Guest guest Posted August 18, 1999 Report Share Posted August 18, 1999 Laurel, I really think we are onto something here. I said in an earlier post that there are *so many* kids being diagnosed with autism these days that special day classes are being developed specifically for them. There MUST by an answer--and I bet mito problems are right in there. Hmmmmmmmmmm.... Anyone know a good researcher? ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 1999 Report Share Posted August 18, 1999 Laurel, I really think we are onto something here. I said in an earlier post that there are *so many* kids being diagnosed with autism these days that special day classes are being developed specifically for them. There MUST by an answer--and I bet mito problems are right in there. Hmmmmmmmmmm.... Anyone know a good researcher? ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 1999 Report Share Posted August 18, 1999 Ruth, My older son has Sensory Integration Dysfunction. Here are some great link for you and anyone interested. <A HREF= " http://netfind.aol.com/search.gw?lk=excite_netfind_us & c=web & start=0 & show Summary=true & qbe=23915786 & ctag=344DDB30 & s= & perPage=10 & next=next " >joint info 2</A> <A HREF= " http://netfind.aol.com/search.gw?lk=excite_netfind_us & c=web & qbe=23915786 & ctag=344DDB30 & showSummary=true " >joint compression info</A> <A HREF= " http://netfind.aol.com/search.gw?search=%22joint+compression%22 & lk=excit e_netfind_us " >AOL NetFind Results</A> <A HREF= " http://www.mindspring.com/~mariep/si/sensory.integration.html " >Sensory Integration " Marie</A> <A HREF= " aol://5863:126/mB:109881 " >Sensory Integration</A> <A HREF= " http://www.infoseek.com/Topic?tid=1207 " >Infoseek: The Health Channel</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 1999 Report Share Posted August 18, 1999 Ruth, My older son has Sensory Integration Dysfunction. Here are some great link for you and anyone interested. <A HREF= " http://netfind.aol.com/search.gw?lk=excite_netfind_us & c=web & start=0 & show Summary=true & qbe=23915786 & ctag=344DDB30 & s= & perPage=10 & next=next " >joint info 2</A> <A HREF= " http://netfind.aol.com/search.gw?lk=excite_netfind_us & c=web & qbe=23915786 & ctag=344DDB30 & showSummary=true " >joint compression info</A> <A HREF= " http://netfind.aol.com/search.gw?search=%22joint+compression%22 & lk=excit e_netfind_us " >AOL NetFind Results</A> <A HREF= " http://www.mindspring.com/~mariep/si/sensory.integration.html " >Sensory Integration " Marie</A> <A HREF= " aol://5863:126/mB:109881 " >Sensory Integration</A> <A HREF= " http://www.infoseek.com/Topic?tid=1207 " >Infoseek: The Health Channel</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 1999 Report Share Posted August 18, 1999 Ruth- Kent has helped me no end to understand what he experiences. I guess it all boils down to the sensory imput being so strong that it gets in the way of other things. The tactile defensiveness is interpreted by him to be pain. Firm pressure is okay, but light touch was painful to him. Noise can be so overwhelming to him that he gets the same symptoms as someone having a panic attack. We did an experiement many years ago with eye contact. We were in a restaurant and I asked him to make eye contact while talking to me and listening. He said that the movement he saw was so strong that it made him forget what he wanted to say and prevented him from making sense out of what I was saying. All of this has helped me a great deal in my work with students who have autisim. Kent has found things that help. He carries a book with him and he reads when noise becomes bothersome. Focusing on the book helps. He can also cognitively override some of the sensory input now. He is a happy productive adult who is a true friend and a joy to be with. Laurie > This is so fascinating. What does your son tell you about his sensory > integration difficulties? I'm curious because my daughter has tactile > problems as well and I wonder what it must be like to live in her > brain.................. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 1999 Report Share Posted August 18, 1999 Ruth- I agree, our kids do fight hard for their successes. Kent also had motor planning and propreioceptive problems. He couldn't walk without being able to see his feet until he was about 7 and then not in the dark (he needed to orient with the walls, etc.) until about 15. His drive is evident in his job. He is somewhat of a profectionist when it comes to giving it his all. Laurie > Do you also see how a child with severe motor planning problems and/or severe > sensory integration difficulties can end up with the diagnosis of autism? Our kiddos > sure do deserve a tremendous amount of respect!