RE: Speaking of thyrogen....

[Guest guest]

Marilyn Loeb wrote:

> ....(snip).....The last two times I used Thyrogen.

> I did this even though I do not feel completely

> confident that this was the best choice.

I am sure many feel this same way, that maybe Thyrogen isn't the best

choice but at the same time hypo hell can be pretty tough on some of us

too. It is a trade-off as far as are many things in medicine. Suffer

thru hypo hell to get the best scan possible or maybe still get an ok

scan by doing it the Thyrogen way and not have to deal with feeling

lousy, taking off from work and feeling worthless to your family for

several weeks. I think it's a choice many of us will have to make over

the years and the only ones who can really decide what is right for YOU

are you and your Dr. Hopefully more published studies will guide the

way to the right decision.

Marilyn Sherman

[Guest guest]

CMorais999@... wrote:

> I wrote them in the spirit of *true

> confusion*---that's what all those question marks indicate.

That's the problem! Thyrogen is just so...well...darn...confusing! And

it's no wonder we're all confused ...there simply hasn't been enough

evidence gathered on the subject (of course there was enough gathered

for the FDA to approve it, but maybe we are a tougher panel than the

FDA....these are our bodies afterall)!

Let's keep calmly discussing the Thyrogen issue...it's something that

will effect all of us at some point in this ongoing journey!

Marilyn

[Guest guest]

Carmen,

Since you apparently are worried, I, for one, did not find your

posting troubling at all. I viewed it as an honest inquiry, clearly

stated as such. I read nothing else into what you said. You do not

need to " clear your reputation " nor should you let the input of others

dampen your curiosity.

Have a nice holiday weekend.

Gail

dx1968,TT,pap. & foll. well differentiated, RAI, rad.neck

dissection, lung surgery, hashimoto, iodine resistant,

existing thyca nodules in lungs. Last surgery 1972

-- In Thyca@y..., CMorais999@a... wrote:

> Just to clear my reputation here, I want to reiterate the things I

> wrote in this thread:

>

> >I am not trying to be snide here

>

> >Again, I am not being snide. (honest!) I am asking humbly. :-\

>

> >Just really wondering (and honestly hoping I am not offending

> >anyone!)

>

> --Carmen

[Guest guest]

a,

I also have to say....poor poor , having to go that high. That is

awful. I can't imagine how she felt. was only required to go hypo for

4 weeks but we checked him at the 3rd week and he was somewhere around 165(I

don't remember exactly) This time I am going to have him checked after 2

weeks just so we don't have to prolong it. Thanks for you input.

Re: Speaking of thyrogen....

> As far as I know there are only two places in the country

>currently using Thyrogen for first scans, and even ablations -

>Memorial Sloan Kettering in NYC and MD in Texas.

> (Anyone know of any others?)

Yes. Mount Sinai Medical Center in NYC uses Thyrogen for first

scans. And according to another poster on this list, so does

Long Island Jewish Hospital. (Probably they are following Sloan

Kettering's lead.)

> My guess is that Genzyme would just love to have those better

>ratings on their web page, so if they're not there, it's because

>the jury just isn't in yet.

I don't think they're allowed to publish those results on their

website because of copyright law. The rights to the test results

belong to the researchers and to the medical journal that

published it.

(This is based on standard copyright laws in publishing.)

I don't know what to make of this whole Thyrogen vs hypo thing. If

MD and Memorial Sloan Kettering are both advocating

Thyrogen for first-time scans in some patients, doesn't that count

for something? I mean, they _are_ the number one and number

two cancer hospitals in the United States (according to US News

and World Report).

For as much as I may learn about thyca (thanks to all you

wonderful people!), I am still not a doctor and I guess at some

point you have to let the appropriately trained professionals

make the call, and I would consider doctors at those two

hospitals as eminently qualified.

Or am I being naive? :-/

--Carmen in nyc

garden variety pap thyca

1.6cm nodule, 6 positive lymph nodes

10/17/00 TT

11/22/00 RAI 100mCi

162mcg Synthroid and feelin' fine

For more information regarding thyroid cancer visit www.thyca.org. If you

do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank

email to thyca-unsubscribe

[Guest guest]

a,

I also have to say....poor poor , having to go that high. That is

awful. I can't imagine how she felt. was only required to go hypo for

4 weeks but we checked him at the 3rd week and he was somewhere around 165(I

don't remember exactly) This time I am going to have him checked after 2

weeks just so we don't have to prolong it. Thanks for you input.

Re: Speaking of thyrogen....

> As far as I know there are only two places in the country

>currently using Thyrogen for first scans, and even ablations -

>Memorial Sloan Kettering in NYC and MD in Texas.

> (Anyone know of any others?)

Yes. Mount Sinai Medical Center in NYC uses Thyrogen for first

scans. And according to another poster on this list, so does

Long Island Jewish Hospital. (Probably they are following Sloan

Kettering's lead.)

> My guess is that Genzyme would just love to have those better

>ratings on their web page, so if they're not there, it's because

>the jury just isn't in yet.

I don't think they're allowed to publish those results on their

website because of copyright law. The rights to the test results

belong to the researchers and to the medical journal that

published it.

(This is based on standard copyright laws in publishing.)

I don't know what to make of this whole Thyrogen vs hypo thing. If

MD and Memorial Sloan Kettering are both advocating

Thyrogen for first-time scans in some patients, doesn't that count

for something? I mean, they _are_ the number one and number

two cancer hospitals in the United States (according to US News

and World Report).

For as much as I may learn about thyca (thanks to all you

wonderful people!), I am still not a doctor and I guess at some

point you have to let the appropriately trained professionals

make the call, and I would consider doctors at those two

hospitals as eminently qualified.

Or am I being naive? :-/

--Carmen in nyc

garden variety pap thyca

1.6cm nodule, 6 positive lymph nodes

10/17/00 TT

11/22/00 RAI 100mCi

162mcg Synthroid and feelin' fine

For more information regarding thyroid cancer visit www.thyca.org. If you

do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank

email to thyca-unsubscribe