Re: Kathy on survey question

[Guest guest]

Thanks Kathy, I really need to get my papers off to Bruce Cohen like my Dr.

keeps telling me if he is interested in these connections. Thank you for

taking the time to share with me. It helps. S.

survey

>> >Date: Monday, April 27, 1998 1:00 PM

>> >

>> >I was wondering if all families with any AD(H)D in any family member had

>> >the same mito suspected or confirmed disorder(s). I was thinking we

>could

>> >take a survey on here and find out. If those with AD(H)D in their

>families

>> >would respond I would appreciate it.

>> >

>> >Also, many mito disorders affect the brain, but different mito disorders

>> >seem to affect the brain in different ways. I was wondering (going on

>the

>> >premise that AD(H)D IS a mito disorder) exactly how it is affecting

>those

>> >patients brains. I understand that there is a variance in which cells

>and

>> >how many get affected and to what degree, but obviously it seems to me

>that

>> >there still seem to be at least loose categories of brain involvement.

>And

>> >also some problems are structural as in areas of the brain actually

>being

>> >destroyed (Leigh's and Alzheimer's), while others are chemical (problems

>> >with hormones, blood sugar and oxygen levels).

>> >It seems to me that we know that the low levels of chemicals eventually

>> >destroy brain cells? It has been proven that AD(H)D patients have low

>> >levels of glucose and oxygen to the brain (at the least-certain areas)

>and

>> >it is known that families with AD(H)D in them generally also have

>> >Alzheimer's patients. The mito specialists are surmizing that the

>> >Alzheimer's patients are those who have undiagnosed/untreated milder

>forms

>> >of some mito disorder. They also think AD(H)D is a milder form of some

>mito

>> >disorder. If families with AD(H)D could have a diagnosis of exactly what

>> >the defect is causing their problem then maybe thru treatment they could

>> >prevent the brain deterioration/cell destruction that leads to some of

>them

>> >being diagnosed with Alzheimer's in late life.

>> >Are AD(H)D patients brains not able to get proper glucose and oxygen

>> >because of a problem with the brain cells themselves or just not getting

>> >them because of problems elsewhere in the body? I remember when I did

>get

>> >the glucose and oxygen my brain was able to function fine some years

>ago,

>> >but I wonder how much actual structural damage has or is happening now

>as

>> >more and more time goes by with improper amts so that I may end up like

>> >other family members with Alzheimer's. Scarey thought.

>> >If we could determine WHICH mito disorder these patients have they could

>be

>> >treated more rationally. I just think if we did the survey on here and

>> >happened to come up with a majority of AD(H)D families with the same or

>> >very similar disorder(s) we might get a clue.

>> >Hopeful shot in the dark but worth a try to me. S.

>> >

>> >

>> >------------------------------------------------------------------------

>> >Looking for a new hobby? Want to make a new friend?

>> >http://www.ONElist.com

>> >Come join one of the 130,000 e-mail communities at ONElist!

>> >------------------------------------------------------------------------

>> >Brought to you by www.imdn.org - an on-line support group for those

>> affected by mitochondrial disease.

>> >

>>

>>

>> ------------------------------------------------------------------------

>> New hobbies? New curiosities? New enthusiasms?

>> http://www.ONElist.com

>> Sign up for a new e-mail list today!

>> ------------------------------------------------------------------------

>> Brought to you by www.imdn.org - an on-line support group for those

>affected by mitochondrial disease.

>

>

>------------------------------------------------------------------------

>G-Shock Sports Watch ** NOW JUST $59.95 ** SHIPPING INCLUDED

>Built Tough, Built Cool! Full of Features! Electro Luminescent, Alarm

>1/100th of Second Stopwatch, 12/24 Hour, Great for Sports, and more!

> http://www.onelist.com/ad/shoptheglobe11

>------------------------------------------------------------------------

>Brought to you by www.imdn.org - an on-line support group for those

affected by mitochondrial disease.

