RE: frustrated

[Guest guest]

I used Bactrim for a UTI I got after sex - I didn't think it would be

a big deal, since I never had a problem with an antibiotic. The other

medication I was on was birth control pills. I think those 2 screwed

my body up and now I don't know why I can't get back to normal. I

think a lot of women on this list feel BC pills messed things up.

>

> > Only thing in my family is heart disease. I knew

> >that I was a completely normal person with no problems at all until

I

> >used the medications that doctors gave me.

> >Seema

>

> Why did the doctors give you medications if you did not have any

problems. Just

> curious.

>

> Ora

[Guest guest]

I used Bactrim for a UTI I got after sex - I didn't think it would be

a big deal, since I never had a problem with an antibiotic. The other

medication I was on was birth control pills. I think those 2 screwed

my body up and now I don't know why I can't get back to normal. I

think a lot of women on this list feel BC pills messed things up.

>

> > Only thing in my family is heart disease. I knew

> >that I was a completely normal person with no problems at all until

I

> >used the medications that doctors gave me.

> >Seema

>

> Why did the doctors give you medications if you did not have any

problems. Just

> curious.

>

> Ora

[Guest guest]

> Plus, I have other

>symptoms that a gyn ignores, like burning toes and fingers and psoas

>pain which I feel are all related. I guess I don't like treating the

>symptoms only to get more side effects from the treatments they have

>given me. Thanks.

>

>Seema

Have you checked out your manicure and pedicure products? Also do you keep your

fingernails and/or toenails too long? That can be painful. There could be a

clue there or perhaps it is a circulation problem.

Ora

[Guest guest]

> Plus, I have other

>symptoms that a gyn ignores, like burning toes and fingers and psoas

>pain which I feel are all related. I guess I don't like treating the

>symptoms only to get more side effects from the treatments they have

>given me. Thanks.

>

>Seema

Have you checked out your manicure and pedicure products? Also do you keep your

fingernails and/or toenails too long? That can be painful. There could be a

clue there or perhaps it is a circulation problem.

Ora

[Guest guest]

> Plus, I have other

>symptoms that a gyn ignores, like burning toes and fingers and psoas

>pain which I feel are all related. I guess I don't like treating the

>symptoms only to get more side effects from the treatments they have

>given me. Thanks.

>

>Seema

Have you checked out your manicure and pedicure products? Also do you keep your

fingernails and/or toenails too long? That can be painful. There could be a

clue there or perhaps it is a circulation problem.

Ora

[Guest guest]

It burns at the tip of the ring finger/middle toes - I don't use

anything on my nails (I guess I've let myself go since getting vv!).

My acupuncturist thought that the energy is blocked so that blood

can't reach my extremities - the skin never looks red/purple, so I

think it is a nerve. Although, I've been to the Mayo Clinic and they

ran an EMG on me and to my surprise, came back normal. Who knows!

> > Plus, I have other

> >symptoms that a gyn ignores, like burning toes and fingers and

psoas

> >pain which I feel are all related. I guess I don't like treating

the

> >symptoms only to get more side effects from the treatments they

have

> >given me. Thanks.

> >

> >Seema

>

>

> Have you checked out your manicure and pedicure products? Also do

you keep your

> fingernails and/or toenails too long? That can be painful. There

could be a

> clue there or perhaps it is a circulation problem.

>

> Ora

[Guest guest]

It burns at the tip of the ring finger/middle toes - I don't use

anything on my nails (I guess I've let myself go since getting vv!).

My acupuncturist thought that the energy is blocked so that blood

can't reach my extremities - the skin never looks red/purple, so I

think it is a nerve. Although, I've been to the Mayo Clinic and they

ran an EMG on me and to my surprise, came back normal. Who knows!

> > Plus, I have other

> >symptoms that a gyn ignores, like burning toes and fingers and

psoas

> >pain which I feel are all related. I guess I don't like treating

the

> >symptoms only to get more side effects from the treatments they

have

> >given me. Thanks.

> >

> >Seema

>

>

> Have you checked out your manicure and pedicure products? Also do

you keep your

> fingernails and/or toenails too long? That can be painful. There

could be a

> clue there or perhaps it is a circulation problem.

