Re: (was) Cassy (now) seeking dx, family situations

[Guest guest]

Sharon,

I'm so disgusted with the whole thing. It was my OB/GYN that suggested it could be MS, when I was pg with . No one ever seemed concerned before that, even though I told the Drs. about my sx's. I went in about 8-10 yrs ago complaining of numbness and tingling in my arms and hands, and the NP blew me off, saying it was probably my weight and poor circulation. I lost 110 lbs, and the sx's were worse and I had more of them. I complained of fatigue, and was told that I probably had Mono, but was never tested. The sx's hit me hard in 2003, so I went back to the Dr., who dx'd me with pre-diabetes, and said my sx's were probably due to that and stress or depression. He sent me to psych, and referred me to a Rheumy to check for Lupus. All tests were negative, but my sed rate was high, but he didn't seem to care about that and my liver enzymes were off. (probably due to taking huge amounts of Tylenol, trying to make the pain go away.) The psych seemed to believe me, that my pain was REAL and had a physical cause, not psychogenic. She gave me relaxation CD's, and a booklet on dealing with chronic pain. I thought FINALLY someone believed me! I walked to the car, reading the booklet. I got to the car and the story was about a woman who had been injured and had severe pain. She had to have meds to control pain, and PT, until she got better. Then one day, her pain returned, and she couldn't focus on anything but the pain. No matter what the Dr. did, she didn't get better. Turns out, it was psychogenic in nature and not "real" after all. I was so pissed at this point, that I cancelled my next appt. from the parking lot with my cell phone and never went back. She was an old hippie type with beads, long gauze skirts, Birkenstocks, chanting CD's playing. Not, that I think that there's anything wrong with anyone who is similar to her, but "thinking that the pain is gone", didn't make it go away. I just get so frustrated with people who only see things one way. Like, if you are overweight, it MUST be your weight. Or if you are moody and irritable because of real pain and a female, it MUST be hormones. Good grief. I never brought up that I was a nurse. I did tell them, yes I take meds for depression/anxiety, that is well controlled. So, as soon as they hear that, It must be "in my head". Grrrrr. When my bladder was spasming during pregnancy, it MUST be pg. Even though, it's happening now, and I'm not pg. When I revealed that I was a nurse with a background in psych, then I

was someone who knew what sx's to have to get attention. I fired that Dr. I am limited to who I can see as far as specialists. There are 2 cities, north and south of us for me to go too. The city north, is not taking any more referrals now. So, I went south, and he pretty much blew me off. What I just don't understand is how everyone here can tell me that my sx's are like those with MS, yet the neuro scratches his head and says he's confused if I hand him a list of more than 3 sx's. (rolling my eyes) Could it be, that you don't necessarily have to see lesions, to indeed have MS? Could I be one of many that have told me, they did not have lesions showing, when they were in the early stages? Could there be another undiscovered cousin to MS, that is causing all my problems? It just seems that I've heard of so many people with the same sx's, who do not have a dx, due to no lesions on the MRI. How can they say there is no definitive test to dx, yet MUST see lesions on an MRI?

To answer your question, I started out with numbness/tingling and fatigue that just never went away, and as time has gone by, I've developed more sx's. They all come and go, but are never gone completely. Pregnancy seems to make my pain go away. I did have an increased burning skin sensation start while pg though. The severity of sx's changes. I can be better for a day, a week, then be so ill, I can't make it down the isles to go grocery shopping. I am only 35. My family remembers me, as the one they couldn't keep up with.

Now, I walk like an old lady, and need frequent naps to get through the day. More than you wanted to know I'm sure. LOL. I gotta go, my nap is calling. lol. Bye for now. Trista

erred ! HI EVERYONE

HI,MY NAME IS CASSY,AND I AM 25 YRS. OLD.I HAVE BEEN SICK FOR 3YRS.,BUT THIS PAST YEAR I HAVE BECOME DISABLED.I MAY HAVE MS,IHAVE HAD 2 BRAIN MRI'S THAT WERE NORMAL,SO NOW THEY ARE GOING TOLOOK AT MY SPINE.I AM VERY SICK,AND WOULD LOVE TOO TALK TO ANYONE WHO WOULD LIKE TOO SHARE INFO..

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