>

[Guest guest]

Thanks Kathy, I really need to get my papers off to Bruce Cohen like my Dr.

keeps telling me if he is interested in these connections. Thank you for

taking the time to share with me. It helps. S.

survey

>> >Date: Monday, April 27, 1998 1:00 PM

>> >

>> >I was wondering if all families with any AD(H)D in any family member had

>> >the same mito suspected or confirmed disorder(s). I was thinking we

>could

>> >take a survey on here and find out. If those with AD(H)D in their

>families

>> >would respond I would appreciate it.

>> >

>> >Also, many mito disorders affect the brain, but different mito disorders

>> >seem to affect the brain in different ways. I was wondering (going on

>the

>> >premise that AD(H)D IS a mito disorder) exactly how it is affecting

>those

>> >patients brains. I understand that there is a variance in which cells

>and

>> >how many get affected and to what degree, but obviously it seems to me

>that

>> >there still seem to be at least loose categories of brain involvement.

>And

>> >also some problems are structural as in areas of the brain actually

>being

>> >destroyed (Leigh's and Alzheimer's), while others are chemical (problems

>> >with hormones, blood sugar and oxygen levels).

>> >It seems to me that we know that the low levels of chemicals eventually

>> >destroy brain cells? It has been proven that AD(H)D patients have low

>> >levels of glucose and oxygen to the brain (at the least-certain areas)

>and

>> >it is known that families with AD(H)D in them generally also have

>> >Alzheimer's patients. The mito specialists are surmizing that the

>> >Alzheimer's patients are those who have undiagnosed/untreated milder

>forms

>> >of some mito disorder. They also think AD(H)D is a milder form of some

>mito

>> >disorder. If families with AD(H)D could have a diagnosis of exactly what

>> >the defect is causing their problem then maybe thru treatment they could

>> >prevent the brain deterioration/cell destruction that leads to some of

>them

>> >being diagnosed with Alzheimer's in late life.

>> >Are AD(H)D patients brains not able to get proper glucose and oxygen

>> >because of a problem with the brain cells themselves or just not getting

>> >them because of problems elsewhere in the body? I remember when I did

>get

>> >the glucose and oxygen my brain was able to function fine some years

>ago,

>> >but I wonder how much actual structural damage has or is happening now

>as

>> >more and more time goes by with improper amts so that I may end up like

>> >other family members with Alzheimer's. Scarey thought.

>> >If we could determine WHICH mito disorder these patients have they could

>be

>> >treated more rationally. I just think if we did the survey on here and

>> >happened to come up with a majority of AD(H)D families with the same or

>> >very similar disorder(s) we might get a clue.

>> >Hopeful shot in the dark but worth a try to me. S.

>> >

>> >

>> >------------------------------------------------------------------------

>> >Looking for a new hobby? Want to make a new friend?

>> >http://www.ONElist.com

>> >Come join one of the 130,000 e-mail communities at ONElist!

>> >------------------------------------------------------------------------

>> >Brought to you by www.imdn.org - an on-line support group for those

>> affected by mitochondrial disease.

>> >

>>

>>

>> ------------------------------------------------------------------------

>> New hobbies? New curiosities? New enthusiasms?

>> http://www.ONElist.com

>> Sign up for a new e-mail list today!

>> ------------------------------------------------------------------------

>> Brought to you by www.imdn.org - an on-line support group for those

>affected by mitochondrial disease.

>

>

>------------------------------------------------------------------------

>G-Shock Sports Watch ** NOW JUST $59.95 ** SHIPPING INCLUDED

>Built Tough, Built Cool! Full of Features! Electro Luminescent, Alarm

>1/100th of Second Stopwatch, 12/24 Hour, Great for Sports, and more!

> http://www.onelist.com/ad/shoptheglobe11

>------------------------------------------------------------------------

>Brought to you by www.imdn.org - an on-line support group for those

affected by mitochondrial disease.

>

[Guest guest]

Kathy, I might be confused here but trying to piece things together. I think

I just saw another of your older posts which mentioned Bart's allergies were

soy and wheat etc. Does he have PDHC def. or do you know yet? Which Dr. did

he go to? Does he take lipoic acid? Does the Dr. he goes to or went to think

autism is a more severe form of ADHD? Or that ADHD is also a mito disorder?

I am trying to get my papers to Dr. Cohen as someone on here mentioned he is

interested in what he sees as a correlation between autism and mito. Am in

hopes he will be helpful with us.