>

> Ora

[Guest guest]

It burns at the tip of the ring finger/middle toes - I don't use

anything on my nails (I guess I've let myself go since getting vv!).

My acupuncturist thought that the energy is blocked so that blood

can't reach my extremities - the skin never looks red/purple, so I

think it is a nerve. Although, I've been to the Mayo Clinic and they

ran an EMG on me and to my surprise, came back normal. Who knows!

> > Plus, I have other

> >symptoms that a gyn ignores, like burning toes and fingers and

psoas

> >pain which I feel are all related. I guess I don't like treating

the

> >symptoms only to get more side effects from the treatments they

have

> >given me. Thanks.

> >

> >Seema

>

>

> Have you checked out your manicure and pedicure products? Also do

you keep your

> fingernails and/or toenails too long? That can be painful. There

could be a

> clue there or perhaps it is a circulation problem.

>

> Ora

[Guest guest]

Seema...

Have you been checked for diabetes? (fingers and toes tingling can be

frm diabetes)

What about fibromyalgia?

Also..have you had a back injury or back pain? Possibly an MRI of

the back to see if you have a pinched nerve.

Lynn

[Guest guest]

Seema...

Have you been checked for diabetes? (fingers and toes tingling can be

frm diabetes)

What about fibromyalgia?

Also..have you had a back injury or back pain? Possibly an MRI of

the back to see if you have a pinched nerve.

Lynn

[Guest guest]

Seema...

Have you been checked for diabetes? (fingers and toes tingling can be

frm diabetes)

What about fibromyalgia?

Also..have you had a back injury or back pain? Possibly an MRI of

the back to see if you have a pinched nerve.

Lynn

[Guest guest]

what are your symptoms exactly?

Anja

Frustrated

> Dear everyone,

> I'm writing because I am really struggling with what to do. I've

> been so down because I don't see an end to this disease. My symptoms

> are vulvar vestibulitis, desquamative inflammatory, burning

> toes/fingers, pain in psoas muscle, as well as rectal burning on BMs.

> The only thing that helped with the pain was when I did hydrocortisone

> suppositories. Once I got off of them, the DIV came back. Here is a

> list of the treatments I have tried:

> Estrace (only partially helped and when tried to go off of it -

> just felt worse)

> Hydrocortisone (helped but tried to go off of it - got worse)

> Cleocin (helped the discharge, but same thing - came back when off

> of it)

> Acidophilus (no help)

> Aci-Jel/Multi-Gyn Gel (no help)

> Food allergy diet (did blood test - told me to avoid wheat and

> dairy - did this for 6 months, no relief)

> Low acid diet (no help)

> Climara patch (1 month, then stopped because I wasn't feeling

> better, so doctor told me to stop)

> Physical therapy (no help)

> Neurontin (no help)

> Emu oil/Vitamin E (no help)

> Castor oil packs (no help)

> Acupuncture/Chinese medicine (no help so far - been doing for 2

> months).

> Various homeopathics (no help)

> Procaine injections (no help)

>

> I don't know if anyone has any suggestions for things I can try -

> I am so horribly depressed. I've had this for 2 years, since I was 22

> (6 months after college). Wanted to do natural approach as I felt BC

> pill/antibiotic got me in this mess. I truly feel hopeless and have

> been crying constantly for the past few days. I live in Phoenix, AZ

> and have been to Dr. Gordon , Dr. Libby in North

> Carolina, and even went to Connecticut to see a naturopath who put me

> on that low acid diet. I am really tired of traveling out-of-state,

> feel like I can't do it anymore. Does anyone have any suggestions as

> to where I should go? I thought about Helena but when I talked to

> them, I did not get a good feeling. They were really into the food

> allergy theory - although I feel this has helped numerous women, I

> feel like I tried that diet for so long without any help. Also, they

> told me over the phone that I probably had a hernia - went to 3

> excellent docs here who said no hernia. They also seemed to suggest

> things that I've already tried - stool culture again - I did that, and

> it was a big waste of $. Also, as I said, I feel as if I can't travel

> anymore. I just don't know where to go - I realize a lot of us are in

> the same boat, so I'm not sure why I'm writing. I guess I just feel

> so depressed and I thought I would post my frustrations to people who

> can understand. Thanks.

