Re: Decision to get off diet, please help!!!

[Guest guest]

,

You mention that his bowel movements have been normal since late October.

Does that correlate with when you started SCD for ? Do you have an

intuitive feeling about what would be best for your child? Although our daughter

is

not in the autism spectrum, her GI doctors also feel that diet changes are not

essential and yet, we see such a GI improvement on SCD. For me, the doctors

are one of many resources to use as we make decisions for our children. The

final decision has to come from our own judgment. I understand that our

experiences may not be at all helpful for someone who is on SCD for

developmental

reasons.

, Mom to non ASD, IBD daughter, age 8, whole family SCD 7 weeks, no

Imodium for 5 weeks, Nortryptaline & Imitrex (migraines) other daughters ages 11

and 4

[Guest guest]

The doc said maybe is

really meant to have all those improvements anyways. And this is not

really helping him out with his socialization at school since he

eats everything different from his peers.

I am new here, new to even considering this particular diet, new to it all. But

I have done many, many things to help my son that Dr's thought were crazy,

pointless, whatever. Still, I don't discount the medical community at all for

favor of " fanatical " adherence to all-natural options. But with all that said,

I have a serious problem with this above comment. This doctor is telling you to

accept your child's current functioning with autism. If you can do that, then

that is up to you. I can not do that. I do not accept that he is " meant " to be

impaired this way. I believe something is harming him, I've seen too many

glimpses of what he is capable of when he can think clearly, and I've seen too

many improvements. So, with all that said, do what you feel is best. The

celiac test is another issue, but I'll tell you this - Luke tested negative for

celiac, and I thought, well we don't have to worry about gluten, and figured

that was why GF didn't do much for him. But if SCD is right, we weren't taking

out ENOUGH... well, best of luck to you in a very, hard decision!

[Guest guest]

:

His bowel improved for a short term while on GFCF then went bad

again, and that is when i came across SCD, then after over 8 weeks,

his bowel is normal now.

OUr speech pathologist said that treatment for autism is taking all

intervention as a whole... she does not think only one intervention

is treating the child but all of them together. I feel that the diet

is making more focused and alert so he was able to learn new

things, etc and get better everyday. Last night, eventhough he is

sick, he was watching tv with us, just cuddling with his daddy or

me... that was something we never had before because he is quite

distant.

I don't want to be so different from other kids considering

he already has PDD - but if i really know that this diet is a mojor

factor in his improvement, then we will stick with it. My gut

feeling is telling me not to get off diet for a while and see what

happens.

PS is also taking DMG as part of his supplements.

> ,

> You mention that his bowel movements have been normal since late

October.

> Does that correlate with when you started SCD for ? Do you

have an

> intuitive feeling about what would be best for your child?

Although our daughter is

> not in the autism spectrum, her GI doctors also feel that diet

changes are not

> essential and yet, we see such a GI improvement on SCD. For me,

the doctors

> are one of many resources to use as we make decisions for our

children. The

> final decision has to come from our own judgment. I understand

that our

> experiences may not be at all helpful for someone who is on SCD

for developmental

> reasons.

>

> , Mom to non ASD, IBD daughter, age 8, whole family SCD 7

weeks, no

> Imodium for 5 weeks, Nortryptaline & Imitrex (migraines) other

daughters ages 11

> and 4

>

>

>

>

[Guest guest]

, I know people say to me all the time - " Maybe he would have

had these gains just from growing older, maturing. " I'm sorry but

my son only got WORSE with time until we started interventions.

Have you given any thought to adding goat yogurt, I read that you

are milk free? The goat yogurt is very healing for my son. Maddie

> Hello everybody:

>

> has been on GFCF for almost a year now and SCD for almost

4

> months, legal for 3 months. We call his improvements little giants

> steps to recovery. I guess to sum it up, his major improvement is

> that he gives us more eye contact and he is not too distant from

us.

> His receptive language is also improving, like it is easier to ask

> him to pick up stuff and then put it on/in somewhere and he seemed

> to generalize the pick up request. His play skills has improved

too

> but he still stims his toys. His socializing is better wherein he

> does not isolate himself so much at school or watch the cars go

by.

> He is still non-verbal, with seldom days that he verbalize what he

> wants, or sometimes answer a yes/no question appropriately.

>

> We went to the gastro-intestinal specialist yesterday who took a

ton

> of tests to make sure his systems are functioning well like

kidney,

> liver, protein absorption, eliminate IBS or chron's disease. We

also

> took celiac test just to get a base line, of course everything

> turned out negative, which is good news.

>

> So … she said that although it is up to us to continue the SCD,

she

> thinks should try eating regular foods again and maybe in

6-

> 8 months test again for celiac, and for us to keep a record of

> everything so we know if the diet is really contributing to his

> improvements. Oh by the way, his bowel is normal now since late

> October. The doc said that we should not be worried if his poop is

> loose and if he goes 3 times a day…. He is also taking

supplements,

> probiotic, etc.

>

> So we are really thinking this hard. The doc said maybe is

> really meant to have all those improvements anyways. And this is

not

> really helping him out with his socialization at school since he

> eats everything different from his peers. Since his school is nut

> free, he can't even have a cookie at school other than occasional

> macaroon.

>

> We really need your advice. After a year of being off milk, he is

> still non-verbal, meaning not consistent in talking, but had shown

> that he can talk on occasions.

>

> What should we do? Advise/suggestions/your own experience is

really

> appreciated.

>

> Thank you,

>

> , mom to PDD-NOS 3.5 yrs old