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Yes to all.... When I was hyper...

The stories that I can tell about what I ate... How about his one.... I

would get up on a Saturday or Sunday morning and star a pan of breakfast

sausages... the whole pack. As soon as they were cooked enough to not be

raw I piled them between two slices of toast that were smeared with

miracle whip... I'd eat that, one sandwich with the whole pack of

sausages while cooking the next package... then I'd eat that and then go

out to breakfast, an all you can eat place and pile up there....

I'd stop at Baker's Square and buy a whole strawberry cheesecake and go

out to my car in the parking lot and eat the whole thing. Then I'd go

back in and buy another whole one and take it home and eat it.... I lived

less than 10 minutes from the restaurant.

I could do 24 full sized snickers bars plus 6 cans of pop between leaving

the warehouse and my first delivery location.... 30 minutes away... think

about that 24 candy bars plus 6 cans of pop, while driving, in 30

minutes... I did that everyday.. and that was after a full breakfast...

and then I'd stop at Micky D's after the last run before heading back for

more food... then I'd unload the truck and punch out and stop at 's

for two triples with bacon and cheese, large frie and a drink... then I'd

drive half an hour and stop at an all you can eat place (there were 7 of

them I hit.. only doing one or two a day and trying to switch off).

I was doing between 25 and 30 thousand calories a day before I was

finally diagnosed and still not able to maintain my weight. The last few

weeks I stopped sleeping.. I had to stay up to eat. If I didnt' eat I got

so horribly sick... headaches then all over aches.. my endo later said

that was my body eating itself if I didnt' eat enough food... After that,

after the RAI.. I went through several years of all over body cramps..

mostly at waking... every muscle in my body would seize and I'd be

immobile for up to two hours at a time before the cramping would ease and

I could move.

One of the reasons that I get so uppity when I hear that someone is

showing hyper symptoms that are being ignored.. the hell that I went

through being in storm for a year and then the hell after while my body

purged the excess hormone after the RAI.. then having to go totally hypo

while they waited to see if my thyroid was totally dead or not.... it was

the worst thing in the world and totally unnecessary.. I had gone in to

see a doc in plenty of time to have prevented most of what I went

through. But he ignored my symptoms and I was still too naive to seek out

another doc when I knew that something was wrong... I just went home like

I was told......

Topper ()

On Tue, 30 Mar 2004 22:10:53 -0000 " poohtrooper1976 "

writes:

> For those of you with hyper symptoms -

> 1. Do you find yourself almost unbearably hungry? Like no matter

> how much you eat, there are times that it just isn't enough? And do

> you find yourself eating things that you normally wouldn't have? (I

> try to avoid sugar and limit caffeine - but that is all I think

> about anymore).

> 2. Do you get muscle cramps and things that you wouldn't normally

> have?

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Wow!!...Sounds like, well, quite a few calories!!!!...25-30K???...AND

YOU WERE STILL LOSING WEIGHT?????

Weren't there any other alternatives to " slowing " down your thyroid

instead of that RAI stuff??...someone mentioned somewhere that there

are meds now that will help hyper???...

Are you feeling better now??....sure hope so...

Lindylou

> Yes to all.... When I was hyper...

>

> The stories that I can tell about what I ate... How about his one..

... I

> would get up on a Saturday or Sunday morning and star a pan of

breakfast

> sausages... the whole pack. As soon as they were cooked enough to

not be

> raw I piled them between two slices of toast that were smeared with

> miracle whip... I'd eat that, one sandwich with the whole pack of

> sausages while cooking the next package... then I'd eat that and

then go

> out to breakfast, an all you can eat place and pile up there....

>

> I'd stop at Baker's Square and buy a whole strawberry cheesecake and

go

> out to my car in the parking lot and eat the whole thing. Then I'd

go

> back in and buy another whole one and take it home and eat it.... I

lived

> less than 10 minutes from the restaurant.

>

> I could do 24 full sized snickers bars plus 6 cans of pop between

leaving

> the warehouse and my first delivery location.... 30 minutes away...

think

> about that 24 candy bars plus 6 cans of pop, while driving, in 30

> minutes... I did that everyday.. and that was after a full

breakfast...

> and then I'd stop at Micky D's after the last run before heading

back for

> more food... then I'd unload the truck and punch out and stop at

's

> for two triples with bacon and cheese, large frie and a drink...

then I'd

> drive half an hour and stop at an all you can eat place (there were

7 of

> them I hit.. only doing one or two a day and trying to switch off).