>

> Seema

>

>

> *****END OF MESSAGE*****

> -------------------------------------------------

> Yahoo members can click on:

>

> http://groups.yahoo.com/group/VulvarDisorders

>

> On the left side is a listing including Links and

> Files . If you click on those you will find much additional

> information posted by our members.

>

> To post message: VulvarDisorders

> To Subscribe: VulvarDisorders-subscribe

> Unsubscribe: VulvarDisorders-unsubscribe

> List owner: VulvarDisorders-owner

>

> *****

[Guest guest]

what are your symptoms exactly?

Anja

Frustrated

> Dear everyone,

> I'm writing because I am really struggling with what to do. I've

> been so down because I don't see an end to this disease. My symptoms

> are vulvar vestibulitis, desquamative inflammatory, burning

> toes/fingers, pain in psoas muscle, as well as rectal burning on BMs.

> The only thing that helped with the pain was when I did hydrocortisone

> suppositories. Once I got off of them, the DIV came back. Here is a

> list of the treatments I have tried:

> Estrace (only partially helped and when tried to go off of it -

> just felt worse)

> Hydrocortisone (helped but tried to go off of it - got worse)

> Cleocin (helped the discharge, but same thing - came back when off

> of it)

> Acidophilus (no help)

> Aci-Jel/Multi-Gyn Gel (no help)

> Food allergy diet (did blood test - told me to avoid wheat and

> dairy - did this for 6 months, no relief)

> Low acid diet (no help)

> Climara patch (1 month, then stopped because I wasn't feeling

> better, so doctor told me to stop)

> Physical therapy (no help)

> Neurontin (no help)

> Emu oil/Vitamin E (no help)

> Castor oil packs (no help)

> Acupuncture/Chinese medicine (no help so far - been doing for 2

> months).

> Various homeopathics (no help)

> Procaine injections (no help)

>

> I don't know if anyone has any suggestions for things I can try -

> I am so horribly depressed. I've had this for 2 years, since I was 22

> (6 months after college). Wanted to do natural approach as I felt BC

> pill/antibiotic got me in this mess. I truly feel hopeless and have

> been crying constantly for the past few days. I live in Phoenix, AZ

> and have been to Dr. Gordon , Dr. Libby in North

> Carolina, and even went to Connecticut to see a naturopath who put me

> on that low acid diet. I am really tired of traveling out-of-state,

> feel like I can't do it anymore. Does anyone have any suggestions as

> to where I should go? I thought about Helena but when I talked to

> them, I did not get a good feeling. They were really into the food

> allergy theory - although I feel this has helped numerous women, I

> feel like I tried that diet for so long without any help. Also, they

> told me over the phone that I probably had a hernia - went to 3

> excellent docs here who said no hernia. They also seemed to suggest

> things that I've already tried - stool culture again - I did that, and

> it was a big waste of $. Also, as I said, I feel as if I can't travel

> anymore. I just don't know where to go - I realize a lot of us are in

> the same boat, so I'm not sure why I'm writing. I guess I just feel

> so depressed and I thought I would post my frustrations to people who

> can understand. Thanks.

>

> Seema

>

>

> *****END OF MESSAGE*****

> -------------------------------------------------

> Yahoo members can click on:

>

> http://groups.yahoo.com/group/VulvarDisorders

>

> On the left side is a listing including Links and

> Files . If you click on those you will find much additional

> information posted by our members.

>

> To post message: VulvarDisorders

> To Subscribe: VulvarDisorders-subscribe

> Unsubscribe: VulvarDisorders-unsubscribe

> List owner: VulvarDisorders-owner

>

> *****

[Guest guest]

any skin changes

Anja

[Guest guest]

Go to   www.abctohealth.com

and read their info about the Vickory protocol for curing/improving degenerative

disks.   Try their supplement programs.

I'm doing it and believe it helps.

Bernie

[Guest guest]

Looks interesting Bernie, thanks!

Do you know where I can find the ingredients for each of the products as I have

several sensitivities!

Thanks!

