How long to eat gluten for a biopsy?

[Guest guest]

Hello,

My story is sort of long-- but I'll try to tell the sort version. My

now 29 month old dd started having loose frequent bowel movements

back in January. Lots of tests at my ped's and antigliadin IgG and

IgA were both positive. couldn't get into GI dr until july. put her

on a gluten free/dairy free diet back at beginning of may. her bowel

movements aren't as frequent anymore but still mostly loose-- every

once in a while she'll have a formed one. yes i am careful about

cross contamination and all of that. i notice when she has dairy it

still bothers her so we avoid even hidden forms of dairy. anyway,

she is still low on the weight charts (22 lbs) and not gaining much

(not losing but not gaining much either). Dr did all kinds of tests

to check for nutritional status and pre-albumin was slightly low. he

also did anti-endomysial ttg test and it was negative, and he said

total IgA was also on the low side (30, the range starting at 34 for

being normal). (but she has been GF for a few months so the ttg test

could be inaccurate) I don't understand how she couldbe IgA deficient

and yet her antigliadin IgA was positive a few months ago. anyway, i

am not sure what to do. I am very irritated with the medical

profession. the ped GI dr wants me to put her on gluten and he says

to call the office as soon as her symptoms pick up again (which is

hard for me to judge, because she still has loose bowels? i guess he

means very frequent bowel movements again and cramping like she had

before going GF/CF).. he says even a week is long enough, and then

they want to do an endoscopy. quite frankly I am not comfortable at

doing the biopsy but right now I am desperate to find out what's

going on. I am also due with a baby in about 4 weeks... I'm not sure

if I should wait until after that to do the gluten challenge/biopsy

or just get it over with now but then again, I'm not sure how long

she should be eating gluten for the biopsy to be accurate.........

also does anybody know anything about yeast and all of this? my dd

had a horrible time with yeast rash when she was 6 months that lasted

a LONG time.. we tried everything to get rid of it but it was very

resistent, it finally went away after 6 months or so but now she has

a little patchy yeast rash again.. sigh what about leaky gut?

Any thoughts?

Mel

[Guest guest]

This sounds very much like my young son diagnosed at

1 1/2yrs. He was so sick and litterally wasting away in front of me. Once I

found out the doctors strongly suspected celiac I went home and put him straight

on to a celiac diet. He weighed 18 lbs at one and a half and continued having

vomiting and/or diarrhea everyday before going gf.

I had to also put him on a nutritional drink recommend by doctor Zolton Rona (he

has a book on leaky gut). He slowly started improving but it did take time. The

doctor was not happy the next appointment I had because I had already started

the gf diet and he wanted a biopsy. I was not going to wait two months more to

book a biopsy and who knows how long before he actually had one. I was watching

my son become sicker and sicker. He wouldn't walk any where because his legs

hurt and he tired very easily. His hair was breaking and he looked like a child

from a third world country.

The doctor said he would do a biopsy when he was 5, and he would only have to

eat about one piece of bread a day for a week. I have since read that it should

be as much gluten as possible for about a month or two. Otherwise the test

results might not be accurate.

My son has been doing so well on the gluten free diet that we (dr. and I ) keep

putting of the biopsy. It is very apparent that he has celiac even though he has

not had that gold stamp biopsy.

Stacey

Children learn what they see.

What have you modelled today?

[Guest guest]

This sounds very much like my young son diagnosed at

1 1/2yrs. He was so sick and litterally wasting away in front of me. Once I

found out the doctors strongly suspected celiac I went home and put him straight

on to a celiac diet. He weighed 18 lbs at one and a half and continued having

vomiting and/or diarrhea everyday before going gf.

I had to also put him on a nutritional drink recommend by doctor Zolton Rona (he

has a book on leaky gut). He slowly started improving but it did take time. The

doctor was not happy the next appointment I had because I had already started

the gf diet and he wanted a biopsy. I was not going to wait two months more to

book a biopsy and who knows how long before he actually had one. I was watching

my son become sicker and sicker. He wouldn't walk any where because his legs

hurt and he tired very easily. His hair was breaking and he looked like a child

from a third world country.

The doctor said he would do a biopsy when he was 5, and he would only have to

eat about one piece of bread a day for a week. I have since read that it should

be as much gluten as possible for about a month or two. Otherwise the test

results might not be accurate.

My son has been doing so well on the gluten free diet that we (dr. and I ) keep

putting of the biopsy. It is very apparent that he has celiac even though he has

not had that gold stamp biopsy.

Stacey

Children learn what they see.

What have you modelled today?

[Guest guest]

This sounds very much like my young son diagnosed at

1 1/2yrs. He was so sick and litterally wasting away in front of me. Once I

found out the doctors strongly suspected celiac I went home and put him straight

on to a celiac diet. He weighed 18 lbs at one and a half and continued having

vomiting and/or diarrhea everyday before going gf.

I had to also put him on a nutritional drink recommend by doctor Zolton Rona (he

has a book on leaky gut). He slowly started improving but it did take time. The

doctor was not happy the next appointment I had because I had already started

the gf diet and he wanted a biopsy. I was not going to wait two months more to

book a biopsy and who knows how long before he actually had one. I was watching

my son become sicker and sicker. He wouldn't walk any where because his legs

hurt and he tired very easily. His hair was breaking and he looked like a child

from a third world country.

The doctor said he would do a biopsy when he was 5, and he would only have to

eat about one piece of bread a day for a week. I have since read that it should

be as much gluten as possible for about a month or two. Otherwise the test

results might not be accurate.

My son has been doing so well on the gluten free diet that we (dr. and I ) keep

putting of the biopsy. It is very apparent that he has celiac even though he has

not had that gold stamp biopsy.

Stacey

Children learn what they see.

What have you modelled today?

[Guest guest]

Sometimes a mother's intuition seems to be a bit more accurate then a biopsy...

My 12 yr old type 1 diabetic son is feeling so much better since I changed his

diet about a year ago. All the symptoms were there, but never got a biopsy. I

just had " gut " feeling he was celiac like me. Good luck Stacey...

" Stacey Coates " wrote:

> This sounds very much like my young son diagnosed at

>1 1/2yrs. He was so sick and litterally wasting away in front of me. Once I

found out the doctors strongly suspected celiac I went home and put him straight

on to a celiac diet. He weighed 18 lbs at one and a half and continued having

vomiting and/or diarrhea everyday before going gf.

>I had to also put him on a nutritional drink recommend by doctor Zolton Rona

(he has a book on leaky gut). He slowly started improving but it did take time.

The doctor was not happy the next appointment I had because I had already

started the gf diet and he wanted a biopsy. I was not going to wait two months

more to book a biopsy and who knows how long before he actually had one. I was

watching my son become sicker and sicker. He wouldn't walk any where because his

legs hurt and he tired very easily. His hair was breaking and he looked like a

child from a third world country.

>

>The doctor said he would do a biopsy when he was 5, and he would only have to

eat about one piece of bread a day for a week. I have since read that it should

be as much gluten as possible for about a month or two. Otherwise the test

results might not be accurate.

>

>

>My son has been doing so well on the gluten free diet that we (dr. and I ) keep

putting of the biopsy. It is very apparent that he has celiac even though he has

not had that gold stamp biopsy.

>

>

>

>Stacey

>

>Children learn what they see.

>What have you modelled today?

>

>

>

>    *