S.

survey

>> >Date: Monday, April 27, 1998 1:00 PM

>> >

>> >I was wondering if all families with any AD(H)D in any family member had

>> >the same mito suspected or confirmed disorder(s). I was thinking we

>could

>> >take a survey on here and find out. If those with AD(H)D in their

>families

>> >would respond I would appreciate it.

>> >

>> >Also, many mito disorders affect the brain, but different mito disorders

>> >seem to affect the brain in different ways. I was wondering (going on

>the

>> >premise that AD(H)D IS a mito disorder) exactly how it is affecting

>those

>> >patients brains. I understand that there is a variance in which cells

>and

>> >how many get affected and to what degree, but obviously it seems to me

>that

>> >there still seem to be at least loose categories of brain involvement.

>And

>> >also some problems are structural as in areas of the brain actually

>being

>> >destroyed (Leigh's and Alzheimer's), while others are chemical (problems

>> >with hormones, blood sugar and oxygen levels).

>> >It seems to me that we know that the low levels of chemicals eventually

>> >destroy brain cells? It has been proven that AD(H)D patients have low

>> >levels of glucose and oxygen to the brain (at the least-certain areas)

>and

>> >it is known that families with AD(H)D in them generally also have

>> >Alzheimer's patients. The mito specialists are surmizing that the

>> >Alzheimer's patients are those who have undiagnosed/untreated milder

>forms

>> >of some mito disorder. They also think AD(H)D is a milder form of some

>mito

>> >disorder. If families with AD(H)D could have a diagnosis of exactly what

>> >the defect is causing their problem then maybe thru treatment they could

>> >prevent the brain deterioration/cell destruction that leads to some of

>them

>> >being diagnosed with Alzheimer's in late life.

>> >Are AD(H)D patients brains not able to get proper glucose and oxygen

>> >because of a problem with the brain cells themselves or just not getting

>> >them because of problems elsewhere in the body? I remember when I did

>get

>> >the glucose and oxygen my brain was able to function fine some years

>ago,

>> >but I wonder how much actual structural damage has or is happening now

>as

>> >more and more time goes by with improper amts so that I may end up like

>> >other family members with Alzheimer's. Scarey thought.

>> >If we could determine WHICH mito disorder these patients have they could

>be

>> >treated more rationally. I just think if we did the survey on here and

>> >happened to come up with a majority of AD(H)D families with the same or

>> >very similar disorder(s) we might get a clue.

>> >Hopeful shot in the dark but worth a try to me. S.

>> >

>> >

>> >------------------------------------------------------------------------

>> >Looking for a new hobby? Want to make a new friend?

>> >http://www.ONElist.com

>> >Come join one of the 130,000 e-mail communities at ONElist!

>> >------------------------------------------------------------------------

>> >Brought to you by www.imdn.org - an on-line support group for those

>> affected by mitochondrial disease.

>> >

>>

>>

>> ------------------------------------------------------------------------

>> New hobbies? New curiosities? New enthusiasms?

>> http://www.ONElist.com

>> Sign up for a new e-mail list today!

>> ------------------------------------------------------------------------

>> Brought to you by www.imdn.org - an on-line support group for those

>affected by mitochondrial disease.

>

>

>------------------------------------------------------------------------

>G-Shock Sports Watch ** NOW JUST $59.95 ** SHIPPING INCLUDED

>Built Tough, Built Cool! Full of Features! Electro Luminescent, Alarm

>1/100th of Second Stopwatch, 12/24 Hour, Great for Sports, and more!

> http://www.onelist.com/ad/shoptheglobe11

>------------------------------------------------------------------------

>Brought to you by www.imdn.org - an on-line support group for those

affected by mitochondrial disease.

>

[Guest guest]

Kathy, I might be confused here but trying to piece things together. I think

I just saw another of your older posts which mentioned Bart's allergies were

soy and wheat etc. Does he have PDHC def. or do you know yet? Which Dr. did

he go to? Does he take lipoic acid? Does the Dr. he goes to or went to think

autism is a more severe form of ADHD? Or that ADHD is also a mito disorder?

I am trying to get my papers to Dr. Cohen as someone on here mentioned he is

interested in what he sees as a correlation between autism and mito. Am in

hopes he will be helpful with us.

