Re: Seeking help for a poor little boy with food allergies and bad reflux

[Guest guest]

I have more then I want allergy babies. I found with so many foods listed that

there is one food that kicks everything off. Look for a formula that has no high

fructose corn syrup or make one up for a temporary trial period of 3-5 days.

Also consider looking at intestinal yeast over growth. It may also be advisable

to give him some bowel rest to try and get down the amount of gut inflammation.

If you find the right allergen the skin problem will most likely go away. Been

down this road and it was eggs that turned out to be a false negative.

 

Jackie Chase RD

Dillingham AK

Subject: Seeking help for a poor little boy with food allergies and bad

reflux

To: rd-usa

Date: Thursday, December 10, 2009, 11:56 PM

 

Hi,

I know there are a lot of you on this list serve with experience in food

allergies and sensitivities, GI issues and pediatric feeding problems, so I am

writing to you to seek help for this poor 23-month old boy.

This is my friend's son. He has bad eczma, has Neocate Junior as his only

nutrition source, can't sleep for more than two hours at a time, and requires

three adults to take care of him. Here are some information about his

conditions.

He has pretty bad eczema that requires topical steroids every 3-4 days, which is

an improvement since he stopped all other foods. He has seen GI doctors and

allergists, and was diagnosed with GERD and eosinophilic  esophagitis. His

blood allergy tests at 18 months showed that he is allergic to many, many foods

including rice, oatmeal, wheat, barley, all kinds of meat, all tested fruits and

vegetables. He always has a lot of gas throughout the day. He often becomes very

fussy and not willing to play, then gets better after a burp or passing gas. His

day is composed of repeated cycles of feeding, burping, getting fussy, passing

gas, and feeding again.

His medicines include:

cetirizine syrup twice a day

prevacid 30mg x2/day

Gastrocrome four times a day.

He is not gaining weight, and not willing to take more Neocate. His mom got

depression because of his condition. His parents are desperate. I don't have

much experience in these conditions, but I know with so many excellent

dietitians on this list serve, I have a good chance of finding someone that can

help him. So please chime in if you have any idea or resources that his parents

could try to improve his condition. Thank you so much!

Ruiwen Qin, MS, RD

____________ _________ _________ _________ _________ _________ _

好玩贺å¡ç­‰ä½ å‘，邮箱贺å¡å…¨æ–°ä¸Šçº¿ï¼

http://card. mail.cn.yahoo. com/

[Guest guest]

There is one more thing that may be an issue here. The clue may be all

this gas he has. Has the child been checked for a disaccharide

intolerance? People with lactose intolerance get gas and diarrhea. He

has a lot of gas from the sounds of it . Neocate is basically high

fructose syrup and amino acids etc. High fructose is fructose and

sucrose. See if his doctor will test him for disaccharide intolerance,

I believe it is a simple breath test. This does not remove the food

allergies but may stop his gas issues.

Jackie Chase RD

Dillingham AK

> I have more then I want allergy babies. I found with so many foods

> listed that there is one food that kicks everything off. Look for a

> formula that has no high fructose corn syrup or make one up for a

> temporary trial period of 3-5 days. Also consider looking at

> intestinal yeast over growth. It may also be advisable to give him

> some bowel rest to try and get down the amount of gut inflammation.

> If you find the right allergen the skin problem will most likely go

> away. Been down this road and it was eggs that turned out to be a

> false negative.

>

> Jackie Chase RD

> Dillingham AK

>

>

>

>

[Guest guest]

Jackie,

Thank you so much for your reply! I will forward your suggestions to the

parents.

I also have the impression that blood allergy tests are not 100% accurate.  I

have the feeling that maybe the boy's body is so inflammed that he appears to be

allergic to everything. But how could you sort out the false positives and false

negatives? Are skin tests more accurate? There was a period that the boy had

such bad eczema that it was hard to find a good skin area to test.

Ruiwen

--- 09å¹´12月11日，周五, Jackie Chase 写é“：

å‘件人: Jackie Chase

主题: Re: Seeking help for a poor little boy with food allergies and

bad reflux

收件人: rd-usa

日期: 2009å¹´12月11æ—¥,周五,上åˆ10:11

 

There is one more thing that may be an issue here. The clue may be all

this gas he has. Has the child been checked for a disaccharide

intolerance? People with lactose intolerance get gas and diarrhea. He

has a lot of gas from the sounds of it . Neocate is basically high

fructose syrup and amino acids etc. High fructose is fructose and

sucrose. See if his doctor will test him for disaccharide intolerance,

I believe it is a simple breath test. This does not remove the food

allergies but may stop his gas issues.

Jackie Chase RD

Dillingham AK

> I have more then I want allergy babies. I found with so many foods

> listed that there is one food that kicks everything off. Look for a

> formula that has no high fructose corn syrup or make one up for a

> temporary trial period of 3-5 days. Also consider looking at

> intestinal yeast over growth. It may also be advisable to give him

> some bowel rest to try and get down the amount of gut inflammation.

