Guest guest Posted October 23, 2006 Report Posted October 23, 2006 THANKS for the info sharon.yes i have been to this website.I have been sick for about 3 years but u know the past year has been awful.I have been doing research for over 2 years.even when they had mis diagnosed me .i knew i didnt have what they said so i went into research mode.lol.see to me this sounds a little like me but my illness dosnt fit the pattern as much for tm as it does ms.but i could be wrong.when it first started it started as pain.awful pain but only in my upper thighs and then throughout as time passed i started feeling it in my back and arms.at first more on one side and then i had a flare up and it was like it infested my body.the pain spreaded to my arms(both the same) and hands and feet pretty much everypart of my body is in pain but then i get these sharp dull ahooting pains on top of it.for example i have had this sharp shooting pain in my index finger.it comes and goes but thats on top of the pain i already battle.then this year it was like boom!I started getting weak instead of fatige [wobbletowalk@...] wrote: Cassy: Have you ever looked at http://www.myelitis.org/tm.htm <http://www.myelitis.org/tm.htm> ? That's the Transverse Myelitis webpage. The page tells what diseases are associated with TM (it lists MS and others). Here's some of what the page says. Does this sound like you? " TM symptoms develop rapidly over several hours to several weeks. Approximately 45% of patients worsen maximally within 24 hours (Ibid. <http://www.myelitis.org/tm.htm#1> ). The spinal cord carries motor nerve fibers to the limbs and trunk and sensory fibers from the body back to the brain. Inflammation within the spinal cord interrupts these pathways and causes the common presenting symptoms of TM which include limb weakness, sensory disturbance, bowel and bladder dysfunction, back pain and radicular pain (pain in the distribution of a single spinal nerve). " " Almost all patients will develop leg weakness of varying degrees of severity. The arms are involved in a minority of cases and this is dependent upon the level of spinal cord involvement. Sensation is diminished below the level of spinal cord involvement in the majority of patients. Some experience tingling or numbness in the legs. Pain (ascertained as appreciation of pinprick by the neurologist) and temperature sensation are diminished in the majority of patients. Appreciation of vibration (as caused by a tuning fork) and joint position sense may also be decreased or spared. Bladder and bowel sphincter control are disturbed in the majority of patients. Many patients with TM report a tight banding or girdle-like sensation around the trunk and that area may be very sensitive to touch. " " Recovery may be absent, partial or complete and generally begins within 1 to 3 months. Significant recovery is unlikely, if no improvement occurs by 3 months (Feldman, et. al., 1981 <http://www.myelitis.org/tm.htm#2> ). Most patients with TM show good to fair recovery. TM is generally a monophasic illness (one-time occurrence); however, a small percentage of patients may suffer a recurrence, especially if there is a predisposing underlying illness. " hugs))) Sharon > What was your first symptoms? Did it hit you suddenly? There are several people on this group who were.... Quote
Guest guest Posted October 23, 2006 Report Posted October 23, 2006 THANKS for the info sharon.yes i have been to this website.I have been sick for about 3 years but u know the past year has been awful.I have been doing research for over 2 years.even when they had mis diagnosed me .i knew i didnt have what they said so i went into research mode.lol.see to me this sounds a little like me but my illness dosnt fit the pattern as much for tm as it does ms.but i could be wrong.when it first started it started as pain.awful pain but only in my upper thighs and then throughout as time passed i started feeling it in my back and arms.at first more on one side and then i had a flare up and it was like it infested my body.the pain spreaded to my arms(both the same) and hands and feet pretty much everypart of my body is in pain but then i get these sharp dull ahooting pains on top of it.for example i have had this sharp shooting pain in my index finger.it comes and goes but thats on top of the pain i already battle.then this year it was like boom!I started getting weak instead of fatige [wobbletowalk@...] wrote: Cassy: Have you ever looked at http://www.myelitis.org/tm.htm <http://www.myelitis.org/tm.htm> ? That's the Transverse Myelitis webpage. The page tells what diseases are associated with TM (it lists MS and others). Here's some of what the page says. Does this sound like