Re: Topper's rant on Thyroid Care - or lack thereof

[Guest guest]

Opinion here... but I'm thinking that too many docs think that they know

absolutely everything about everything. Granted they know a heck of a lot

of stuff about a lot more stuff than I do.. I'm not challenging that at

all... but when you take into consideration that docs are said to get 15

minutes of instruction, out of their 4 years of training, on thyroid

care.. and that instruction consists pretty much of " test TSH, if it's in

range send them home. If it's too low nuke them or cut them. If it's too

high give them this brand and you get perks from the company. Prescribe

enough of it and you get a couple of weeks in Hawaii!! Oh... and if they

are in range and say they still feel like crap, here is a list of stuff

that you can give them, all of them get you perks from the same company! "

Then there are all of us... spending months and years and decades living

with the symptoms and knowing that they are real, no matter what everyone

else tells us... then spending months and years digging into the research

that has been done AND hearing of folks in the trenches and what they

have tried and succeeded with AND finding out that not all of us react

the same way to the same treatments... and, well, still opinion here...

that makes us a heck of a lot MORE knowledgeable about thyroid problems

then most of the docs.

Now.. throw into that the fact that so many of us suffer from adrenal

issues as well, and that the docs are being told that it isn't a

concern....

Well, is it any wonder that we are the ones that are still suffering?

I had got a call from a nurse with the results of my labs once. She said

that the doctor would be increasing my dose to 200 mcg of Synthroid. I

said that I was already on 200 mcg so that wouldn't be an increase... She

got confused and said the doc would call me back.. He had an attitude and

asked what the problem was.. I explained that the nurse had said that I

was to be increased to 200 mcg and since I was already on 200 mcg that

wouldn't be an increase... He called me a smartass, no kidding, a

smartass! And that I should continue on the same dose.

So.. was I showing a need for an increase and he just decided that a

smartass didn't deserve one? Or did he get caught in a mistake and I paid

the price by continuing to be underdosed? Or was he just a blithering

idiot?

I may never know.. but that's just one example of the crap that I've gone

through with docs.. Any questions about why I have NO problem self

treating now??

It's so important to not give up on getting proper care. All we need is

to get the hormones that we are missing replaced. It's not some horrible

disease that no one has any answers for. We already know the answer, that

answer has been known for over a century now. Why are we all still paying

the price? Why are we literally victims, the direct result of a

pharmaceutical company who's propaganda has left such a large percentage

of the medical profession blind to the fact that what they are doing now

is WRONG!

I just get so angry.. I'm in my mid forties and I'm in worse shape than

my dad and he has a heart condition and will be 70 this year! And the sad

part, I've improved so much in the last two years, since beginning my own

health care - without a doc - that it makes my head spin. I still have so

far to go.. But I'm gonna get there, cause now I know what I need to do!

Under a doctors care I ended up on crutches. Under a doctor's care I went

from a body builder that could throw three 50 pound sacks of dog food on

my shoulder (there is a trick to getting three of them up... most of the

guys I worked with had trouble doing it.. if you don't jerk and flip just

right.. the middle one slipped out and ended up on the floor!) and hike

it down the truck ramp, through a store, down a flight of steps and stack

it neatly. Now.. I have to hold the railing on the stairs and go down one

foot at a time, right foot first, cause my right leg still doesn't have

enough strength to lower me to the next step. AND that's an improvement

over three years ago!!! It's not that I've lost that much strength,

though I have, it's also because of all the weight that I gained! (but we

all know that we gain weight cause we are too lazy to exercise and spend

all our time in bed eating bon bons... so I can't blame that on the poor

health care I received, right?)

I used to be able to bench press 250 pounds, 3 sets, 12 reps... now.. I'm

thrilled if I can carry three sacks of groceries, in three trips, from

the driveway to the kitchen. Three years ago I was proud to carry 1...

Since I've started my own care. My crutches are now used as drying racks.

I can now lather, rinse and repeat when I shampoo my hair. I go to bed at

night and fall asleep AND sleep through the night. I can go to the

bathroom, complete all necessary tasks therein, and get back to the TV

before the commercial is over. Not like before. Plan on spending a half

hour, hope it works this time...

As bad as I was.. I've come so very far.. and I know it will still get

better. Because I understand what is wrong and am taking steps to correct

what I can.

I'm doing what no doc in over a decade came close to doing.

Arrrrgggghhhh this is turning into a rant... but gosh darn it... there

are so many people going through so much H)(* & (* & (* & due to improper

diagnosis and care and it DOES NOT NEED TO BE THAT WAY!!!!!! Treatment

exists. Medication and vitamins and minerals exist. Knowledge to use them

exists - and has for OVER A CENTURY!!!!! Why don't we get the benefit of

that BEFORE our bodies and lives and US have to pay the price for the

greed of others?

