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Lori, I can't believe anyone would be upset at anything you posted. I can't

say that what you are on to would pertain to me for sure but I was

interested in keeping track in case I would see that it did later. What you

were sharing is what the list is for! I say just keep doing what you were

doing and if someone has a problem with it they don't have to read those

posts, it is there own problem. There are too many of us who need to keep

informed. S.

Information

>

>

>Hello,

>

>Anyone who wants me to continue updating them on the work of Dr.

>Hirano regarding his treatment of MNGIE, please contact me privately.

>I will make a separate list just for you people so as to not disrupt

>this list any further with my updates. I will not be posting any

>further info regarding my conversations with Dr. Hirano.

>

>My posts on this issue have generated some personal flames. I am

>sorry that my posts offended one or more of you.

>

>Sincerely,

>Lori Downs

>

>

>------------------------------------------------------------------------

>ONElist: the best source for group communications.

>http://www.onelist.com

>Join a new list today!

>------------------------------------------------------------------------

>Brought to you by www.imdn.org - an on-line support group for those

affected by mitochondrial disease.

>

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