S.

survey

>> >Date: Monday, April 27, 1998 1:00 PM

>> >

>> >I was wondering if all families with any AD(H)D in any family member had

>> >the same mito suspected or confirmed disorder(s). I was thinking we

>could

>> >take a survey on here and find out. If those with AD(H)D in their

>families

>> >would respond I would appreciate it.

>> >

>> >Also, many mito disorders affect the brain, but different mito disorders

>> >seem to affect the brain in different ways. I was wondering (going on

>the

>> >premise that AD(H)D IS a mito disorder) exactly how it is affecting

>those

>> >patients brains. I understand that there is a variance in which cells

>and

>> >how many get affected and to what degree, but obviously it seems to me

>that

>> >there still seem to be at least loose categories of brain involvement.

>And

>> >also some problems are structural as in areas of the brain actually

>being

>> >destroyed (Leigh's and Alzheimer's), while others are chemical (problems

>> >with hormones, blood sugar and oxygen levels).

>> >It seems to me that we know that the low levels of chemicals eventually

>> >destroy brain cells? It has been proven that AD(H)D patients have low

>> >levels of glucose and oxygen to the brain (at the least-certain areas)

>and

>> >it is known that families with AD(H)D in them generally also have

>> >Alzheimer's patients. The mito specialists are surmizing that the

>> >Alzheimer's patients are those who have undiagnosed/untreated milder

>forms

>> >of some mito disorder. They also think AD(H)D is a milder form of some

>mito

>> >disorder. If families with AD(H)D could have a diagnosis of exactly what

>> >the defect is causing their problem then maybe thru treatment they could

>> >prevent the brain deterioration/cell destruction that leads to some of

>them

>> >being diagnosed with Alzheimer's in late life.

>> >Are AD(H)D patients brains not able to get proper glucose and oxygen

>> >because of a problem with the brain cells themselves or just not getting

>> >them because of problems elsewhere in the body? I remember when I did

>get

>> >the glucose and oxygen my brain was able to function fine some years

>ago,

>> >but I wonder how much actual structural damage has or is happening now

>as

>> >more and more time goes by with improper amts so that I may end up like

>> >other family members with Alzheimer's. Scarey thought.

>> >If we could determine WHICH mito disorder these patients have they could

>be

>> >treated more rationally. I just think if we did the survey on here and

>> >happened to come up with a majority of AD(H)D families with the same or

>> >very similar disorder(s) we might get a clue.

>> >Hopeful shot in the dark but worth a try to me. S.

>> >

>> >

>> >------------------------------------------------------------------------

>> >Looking for a new hobby? Want to make a new friend?

>> >http://www.ONElist.com

>> >Come join one of the 130,000 e-mail communities at ONElist!

>> >------------------------------------------------------------------------

>> >Brought to you by www.imdn.org - an on-line support group for those

>> affected by mitochondrial disease.

>> >

>>

>>

>> ------------------------------------------------------------------------

>> New hobbies? New curiosities? New enthusiasms?

>> http://www.ONElist.com

>> Sign up for a new e-mail list today!

>> ------------------------------------------------------------------------

>> Brought to you by www.imdn.org - an on-line support group for those

>affected by mitochondrial disease.

>

>

>------------------------------------------------------------------------

>G-Shock Sports Watch ** NOW JUST $59.95 ** SHIPPING INCLUDED

>Built Tough, Built Cool! Full of Features! Electro Luminescent, Alarm

>1/100th of Second Stopwatch, 12/24 Hour, Great for Sports, and more!

> http://www.onelist.com/ad/shoptheglobe11

>------------------------------------------------------------------------

>Brought to you by www.imdn.org - an on-line support group for those

affected by mitochondrial disease.

>

[Guest guest]

, Dr. thinks Bart has pyruvate dehydrogenase and latate acidosis is

the clue. But she asks me if I can handle hearing if he gets diagnosed

with a more complex mito disorder. I told her- yes I can- I already belong

to a great support group on the internet. Dr. in fact wants to prove that

a subgroup of autistic patients cause for autism is mito. And being on

this list, so many things seem to fit his symptoms and medical history that

I think he does have this. Also because vitiman cocktail is working and he

is improving in many ways, including lowering the lactate acid levels in

only 3-4 months. Kathy

----------

>

> To: Mitoonelist

> Subject: Kathy on survey question

> Date: Monday, April 27, 1998 8:48 PM

>

>

>

> Thanks Kathy.