I WILL BE ME AGAIN! It may take time, but it took a lot of years to get

so bad, it may take a while to get well, but I know how now, and I learn

more and more each and every day.

For everyone here. Find a GOOD doc. Don't settle. Do what you need to do

to get the very best care that you can. Protect your body, protect your

life, protect the QUALITY of your life!

Don't ever settle.

Don't let them tell you it's in your head.

Don't let them tell you it's old age (especially when someone 20 years

older is doing what you can't).

Fight for you and NEVER GIVE UP!

*climbing down from soap box with teary eyes*

Topper () *who dreams of opening a clinic specializing in proper

thyroid care and whole body health*

On Sun, 27 Jun 2004 22:00:35 -0000 " darringirl "

writes:

> Thanks Topper2. I really didn't think about the pig thyroid

> process,

> but that makes sense, and my doctor really doesn't. Of course I

> knew

> he wasn't making any sense, and he was just trying to intimidate

> me,

> which didn't help matters.

< snip >

[Guest guest]

Topper, I just want you to know, that a lot of your posts have

really helped me, and I am proud of you that you re doing so well,

and that you had the mind to treat yourself and not listen to the

dr. anymore. What is the point when they only hurt you more? It

might seem small but even if all of your experiences have only been

so to help us learn more, that is great deal to us. adn personally

I like when you rant and rave because it helps motivate me!!

You take care, and continue your progress, it gives me hope!

Love,

[Guest guest]

Hey... want to combine with our project? We want to have an on site

pharmacy and our own small lab..... We'd just expand a bit!!!!

That would be awesome.... I can't tell you how many lotteries and raffles

that I'm in online, the free ones.. hoping that just one hits and I get

enough money to start or get into more lotteries or something, anything

to come up with startup money!

Topper () aka ThyroGeek

On Thu, 01 Jul 2004 09:51:55 -0300 Janaina Viggiano

writes:

> I have this fantasy about opening a pharmaceutical company to make

> natural thyroid. I'd have to win the lottery or something first, but

> I

> have the whole thing in my mind already: make partnership with

> slaughterhouse to buy the pig thyroids, hire pharmacists, ship at

> least

> one of them to Australia to be trained (since small compounding

> pharmacies there make it and that is the kind of process my small

> pharmaceutical is gonna have, it is more appropriate), make it, sell

> it

> cheaper than generic T4, get the government health care to buy from

> me

> (that is easier than it sounds - I worked for a diabetes NGO and we

> were

> contacted by a Slovenian insulin producer who would ship it much

> cheaper

> than the one the government was using. We contacted the government

> and 6

> months later people were getting Slovenian insulin for their free

> insulin), marvel as everyone feels happier and healthier.

>

>

> Jan

[Guest guest]

Yeah, I even put a dollar or two into the Texas lotteries too for

this......tried to win the 100 million......

Well, either the lotteries or our books will become best sellers.....

FeistyWEndy

Re: Re: Topper's rant on Thyroid Care -

or lack thereof

Hey... want to combine with our project? We want to have an on site

pharmacy and our own small lab..... We'd just expand a bit!!!!

That would be awesome.... I can't tell you how many lotteries and raffles

that I'm in online, the free ones.. hoping that just one hits and I get

enough money to start or get into more lotteries or something, anything

to come up with startup money!

Topper () aka ThyroGeek

On Thu, 01 Jul 2004 09:51:55 -0300 Janaina Viggiano

writes:

> I have this fantasy about opening a pharmaceutical company to make

> natural thyroid. I'd have to win the lottery or something first, but

> I

> have the whole thing in my mind already: make partnership with

> slaughterhouse to buy the pig thyroids, hire pharmacists, ship at

> least

> one of them to Australia to be trained (since small compounding

> pharmacies there make it and that is the kind of process my small

> pharmaceutical is gonna have, it is more appropriate), make it, sell

> it

> cheaper than generic T4, get the government health care to buy from

> me

> (that is easier than it sounds - I worked for a diabetes NGO and we

> were

> contacted by a Slovenian insulin producer who would ship it much

> cheaper

> than the one the government was using. We contacted the government

> and 6

> months later people were getting Slovenian insulin for their free

> insulin), marvel as everyone feels happier and healthier.

>

>

> Jan

[Guest guest]

Gee, thanks, Pard.. reminding I haven't been working on the book this

week! hehehehehe

But I'm getting lots done on the web site!!!

Topper ()

On Thu, 1 Jul 2004 10:34:19 -0500 " Feisty\(ThyroFeisty\) "

writes:

> Yeah, I even put a dollar or two into the Texas lotteries too for

> this......tried to win the 100 million......

> Well, either the lotteries or our books will become best

> sellers.....

> FeistyWEndy