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 1999 Report Share Posted August 19, 1999 Laurie, I'm printing this out and sharing with all my mom's of kids with autism. Also, I think Lexi's therapist should get a copy--the one who forced her to wear shoes and now three months later she still screams when she sees her shoes come out of the closet. I can't imagine what a warrior your son must be! ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 1999 Report Share Posted August 19, 1999 , Thanks for the links. I'll head over there tonight! ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 1999 Report Share Posted August 19, 1999 Ruth- My son still prefers to wear long sleeved shirts, even in the summer and he can't tolerate bare feet. When young, he had a terrible time switching from short sleeves to long sleeves as the weather got colder. He has never been comfortable wearing shorts. It is that old tactile defensiveness again. Laurie > I'm printing this out and sharing with all my mom's of kids with autism. > Also, I think Lexi's therapist should get a copy--the one who forced her to > wear shoes and now three months later she still screams when she sees her > shoes come out of the closet. I can't imagine what a warrior your son must > be! > > ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 1999 Report Share Posted August 21, 1999 Hi, What about this scenerio....My typical daughter needs a physical to enter 6th grade in PA and it is mandatory by the state I am told. Great insurance does not cover well visits but it's mandatory. Anyway I have refused Hepatitis , chicken pox , and now I see that another MMR is required by the year 2000. Why that is I do not know. I've refused for her because my son has autism, and has regressed with vaccines....I think as i think back anyway. Pediatrician assistant tells me she won't let out the door without these vaccines. But I was told years ago by devolopmental ped/genitiscists and from what I read that my son could get these viruses if she gets the vaccines and he does not just by living in the same house. So what do I do??? Refuse for both of them? But he ended up going by ambulance to ER when one year all Kindergartner's had to have the hepatitis vbaccine and and they thought he had hepatitis. Well 2 hospitals screwed up the test and I guess we will never know. But that help lead us to the theory of mito disorder due to his high lactate acid levels. So is it better to refuse for just him or both him and his sister. But what about them going to school when everyone is getting the MMR vaccine and they do not. HIs booster DPt 4 years ago at age 5 had him regressed in speech and sensory issues that I had felt like I just worked so hard to fix. I really do now think after being on this list that it's the mito and his reaction to whatever is mixed into the vaccine. The Dr. once said he would be better getting the chicken pox. But they are 9 and 11 now and I am getting pressure from the stupid pediatrician. Maybe they have good immunity because my husband and I had really strong cases of that when we were kids. Kathy F. ---------- > From: Hilandgang@... > To: Mitoonelist > Subject: Re: transfusions and immunizations > Date: Tuesday, August 17, 1999 10:06 AM > > From: Hilandgang@... > > Anne, > Your post just blew my mind! I have never heard of such a thing when the > symptoms just began to dissipate over the years, but it does make perfect > sense that it was his body's response to the MMR and DPT shots that gave him > the symptoms of autism. This is so interesting--I had never thought of a > mito disorder as being the root cause of Garrett's problems but it sure would > explain alot. I have also noticed two other interesting things about autism: > first, the term is used very broadly, describing a host a symptoms and many > different levels of severity. Many of the cases where the child was labeled > as being autistic turn out to not have autism at all, but their severe > sensory integration and motor planning and visual/auditory processing > problems sure make it seem that way. Second observation is that the number > of cases of children with this diagnosis has just become astronomical over > the past decade or so. We are now seeing entire programs being set up just > to meet the needs of these children. Hmmmm.......makes me wonder *why*? > What is the link? Could there be many more kids with mito problems > exhibiting symptoms of autism??? Just food for thought. > > ruth > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 1999 Report Share Posted August 21, 1999 Hi, What about this scenerio....My typical daughter needs a physical to enter 6th grade in PA and it is mandatory by the state I am told. Great insurance does not cover well visits but it's mandatory. Anyway I have refused Hepatitis , chicken pox , and now I see that another MMR is required by the year 2000. Why that is I do not know. I've refused for her because my son has