> I was wondering what you or they suspect he MIGHT have in the way of a

> mito-does anyone even guess what particular mito disorder he may have, do

> you think he has mito, do any of the Dr.s think so?

> I can't remember if you have other children and do they have mito

suspected

> or diagnosed?

> S.

>

> survey

> >Date: Monday, April 27, 1998 1:00 PM

> >

> >I was wondering if all families with any AD(H)D in any family member had

> >the same mito suspected or confirmed disorder(s). I was thinking we

could

> >take a survey on here and find out. If those with AD(H)D in their

families

> >would respond I would appreciate it.

> >

> >Also, many mito disorders affect the brain, but different mito disorders

> >seem to affect the brain in different ways. I was wondering (going on

the

> >premise that AD(H)D IS a mito disorder) exactly how it is affecting

those

> >patients brains. I understand that there is a variance in which cells

and

> >how many get affected and to what degree, but obviously it seems to me

that

> >there still seem to be at least loose categories of brain involvement.

And

> >also some problems are structural as in areas of the brain actually

being

> >destroyed (Leigh's and Alzheimer's), while others are chemical (problems

> >with hormones, blood sugar and oxygen levels).

> >It seems to me that we know that the low levels of chemicals eventually

> >destroy brain cells? It has been proven that AD(H)D patients have low

> >levels of glucose and oxygen to the brain (at the least-certain areas)

and

> >it is known that families with AD(H)D in them generally also have

> >Alzheimer's patients. The mito specialists are surmizing that the

> >Alzheimer's patients are those who have undiagnosed/untreated milder

forms

> >of some mito disorder. They also think AD(H)D is a milder form of some

mito

> >disorder. If families with AD(H)D could have a diagnosis of exactly what

> >the defect is causing their problem then maybe thru treatment they could

> >prevent the brain deterioration/cell destruction that leads to some of

them

> >being diagnosed with Alzheimer's in late life.

> >Are AD(H)D patients brains not able to get proper glucose and oxygen

> >because of a problem with the brain cells themselves or just not getting

> >them because of problems elsewhere in the body? I remember when I did

get

> >the glucose and oxygen my brain was able to function fine some years

ago,

> >but I wonder how much actual structural damage has or is happening now

as

> >more and more time goes by with improper amts so that I may end up like

> >other family members with Alzheimer's. Scarey thought.

> >If we could determine WHICH mito disorder these patients have they could

be

> >treated more rationally. I just think if we did the survey on here and

> >happened to come up with a majority of AD(H)D families with the same or

> >very similar disorder(s) we might get a clue.

> >Hopeful shot in the dark but worth a try to me. S.

> >

> >

> >------------------------------------------------------------------------

> >Looking for a new hobby? Want to make a new friend?

> >http://www.ONElist.com

> >Come join one of the 130,000 e-mail communities at ONElist!

> >------------------------------------------------------------------------

> >Brought to you by www.imdn.org - an on-line support group for those

> affected by mitochondrial disease.

> >

>

>

> ------------------------------------------------------------------------

> New hobbies? New curiosities? New enthusiasms?

> http://www.ONElist.com

> Sign up for a new e-mail list today!

> ------------------------------------------------------------------------

> Brought to you by www.imdn.org - an on-line support group for those

affected by mitochondrial disease.

[Guest guest]

Hi , Bart does not have known allergies to wheat and soy...Not yet

tested for pyruvate dehydrogenase as yet. Is diagnosed with autism

spectrum disorder. He is not on lipoic acid. However he is on and

responding quite nicely to the vitamin cocktail. we go to a developmental

pediatrician whom is also a genetcist. I never asked her if ADHD could

also be mito. But we did just chat about that if Bart gets diagnosed than

she would like to genetic counsel us and ask about my health, my dausgter

and mother and sister. She mentioned that people with migraines could have

mito if it runs in the family and I said my doughter gets them. Then she

asked if I ever saw ADD behavior in her. When she was younger was my

answer. So I am guessing that mito can come in milder forms in other

people in the family. Dr.'s I understand that are interested in this

link are Dr. Kelley at Kennedy Kreiger in Baltimore and Dr. Di Mauro at

Columbia U in NY city. Not sure about Dr. Cohen. Hope this helps. Kathy

F.