you? " TM symptoms develop rapidly over several hours to several weeks. Approximately 45% of patients worsen maximally within 24 hours (Ibid. <http://www.myelitis.org/tm.htm#1> ). The spinal cord carries motor nerve fibers to the limbs and trunk and sensory fibers from the body back to the brain. Inflammation within the spinal cord interrupts these pathways and causes the common presenting symptoms of TM which include limb weakness, sensory disturbance, bowel and bladder dysfunction, back pain and radicular pain (pain in the distribution of a single spinal nerve). " " Almost all patients will develop leg weakness of varying degrees of severity. The arms are involved in a minority of cases and this is dependent upon the level of spinal cord involvement. Sensation is diminished below the level of spinal cord involvement in the majority of patients. Some experience tingling or numbness in the legs. Pain (ascertained as appreciation of pinprick by the neurologist) and temperature sensation are diminished in the majority of patients. Appreciation of vibration (as caused by a tuning fork) and joint position sense may also be decreased or spared. Bladder and bowel sphincter control are disturbed in the majority of patients. Many patients with TM report a tight banding or girdle-like sensation around the trunk and that area may be very sensitive to touch. " " Recovery may be absent, partial or complete and generally begins within 1 to 3 months. Significant recovery is unlikely, if no improvement occurs by 3 months (Feldman, et. al., 1981 <http://www.myelitis.org/tm.htm#2> ). Most patients with TM show good to fair recovery. TM is generally a monophasic illness (one-time occurrence); however, a small percentage of patients may suffer a recurrence, especially if there is a predisposing underlying illness. " hugs))) Sharon > What was your first symptoms? Did it hit you suddenly? There are several people on this group who were.... Quote
Guest guest Posted October 23, 2006 Report Posted October 23, 2006 sorry sharon i ran out of room.lol.so the weakness hit and it started effecting my breathing and the spasms witch now jerk and twitch and the numbness witch is also everywere arms legs feet my back.and my walking trouble.sometimes from weakness and stiffness.and sometimes jus because but i have to use a walker and cane.sometimes i am so sick i canot walk at all.but i have so many sensory problems its ridiculous.well thanks for reading i know it is long.but i appreciate your thoughts more than you can know.hugs cassy [wobbletowalk@...] wrote: Cassy: Have you ever looked at http://www.myelitis.org/tm.htm <http://www.myelitis.org/tm.htm> ? That's the Transverse Myelitis webpage. The page tells what diseases are associated with TM (it lists MS and others). Here's some of what the page says. Does this sound like you? " TM symptoms develop rapidly over several hours to several weeks. Approximately 45% of patients worsen maximally within 24 hours (Ibid. <http://www.myelitis.org/tm.htm#1> ). The spinal cord carries motor nerve fibers to the limbs and trunk and sensory fibers from the body back to the brain. Inflammation within the spinal cord interrupts these pathways and causes the common presenting symptoms of TM which include limb weakness, sensory disturbance, bowel and bladder dysfunction, back pain and radicular pain (pain in the distribution of a single spinal nerve). " " Almost all patients will develop leg weakness of varying degrees of severity. The arms are involved in a minority of cases and this is dependent upon the level of spinal cord involvement. Sensation is diminished below the level of spinal cord involvement in the majority of patients. Some experience tingling or numbness in the legs. Pain (ascertained as appreciation of pinprick by the neurologist) and temperature sensation are diminished in the majority of patients. Appreciation of vibration (as caused by a tuning fork) and joint position sense may also be decreased or spared. Bladder and bowel sphincter control are disturbed in the majority of patients. Many patients with TM report a tight banding or girdle-like sensation around the trunk and that area may be very sensitive to touch. " " Recovery may be absent, partial or complete and generally begins within 1 to 3 months. Significant recovery is unlikely, if no improvement occurs by 3 months (Feldman, et. al., 1981 <http://www.myelitis.org/tm.htm#2> ). Most patients with TM show good to fair recovery. TM is generally a monophasic illness (one-time occurrence); however, a small percentage of patients may suffer a recurrence, especially if there is a predisposing underlying illness. " hugs))) Sharon > What was your first symptoms? Did it hit you suddenly? There are several people on this group who were.... Quote
