Re: Contradictions in the posts of the SCD critic

[Guest guest]

I think that we all go through times when our kids regress or don't progress

like we would like and we just have to talk about it and get it out. Sometimes

things come out wrong or we take it the wrong way. We are all working so hard

to get our kids better and it is really draining. When my son is not doing

well, I am not doing well.And sometimes it is so difficult to hear about the

kids that are recovering when yours is not despite all our hard work. I pray

that

all of our kids get better and that we can support eachother while we are

trying to get there.

karen

[Guest guest]

I am not sure who you are since you didn't sign your name, but you

seem to have the 'wrong end of the stick'. I am not a 'critic' of

SCD. This controversy began when I replied to an email (which I

thought was a private reply) and I simply echoed the writers feelings

with my own story.

I find it incredible that, since I have publicly stated that SCD is

not really working for my son, people such as yourself are taking the

time to search through archives to pick apart my postings from months

ago.

For the record, we began SCD in Nov 2002 and after approx 2 weeks my

son regressed into a state of oblivion, so we stopped. We then

decided to give it another try from May to Oct 2003. We had many

setbacks, and I posted many messages and got lots of help and advice.

However, things did not get better for my son. I also stopped posting

to the list because I got a private email from one of the moderators

saying I was giving newcomers the impression SCD did not work - well

it wasn't working for us.

You have taken my recent reply to Jacqui out of context: she wrote

she hoped I would continue with SCD since it is nutritious. (she also

wrote that to me in a private email yesterday). I was simply

reassuring her that yes, we are continuing with SCD, it is now easier

to do as my son no longer gags and throws up everything that goes

into his mouth. You will notice I said we are CONTINUING with SCD. We

stopped in Oct 2003 and began again a couple of weeks ago. There is

no contradiction- we stopped, and then we started again. I believe it

is a nutritious diet so even if it doesn't do much for my sons

autistic condition, he is getting good nutrition and I am happy with

that.

I do not have the time to debate with you over possible

contradictions in posts I sent to the previous list between May and

Oct 2003. This is not a cop out - I like a lively debate at the best

of times. However I am raising my severely autistic son, running his

therapy program 50 hours a week, training new therapists to work with

him, (we live in an area where there are no services so I do all the

work), cooking non stop like most of you, taking my 6 year old

daughter to skating and music, doing homework, spelling tests etc. -

she has a life in the real world, working my job in the evenings at

home since my employer graciously allows me to do this or we would be

in the poor house - and trying to get through each day the best I

know how.

I will state once again, I am not a critic of SCD. Someone else gave

me that label. I have said all along that SCD works for some and not

for others. This is basic common sense.

I really hope this can be put to rest now. Please continue the fine

work with those that need help with the diet.

Regards,

.

P.S. If you really want to point out my contradictions from May to

Oct 2003 why not email me privately. I'm sure no one else is really

interested in a " yes you did " " no you didn't " point of view.

P.P.S. 2 days ago I made a batch of yogurt and inadvertently left it

fermenting for 36 hours. Is it still OK to use?

> ,

> There is a contradiction in your two recent posts.

> Post 1246

> We did SCD from May to October 2003, and during that time I posted

> over 90 messages asking for advice because SCD working for my son

> Post 1460

> And yes Jacqui, we are still doing SCD with my son. Our homeopath

> gave him some remedies that stopped his gagging and throwing up so I

> am able to get more foods into him, in the correct order as per the

> guidelines on pecanbread.com.

>

> I also checked the archives of ElainesChildren on Lyris and I also

> found contradictions in your posts there as well.

[Guest guest]

Amen to that!!!!

[Guest guest]

Dear ,

I was that moderator. At that time we had public debates on the list

about whether the pear juice you were using was legal. I asked that

you clarify that you were doing the diet in a different manner than

we had recommended because of your special circumstances.

I have no problem with parents reporting a lack of success with SCD.

However you went further than that and at that time, you also said

that ASD only worked for the milder cases. This discourages the

parents of the children with severe ASD. Dr Bradstreet and many list

members disagree with that statement because they have seen results

with the severe cases of autism.

I have always welcomed letters that give us both negative and

positive feedback. This helps us to improve the diet. I do ask that

parents who report negative results explain if they had problems

being 100% compliant. I have seen huge differences when parents omit

a manufactured food.

I am glad that your son is doing better. I have worked very hard at

helping you in the past and am there to help you in the future.

All the best,Mimi

>I also stopped posting

>to the list because I got a private email from one of the moderators

>saying I was giving newcomers the impression SCD did not work - well

>it wasn't working for us.

[Guest guest]

Hi ,

You were one of the first mothers of autism to do SCD.

When you first started SCD, you joined an SCD list where there were

no special instructions for children with ASD. Two weeeks later,you

join our children's SCD list.

At that time,you wrote to us that you had used yogurt made from cow

milk. Your negative story helped me decide to make goat products the

only recommended dairy for children with autism.

Later,you wrote that you had given your child a lot of canned fish.

We hope to also write something on our website about the risks from

canned fish.

Thank you for reporting that in the past. Those examples helped us

improve this diet for children with autism.

All the best,Mimi

> For the record, we began SCD in Nov 2002 and after approx 2 weeks

my

> son regressed into a state of oblivion, so we stopped.