: Tuesday, August 17, 1999 10:06 AM

>>

>> From: Hilandgang@...

>>

>> Anne,

>> Your post just blew my mind! I have never heard of such a thing when the

>

>> symptoms just began to dissipate over the years, but it does make perfect

>

>> sense that it was his body's response to the MMR and DPT shots that gave

>him

>> the symptoms of autism. This is so interesting--I had never thought of a

>

>> mito disorder as being the root cause of Garrett's problems but it sure

>would

>> explain alot. I have also noticed two other interesting things about

>autism:

>> first, the term is used very broadly, describing a host a symptoms and

>many

>> different levels of severity. Many of the cases where the child was

>labeled

>> as being autistic turn out to not have autism at all, but their severe

>> sensory integration and motor planning and visual/auditory processing

>> problems sure make it seem that way. Second observation is that the

>number

>> of cases of children with this diagnosis has just become astronomical

>over

>> the past decade or so. We are now seeing entire programs being set up

>just

>> to meet the needs of these children. Hmmmm.......makes me wonder *why*?

>

>> What is the link? Could there be many more kids with mito problems

>> exhibiting symptoms of autism??? Just food for thought.

>>

>> ruth

>>

>> ---------------------------

[Guest guest]

Personal opinion-don't get them either one vaccinated. I thought the only

danger in vaccines for anyone else is when the person gets the live polio by

mouth. Then there is live polio virus in your home for an unvaccinated

person to get.

You can sign an exemption from the shots at the school and if there is an

outbreak of something contagious your children have to stay home until it

dies down. S.

Re: transfusions and immunizations

>> Date: Tuesday, August 17, 1999 10:06 AM

>>

>> From: Hilandgang@...

>>

>> Anne,

>> Your post just blew my mind! I have never heard of such a thing when the

>

>> symptoms just began to dissipate over the years, but it does make perfect

>

>> sense that it was his body's response to the MMR and DPT shots that gave

>him

>> the symptoms of autism. This is so interesting--I had never thought of a

>

>> mito disorder as being the root cause of Garrett's problems but it sure

>would

>> explain alot. I have also noticed two other interesting things about

>autism:

>> first, the term is used very broadly, describing a host a symptoms and

>many

>> different levels of severity. Many of the cases where the child was

>labeled

>> as being autistic turn out to not have autism at all, but their severe

>> sensory integration and motor planning and visual/auditory processing

>> problems sure make it seem that way. Second observation is that the

>number

>> of cases of children with this diagnosis has just become astronomical

>over

>> the past decade or so. We are now seeing entire programs being set up

>just

>> to meet the needs of these children. Hmmmm.......makes me wonder *why*?

>

>> What is the link? Could there be many more kids with mito problems

>> exhibiting symptoms of autism??? Just food for thought.

>>

>> ruth

>>

>> ---------------------------

[Guest guest]

Yes, Kathy and Amy, they can draw blood and test for anitbodies. Tylynn

refused the rest of his Hep shots and they said we could do this. S.

Re: transfusions and immunizations

>>> Date: Tuesday, August 17, 1999 10:06 AM

>>>

>>> From: Hilandgang@...

>>>

>>> Anne,

>>> Your post just blew my mind! I have never heard of such a thing when

the

>>

>>> symptoms just began to dissipate over the years, but it does make

perfect

>>

>>> sense that it was his body's response to the MMR and DPT shots that gave

>>him

>>> the symptoms of autism. This is so interesting--I had never thought of

a

>>

>>> mito disorder as being the root cause of Garrett's problems but it sure

>>would

>>> explain alot. I have also noticed two other interesting things about

>>autism:

>>> first, the term is used very broadly, describing a host a symptoms and

>>many

>>> different levels of severity. Many of the cases where the child was

>>labeled

>>> as being autistic turn out to not have autism at all, but their severe

>>> sensory integration and motor planning and visual/auditory processing

>>> problems sure make it seem that way. Second observation is that the

>>number

>>> of cases of children with this diagnosis has just become astronomical

>>over

>>> the past decade or so. We are now seeing entire programs being set up

>>just

>>> to meet the needs of these children. Hmmmm.......makes me wonder *why*?

>>

>>> What is the link? Could there be many more kids with mito problems

>>> exhibiting symptoms of autism??? Just food for thought.

>>>

>>> ruth

>>>

>>> ---------------------------

[Guest guest]

Yes, Kathy and Amy, they can draw blood and test for anitbodies. Tylynn

refused the rest of his Hep shots and they said we could do this. S.

Re: transfusions and immunizations

>>> Date: Tuesday, August 17, 1999 10:06 AM

>>>

>>> From: Hilandgang@...