Guest guest Posted October 23, 2006 Report Posted October 23, 2006 sorry sharon i ran out of room.lol.so the weakness hit and it started effecting my breathing and the spasms witch now jerk and twitch and the numbness witch is also everywere arms legs feet my back.and my walking trouble.sometimes from weakness and stiffness.and sometimes jus because but i have to use a walker and cane.sometimes i am so sick i canot walk at all.but i have so many sensory problems its ridiculous.well thanks for reading i know it is long.but i appreciate your thoughts more than you can know.hugs cassy [wobbletowalk@...] wrote: Cassy: Have you ever looked at http://www.myelitis.org/tm.htm <http://www.myelitis.org/tm.htm> ? That's the Transverse Myelitis webpage. The page tells what diseases are associated with TM (it lists MS and others). Here's some of what the page says. Does this sound like you? " TM symptoms develop rapidly over several hours to several weeks. Approximately 45% of patients worsen maximally within 24 hours (Ibid. <http://www.myelitis.org/tm.htm#1> ). The spinal cord carries motor nerve fibers to the limbs and trunk and sensory fibers from the body back to the brain. Inflammation within the spinal cord interrupts these pathways and causes the common presenting symptoms of TM which include limb weakness, sensory disturbance, bowel and bladder dysfunction, back pain and radicular pain (pain in the distribution of a single spinal nerve). " " Almost all patients will develop leg weakness of varying degrees of severity. The arms are involved in a minority of cases and this is dependent upon the level of spinal cord involvement. Sensation is diminished below the level of spinal cord involvement in the majority of patients. Some experience tingling or numbness in the legs. Pain (ascertained as appreciation of pinprick by the neurologist) and temperature sensation are diminished in the majority of patients. Appreciation of vibration (as caused by a tuning fork) and joint position sense may also be decreased or spared. Bladder and bowel sphincter control are disturbed in the majority of patients. Many patients with TM report a tight banding or girdle-like sensation around the trunk and that area may be very sensitive to touch. " " Recovery may be absent, partial or complete and generally begins within 1 to 3 months. Significant recovery is unlikely, if no improvement occurs by 3 months (Feldman, et. al., 1981 <http://www.myelitis.org/tm.htm#2> ). Most patients with TM show good to fair recovery. TM is generally a monophasic illness (one-time occurrence); however, a small percentage of patients may suffer a recurrence, especially if there is a predisposing underlying illness. " hugs))) Sharon > What was your first symptoms? Did it hit you suddenly? There are several people on this group who were.... Quote
Guest guest Posted October 23, 2006 Report Posted October 23, 2006 I assume your docs did MRIs? What were the results? Sharon Right now I'm having amnesia and deja vu at the same time.. Re: Cassy sorry sharon i ran out of room.lol.so the weakness hit and it started effecting my breathing and the spasms witch now jerk and twitch and the numbness witch is also everywere arms legs feet my back.and my walking trouble.sometimes from weakness and stiffness.and sometimes jus because but i have to use a walker and cane.sometimes i am so sick i canot walk at all.but i have so many sensory problems its ridiculous.well thanks for reading i know it is long.but i appreciate your thoughts more than you can know.hugs cassy[wobbletowalk@ yahoo.com] wrote:Cassy:Have you ever looked at http://www.myelitis .org/tm.htm<http://www.myelitis .org/tm.htm> ? That's the Transverse Myelitiswebpage. The page tells what diseases are associated with TM (itlists MS and others). Here's some of what the page says. Does thissound like you?"TM symptoms develop rapidly over several hours to several weeks.Approximately 45% of patients worsen maximally within 24 hours (Ibid.