Robyn

re: frustrated

Go to www.abctohealth.com

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[Guest guest]

Hi Robyn,

I can empathise with you, the pain of a slipped can be intolerable

as I have seen it first-hand with Sandi...

http://health.groups.yahoo.com/group/mscured/message/30986

Sandi was bedridden and in serious pain for about 7 weeks (5 days

were spent back and forth from doctors, walk-in centre and the

hospital, followed by about 10 days at the hospital and then about 5

weeks in bed at home).

The doctors tried every medicine under the sun - paracetamol,

ibuprufen, codeine, diclofenac, diazepam, liquid morphine, zydol

injection, Fentanyl (morphine patches) etc etc.

The concoction of drugs made Sandi vomit, gave her dizzy spells and

constipation for which she was given a handful of other drugs.

At the end of the 5th week the MS consultant advised that he was

going to get her fast-tracked and ensure that an operation was done

on the slipped disc because the pain was not getting any better. At

this point Sandi was on 2 Fentanyl patches, codeine, paracetamol

constipation tabs and a couple of other meds I can't remember.

From a recommendation I had from another forum I decided to look

into the Egoscue Method - I was soon convinced it was worth a try.

Finding a practitioner here in the UK was the difficult part - I

contacted the Egoscue University in the USA and they gave me contact

details for practitioners in the UK.....The nearest was 100 miles

away.

I had to get the guy to come and see us, since it was impossible to

move Sandi. After an hour and a half of him assessing Sandi, making

her perform some stretchs/exercises (in pain) Sandi stood up

straight (first time in 5 weeks I saw her standing straight!). At

the time it felt like a miracle .....it may have only last about

five minutes but it was progress. For 7 days we performed the

exercises twice a day, then Sandi started to do them on her own

since she was beginning to get mobile again with less and less

pain.....Sandi was completely off the meds within two weeks. Since

then she still keeps up the exercises. We have been to see the

Egoscue practitioner a couple of times and he has now changed her

exercises and put Sandi on a programme to sort out the dysfunctions

in her posture slowly.

I would suggest you try to see an Egoscue Specialist - you could buy

the books (which is what I did first) but seeing a trained

specialist really is a must in my humble opinion.

What works for one person may not necessarily work for another, butI

hope it helps you.

Good luck,

Pinda

PS Send me an email if you need any other info.

>

> Just need to vent a little! When I was 4-1/2 months pregnant

(April, 2003) my L5-S1 disc herniated (this is the spinal area that

controls your legs). Anyway, never had back pain before that and

after the herniation the pain was intense. It has got worse over

the years to the point now that if I sit too long (other than in my

lazy boy) or stand too long, my back pinches up and I can't lift my

toes off the floor. When this happens I sit down with my chest to my

lap (kind of curled over) and within 30 seconds I can move my toes

again. I've been seeing an osteopath for 1-1/2 yrs and a

chiropractor since September but it just seems to be worsening.

Every time I go to the chiropractor I'm not straight (one leg longer

than the other) but usually straight when I leave. Unfortunately it

doesn't last. Not sure what else to do! Dr.'s won't take me

seriously because I have MS, although I do not believe this to be an

MS symptom and it, nor the pain, ever occurred prior to my disc

herniation!! My MD is the only one who thinks I need surgery,

although I don't want to take this route, its nice that one person

looks past the MS. Any suggestions are welcome!! I have a 4-year-old

that needs her mom!

>

> Oh yea, I was also told I had scoliosis at 17 and when I saw the

xrays of my back at 28, I nearly cried (I'm 31 now)!

>

>

>

>

[Guest guest]

I'd vouch for the Egoscue Method. I bought one of his books and, whilst I

can't do many of his exercises as I'm in a wheelchair, I have felt a

difference just doing the few I do.

Their website has international places in Japan and Mexico. Can't see any

mention of Europe. Can you give me a link? (I'm in Spain.)

Janet

----- Original Message -----

From: nagra101

Hi Robyn,

I can empathise with you, the pain of a slipped can be intolerable

as I have seen it first-hand with Sandi...

From a recommendation I had from another forum I decided to look

into the Egoscue Method - I was soon convinced it was worth a try.

Finding a practitioner here in the UK was the difficult part - I

contacted the Egoscue University in the USA and they gave me contact

details for practitioners in the UK.....The nearest was 100 miles

away.