----------

>

> To: Mitoonelist

> Subject: Re: Kathy on survey question

> Date: Thursday, May 14, 1998 2:23 AM

>

>

>

> Kathy, I might be confused here but trying to piece things together. I

think

> I just saw another of your older posts which mentioned Bart's allergies

were

> soy and wheat etc. Does he have PDHC def. or do you know yet? Which Dr.

did

> he go to? Does he take lipoic acid? Does the Dr. he goes to or went to

think

> autism is a more severe form of ADHD? Or that ADHD is also a mito

disorder?

> I am trying to get my papers to Dr. Cohen as someone on here mentioned he

is

> interested in what he sees as a correlation between autism and mito. Am

in

> hopes he will be helpful with us.

> S.

>

> survey

> >> >Date: Monday, April 27, 1998 1:00 PM

> >> >

> >> >I was wondering if all families with any AD(H)D in any family member

had

> >> >the same mito suspected or confirmed disorder(s). I was thinking we

> >could

> >> >take a survey on here and find out. If those with AD(H)D in their

> >families

> >> >would respond I would appreciate it.

> >> >

> >> >Also, many mito disorders affect the brain, but different mito

disorders

> >> >seem to affect the brain in different ways. I was wondering (going on

> >the

> >> >premise that AD(H)D IS a mito disorder) exactly how it is affecting

> >those

> >> >patients brains. I understand that there is a variance in which cells

> >and

> >> >how many get affected and to what degree, but obviously it seems to

me

> >that

> >> >there still seem to be at least loose categories of brain

involvement.

> >And

> >> >also some problems are structural as in areas of the brain actually

> >being

> >> >destroyed (Leigh's and Alzheimer's), while others are chemical

(problems

> >> >with hormones, blood sugar and oxygen levels).

> >> >It seems to me that we know that the low levels of chemicals

eventually

> >> >destroy brain cells? It has been proven that AD(H)D patients have low

> >> >levels of glucose and oxygen to the brain (at the least-certain

areas)

> >and

> >> >it is known that families with AD(H)D in them generally also have

> >> >Alzheimer's patients. The mito specialists are surmizing that the

> >> >Alzheimer's patients are those who have undiagnosed/untreated milder

> >forms

> >> >of some mito disorder. They also think AD(H)D is a milder form of

some

> >mito

> >> >disorder. If families with AD(H)D could have a diagnosis of exactly

what

> >> >the defect is causing their problem then maybe thru treatment they

could

> >> >prevent the brain deterioration/cell destruction that leads to some

of

> >them

> >> >being diagnosed with Alzheimer's in late life.

> >> >Are AD(H)D patients brains not able to get proper glucose and oxygen

> >> >because of a problem with the brain cells themselves or just not

getting

> >> >them because of problems elsewhere in the body? I remember when I did

> >get

> >> >the glucose and oxygen my brain was able to function fine some years

> >ago,

> >> >but I wonder how much actual structural damage has or is happening

now

> >as

> >> >more and more time goes by with improper amts so that I may end up

like

> >> >other family members with Alzheimer's. Scarey thought.

> >> >If we could determine WHICH mito disorder these patients have they

could

> >be

> >> >treated more rationally. I just think if we did the survey on here

and

> >> >happened to come up with a majority of AD(H)D families with the same

or

> >> >very similar disorder(s) we might get a clue.

> >> >Hopeful shot in the dark but worth a try to me. S.

> >> >

> >> >

> >>

>------------------------------------------------------------------------

> >> >Looking for a new hobby? Want to make a new friend?

> >> >http://www.ONElist.com

> >> >Come join one of the 130,000 e-mail communities at ONElist!

> >>

>------------------------------------------------------------------------

> >> >Brought to you by www.imdn.org - an on-line support group for those

> >> affected by mitochondrial disease.