autism, and has regressed with vaccines....I think as i think back anyway. Pediatrician assistant tells me she won't let out the door without these vaccines. But I was told years ago by devolopmental ped/genitiscists and from what I read that my son could get these viruses if she gets the vaccines and he does not just by living in the same house. So what do I do??? Refuse for both of them? But he ended up going by ambulance to ER when one year all Kindergartner's had to have the hepatitis vbaccine and and they thought he had hepatitis. Well 2 hospitals screwed up the test and I guess we will never know. But that help lead us to the theory of mito disorder due to his high lactate acid levels. So is it better to refuse for just him or both him and his sister. But what about them going to school when everyone is getting the MMR vaccine and they do not. HIs booster DPt 4 years ago at age 5 had him regressed in speech and sensory issues that I had felt like I just worked so hard to fix. I really do now think after being on this list that it's the mito and his reaction to whatever is mixed into the vaccine. The Dr. once said he would be better getting the chicken pox. But they are 9 and 11 now and I am getting pressure from the stupid pediatrician. Maybe they have good immunity because my husband and I had really strong cases of that when we were kids. Kathy F. ---------- > From: Hilandgang@... > To: Mitoonelist > Subject: Re: transfusions and immunizations > Date: Tuesday, August 17, 1999 10:06 AM > > From: Hilandgang@... > > Anne, > Your post just blew my mind! I have never heard of such a thing when the > symptoms just began to dissipate over the years, but it does make perfect > sense that it was his body's response to the MMR and DPT shots that gave him > the symptoms of autism. This is so interesting--I had never thought of a > mito disorder as being the root cause of Garrett's problems but it sure would > explain alot. I have also noticed two other interesting things about autism: > first, the term is used very broadly, describing a host a symptoms and many > different levels of severity. Many of the cases where the child was labeled > as being autistic turn out to not have autism at all, but their severe > sensory integration and motor planning and visual/auditory processing > problems sure make it seem that way. Second observation is that the number > of cases of children with this diagnosis has just become astronomical over > the past decade or so. We are now seeing entire programs being set up just > to meet the needs of these children. Hmmmm.......makes me wonder *why*? > What is the link? Could there be many more kids with mito problems > exhibiting symptoms of autism??? Just food for thought. > > ruth > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 1999 Report Share Posted August 21, 1999 Kathy, here's a little known but true fact. Your kids do not need to have their shots to go into public school. On the back of that handy dandy little card they give you to fill out showing his immunization record, is a place for you to sign if you are choosing not to vaccinate your child. The reasons they list are for religious or personal beliefs, and then they do say that if there is an outbreak of the disease (say measles) that they can require you to keep you kids at home until the danger has past. I have done this with my son for two years, and it works for us. My daughter's ped also refused to give her the shots because of her weak immune system. You might want to look into this. Just a thought. ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 1999 Report Share Posted August 22, 1999 Ruth- I believe that this depends on the state in which you live. There are some slight variations from state to state. I know that in our state it is not this simple. Laurie > here's a little known but true fact. Your kids do not need to have their > shots to go into public school. On the back of that handy dandy little card > they give you to fill out showing his immunization record, is a place for you > to sign if you are choosing not to vaccinate your child. The reasons they > list are for religious or personal beliefs, and then they do say that if > there is an outbreak of the disease (say measles) that they can require you > to keep you kids at home until the danger has past. I have done this with my > son for two years, and it works for us. My daughter's ped also refused to > give her the shots because of her weak immune system. You might want to look > into this. Just a thought. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 1999 Report Share Posted August 22, 1999 Ruth- I believe that this depends on the state in which you live. There are some slight variations from state to state. I know that in our state it is not this simple. Laurie > here's a little known but true fact. Your kids do not need to have their > shots to go into public school. On the back of that handy dandy little card > they give you to fill out showing his immunization record, is a place for you > to sign if you are choosing not to vaccinate your child. The reasons they > list are for religious or personal beliefs, and then they do say that if > there is an outbreak of the disease (say measles) that they can require you > to keep you kids at home until the danger has past. I have done this with my > son for two years, and it works for us. My daughter's ped also refused to > give her the shots because of her weak immune system. You might want to look > into this. Just a thought. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 Kathy: I am not sure if this is possible, but could they draw blood and test their antibodies for various childhood diseases, they after you get their results, decide if they need the shot and perhaps some MD out there would have a recommendation as to what level to give them. Sorry, if I can not articulate this concept with the correct biological terminology...I took Business and Marketing in school and biology & chemistry confuse me. Amy (mom to the younger (20mos), possible mito, global developmental delay, microcepaly, GI reflux and GI delay in emptying, CVI, and the best smile and giggle) Re: transfusions and immunizations >> Date: Tuesday, August 17, 1999 10:06 AM >> >> From: Hilandgang@... >> >> Anne, >> Your post just blew my mind! I have never heard of such a thing when the > >> symptoms just began to dissipate over the years, but it does make perfect > >> sense that it was his body's response to the MMR and DPT shots that gave >him >> the symptoms of autism. This is so interesting--I had never thought of a > >> mito disorder as being the root cause of Garrett's problems but it sure >would >> explain alot. I have also noticed two other interesting things about >autism: >> first, the term is used very broadly, describing a host a symptoms and >many >> different levels of severity. Many of the cases where the child was >labeled >> as being autistic turn out to not have autism at all, but their severe >> sensory integration and motor planning and visual/auditory processing >> problems sure make it seem that way. Second observation is that the >number >> of cases of children with this diagnosis has just become astronomical >over >> the past decade or so. We are now seeing entire programs being set up >just >> to meet the needs of these children. Hmmmm.......makes me wonder *why*? > >> What is the link? Could there be many more kids with mito problems >> exhibiting symptoms of autism??? Just food for thought. >> >> ruth >> >> --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 Kathy: I am not sure if this is possible, but could they draw blood and test their antibodies for various childhood diseases, they after you get their results, decide if they need the shot and perhaps some MD out there would have a recommendation as to what level to give them. Sorry, if I can not articulate this concept with the correct biological terminology...I took Business and Marketing in school and biology & chemistry confuse me. Amy (mom to the younger (20mos), possible mito, global developmental delay, microcepaly, GI reflux and GI delay in emptying, CVI, and the best smile and giggle) Re: transfusions and immunizations >> Date: Tuesday, August 17, 1999 10:06 AM >> >> From: Hilandgang@... >> >> Anne, >> Your post just blew my mind! I have never heard of such a thing when the > >> symptoms just began to dissipate over the years, but it does make perfect > >> sense that it was his body's response to the MMR and DPT shots that gave >him >> the symptoms of autism. This is so interesting--I had never thought of a > >> mito disorder as being the root cause of Garrett's problems but it sure >would >> explain alot. I have also noticed two other interesting things about >autism: >> first, the term is used very broadly, describing a host a symptoms and >many >> different levels of severity. Many of the cases where the child was >labeled >> as being autistic turn out to not have autism at all, but their severe >> sensory integration and motor planning and visual/auditory processing >> problems sure make it seem that way. Second observation is that the >number >> of cases of children with this diagnosis has just become astronomical >over >> the past decade or so. We are now seeing entire programs being set up >just >> to meet the needs of these children. Hmmmm.......makes me wonder *why*? > >> What is the link? Could there be many more kids with mito problems >> exhibiting symptoms of autism??? Just food for thought. >> >> ruth >> >> --------------------------- Quote Link to comment Share on other sites More sharing options...
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