Guest guest Posted June 30, 2004 Report Share Posted June 30, 2004 WOW!!!!! that is such a great doctor visit!! I am feeling your happiness, because My daughter won't let the doctors or nurses touch her either, not even to weigh or check her growth. Man it sucks! But your new doc sound excellent, and so willing to find out all he can to treat Jordan right. I am soooooooooo happy for you both!! Take care and YAY!! > Hey Guys, > > Just wanted to update ya'll. Well, we hit the jackpot this week! > Jordan's new endo is AWESOME!! We were in the room with him for over > an hour and for at least 40 minutes of that, the doc and Jordan were > having a blast. He danced with a doll that she had brought it. It > played music and he was dancing and making Jordan laugh. He'd kiss > the doll and listened to the doll's hearbeat. He basically ignored > me until she got the initial nervousness out of her system. I could > have kissed him. > > So then he t/t me, looked at my pathetic excuse for a chart (but was > just as impressed had it been done professionally!) and just wrote > note after note on what I told him. Jordan's old endo had not sent > any of the info of her one and only visit with him, nor of the > ultrasound I had to pitch a fit to get, and he just shrugged and > said he was a plug. OMG, I couldn't believe it. He said, it's > important to know the history and I will have my office call them, > but let's not waste today's visit. I will do blood work and we will > see where we stand. He said in the mean time we will keep her on > Synthroid, with an obvious dosage change, but only until I > can " research the factor that the Downs Syndrome ties into " . At that > point I could have/would have humped his leg but that didn't seem to > be necessary!!! lol. He said, until Jordan's next visit, please > bring her in for visits, to get used to me and my staff (at no > charge, of course) and when she comes back in a month, I will do the > ultrasound myself. Jordan has difficulties w/ sedation and although > he felt a lump there, he believes it is nothing that cannot wait for > 30 days considering all that has been happening and that it wasn't > worth the risk of putting her to sleep to do an ultrasound when he > believes she will let him do it later. I agreed because she actually > let him squeeze and check her throat, from the front and from > behind. No doc EVER has been able to touch her throat much less > anything else. He did the bloodwork and I only had to hold her, > usually it takes a minimum of 4 adults. I was flying high when I got > out of there. I will post the results when I get them, but in the > mean time THANKS for the time you all spent helping us to prepare > for this doc visit! > > Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2004 Report Share Posted June 30, 2004 Angie!!! What a wonderful visit!!! I'm so happy for both of you!!! Will he be able to work with you, too? It sounds like he's on the right track... Did he say what labs he was running? Please.. post them for us to see. I don't know about everyone else, although I'm sure we're all in this together, just can't wait to see how it all turns out and how she does as her meds optimize... Just don't forget to look after you, too, okay? Topper () aka ThyroGeek On Wed, 30 Jun 2004 17:20:47 -0000 " Angella Touchet " writes: > Hey Guys, > Just wanted to update ya'll. Well, we hit the jackpot this week! > Jordan's new endo is AWESOME!! We were in the room with him for over > an hour and for at least 40 minutes of that, the doc and Jordan were > having a blast. He danced with a doll that she had brought it. It > played music and he was dancing and making Jordan laugh. He'd kiss > the doll and listened to the doll's hearbeat. He basically ignored > me until she got the initial nervousness out of her system. I could > have kissed him. > So then he t/t me, looked at my pathetic excuse for a chart (but was > just as impressed had it been done professionally!) and just wrote > note after note on what I told him. Jordan's old endo had not sent > any of the info of her one and only visit with him, nor of the > ultrasound I had to pitch a fit to get, and he just shrugged and > said he was a plug. OMG, I couldn't believe it. He said, it's > important to know the history and I will have my office call them, > but let's not waste today's visit. I will do blood work and we will > see where we stand. He said in the mean time we will keep her on > Synthroid, with an obvious dosage change, but only until I > can " research the factor that the Downs Syndrome ties into " . At that > point I could have/would have humped his leg but that didn't seem to > be necessary!!! lol. He said, until Jordan's next visit, please > bring her in for