>>>

>>> Anne,

>>> Your post just blew my mind! I have never heard of such a thing when

the

>>

>>> symptoms just began to dissipate over the years, but it does make

perfect

>>

>>> sense that it was his body's response to the MMR and DPT shots that gave

>>him

>>> the symptoms of autism. This is so interesting--I had never thought of

a

>>

>>> mito disorder as being the root cause of Garrett's problems but it sure

>>would

>>> explain alot. I have also noticed two other interesting things about

>>autism:

>>> first, the term is used very broadly, describing a host a symptoms and

>>many

>>> different levels of severity. Many of the cases where the child was

>>labeled

>>> as being autistic turn out to not have autism at all, but their severe

>>> sensory integration and motor planning and visual/auditory processing

>>> problems sure make it seem that way. Second observation is that the

>>number

>>> of cases of children with this diagnosis has just become astronomical

>>over

>>> the past decade or so. We are now seeing entire programs being set up

>>just

>>> to meet the needs of these children. Hmmmm.......makes me wonder *why*?

>>

>>> What is the link? Could there be many more kids with mito problems

>>> exhibiting symptoms of autism??? Just food for thought.

>>>

>>> ruth

>>>

>>> ---------------------------

[Guest guest]

Does anyone know the reason why a child can not receive a live immunization

within 6 months of receiving a blood transfusion? Also, does this go for

all blood products such as GAMMA?

Anne, mom to:

Brittany, 12, Zachary, 7, , Abby, 6 and , 26 months

***Mitochondrial encephalomyopathy, (complex 1 and 4 OxPhos defect)***

[Guest guest]

,

When we lived in Florida, there was a little girl at Laney's

therapy office who had polio from the live vaccine. What we

did with Laney was had the dead vaccine until the last

dose. Then she had the live one. This way she already had

built up resistence, so she ended up with the best of both

worlds. I believe this is now standard protocol at peds

offices.

, Mom to Adelaine

--

The 's

Ann Arbor, MI

j-cooper@...

http://www.mich.com/~jaj

[Guest guest]

,

When we lived in Florida, there was a little girl at Laney's

therapy office who had polio from the live vaccine. What we

did with Laney was had the dead vaccine until the last

dose. Then she had the live one. This way she already had

built up resistence, so she ended up with the best of both

worlds. I believe this is now standard protocol at peds

offices.

, Mom to Adelaine

--

The 's

Ann Arbor, MI

j-cooper@...

http://www.mich.com/~jaj

[Guest guest]

,

When we lived in Florida, there was a little girl at Laney's

therapy office who had polio from the live vaccine. What we

did with Laney was had the dead vaccine until the last

dose. Then she had the live one. This way she already had

built up resistence, so she ended up with the best of both

worlds. I believe this is now standard protocol at peds

offices.

, Mom to Adelaine

--

The 's

Ann Arbor, MI

j-cooper@...

http://www.mich.com/~jaj

[Guest guest]

Boy, this gets so confusing to us. They try telling my daughters that since

the kids already had 1 or 2 of the live polio vaccines they may as well go

ahead with the 3rd one live too and I say " Hey, just cause they were lucky

the first times don't think we are taking a chance on OUR kids-) Maybe I'm

all wrong.

Re: transfusions and immunizations

>,

>

>When we lived in Florida, there was a little girl at Laney's

>therapy office who had polio from the live vaccine. What we

>did with Laney was had the dead vaccine until the last

>dose. Then she had the live one. This way she already had

>built up resistence, so she ended up with the best of both

>worlds. I believe this is now standard protocol at peds

>offices.

>

> , Mom to Adelaine

>

>--

>The 's

>Ann Arbor, MI

>j-cooper@...

>http://www.mich.com/~jaj

>

>

[Guest guest]

,

It has been my understanding that the live polio vaccine

(given orally) is only given once. After that the killed

virus is given via a shot. On the positive side, I believe

if they didn't have negative reactions the first time they

should have some immunity now and the risk is lower. And

the risk of getting polio from the live vaccine is very low

to start with.

, Mom to Adelaine

--

The 's

Ann Arbor, MI

j-cooper@...

http://www.mich.com/~jaj

[Guest guest]

Dear ,

I just read your post and wanted to share my experience as well. Being a

speech pathologist, I have worked with MANY children who have developed

autism, brain damage, and physical delays as a result of vaccine injury. I

could fill your ear (or your screen, as it were) for many hours with tales,

but I'll cut to the chase. As a result of knowing how vaccines are cultured

(steeped in monkey pus and urine, no kidding), I knew before my son was born

that there was no way that I would be giving him shots of any kind until he

was considerably older. I read a really convincing research study out of

Japan that showed that when they raised the age of when they start giving

shots to age 2 (as opposed to our 2 months, or even in the hospital now with

the Hepatitis , their infant mortaility rate decreased significantly!

