& Joan

[Guest guest]

The name of the hospital which I referred is " Babies and Children's

Hospital of New York " (I dug up the info pack I was given). I'd say you

are right, it must be the same hospital. Thanks for letting me

know about the ketchup thing. A few other things they list as " free " is

cocoa, garlic, pickles, cucumber, celery. According the the USDA

website, these have carbs - so I'm just too darn conservative to count

anything with carbs as free. Maybe I am a little judgemental (My biggest

fault is that I tend to be a " know-it-all " LOL), as I've never had any

dealings with them. Maybe they precurser their information pack with

some limits. Anyway, sorry I sounded so critical. Joan, let us know

when you get set to go.

Kathy in Tennessee

Mom to - 6 - Keto kid since 02/00, Med free, seizures 95% reduced

Mom to 'lil sis, a - 3

" Even to your old age and gray hairs I am He, I am He who will sustain

you. I have made you and I will carry you; I will sustain you and I will

rescue you. "

Isaiah 46:4

On Mon, 20 Aug 2001 00:18:15 EDT sjlit@... writes:

> Hi Kathy et al.,

>

> I feel compelled to defend the dieticians who administer the diet at

> Columbia

> Presbyterian/Babies Hospital in NYC. The ketchup reference in their

> keto

> manual is a glaring error, it's true. We initiated there and that

> was one of

> the things I discussed with them right away (they don't condone the

> unlimited

> use of ketchup, unfortunately it was included with the idea that

> people could

> occasionally use a dab). These ladies administer the diet basically

> as a

> labor of love on top of their official duties at the hospital, and I

> found

> them as, if not more, responsive, knowledgeable, and caring than

> many of the

> keto teams I've experienced or heard about. The only reason we left

> their

> care is because our neuro moved and we switched to one at another NY

>

> hospital. Still, after we left I've on occasion called the Columbia

>

> Presbyterian team for keto advice.

>

> A larger problem at Columbia Presbyterian (or whatever it's called

> now) is

> that there doesn't seem to be a neuro on staff who is enthusiastic

> about and

> supportive of the diet as a treatment. It helps like mad to have

> the support

> of your neuro when you're cuttin' those drugs!

>

> Just my perspective on this particular place....

>

>

> mother to ph, 7-1/2

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