> Just need to vent a little!

[Guest guest]

> as I said I was told on Wed 4th March '09 by the hospital urologist that

> I have prostate cancer. They made an appointment for me to have a biopsy

> on April 22 and have simply left it at that.

The *only* test that is diagnostic of prostate cancer (PCa) is the

biopsy. If someone told Mal that he has PCa notwithstanding that no

biopsy had been performed that person is, in my opinion, dangerous.

I do most sincerely hope that Mal will learn the true measure of his

case by consulting with people who know how to deal with it.

Here is the website of the Prostate Cancer Research Institute (PCRI):

http://prostate-cancer.org/index.html There, Mal can find reliable and

authoritative information. That, with the information available from Us

too, should provide Mal with the means to educate himself. And education

is the key to survival.

I hope that the GP has something in his background that will enable him

to give Mal competent information.

Regards,

Steve J

" Know that 9 out of 10 times, you have time to learn. Don't panic. You

may make a decision (or let another make it for you) from which there is

no return. Let the fear settle and your senses return. A cancer

diagnosis is not a death sentence. "

-- Young, PCa Mentor

Phoenix 5

[Guest guest]

> as I said I was told on Wed 4th March '09 by the hospital urologist that

> I have prostate cancer. They made an appointment for me to have a biopsy

> on April 22 and have simply left it at that.

The *only* test that is diagnostic of prostate cancer (PCa) is the

biopsy. If someone told Mal that he has PCa notwithstanding that no

biopsy had been performed that person is, in my opinion, dangerous.

I do most sincerely hope that Mal will learn the true measure of his

case by consulting with people who know how to deal with it.

Here is the website of the Prostate Cancer Research Institute (PCRI):

http://prostate-cancer.org/index.html There, Mal can find reliable and

authoritative information. That, with the information available from Us

too, should provide Mal with the means to educate himself. And education

is the key to survival.

I hope that the GP has something in his background that will enable him

to give Mal competent information.

Regards,

Steve J

" Know that 9 out of 10 times, you have time to learn. Don't panic. You

may make a decision (or let another make it for you) from which there is

no return. Let the fear settle and your senses return. A cancer

diagnosis is not a death sentence. "

-- Young, PCa Mentor

Phoenix 5

[Guest guest]

On March 8 (Oz time) Terry Herbert replied to me:

> With respect, Steve, a TURP can produce material that indicates the

> presence of PCa without a biopsy being performed.

BUT: a biopsy properly performed samples specimens from much more of the

gland.

Seems to me that a biopsy properly performed will develop data on the

nature and extent of any discovered PCa, wherever it might be situated

in the gland, unlike the TURP.

And we actually do not know that whatever was the procedure performed on

Mal, it actually was in fact a TURP. Let's wait for more -- and

reliable -- information.

> Mal, who lives in Queensland, Australia, told us (his post on March 7 #

> 22958 that he had a TURP and a biopsy and was due to have another biopsy

> next month.

With all due respect, Terry, Mal did not tell us that.

I do believe that Mal, who desperately needs reliable and authoritative

information, will most likely get it from the local folks, not us online.

Regards,

Steve J

>

>

>

>

>

> All the best

>

>

>

> Terry

>

> ------------------------------------------------------------------------

>

> *From:* ProstateCancerSupport

> [mailto:ProstateCancerSupport ] *On Behalf Of *Steve Jordan

> *Sent:* Sunday, 8 March 2009 10:22 AM

> *To:* ProstateCancerSupport

> *Subject:* Re: Frustrated

>

>

>

>

>

>> as I said I was told on Wed 4th March '09 by the hospital urologist that

>> I have prostate cancer. They made an appointment for me to have a biopsy

>> on April 22 and have simply left it at that.

>

> The *only* test that is diagnostic of prostate cancer (PCa) is the

> biopsy. If someone told Mal that he has PCa notwithstanding that no

> biopsy had been performed that person is, in my opinion, dangerous.

>

> I do most sincerely hope that Mal will learn the true measure of his

> case by consulting with people who know how to deal with it.