> If you find the right allergen the skin problem will most likely go

> away. Been down this road and it was eggs that turned out to be a

> false negative.

>

> Jackie Chase RD

> Dillingham AK

>

>

>

>

[Guest guest]

What happened with my worst case head to toe was after he had been clear for a

month they retested him and the number of foods he is allergic to dropped. That

said when he has a flare up many of the orginal foods give him grief. Until the

major source of inflamation is found he may react to everything be it a blood

test or skin testing. The Gold standard is still the elimination diet with

blinded food testing. Not easy and very time consuming. Good luck.

 

Jackie Chase RD

Dillingham Ak

Subject: Re: Seeking help for a poor little boy with food allergies and

bad reflux

To: rd-usa

Date: Saturday, December 12, 2009, 12:29 AM

 

Jackie,

Thank you so much for your reply! I will forward your suggestions to the

parents.

I also have the impression that blood allergy tests are not 100% accurate.  I

have the feeling that maybe the boy's body is so inflammed that he appears to be

allergic to everything. But how could you sort out the false positives and false

negatives? Are skin tests more accurate? There was a period that the boy had

such bad eczema that it was hard to find a good skin area to test.

Ruiwen

[Guest guest]

What about LEAP?http://www.nowleap.com

Just another suggestion, but results, if the whole protocol done correctly, can

be life-changing...

Jenna Becker, RD(909)731-9936

From: ruiwen qin <rwqinyahoo (DOT) com.cn>

Subject: Re: Seeking help for a poor little boy with food allergies and

bad reflux

To: rd-usayahoogroups (DOT) com

Date: Saturday, December 12, 2009, 12:29 AM

 

Jackie,

Thank you so much for your reply! I will forward your suggestions to the

parents.

I also have the impression that blood allergy tests are not 100% accurate.  I

have the feeling that maybe the boy's body is so inflammed that he appears to be

allergic to everything. But how could you sort out the false positives and false

negatives? Are skin tests more accurate? There was a period that the boy had

such bad eczema that it was hard to find a good skin area to test.

Ruiwen

[Guest guest]

Jenna,

Thank you for the suggestion. I wen to the website and watched the animation of

the MRT test. It looks very reasonable. I also googled the test and found that

the test has " a sensitivity of 94.5%, a specificity of 91.7%, and split sample

reproducibility consistently greater than 90% " , which is quite impressive.

But MRT detects food sensitivities using different pathways from allergic

reactions, how can it rule out " false positives " in blood allergy tests? If MRT

groups a food as " non-reactive " , does it mean that the person is not allergic to

the substance? Thank you so much!

Ruiwen

--- 09å¹´12月12日，周六, Jenna Becker 写é“：

å‘件人: Jenna Becker

主题: Re: Seeking help for a poor little boy with food allergies and

bad reflux

收件人: rd-usa

日期: 2009å¹´12月12æ—¥,周六,下åˆ1:34

 

What about LEAP?http://www.nowleap. com

Just another suggestion, but results, if the whole protocol done correctly, can

be life-changing. ..

Jenna Becker, RD(909)731-9936

From: ruiwen qin <rwqinyahoo (DOT) com.cn>

Subject: Re: Seeking help for a poor little boy with food allergies and

bad reflux

To: rd-usayahoogroups (DOT) com

Date: Saturday, December 12, 2009, 12:29 AM

è½

Jackie,

Thank you so much for your reply! I will forward your suggestions to the

parents.

I also have the impression that blood allergy tests are not 100% accurate.è½ I

have the feeling that maybe the boy's body is so inflammed that he appears to be

allergic to everything. But how could you sort out the false positives and false

negatives? Are skin tests more accurate? There was a period that the boy had

such bad eczema that it was hard to find a good skin area to test.

Ruiwen

[Guest guest]

Ruiwen,

Great question! I am still in the " training " process of becoming a CLT

(Certified LEAP Therapist) so I am sure cannot give you as detailed a response

as those RDs who have been " LEAPers " for some time. However, I do know that LEAP

tests Non-IgE mediated food and food-chemical hypersensitivity (including Type 3

and 4 hypersensitivity reactions). The process is called Mediator Release

Testing (MRT). While this test is wonderful, the most important part is

conducting the entire protocol correctly, which includes the elimination diet

following the results. That is the main reason I suggested it. Instead of doing

a " blind " elimination diet, as I recall being suggested, I figured this might be

an option to look into for a bit more efficacy. 

As I said, however, I am far from an " expert " in LEAP at this point (but am

learning daily;  and it is indeed fascinating and exciting) but do know that

there are several RDs who could provide you with much more info as well. I

believe a few are on this list-serve? 

If I can answer any other specific questions you have, I will indeed try. And I

can also help you get in contact with more of the " experts " if you so wish?

Thanks, and have a great Sunday!