>

> I was doing between 25 and 30 thousand calories a day before I was

> finally diagnosed and still not able to maintain my weight. The last

few

> weeks I stopped sleeping.. I had to stay up to eat. If I didnt' eat

I got

> so horribly sick... headaches then all over aches.. my endo later

said

> that was my body eating itself if I didnt' eat enough food... After

that,

> after the RAI.. I went through several years of all over body

cramps..

> mostly at waking... every muscle in my body would seize and I'd be

> immobile for up to two hours at a time before the cramping would

ease and

> I could move.

>

> One of the reasons that I get so uppity when I hear that someone is

> showing hyper symptoms that are being ignored.. the hell that I went

> through being in storm for a year and then the hell after while my

body

> purged the excess hormone after the RAI.. then having to go totally

hypo

> while they waited to see if my thyroid was totally dead or not....

it was

> the worst thing in the world and totally unnecessary.. I had gone in

to

> see a doc in plenty of time to have prevented most of what I went

> through. But he ignored my symptoms and I was still too naive to

seek out

> another doc when I knew that something was wrong... I just went home

like

> I was told......

>

> Topper ()

>

> On Tue, 30 Mar 2004 22:10:53 -0000 " poohtrooper1976 "

> <poohtrooper1976@y...> writes:

> > For those of you with hyper symptoms -

> > 1. Do you find yourself almost unbearably hungry? Like no matter

> > how much you eat, there are times that it just isn't enough? And

do

> > you find yourself eating things that you normally wouldn't have?

(I

> > try to avoid sugar and limit caffeine - but that is all I think

> > about anymore).

> > 2. Do you get muscle cramps and things that you wouldn't normally

> > have?

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It all depends on why you are hyper... for some they can give you

medication that slows the production of the thyroid.. for others they

remove part of the thyroid to reduce production... in the case of hashi's

and the hyper/hypo swings... you more or less wait for the gland to burn

out.....

In my case.. I would guess that if they'd diagnosed me sooner I might

have had a choice between surgery or RAI.... I'm not sure which I would

have chosen....

Now.. I'm hypo... finally on meds and treating myself.. for the 10 plus

years on synthetics I didn't do well.. each year I lost more of

myself.... now I'm getting me back.... In just 20 months I've gone from a

person needing crutches to go to the bathroom to a person that passes for

normal! heheheheheheh

I'll never forget being afraid to go to sleep.. I was sooo hungry.. I

just ate.. non stop.. if I didn't - first the crippling headaches.. then

the pain all over my body.. I simply had to eat.

I had bones sticking out... At my lowest weight I was 220.. I was a body

builder when the storm started, with 21 percent body fat, at 277 pounds.

I lost the fat first, that was 58 pounds (40 pounds of it in just 30

days).. after that I lost muscle... I was burning up everything I ate and

then my body started eating the muscle.

For those that are eating about 1500 to 2000 calories a day... imagine

eating 15 to 20 times that... and stepping on the scale and seeing it go

down. One of my morning snacks was 4,000 calories.. and that just held me

between meals.

Topper ()

On Wed, 31 Mar 2004 01:45:57 -0000 " lem820 " writes:

> Wow!!...Sounds like, well, quite a few

> calories!!!!...25-30K???...AND

> YOU WERE STILL LOSING WEIGHT?????

> Weren't there any other alternatives to " slowing " down your thyroid

> instead of that RAI stuff??...someone mentioned somewhere that there

> are meds now that will help hyper???...

> Are you feeling better now??....sure hope so...

> Lindylou

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Robin,

RAI... Radioactive Iodine. It's just what it says. They give it to you, you swallow it, the thyroid naturally sucks up the iodine, which, now radioactive, kills all, or part of the thyroid. How much it kills depends on how much they give you. The amount they give you is based on an educated guess using your estimated level of activity, the estimated size/over production of the gland and your weight. If they are off a bit either way not enough is killed to slow production enough, if the goof the other way the entire thing is destroyed.

I was given a form before I was given the capsule - releasing the hospital from all liability from the treatment.

After treatment you can't be around adults for 3 days, or small kids or infants for 5 days. They teach you decontamination procedures for that period of time because anything that comes out of your body is radioactive..... Gosh, that sounds like fun, don't it? NOT

15 years ago... and I'm still alive.

Topper ()

On Wed, 31 Mar 2004 22:12:29 -0800 (PST) Robin writes:

Hey Topper,

What do you mean by RAI ? I have seen you use this quite frequently. Either I missed the explanation or have forgotten it. Today wasn't a good day for me, all I wanted to do was sleep, I have spent more time in bed than out of it, which is why I am up after 1:00 am. I am tired just not sleepy now.

Hugs,

Robin

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