>

> Here is the website of the Prostate Cancer Research Institute (PCRI):

> http://prostate-cancer.org/index.html

> <http://prostate-cancer.org/index.html> There, Mal can find reliable and

> authoritative information. That, with the information available from Us

> too, should provide Mal with the means to educate himself. And education

> is the key to survival.

>

> I hope that the GP has something in his background that will enable him

> to give Mal competent information.

>

> Regards,

>

> Steve J

>

> " Know that 9 out of 10 times, you have time to learn. Don't panic. You

> may make a decision (or let another make it for you) from which there is

> no return. Let the fear settle and your senses return. A cancer

> diagnosis is not a death sentence. "

> -- Young, PCa Mentor

> Phoenix 5

>

>

[Guest guest]

On March 8 (Oz time) Terry Herbert replied to me:

> With respect, Steve, a TURP can produce material that indicates the

> presence of PCa without a biopsy being performed.

BUT: a biopsy properly performed samples specimens from much more of the

gland.

Seems to me that a biopsy properly performed will develop data on the

nature and extent of any discovered PCa, wherever it might be situated

in the gland, unlike the TURP.

And we actually do not know that whatever was the procedure performed on

Mal, it actually was in fact a TURP. Let's wait for more -- and

reliable -- information.

> Mal, who lives in Queensland, Australia, told us (his post on March 7 #

> 22958 that he had a TURP and a biopsy and was due to have another biopsy

> next month.

With all due respect, Terry, Mal did not tell us that.

I do believe that Mal, who desperately needs reliable and authoritative

information, will most likely get it from the local folks, not us online.

Regards,

Steve J

>

>

>

>

>

> All the best

>

>

>

> Terry

>

> ------------------------------------------------------------------------

>

> *From:* ProstateCancerSupport

> [mailto:ProstateCancerSupport ] *On Behalf Of *Steve Jordan

> *Sent:* Sunday, 8 March 2009 10:22 AM

> *To:* ProstateCancerSupport

> *Subject:* Re: Frustrated

>

>

>

>

>

>> as I said I was told on Wed 4th March '09 by the hospital urologist that

>> I have prostate cancer. They made an appointment for me to have a biopsy

>> on April 22 and have simply left it at that.

>

> The *only* test that is diagnostic of prostate cancer (PCa) is the

> biopsy. If someone told Mal that he has PCa notwithstanding that no

> biopsy had been performed that person is, in my opinion, dangerous.

>

> I do most sincerely hope that Mal will learn the true measure of his

> case by consulting with people who know how to deal with it.

>

> Here is the website of the Prostate Cancer Research Institute (PCRI):

> http://prostate-cancer.org/index.html

> <http://prostate-cancer.org/index.html> There, Mal can find reliable and

> authoritative information. That, with the information available from Us

> too, should provide Mal with the means to educate himself. And education

> is the key to survival.

>

> I hope that the GP has something in his background that will enable him

> to give Mal competent information.

>

> Regards,

>

> Steve J

>

> " Know that 9 out of 10 times, you have time to learn. Don't panic. You

> may make a decision (or let another make it for you) from which there is

> no return. Let the fear settle and your senses return. A cancer

> diagnosis is not a death sentence. "

> -- Young, PCa Mentor

> Phoenix 5

>

>

[Guest guest]

I recently read somewhere that Viagra is used to keep blood flowing & nourishing

the organ? Not sure what the reference was to though. Sorry, still trying to

assimilate info. & sometimes have to see it more than once for it to sink in.

Trying to learn stuff to help my Dad & Mother through the next few months of

IMRT & brachtherapy.

Melody

>

>

>

> Hi Philip,

>

> I suggest that you get a Vacuum Erection Device (VED). This will

> not only provide the penis with fresh nourishing blood, it will help

> prevent shrinkage. By using the constriction rings after the erection

> is created, it can be used for successful intercourse.