<http://www.myelitis .org/tm.htm# 1> ). The spinal cord carries motornerve fibers to the limbs and trunk and sensory fibers from the bodyback to the brain. Inflammation within the spinal cord interrupts thesepathways and causes the common presenting symptoms of TM which includelimb weakness, sensory disturbance, bowel and bladder dysfunction, backpain and radicular pain (pain in the distribution of a single spinalnerve). ""Almost all patients will develop leg weakness of varying degrees ofseverity. The arms are involved in a minority of cases and this isdependent upon the level of spinal cord involvement. Sensation isdiminished below the level of spinal cord involvement in the majority ofpatients. Some experience tingling or numbness in the legs. Pain(ascertained as appreciation of pinprick by the neurologist) andtemperature sensation are diminished in the majority of patients.Appreciation of vibration (as caused by a tuning fork) and jointposition sense may also be decreased or spared. Bladder and bowelsphincter control are disturbed in the majority of patients. Manypatients with TM report a tight banding or girdle-like sensation aroundthe trunk and that area may be very sensitive to touch.""Recovery may be absent, partial or complete and generally begins within1 to 3 months. Significant recovery is unlikely, if no improvementoccurs by 3 months (Feldman, et. al., 1981<http://www.myelitis .org/tm.htm# 2> ). Most patients with TM show good tofair recovery. TM is generally a monophasic illness (one-timeoccurrence); however, a small percentage of patients may suffer arecurrence, especially if there is a predisposing underlying illness."hugs)))Sharon> What was your first symptoms? Did it hit you suddenly? There areseveral people on this group who were.... Quote
Guest guest Posted October 23, 2006 Report Posted October 23, 2006 I assume your docs did MRIs? What were the results? Sharon Right now I'm having amnesia and deja vu at the same time.. Re: Cassy sorry sharon i ran out of room.lol.so the weakness hit and it started effecting my breathing and the spasms witch now jerk and twitch and the numbness witch is also everywere arms legs feet my back.and my walking trouble.sometimes from weakness and stiffness.and sometimes jus because but i have to use a walker and cane.sometimes i am so sick i canot walk at all.but i have so many sensory problems its ridiculous.well thanks for reading i know it is long.but i appreciate your thoughts more than you can know.hugs cassy[wobbletowalk@ yahoo.com] wrote:Cassy:Have you ever looked at http://www.myelitis .org/tm.htm<http://www.myelitis .org/tm.htm> ? That's the Transverse Myelitiswebpage. The page tells what diseases are associated with TM (itlists MS and others). Here's some of what the page says. Does thissound like you?"TM symptoms develop rapidly over several hours to several weeks.Approximately 45% of patients worsen maximally within 24 hours (Ibid.<http://www.myelitis .org/tm.htm# 1> ). The spinal cord carries motornerve fibers to the limbs and trunk and sensory fibers from the bodyback to the brain. Inflammation within the spinal cord interrupts thesepathways and causes the common presenting symptoms of TM which includelimb weakness, sensory disturbance, bowel and bladder dysfunction, backpain and radicular pain (pain in the distribution of a single spinalnerve). ""Almost all patients will develop leg weakness of varying degrees ofseverity. The arms are involved in a minority of cases and this isdependent upon the level of spinal cord involvement. Sensation isdiminished below the level of spinal cord involvement in the majority ofpatients. Some experience tingling or numbness in the legs. Pain(ascertained as appreciation of pinprick by the neurologist) andtemperature sensation are diminished in the majority of patients.Appreciation of vibration (as caused by a tuning fork) and jointposition sense may also be decreased or spared. Bladder and bowelsphincter control are disturbed in the majority of patients. Manypatients with TM report a tight banding or girdle-like sensation aroundthe trunk and that area may be very sensitive to touch.""Recovery may be absent, partial or complete and generally begins within1 to 3 months. Significant recovery is unlikely, if no improvementoccurs by 3 months (Feldman, et. al., 1981<http://www.myelitis .org/tm.htm# 2> ). Most patients with TM show good tofair recovery. TM is generally a monophasic illness (one-timeoccurrence); however, a small percentage of patients may suffer arecurrence, especially if there is a predisposing underlying illness."hugs)))Sharon> What was your first symptoms? Did it hit you suddenly? There areseveral people on this group who were.... Quote
