How long to eat gluten for a biopsy?

[Guest guest]

Hello,

My story is sort of long-- but I'll try to tell the sort version. My

now 29 month old dd started having loose frequent bowel movements

back in January. Lots of tests at my ped's and antigliadin IgG and

IgA were both positive. couldn't get into GI dr until july. put her

on a gluten free/dairy free diet back at beginning of may. her bowel

movements aren't as frequent anymore but still mostly loose-- every

once in a while she'll have a formed one. yes i am careful about

cross contamination and all of that. i notice when she has dairy it

still bothers her so we avoid even hidden forms of dairy. anyway,

she is still low on the weight charts (22 lbs) and not gaining much

(not losing but not gaining much either). Dr did all kinds of tests

to check for nutritional status and pre-albumin was slightly low. he

also did anti-endomysial ttg test and it was negative, and he said

total IgA was also on the low side (30, the range starting at 34 for

being normal). (but she has been GF for a few months so the ttg test

could be inaccurate) I don't understand how she couldbe IgA deficient

and yet her antigliadin IgA was positive a few months ago. anyway, i

am not sure what to do. I am very irritated with the medical

profession. the ped GI dr wants me to put her on gluten and he says

to call the office as soon as her symptoms pick up again (which is

hard for me to judge, because she still has loose bowels? i guess he

means very frequent bowel movements again and cramping like she had

before going GF/CF).. he says even a week is long enough, and then

they want to do an endoscopy. quite frankly I am not comfortable at

doing the biopsy but right now I am desperate to find out what's

going on. I am also due with a baby in about 4 weeks... I'm not sure

if I should wait until after that to do the gluten challenge/biopsy

or just get it over with now but then again, I'm not sure how long

she should be eating gluten for the biopsy to be accurate.........

also does anybody know anything about yeast and all of this? my dd

had a horrible time with yeast rash when she was 6 months that lasted

a LONG time.. we tried everything to get rid of it but it was very

resistent, it finally went away after 6 months or so but now she has

a little patchy yeast rash again.. sigh what about leaky gut?

Any thoughts?

Mel

[Guest guest]

We had a similar situation when my father in law and husband were

both diagnosed with CD. It was clear from the family history, a

year of weight loss, irritability, and long term tummy troubles that

my then 3 1/2 year old also had CD. I wasn't able to get an

appointment for him with the pediatric gastroenterologist for 6 wks,

but went ahead and put the whole family on a gf diet. Within a

week, my son was a new child, happy, smiling, sleeping well, much

less tummy trouble, and by the day of the appointment had gained 3

lbs. I was thrilled and so excited to share the success story with

the dr, but after the blood tests (given 9 weeks after beginning gf)

were " borderline " , and therefore in his eyes inconclusive, the dr

recommended a 6 month gluten challenge.

My husband and I decided to refuse the challenge for my son, and

instead began a 6 week " elimination diet " to test for dietary

allergies and intolerances. We learned quite a lot from the diet,

and I recommend it. Not only was it clear to me that my son had

trouble with gluten and not other foods, but the strictness of the

diet also helped me understand that I was inadvertently feeding him

bits of gluten and helped me modify the gf diet for the whole

household.

We used the allergy free diet at

http://www.healthdesigns.com/Elimination_Diet.html, but we also cut

out citrus, cocoa/cola/caffeine, preservatives and food dyes and

colorings.

And for how to test reactions when adding back allergens after the 6

weeks was up, we had success with the pulse test (increases 20-40

points within an hour after eating the food) as well as the stomach

symptoms within 12 hours -- for testing suggestings, but not for the

diet, our dietitian suggested we see

http://www.woodmed.com/DietElimRech.htm.

[Guest guest]

We had a similar situation when my father in law and husband were

both diagnosed with CD. It was clear from the family history, a

year of weight loss, irritability, and long term tummy troubles that

my then 3 1/2 year old also had CD. I wasn't able to get an

appointment for him with the pediatric gastroenterologist for 6 wks,

but went ahead and put the whole family on a gf diet. Within a

week, my son was a new child, happy, smiling, sleeping well, much

less tummy trouble, and by the day of the appointment had gained 3

lbs. I was thrilled and so excited to share the success story with

the dr, but after the blood tests (given 9 weeks after beginning gf)

were " borderline " , and therefore in his eyes inconclusive, the dr

recommended a 6 month gluten challenge.

My husband and I decided to refuse the challenge for my son, and

instead began a 6 week " elimination diet " to test for dietary

allergies and intolerances. We learned quite a lot from the diet,

and I recommend it. Not only was it clear to me that my son had

trouble with gluten and not other foods, but the strictness of the

diet also helped me understand that I was inadvertently feeding him

bits of gluten and helped me modify the gf diet for the whole

household.

We used the allergy free diet at

http://www.healthdesigns.com/Elimination_Diet.html, but we also cut

out citrus, cocoa/cola/caffeine, preservatives and food dyes and

colorings.

And for how to test reactions when adding back allergens after the 6

weeks was up, we had success with the pulse test (increases 20-40

points within an hour after eating the food) as well as the stomach

symptoms within 12 hours -- for testing suggestings, but not for the

diet, our dietitian suggested we see

http://www.woodmed.com/DietElimRech.htm.

[Guest guest]

We had a similar situation when my father in law and husband were

both diagnosed with CD. It was clear from the family history, a

year of weight loss, irritability, and long term tummy troubles that

my then 3 1/2 year old also had CD. I wasn't able to get an

appointment for him with the pediatric gastroenterologist for 6 wks,

but went ahead and put the whole family on a gf diet. Within a

week, my son was a new child, happy, smiling, sleeping well, much

less tummy trouble, and by the day of the appointment had gained 3

lbs. I was thrilled and so excited to share the success story with

the dr, but after the blood tests (given 9 weeks after beginning gf)

were " borderline " , and therefore in his eyes inconclusive, the dr

recommended a 6 month gluten challenge.

My husband and I decided to refuse the challenge for my son, and

instead began a 6 week " elimination diet " to test for dietary

allergies and intolerances. We learned quite a lot from the diet,

and I recommend it. Not only was it clear to me that my son had

trouble with gluten and not other foods, but the strictness of the

diet also helped me understand that I was inadvertently feeding him

bits of gluten and helped me modify the gf diet for the whole

household.

We used the allergy free diet at

http://www.healthdesigns.com/Elimination_Diet.html, but we also cut

out citrus, cocoa/cola/caffeine, preservatives and food dyes and

colorings.

And for how to test reactions when adding back allergens after the 6

weeks was up, we had success with the pulse test (increases 20-40

points within an hour after eating the food) as well as the stomach

symptoms within 12 hours -- for testing suggestings, but not for the

diet, our dietitian suggested we see

http://www.woodmed.com/DietElimRech.htm.