> >> >

> >>

> >>

> >>

------------------------------------------------------------------------

> >> New hobbies? New curiosities? New enthusiasms?

> >> http://www.ONElist.com

> >> Sign up for a new e-mail list today!

> >>

------------------------------------------------------------------------

> >> Brought to you by www.imdn.org - an on-line support group for those

> >affected by mitochondrial disease.

> >

> >

> >------------------------------------------------------------------------

> >G-Shock Sports Watch ** NOW JUST $59.95 ** SHIPPING INCLUDED

> >Built Tough, Built Cool! Full of Features! Electro Luminescent, Alarm

> >1/100th of Second Stopwatch, 12/24 Hour, Great for Sports, and more!

> > http://www.onelist.com/ad/shoptheglobe11

> >------------------------------------------------------------------------

> >Brought to you by www.imdn.org - an on-line support group for those

> affected by mitochondrial disease.

> >

>

>

> ------------------------------------------------------------------------

> With more than 14 million emails exchanged daily...

> http://www.onelist.com

> ...ONElist IS the place where the world talks!

> ------------------------------------------------------------------------

> Brought to you by www.imdn.org - an on-line support group for those

affected by mitochondrial disease.

[Guest guest]

Thanks Kathy, very tired tonight so can't write more. S.

survey

>> >> >Date: Monday, April 27, 1998 1:00 PM

>> >> >

>> >> >I was wondering if all families with any AD(H)D in any family member

>had

>> >> >the same mito suspected or confirmed disorder(s). I was thinking we

>> >could

>> >> >take a survey on here and find out. If those with AD(H)D in their

>> >families

>> >> >would respond I would appreciate it.

>> >> >

>> >> >Also, many mito disorders affect the brain, but different mito

>disorders

>> >> >seem to affect the brain in different ways. I was wondering (going on

>> >the

>> >> >premise that AD(H)D IS a mito disorder) exactly how it is affecting

>> >those

>> >> >patients brains. I understand that there is a variance in which cells

>> >and

>> >> >how many get affected and to what degree, but obviously it seems to

>me

>> >that

>> >> >there still seem to be at least loose categories of brain

>involvement.

>> >And

>> >> >also some problems are structural as in areas of the brain actually

>> >being

>> >> >destroyed (Leigh's and Alzheimer's), while others are chemical

>(problems

>> >> >with hormones, blood sugar and oxygen levels).

>> >> >It seems to me that we know that the low levels of chemicals

>eventually

>> >> >destroy brain cells? It has been proven that AD(H)D patients have low

>> >> >levels of glucose and oxygen to the brain (at the least-certain

>areas)

>> >and

>> >> >it is known that families with AD(H)D in them generally also have

>> >> >Alzheimer's patients. The mito specialists are surmizing that the

>> >> >Alzheimer's patients are those who have undiagnosed/untreated milder

>> >forms

>> >> >of some mito disorder. They also think AD(H)D is a milder form of

>some

>> >mito

>> >> >disorder. If families with AD(H)D could have a diagnosis of exactly

>what

>> >> >the defect is causing their problem then maybe thru treatment they

>could

>> >> >prevent the brain deterioration/cell destruction that leads to some

>of

>> >them

>> >> >being diagnosed with Alzheimer's in late life.

>> >> >Are AD(H)D patients brains not able to get proper glucose and oxygen

>> >> >because of a problem with the brain cells themselves or just not

>getting

>> >> >them because of problems elsewhere in the body? I remember when I did

>> >get

>> >> >the glucose and oxygen my brain was able to function fine some years

>> >ago,

>> >> >but I wonder how much actual structural damage has or is happening

>now

>> >as

>> >> >more and more time goes by with improper amts so that I may end up

>like

>> >> >other family members with Alzheimer's. Scarey thought.

>> >> >If we could determine WHICH mito disorder these patients have they

>could

>> >be

>> >> >treated more rationally. I just think if we did the survey on here

>and

>> >> >happened to come up with a majority of AD(H)D families with the same

>or

>> >> >very similar disorder(s) we might get a clue.

>> >> >Hopeful shot in the dark but worth a try to me. S.

>> >> >

>> >> >

>> >>

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