Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 You can substitute carrot chips for the potato chips........ and SCD muffins can be crumbled up and kinda toasted in the oven or toaster oven to make a " cereal " . These wouldn't be on the intro diet but remember that intro only last a couple of days. He will no doubt have a tough time getting through this intro period (and you might, too)..... but it's short! Some kids are harder than others to transition to a snack or other food that is not EXACTLY like their old favorite...... so it's hard to say. Keep in mind that he will probably experience die-off, too..... which will make him feel not-so-good. Behaviors may get worse for a while but once you've made the leap, I encourage you to stick it out. We are doing a modified VB program, too...... but fortunately, have found a lot of non-food things for Katera to mand for that she really likes and she really likes praise and tickles as reinforcement, too.... so we've been able to transition away from food rewards. Good luck! Patti, mom to Katera, age 7, SCD 8+ months ----- Original Message ----- The program that we do (called verbal behaviors) uses sign language (as doesn't speak at all) and 2 of his signs are chip and cereal. So it is a little different than using the foods for reinforcement. By using things that are highly motivating to him, it encourages him to sign more frequently and the hope is to communicate more. Anyway, I am concerned about him losing these signs that he has learned so well and becoming frustrated that he can't communicate with us. As far as reinforcers for his DT work, we use videos and praise which seem to work pretty well with him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Hi, Gwen, Yes, that is who scoped Ian, for which I am glad to have had someone as nice and experienced. I told him that I'm in the process of trying to try this other remedy. Although Ian doesn't sign, but can indicate certain desires, I can empathize with your concern about not wanting to become frustrated with regard to communication. Our VB consultant didn't contradict our not using food for reinforcers. You can ask your VB consultant whether is ready to hear " not now, " or " more later, " just as we'd say to a neuro-typical child, then substitute carrot chips and crumbled SCD muffins later on, as in Patti's post, for which he will still need to sign. Perhaps you can first teach him to sign for water, so that you can say, " Chips later...water? [while you sign] " If he signs for water, then at least he'll be able to get something. Definitely run that strategy past your consultant. If he cries due to a legitimate physical need for nutrition or liquid, I would give him something. But we did not have a problem with Ian going from eating all day to eating 3 meals and 2 snacks. That seemed to be a sign that SCD was working. Teri Re: Starting the diet Hi Teri, Thanks for getting back to me. We use Dr. Krigsman in Woodbury, NY. He has really been great to us! Is that your dr? I wonder what he would think about trying something herbal for 's tummy. is also a grazer. He would eat chips and cereal all day long if we would let him. The program that we do (called verbal behaviors) uses sign language (as doesn't speak at all) and 2 of his signs are chip and cereal. So it is a little different than using the foods for reinforcement. By using things that are highly motivating to him, it encourages him to sign more frequently and the hope is to communicate more. Anyway, I am concerned about him losing these signs that he has learned so well and becoming frustrated that he can't communicate with us. As far as reinforcers for his DT work, we use videos and praise which seem to work pretty well with him. > Gwen, > > We probably use the same pediatric gastroenterologist. What state are you in? I am going to try an herbal, Boswellia Serrata, instead of Colazal (we already tried Sulfasalazine) that did better in a clinical trial than Sulfasalazine, and shouldn't have side effects like pharmaceuticals. I've found how to obtain the raw material and am waiting for a quote on having it put into capsules. > > We fed potato snacks A LOT pre-SCD and Ian's DAN! doctor said really we should find something other than food as reinforcers for the home program. > > I think part of the reason that we may have seen improvement on SCD, was because his DAN! doctor said no more than 1 snack in between meals, and a digestive enzyme also with snacks; snacks not just consisting of sugar (eg chicken with the pear sauce). Not grazing on food all day probably gave his tummy a chance to rest, I would think. > > We had a period of formed stools after starting SCD using NO medication for colitis. > > You can e-mail me at ActionForAngels@c... . > > Teri ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 I'm thinking out loud here but I wonder if we could come up with our own SCD " cereal " . This is what just flashed through my mind. Use the muffin recipe (or a cookie recipe?) and add a little more nut flour to make it stiff, form into little balls, bake (quickly of course) and then dehydrate or let dry out in the oven till crunchy and viola! SCD Cereal.... Anyone out there willing to try it? We could use watered down yogurt for " milk " , or just use as a snack or reinforcer. Carey in WY, mom to 14 yo, HFA, Seizures, mild MR; SCD 12 weeks getting only Thropp's UltraZyme Plus clappcj@... Re: Re: Starting the diet > You can substitute carrot chips for the potato chips........ and SCD muffins can be crumbled up and kinda toasted in the oven or toaster oven to make a " cereal " . These wouldn't be on the intro diet........................... > Patti, mom to Katera, age 7, SCD 8+ months --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.553 / Virus Database: 345 - Release Date: 12/18/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 I think has actually stated that the carrot juice and garlic should be fresh.... and uncooked in order to get all the benefits, anti-fungal, anti-parasitic, etc. I'm not sure but I think this was something her DAN doctor told her about. Patti <<I use about 4oz of carrot juice and 4oz of water and crush one large clove of garlic in it. I started out boiling the carrot juice and stopped that at one stage but have actually decided to boil. I seem to see better results. Good luck >> -------------------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 Thanks Marjan, I'll have to try some recipes and let you all know what I find out. Don't look for much in the near future...I only get creative in the kitchen when is ready for another stage and I fear we will be in stage 2 for a loooonnngggggg time! She is still reacting badly from all the cheating she did over the holidaze! She found and hoarded and ate lots of candy and got up in the middle of the night to eat cookies that were left out!!!! Carey in WY, mom to 14 yo, HFA, Seizures, mild MR; SCD 12 weeks getting only Thropp's UltraZyme Plus clappcj@... Re: Starting the diet > >>SCD Cereal.... Anyone out there > > willing to try it? > > I will, I have so much hazelnut residue. > > >>We could use watered down yogurt for " milk " > > or take nut milk. > > Good idea Carey > > Marjan > The Netherlands > mom to Nick, 7, scd since january 18 2003 > --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.553 / Virus Database: 345 - Release Date: 12/18/2003 Quote Link to comment Share on other sites More sharing options...
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