Re: Leah's story !(v. long)

[Guest guest]

That was beautiful! How lucky you are to have such a strong and wonderful daughter! Congratulations on being seizure and med free on the diet!

Kathy, mom to 2 1/2 and Cassidy 16 months, IS, SBH, Microcephaly, contemplating the keto diet

Leah's story !(v. long)>Dear All,> I have contributed very little to the list of late,which i regret,>but unfortunately i am constantly dragged down healthwise with frequent>severe headaches and 'hormonal problems'.>However God is good and He always brings along something to lift me out of>my despair, and i can never be 'down' for long!...in fact i see that i and>my family are incredibly blessed!>I would like to share one of those times with you all.> Yesterday my daughter Leah, who along with her sister is onschool>holidays, disappeared into her room and an hour later emerged having>completed her "story", in booklet form, complete with illustrations! Leah>turned 10 years old just this week, and has been on the keto diet since Feb>2000...> Here is her story.....>> A KETOGENIC LIFE CHANGE.>>Hi, I'm Leah and this is a book about how we fought my epilepsy and how the>ketogenic diet has changed my life.>> A HARD TIME.>>Quick get the ambulance!>I was 3 and I had epilepsy and febrile convulsions. They were not fun. Ihad>been born July the eleventh 1991. I was diagnosed with epilepsy when I was>3. My neurologist was doctor Rice. But since then I have been to>other neurololgists. My doctor now is Pridmore.Mum and Dad were>having a hard time because when me and my sister were born Mums>pelvis split and she had to be in a wheelchair for 9 months. We had a lady>come to help us. When Mum didn't need a wheelchair anymore she was still in>alot of pain and also had to deal with me having epilepsy.>> GROWING OLDER.>>I was growing older and I was going to school. That's when it got harderfor>me. I was having 100 seizures a day. I would have to have the teacher hold>my hand near roads and it would interrupt my work.My friends didn't>understand and they still didn't understand when i explained it to them.>Some kids teased me and i would get really upset.There were times when i>thought, i am sick of it..why can't i be like a normal kid.>>A HARD DECISION.>>My Mum had heard about a diet that helps control epilepsy on a program>called Good Medicine. She did research on it and asked me if I would go on>it.I wasn't quite sure but then I said yes. I was ready to face achallenge!>My Mum thought that God had performed a miracle by bringing the diet to her>attention and it was.>> A TRIP TO MELBOURNE.>>To start the diet we had to go to Melbourne but we weren't going to start>the diet on our first trip. Mum had to meet the dietition so that was fun.>Our friend came along too. I really liked her. I mean the dietician.Ireally>liked the markets a lot. I had to have an eeg while we were there.>> GOING TO HOSPITAL.>>We were going to Mebourne a second time to start the diet and my Dad and>sister were coming too. When we got there I was admitted to hospital and I>met Liz the hospital co-ordinator and the neurologist there. My bed wasnext>to a boy named . He had cancer and he was funloving and always triedto>scare me by going raaahh! I miss him alot. I vomited in the shower once. My>sister didn't want to leave me and she cried every time she had to leavethe>hospital.>> HOME AGAIN!>>I was really excited to be home! I was now on the diet and having someyummy>meals. I was having less seizures now.Mum was cranky because theneurologist>had just dumped her. Now she just gets all her help from the ketogenic>mailing list. It's good when me and the other kidscan write letters to each>other.>> OUR SUCCESS>> Well i was having 100 seizures a day and now i am having none. I'm offall>my medication. I feel great. Mum has worked really hard seeing she has her>own problems. The dietician in Melbourne is having a baby, and has retired,>so i now have a new one but i haven't met her yet.>> TOTALLY FREE.>>One day I will be totally free and won't need to be on the diet anymore.I'm>ten and the diet has changed my life knowing that I'm not the only one on>the diet and that i'm not the only one who has suffered.>>> THE END.>>By the time i had finished reading this i was awash with tears...tears that>released pent up emotions...and tears coz i saw again the miracle that is>taking place as my daughter is emerging from the grip of sz'z and>medication.>Hope you don't mind me sharing this......as the loved ones of these special>kids we can all relate to this in some way...> Jeanette, mum to Leah 10 yrs.>_________________________________________________________________________>Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.>>> "The Ketogenic Diet....a realistic treatment option, NOT just a lastresort!">> List is for parent to parent support only.> It is important to get medical advice from a professionalketo team!> Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe >>>>