>

>

>

> I wish you all the best

>

> Aubrey Pilgrim, DC (Ret.) Author of

> A Revolutionary Approach to Prostate Cancer-Read the original book

> for FREE at: _http://www.prostatepointers.org/prostate/lay/apilgrim/_

> (http://www.prostatepointers.org/prostate/lay/apilgrim/)

> Read new edition for FREE at

> _http://www.cancer.prostate-help.org/capilgr.htm_

(http://www.cancer.prostate-help.org/capilgr.htm)

> Dr. E. Crawford is co-author of the revision

>

>

>

>

> In a message dated 2/20/2007 2:17:54 A.M. Eastern Standard Time,

> pb5057@... writes:

>

>

>

>

>

>

> Hi Aubrey,

>

> Many thanks for taking the time to reply. I had already started to

> read your extensive and immensely helpful link below.

> Whilst I accept there are no aphrodisiacs, I wondered if there might

> be some hormonal imbalance. I have begun to have some good nocturnal

> erections and the occasional stimulated one. Although not as hard as

> I'd like. I know it's only been 8 months and perhaps I should be more

> patient.

> I take Levitra 20mg twice weekly and muse at 250mcrgrms. Levitra seems

> to have some effecy but I'm afraid the muse does nothing. I see my

> consultant next week Maybe I should ask for a higher dose.

>

> Kind regards

>

> Philip

>

[Guest guest]

I recently read somewhere that Viagra is used to keep blood flowing & nourishing

the organ? Not sure what the reference was to though. Sorry, still trying to

assimilate info. & sometimes have to see it more than once for it to sink in.

Trying to learn stuff to help my Dad & Mother through the next few months of

IMRT & brachtherapy.

Melody

>

>

>

> Hi Philip,

>

> I suggest that you get a Vacuum Erection Device (VED). This will

> not only provide the penis with fresh nourishing blood, it will help

> prevent shrinkage. By using the constriction rings after the erection

> is created, it can be used for successful intercourse.

>

>

>

> I wish you all the best

>

> Aubrey Pilgrim, DC (Ret.) Author of

> A Revolutionary Approach to Prostate Cancer-Read the original book

> for FREE at: _http://www.prostatepointers.org/prostate/lay/apilgrim/_

> (http://www.prostatepointers.org/prostate/lay/apilgrim/)

> Read new edition for FREE at

> _http://www.cancer.prostate-help.org/capilgr.htm_

(http://www.cancer.prostate-help.org/capilgr.htm)

> Dr. E. Crawford is co-author of the revision

>

>

>

>

> In a message dated 2/20/2007 2:17:54 A.M. Eastern Standard Time,

> pb5057@... writes:

>

>

>

>

>

>

> Hi Aubrey,

>

> Many thanks for taking the time to reply. I had already started to

> read your extensive and immensely helpful link below.

> Whilst I accept there are no aphrodisiacs, I wondered if there might

> be some hormonal imbalance. I have begun to have some good nocturnal

> erections and the occasional stimulated one. Although not as hard as

> I'd like. I know it's only been 8 months and perhaps I should be more

> patient.

> I take Levitra 20mg twice weekly and muse at 250mcrgrms. Levitra seems

> to have some effecy but I'm afraid the muse does nothing. I see my

> consultant next week Maybe I should ask for a higher dose.

>

> Kind regards

>

> Philip

>

[Guest guest]

MElody --

Check for " penile rehabilitation prostate " with Google. One good source is:

http://cme.medscape.com/viewprogram/14821

You will need a free Medscape registration to view it.

The main author (Jim Mulhall) has just published a book on prostate cancer and

sexuality for laymen. I have ordered it, but not read it yet.

The evidence for animals is very good -- regular doses of Viagra (50 - 100 mg

per day, human equivalent) helps the recovery of erections after prostate

surgery. The evidence for men is reasonably convincing.

I don't know if any studies have been done for radiation treatment. The " damage

mechanisms " are different, so the surgery studies may be irrelevant. A

radiation oncologist put it this way to me:

" With surgery, everybody starts with ED, and some people slowly recover erectile

function. With radiation, everyone starts out OK, and ED slowly develops in

many people. After 5 years, the ED rates are similar for both treatments. "

>

> I recently read somewhere that Viagra is used to keep blood flowing &

nourishing the organ? Not sure what the reference was to though. Sorry, still

trying to assimilate info. & sometimes have to see it more than once for it to

sink in. Trying to learn stuff to help my Dad & Mother through the next few

months of IMRT & brachtherapy.

> Melody

>

>

>

>