visits, to get used to me and my staff (at no > charge, of course) and when she comes back in a month, I will do the > ultrasound myself. Jordan has difficulties w/ sedation and although > he felt a lump there, he believes it is nothing that cannot wait for > 30 days considering all that has been happening and that it wasn't > worth the risk of putting her to sleep to do an ultrasound when he > believes she will let him do it later. I agreed because she actually > let him squeeze and check her throat, from the front and from > behind. No doc EVER has been able to touch her throat much less > anything else. He did the bloodwork and I only had to hold her, > usually it takes a minimum of 4 adults. I was flying high when I got > out of there. I will post the results when I get them, but in the > mean time THANKS for the time you all spent helping us to prepare > for this doc visit! > > Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 hEY FRIENDS!! THANKS FOR SHARING IN OUR GREAT NEW FIND, DR RIZK!! YES, HE WILL SEE ABOUT ME, TOO. I WILL SHARE JORDAN'S NEXT DR APPOINTMENT. YAHOO!!! HE IS SCHEDULING AN ULTRASOUND FOR ME, HAVEN'T HEARD BACK ON WHEN. THEY RAN ALL THE FREE T TEST AND THE ANTIBODY TEST, I RECOMMENDED THAT ON INFO THAT I FOUND ON THIS SITE....(THANKS) A LITTLE NERVENE TONIGHT, JUST FINISHED LAUNDRY AND IT IS 2:45...IRONING AWAY... HOPE EVERYONE IS FEELING GREAT AND HAVING AN AWESOME WEEK! > Angie!!! > > What a wonderful visit!!! I'm so happy for both of you!!! > > Will he be able to work with you, too? It sounds like he's on the right > track... > > Did he say what labs he was running? > > Please.. post them for us to see. I don't know about everyone else, > although I'm sure we're all in this together, just can't wait to see how > it all turns out and how she does as her meds optimize... > > Just don't forget to look after you, too, okay? > > Topper () aka ThyroGeek > > On Wed, 30 Jun 2004 17:20:47 -0000 " Angella Touchet " > <angwriter@y...> writes: > > Hey Guys, > > Just wanted to update ya'll. Well, we hit the jackpot this week! > > Jordan's new endo is AWESOME!! We were in the room with him for over > > an hour and for at least 40 minutes of that, the doc and Jordan were > > having a blast. He danced with a doll that she had brought it. It > > played music and he was dancing and making Jordan laugh. He'd kiss > > the doll and listened to the doll's hearbeat. He basically ignored > > me until she got the initial nervousness out of her system. I could > > have kissed him. > > So then he t/t me, looked at my pathetic excuse for a chart (but was > > just as impressed had it been done professionally!) and just wrote > > note after note on what I told him. Jordan's old endo had not sent > > any of the info of her one and only visit with him, nor of the > > ultrasound I had to pitch a fit to get, and he just shrugged and > > said he was a plug. OMG, I couldn't believe it. He said, it's > > important to know the history and I will have my office call them, > > but let's not waste today's visit. I will do blood work and we will > > see where we stand. He said in the mean time we will keep her on > > Synthroid, with an obvious dosage change, but only until I > > can " research the factor that the Downs Syndrome ties into " . At that > > point I could have/would have humped his leg but that didn't seem to > > be necessary!!! lol. He said, until Jordan's next visit, please > > bring her in for visits, to get used to me and my staff (at no > > charge, of course) and when she comes back in a month, I will do the > > ultrasound myself. Jordan has difficulties w/ sedation and although > > he felt a lump there, he believes it is nothing that cannot wait for > > 30 days considering all that has been happening and that it wasn't > > worth the risk of putting her to sleep to do an ultrasound when he > > believes she will let him do it later. I agreed because she actually > > let him squeeze and check her throat, from the front and from > > behind. No doc EVER has been able to touch her throat much less > > anything else. He did the bloodwork and I only had to hold her, > > usually it takes a minimum of 4 adults. I was flying high when I got > > out of there. I will post the results when I get them, but in the > > mean time THANKS for the time you all spent helping us to prepare > > for this doc visit! > > > > Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2004 Report Share Posted July 4, 2004 I am so happy for you, Angie! Jan Angella Touchet wrote: >Hey Guys, > >Just wanted to update ya'll. Well, we hit the jackpot this week! >Jordan's new endo is AWESOME!! We were in the room with him for over >an hour and for at least 40 minutes of that, the doc and Jordan were >having a