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Re: Re: Tight fist and a fetal position- Norma

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Hi Norma-

We were amazed as well. It was shocking. I look at it as my dad having so many

things robbed from him, his decisions, dignity, and life in general. But then

the night before he passed away he was up walking around. He stopped by the

nurses station and leaned on the counter with the nurses for a bit. He went

into their lounge room and sat in a recliner with his feet up for a while as

well. He made his way to his room, used the restroom and went to bed. I look

at it as if these were all decisions he made and was able to make. It's as if

all faculties are working, all dignity was restored and now he could win his

battle with LBD.

All this was so amazing considering we couldn't even weigh my dad because he

couldn't stand. His body was so contorted and stiff. He had stopped eating a

couple weeks prior and was so very thin and weak. My dad hadn't used the

restroom for months and was completely incontinent. He sure went out in style.

:-)

Thank you, Norma, for writing and taking me to a more vivid memory of my dad's

last days.

Big Iowa hugs-

Sandie

Des Moines, IA

dad, Merle, passed from LBD 9-20-02, age 65

mum, (MIL), Jo, passed from LBD 4-29-07, age 78

----- Re: Tight fist and a fetal position

Date: Tue, 16 Mar 2010 12:52:23 -0000

Hi Sandi -

Your Dad's last week was incredible. I hadn't heard this before and am amazed,

even after hearing so many stories.

> > >

> > > Hi everyone,

> > >

> > > Marilyn, I am glad things are working out. I haven't been able to write

but I am with you in spirit.

> > >

> > > I have a question. Have any of you experineced your LO in a fetal position

and the fist are tightly clinched, then have to help get them open and get him

up, and after getting his sea legs, he is able to walk just fine?

> > >

> > > My Don has been doing this for almost three weeks. I thought when a person

started doing those things (clinching fist and going into a fetal position) that

they were close to the end. Yet, how can he get up (with help) and move around

without any trouble? He doesn't seem a bit close to the end to me.

> > >

> > > We have Hospice now, for all the help they are so far. I had to send the

bathing girl away this morning because she was wearing heavy perfume. We told

her I would get sick from it. She must have forgotten. She said I only have on a

little bit. I told her it only takes a bee sting to kill some people, and that

is just a little bit.

> > >

> > > Love you all, and waiting for an answer,

> > > Imogene

> > >

> >

>

>

>

>

> ------------------------------------

>

> Welcome to LBDcaregivers.

>

>

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