Anyway, having that conviction and finding a pediatrician who would support

me were two different things. But I finally prevailed and I feel that I

absolutely made the right decision for our family. Mitch has an immune

system made of steel (was breast fed until 2+) and only started getting his

shots at age three. When I did start with him, I called Dr Osburn ahead of

time to make sure they used the DaPT and killed polio. He made arrangements

to have both, and that's what Mitch has ahd. As a matter of fact, Dr Osburn

has now insisted that we wait with Lexi as long as we can given her

mitochondrial disorder.

Anyway, that's our little saga. I personally think you are on the right path

with this!!

ruth

[Guest guest]

Ruth,

Good for you on the vaccines! Laney was selectively

vaccinated from an early age and even though I did stand

firm on some issues and she was fine with all she did have I

still have mixed feelings about them. The research is so

very contradictory! Was it speculation that the vaccines

caused the problems in the kids you worked with, or was it

confirmed. I would be most interested...

I also think it is great you nursed Mitch so long! Were you

able to nurse Lexi at all?

Take care, hope the diapers have let up!!

, Mom to Adelaine

--

The 's

Ann Arbor, MI

j-cooper@...

http://www.mich.com/~jaj

[Guest guest]

When I was working with children with autism, we happened to have one very

persistent mom (now a wonderfully dear friend of mine) who just couldn't

accept what the medical world was saying that autism " just happened " for no

reason. So she set out to find out what had appened to her previously

normally developing boy. What she discovered via an extremely talented and

courageous immunologist (I say courageous because he DID speak out to his

colleagues about this when no-one else would) is that as a child she had had

rubella and then developed an extremely high resistance to it (like 100,000 X

the amount of titers needed to ward off the disease). So, when she had her

boy she passed that extremely high natural resistance on to him unbeknownst

to anyone. Then when it was time for his MMR shot, like a good mommy she

took him in and within 3 weeks he had stopped walking, talking, and eating

and within two weeks after that was diagnosed as being profoundly autistic.

What Dr Gupta discovered was that when he got the MMR shot, because he had

this natural immunity to rubella, the MMR vaccine destroyed the naturally

healthy flora that line his intestines, caused an encephalitic reaction in

his brain that manifested itself as--tadah-- austism. Whew! So, it was

definately vaccine injury.

Anyway, her boy has undergone alot of treatment not considered conventional

(sound desensitization, intraveneous gamma0globulin infusions, and LOTS of

alternative treatments) and now you would never know that he had once been

diagnosed as having austim. He was the ring bearer in my wedding and now is

going into the fifth grade in a regular calssroom. He can tell us alot, but

he can't remember the specifics of what happened because he was too young.

After that first case, we all started thinking, " hmmmmmmmmmm, if this

happened to one child, how many more are out there? " and that's how the

research project got started. Just here in our l community (suburb in Orange

County, probably 100,000 people) we found FIVE other families who had the

same result. The studies are still ongoing and have now gone nation wide.

Just food for thought, huh?

ruth

[Guest guest]

This is really interesting Ruth, and also explains some of the concerns

about children who've recieved IVIG, or blood transusions getting MMR

vaccine. Most blood comes from adults, and most adults have titers, so

our kids have the same titers.

About a year ago, our ped checked Caitlin's chicken pox titers, since

she'd been exposed to chicken pox and she is immune suppressed. (he was

worried) But she also gets IVIG every month, and it is a type of blood

product. Her titers came back extremely high.....

Really makes you think that perhaps they should be checking titers more

often.

Jeannine

Hilandgang@... wrote:

> When I was working with children with autism, we happened to have one very

> persistent mom (now a wonderfully dear friend of mine) who just couldn't

> accept what the medical world was saying that autism " just happened " for no

> reason.

[Guest guest]

This is really interesting Ruth, and also explains some of the concerns

about children who've recieved IVIG, or blood transusions getting MMR

vaccine. Most blood comes from adults, and most adults have titers, so

our kids have the same titers.

About a year ago, our ped checked Caitlin's chicken pox titers, since

she'd been exposed to chicken pox and she is immune suppressed. (he was

worried) But she also gets IVIG every month, and it is a type of blood

product. Her titers came back extremely high.....

Really makes you think that perhaps they should be checking titers more

often.

Jeannine

Hilandgang@... wrote:

> When I was working with children with autism, we happened to have one very

> persistent mom (now a wonderfully dear friend of mine) who just couldn't

> accept what the medical world was saying that autism " just happened " for no

> reason.

[Guest guest]

Dear Jeannine,

I agree completely that we need to be checking our kids titer levels before

we doe ANYTHING that might affect their immune system function. I had

Mitch's (my 4 y.o.) titer levels run before we did his first round of shots,

and plan to do it again before we do anything else. Gets your brain gears to

spinnning, huh?!

ruth