blast. He danced with a doll that she had brought it. It >played music and he was dancing and making Jordan laugh. He'd kiss >the doll and listened to the doll's hearbeat. He basically ignored >me until she got the initial nervousness out of her system. I could >have kissed him. > >So then he t/t me, looked at my pathetic excuse for a chart (but was >just as impressed had it been done professionally!) and just wrote >note after note on what I told him. Jordan's old endo had not sent >any of the info of her one and only visit with him, nor of the >ultrasound I had to pitch a fit to get, and he just shrugged and >said he was a plug. OMG, I couldn't believe it. He said, it's >important to know the history and I will have my office call them, >but let's not waste today's visit. I will do blood work and we will >see where we stand. He said in the mean time we will keep her on >Synthroid, with an obvious dosage change, but only until I >can " research the factor that the Downs Syndrome ties into " . At that >point I could have/would have humped his leg but that didn't seem to >be necessary!!! lol. He said, until Jordan's next visit, please >bring her in for visits, to get used to me and my staff (at no >charge, of course) and when she comes back in a month, I will do the >ultrasound myself. Jordan has difficulties w/ sedation and although >he felt a lump there, he believes it is nothing that cannot wait for >30 days considering all that has been happening and that it wasn't >worth the risk of putting her to sleep to do an ultrasound when he >believes she will let him do it later. I agreed because she actually >let him squeeze and check her throat, from the front and from >behind. No doc EVER has been able to touch her throat much less >anything else. He did the bloodwork and I only had to hold her, >usually it takes a minimum of 4 adults. I was flying high when I got >out of there. I will post the results when I get them, but in the >mean time THANKS for the time you all spent helping us to prepare >for this doc visit! > >Angie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2004 Report Share Posted July 4, 2004 Thanks, Jan! It was such a relief to meet this doctor and such good news to spread around. I wish everyone could find someone like him. Angie! > > >Hey Guys, > > > >Just wanted to update ya'll. Well, we hit the jackpot this week! > >Jordan's new endo is AWESOME!! We were in the room with him for over > >an hour and for at least 40 minutes of that, the doc and Jordan were > >having a blast. He danced with a doll that she had brought it. It > >played music and he was dancing and making Jordan laugh. He'd kiss > >the doll and listened to the doll's hearbeat. He basically ignored > >me until she got the initial nervousness out of her system. I could > >have kissed him. > > > >So then he t/t me, looked at my pathetic excuse for a chart (but was > >just as impressed had it been done professionally!) and just wrote > >note after note on what I told him. Jordan's old endo had not sent > >any of the info of her one and only visit with him, nor of the > >ultrasound I had to pitch a fit to get, and he just shrugged and > >said he was a plug. OMG, I couldn't believe it. He said, it's > >important to know the history and I will have my office call them, > >but let's not waste today's visit. I will do blood work and we will > >see where we stand. He said in the mean time we will keep her on > >Synthroid, with an obvious dosage change, but only until I > >can " research the factor that the Downs Syndrome ties into " . At that > >point I could have/would have humped his leg but that didn't seem to > >be necessary!!! lol. He said, until Jordan's next visit, please > >bring her in for visits, to get used to me and my staff (at no > >charge, of course) and when she comes back in a month, I will do the > >ultrasound myself. Jordan has difficulties w/ sedation and although > >he felt a lump there, he believes it is nothing that cannot wait for > >30 days considering all that has been happening and that it wasn't > >worth the risk of putting her to sleep to do an ultrasound when he > >believes she will let him do it later. I agreed because she actually > >let him squeeze and check her throat, from the front and from > >behind. No doc EVER has been able to touch her throat much less > >anything else. He did the bloodwork and I only had to hold her, > >usually it takes a minimum of 4 adults. I was flying high when I got > >out of there. I will post the results when I get them, but in the > >mean time THANKS for the time you all spent helping us to prepare > >for this doc visit! > > > >Angie > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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