Guest guest Posted October 23, 2006 Report Posted October 23, 2006 well so far they have done 2 brain mris,a lumbar,thoracic,mri,and x rays,they all came back normal.The thoracic i guess showed mild degenerative disc something but they said that wouldnt be causing the symptoms I have.I just dont know [wobbletowalk@...] wrote: I assume your docs did MRIs? What were the results? Sharon Right now I'm having amnesia and deja vu at the same time.. Re: Cassy sorry sharon i ran out of room.lol.so the weakness hit and it started effecting my breathing and the spasms witch now jerk and twitch and the numbness witch is also everywere arms legs feet my back.and my walking trouble.sometimes from weakness and stiffness.and sometimes jus because but i have to use a walker and cane.sometimes i am so sick i canot walk at all.but i have so many sensory problems its ridiculous.well thanks for reading i know it is long.but i appreciate your thoughts more than you can know.hugs cassy [wobbletowalk@ yahoo.com] wrote: Cassy: Have you ever looked at http://www.myelitis .org/tm.htm <http://www.myelitis .org/tm.htm> ? That's the Transverse Myelitis webpage. The page tells what diseases are associated with TM (it lists MS and others). Here's some of what the page says. Does this sound like you? " TM symptoms develop rapidly over several hours to several weeks. Approximately 45% of patients worsen maximally within 24 hours (Ibid. <http://www.myelitis .org/tm.htm# 1> ). The spinal cord carries motor nerve fibers to the limbs and trunk and sensory fibers from the body back to the brain. Inflammation within the spinal cord interrupts these pathways and causes the common presenting symptoms of TM which include limb weakness, sensory disturbance, bowel and bladder dysfunction, back pain and radicular pain (pain in the distribution of a single spinal nerve). " " Almost all patients will develop leg weakness of varying degrees of severity. The arms are involved in a minority of cases and this is dependent upon the level of spinal cord involvement. Sensation is diminished below the level of spinal cord involvement in the majority of patients. Some experience tingling or numbness in the legs. Pain (ascertained as appreciation of pinprick by the neurologist) and temperature sensation are diminished in the majority of patients. Appreciation of vibration (as caused by a tuning fork) and joint position sense may also be decreased or spared. Bladder and bowel sphincter control are disturbed in the majority of patients. Many patients with TM report a tight banding or girdle-like sensation around the trunk and that area may be very sensitive to touch. " " Recovery may be absent, partial or complete and generally begins within 1 to 3 months. Significant recovery is unlikely, if no improvement occurs by 3 months (Feldman, et. al., 1981 <http://www.myelitis .org/tm.htm# 2> ). Most patients with TM show good to fair recovery. TM is generally a monophasic illness (one-time occurrence); however, a small percentage of patients may suffer a recurrence, especially if there is a predisposing underlying.... Quote
Guest guest Posted October 23, 2006 Report Posted October 23, 2006 well so far they have done 2 brain mris,a lumbar,thoracic,mri,and x rays,they all came back normal.The thoracic i guess showed mild degenerative disc something but they said that wouldnt be causing the symptoms I have.I just dont know [wobbletowalk@...] wrote: I assume your docs did MRIs? What were the results? Sharon Right now I'm having amnesia and deja vu at the same time.. Re: Cassy sorry sharon i ran out of room.lol.so the weakness hit and it started effecting my breathing and the spasms witch now jerk and twitch and the numbness witch is also everywere arms legs feet my back.and my walking trouble.sometimes from weakness and stiffness.and sometimes jus because but i have to use a walker and cane.sometimes i am so sick i canot walk at all.but i have so many sensory problems its ridiculous.well thanks for reading i know it is long.but i appreciate your thoughts more than you can know.hugs cassy [wobbletowalk@ yahoo.com] wrote: Cassy: Have you ever looked at http://www.myelitis .org/tm.htm <http://www.myelitis .org/tm.htm> ? That's the Transverse Myelitis webpage. The page tells what diseases are associated with TM (it lists MS and others). Here's some of what the page says. Does this sound like you? " TM symptoms develop rapidly over several hours to several weeks. Approximately 45% of patients worsen maximally within 24 hours (Ibid. <http://www.myelitis .org/tm.htm# 1> ). The spinal cord carries motor nerve fibers to the limbs and trunk and sensory fibers from the body back to the brain. Inflammation within the spinal cord interrupts these pathways and causes the common presenting symptoms of TM which include limb weakness, sensory disturbance, bowel and bladder dysfunction, back pain and radicular pain (pain in the distribution of a single spinal nerve). " " Almost all patients will develop leg weakness of varying degrees of severity. The arms are involved in a minority of cases and this is dependent upon the level of spinal cord involvement. Sensation is diminished below the level of spinal cord involvement in the majority of patients. Some experience tingling or numbness in the legs. Pain (ascertained as appreciation of pinprick by the neurologist) and temperature sensation