Jenna Becker, RD (909)731-9936

From: ruiwen qin <rwqinyahoo (DOT) com.cn>

Subject: Re: Seeking help for a poor little boy with food allergies and

bad reflux

To: rd-usayahoogroups (DOT) com

Date: Saturday, December 12, 2009, 12:29 AM

è½

Jackie,

Thank you so much for your reply! I will forward your suggestions to the

parents.

I also have the impression that blood allergy tests are not 100% accurate.è½ I

have the feeling that maybe the boy's body is so inflammed that he appears to be

allergic to everything. But how could you sort out the false positives and false

negatives? Are skin tests more accurate? There was a period that the boy had

such bad eczema that it was hard to find a good skin area to test.

Ruiwen

[Guest guest]

I was cleaning my book shelves yesterday and found Mark Hyman MD's

 Ultranutrition. Is this similar to the LEAP program? He advocates a 7 day

elimination/detox diet with ultrabroth and ultrashakes.

________________________________

To: rd-usa

Sent: Sun, December 13, 2009 1:19:55 PM

Subject: Re: Seeking help for a poor little boy with food allergies and

bad reflux

 

Ruiwen,

Great question! I am still in the " training " process of becoming a CLT

(Certified LEAP Therapist) so I am sure cannot give you as detailed a response

as those RDs who have been " LEAPers " for some time. However, I do know that LEAP

tests Non-IgE mediated food and food-chemical hypersensitivity (including Type 3

and 4 hypersensitivity reactions). The process is called Mediator Release

Testing (MRT). While this test is wonderful, the most important part is

conducting the entire protocol correctly, which includes the elimination diet

following the results. That is the main reason I suggested it. Instead of doing

a " blind " elimination diet, as I recall being suggested, I figured this might be

an option to look into for a bit more efficacy. 

As I said, however, I am far from an " expert " in LEAP at this point (but am

learning daily;  and it is indeed fascinating and exciting) but do know that

there are several RDs who could provide you with much more info as well. I

believe a few are on this list-serve? 

If I can answer any other specific questions you have, I will indeed try. And I

can also help you get in contact with more of the " experts " if you so wish?

Thanks, and have a great Sunday!

Jenna Becker, RD (909)731-9936

From: ruiwen qin <rwqinyahoo (DOT) com.cn>

Subject: Re: Seeking help for a poor little boy with food allergies and

bad reflux

To: rd-usayahoogroups (DOT) com

Date: Saturday, December 12, 2009, 12:29 AM

è½

Jackie,

Thank you so much for your reply! I will forward your suggestions to the

parents.

I also have the impression that blood allergy tests are not 100% accurate.è½ I

have the feeling that maybe the boy's body is so inflammed that he appears to be

allergic to everything. But how could you sort out the false positives and false

negatives? Are skin tests more accurate? There was a period that the boy had

such bad eczema that it was hard to find a good skin area to test.

Ruiwen

[Guest guest]

There are always going to be false positives and false negatives in

any test done. It is the nature of the beast but it has come a long

way from where they started. This is a rapidly changing field and

unfortunately a rapidly expanding field. What are we learning is that

earlier introduction of solid foods may be good not bad for the

reduction of food allergies. That a little dirt and animal dander

helps the immune system. In the mean time we test for allergies in

children that may have poorly developed immune systems due to lack of

exposure.

Jackie Chase RD

Dillingham AK

> Jenna,

>

> Thank you for the suggestion. I wen to the website and watched the

> animation of the MRT test. It looks very reasonable. I also googled

> the test and found that the test has " a sensitivity of 94.5%, a

> specificity of 91.7%, and split sample reproducibility consistently

> greater than 90% " , which is quite impressive.

>

> But MRT detects food sensitivities using different pathways from

> allergic reactions, how can it rule out " false positives " in blood

> allergy tests? If MRT groups a food as " non-reactive " , does it mean

> that the person is not allergic to the substance? Thank you so much!

>

> Ruiwen

>

[Guest guest]

There are always going to be false positives and false negatives in

any test done. It is the nature of the beast but it has come a long

way from where they started. This is a rapidly changing field and

unfortunately a rapidly expanding field. What are we learning is that

earlier introduction of solid foods may be good not bad for the

reduction of food allergies. That a little dirt and animal dander

helps the immune system. In the mean time we test for allergies in

children that may have poorly developed immune systems due to lack of

exposure.

Jackie Chase RD

Dillingham AK

> Jenna,

>

> Thank you for the suggestion. I wen to the website and watched the

> animation of the MRT test. It looks very reasonable. I also googled

> the test and found that the test has " a sensitivity of 94.5%, a

> specificity of 91.7%, and split sample reproducibility consistently

> greater than 90% " , which is quite impressive.

>

> But MRT detects food sensitivities using different pathways from

> allergic reactions, how can it rule out " false positives " in blood

> allergy tests? If MRT groups a food as " non-reactive " , does it mean

> that the person is not allergic to the substance? Thank you so much!

>

> Ruiwen

>