are diminished in the majority of patients. Appreciation of vibration (as caused by a tuning fork) and joint position sense may also be decreased or spared. Bladder and bowel sphincter control are disturbed in the majority of patients. Many patients with TM report a tight banding or girdle-like sensation around the trunk and that area may be very sensitive to touch. " " Recovery may be absent, partial or complete and generally begins within 1 to 3 months. Significant recovery is unlikely, if no improvement occurs by 3 months (Feldman, et. al., 1981 <http://www.myelitis .org/tm.htm# 2> ). Most patients with TM show good to fair recovery. TM is generally a monophasic illness (one-time occurrence); however, a small percentage of patients may suffer a recurrence, especially if there is a predisposing underlying.... Quote
Guest guest Posted November 30, 2006 Report Posted November 30, 2006 thsnks sharon [wobbletowalk@...] wrote: Vicodin just doesn't help nerve pain, unfortunately. Have you tried nortriptyline? I hear it works good for night pain. Some people swear by Effexor for pain. There's also Cymbalta and Lyrica. I hope you have a good night. Hugs to you Sharon Right now I'm having amnesia and deja vu at the same time.. Re: Newbie Hey AMber.How are you?I have a ton of symptoms.My legs are also heavy,weak,stiff. I have spasms and twitching in my arms and legs,and awful pain in my arms legs and back,for the most part it is a deep stabbing pain always,but I also have tingles,and shocking and other types of pain and sensor problems that comes and goes.when I get weak it is almost like I am paralyzed.no movement and it is difficult to.... Quote
Guest guest Posted November 30, 2006 Report Posted November 30, 2006 Cassy, I hope you feel better soon. How long has it been like this for you? Amber Re: NewbieHey AMber.How are you?I have a ton of symptoms.My legs are also heavy,weak,stiff. I have spasms and twitching in my arms and legs,and awful pain in my arms legs and back,for the most part it is a deep stabbing pain always,but I also have tingles,and shocking and other types of pain and sensor problems that comes and goes.when I get weak it is almost like I am paralyzed.no movement andit is difficult to.... Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates. Quote
Guest guest Posted November 30, 2006 Report Posted November 30, 2006 It's been a year...it was 8mos. before they got my pain under control...it got really bad all of sudden two weeks ago. This will be my third night off this week...I'm a nurse...these are 12hr. shifts...that's my whole week. When I take time off it's crazy bad! My coworkers sent me a bouqet of flowers...they're so pretty! Hope they invent a magic pill for all of us! Amber Re: Cassyhey amber.well I take 1600 mg. Of neurontin,60 mg. Of baclofen,just finished a medrol steroid taper pack,and vicodin.they tried givn me cymbalta but im having difficulty with the insurance company.some days I get more relief than others but for the most part every day is excruciating pain.my doc allows me 4 vicodin a day.just the regular strengh and ive been taking them a few yrs. So it dosnt work like it use to.I am going to see him about this.I go to have a cervical spine mri with contrast on tuesday.Im very nervous.that theyll find something bad,or even worse nothing at all.what is your pain like?do you have pain?sorry if I asked already.lol. bad memory.do you have numbness?hugs, cassy[amber_faith_ rnyahoo (DOT) com] wrote:Cassy,Thank you so much for telling me about your difficulties, too. It's a shame that so many of us are suffering like this. Do you ever get relief from thepain? Do you take any meds or anything to help it? How long has.... Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates. Quote
Guest guest Posted December 2, 2006 Report Posted December 2, 2006 I have a hard time trying to do 12's. You might have to go down to 8's. Under the american disability act you should be able to get your shifts adjusted to accomadate your disease. Also...you need to file it with your company as a disability. The hsopital I used to work for had you fill out papers if you have a disease that might cause numerous absences and they don't count against you. It is only considered as one offense even if you have to call in 20 times, if it is because of the MS, you can't be penalized. 'Amber Gindhart wrote: It's been a year...it was 8mos. before they got my pain under control...it got really bad all of sudden two weeks ago. This will be my third night off this week...I'm a nurse...these are 12hr. shifts...that's my whole week. When I take time off it's crazy bad! My coworkers sent me a bouqet of flowers...they're so pretty! Hope they invent a magic pill for all of us! Amber Re: Cassyhey amber.well I take 1600 mg. Of neurontin,60 mg. Of baclofen,just finished a medrol steroid taper pack,and vicodin.they tried givn me cymbalta but im having difficulty with the insurance company.some days I get more relief than others but for the most part every day is excruciating pain.my doc allows me 4 vicodin a day.just the regular strengh and ive been taking them a few yrs. So it dosnt work like it use to.I am going to see him about this.I go to have a cervical spine mri with contrast on tuesday.Im very nervous.that theyll find something bad,or even worse nothing at all.what is your pain like?do you have pain?sorry if I asked already.lol. bad memory.do you have numbness?hugs, cassy[amber_faith_ rnyahoo (DOT) com] wrote:Cassy,Thank you so much for telling me about your difficulties, too. It's a shame that so many of us are suffering like this. Do you ever get relief from thepain? Do you take any meds or anything to help it? How long has.... Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates. Any questions? Get answers on any topic at Yahoo! Answers. Try it now. Quote
Guest guest Posted December 2, 2006 Report Posted December 2, 2006 I have a hard time trying to do 12's. You might have to go down to 8's. Under the american disability act you should be able to get your shifts adjusted to accomadate your disease. Also...you need to file it with your company as a disability. The hsopital I used to work for had you fill out papers if you have a disease that might cause numerous absences and they don't count against you. It is only considered as one offense even if you have to call in 20 times, if it is because of the MS, you can't be penalized. 'Amber Gindhart wrote: It's been a year...it was 8mos. before they got my pain under control...it got really bad all of sudden two weeks ago. This will be my third night off this week...I'm a nurse...these are 12hr. shifts...that's my whole week. When I take time off it's crazy bad! My coworkers sent me a bouqet of flowers...they're so pretty! Hope they invent a magic pill for all of us! Amber Re: Cassyhey amber.well I take 1600 mg. Of neurontin,60 mg. Of baclofen,just finished a medrol steroid taper pack,and vicodin.they tried givn me cymbalta but im having difficulty with the insurance company.some days I get more relief than others but for the most part every day is excruciating pain.my doc allows me 4 vicodin a day.just the regular strengh and ive been taking them a few yrs. So it dosnt work like it use to.I am going to see him about this.I go to have a cervical spine mri with contrast on tuesday.Im very nervous.that theyll find something bad,or even worse nothing at all.what is your pain like?do you have pain?sorry if I asked already.lol. bad memory.do you have numbness?hugs, cassy[amber_faith_ rnyahoo (DOT) com] wrote:Cassy,Thank you so much for telling me about your difficulties, too. It's a shame that so many of us are suffering like this. Do you ever get relief from thepain? Do you take any meds or anything to help it? How long has.... Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates. Any questions? Get answers on any topic at Yahoo! Answers. Try it now. Quote
Guest guest Posted December 3, 2006 Report Posted December 3, 2006 , Thank you so much...this is great information. I'm definitely going to look into this. My hospital is fantastic with their staff, that's why it's so hard to get a job there. I'll talk to HR tomorrow. Thanks, Amber Re: Cassyhey amber.well I take 1600 mg. Of neurontin,60 mg. Of baclofen,just finished a medrol steroid taper pack,and vicodin.they tried givn me cymbalta but im having difficulty with the insurance company.some days I get more relief than others but for the most part every day is excruciating pain.my doc allows me 4 vicodin a day.just the regular strengh and ive been taking them a few yrs. So it dosnt work like it use to.I am going to see him about this.I go to have a cervical spine mri with contrast on tuesday.Im very nervous.that theyll find something bad,or even worse nothing at all.what is your pain like?do you have pain?sorry if I asked already.lol. bad memory.do you have numbness?hugs, cassy[amber_faith_ rnyahoo (DOT) com] wrote:Cassy,Thank you so much for telling me about your difficulties, too. It's a shame that so many of us are suffering like this. Do you ever get relief from thepain? Do you take any meds or anything to help it? How long has.... Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates. Any questions? Get answers on any topic at Yahoo! Answers. Try it now. Any questions? Get answers on any topic at Yahoo! Answers. Try it now. Quote
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