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Re: Digest Number 152

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Vicki,

I want to send you an extra special thank you. received your gift

yesterday and it did lots to boost her spirits. Thanks to all of you for your

support.

Always,

Joy

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Hi Joy.... Oh I'm so glad it arrived. That was pretty quick. I hope

she enjoys it and is she out of ICU yet? Have the doctors been able to

tell you any thing else? Give her a big hug for me and we'll talk to

you later. Take care,

Vicki

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  • 3 years later...

In a message dated 1/2/04 10:14:00 AM Eastern Standard Time,

pecanbread writes:

> to her friend who had offered to contact

> my son in the spirit world. " Sure, why not, " I said, " maybe we'll get

> some answers. " Well, it turns out, according to her conversation with

> my sons spirit that he is autistic because he beleives he was not

> wanted before he was born. This crushed me - he was and is very much

> wanted. We also saw a healer last year who said our son is the

> reincarnation of my husbands dead brother, who died 7 years ago, age

> 29 from pancreatic cancer. He had ulcerative colitis most of his life

> and apparantly my son had come back to finish what his uncle did not

> get done before he died - what ever that is.

>

>

- This is such a crock - I am furious that someone purportedly

looking to help would hurt you in such an evil way!

I urge you to begin looking at how much you can afford - You're efforts have

been commendable, but you are throwing a lot of money away - and hope . If you

set the goal as " recovery " You are more than likely setting yourself up for

dissappointment- Make the goal " improvement " You'll be less discoraged in the

long run. For the majority of children with hard core autism- and not those

who have aspergers or mild PDD- Recovery is probably not in teh near future.

All teh recovery stories you hear? Just a tip of the iceberg when you consider

the numbers of kids who are on the spectrum.

Sue

Mom to Ed - autistic age 19 - SCD 3 months- with improvements

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>

,

Before doing Tomatis and Berard, check out www.sensorylearning.com for an

alternative. My impression is that this has been much more effective. See

if you can get them to send you the pre/post SMILE video. I have not yet

done this therapy myself, but hope to -- money is an issue for virtually all

of us. My heart goes out to you... my son is almost 12 and we've tried a

long long list of things too. He's high functioning, yes, but still unable

to function in school except in a special class for autistic kids. I don't

know how old your son is, but there is always hope. Hang in there...

> Next month we are booked for Sensory Integraton therapy - Tomatis

> method - today I just read that Bernard Rimland and friends don't

> approve of Tomatis, they prefer Berard method. How do I know which

> one will work for us? I guess we'll try them both to the tune of

> $1000 each. In Feb we go back to the Options Institute in Mass. for a

> week of Son-Rise intensive therapy with our son, $18,000 for the week

> including travel etc. We live in a very rural area of Western Canada,

> couldn't be a more inconvenient place to live with a child with autism

> no services at all, have to travel at least 2 hours to the nearest

> large centre.

>

> My son doesn't speak, I have no idea what foods he can tolerate or

> not. No idea if he has a tummy ache. All the diets say add in foods

> one at a time to see if there is a reaction. What reaction? He is off

> the wall one minute then fatigued and zoned out the next regardless

> of what he eats. He gets up in the morning making the wierdest sounds

> and looking completely spaced out and he hasn't even touched a food

> or drink yet. It's beyond me how others can tell if there

> kid 'tolerates' a food or not.

>

> On Monday we went to our regular Cranial Sacral appt and our

> therapist had been talking to her friend who had offered to contact

> my son in the spirit world. " Sure, why not, " I said, " maybe we'll get

> some answers. " Well, it turns out, according to her conversation with

> my sons spirit that he is autistic because he beleives he was not

> wanted before he was born. This crushed me - he was and is very much

> wanted. We also saw a healer last year who said our son is the

> reincarnation of my husbands dead brother, who died 7 years ago, age

> 29 from pancreatic cancer. He had ulcerative colitis most of his life

> and apparantly my son had come back to finish what his uncle did not

> get done before he died - what ever that is.

>

> I feel like I'm going crazy with all this, and I grab onto anything

> that I feel may help. Like you, I don't want to accept it and feel I

> must be missing something. After all, everyone else is " solving the

> puzzle " what am I missing? I also thought that just changing the

> diet, doing ABA and loving my son for who he is would make him normal.

> So far it hasn't worked. I cry often for my son and his lost

> childhood, for my daughter who is growing up with so much pain in her

> family and for my husband and myself - this is not what we wanted and

> not the way it should be. Every day I wonder " when is it our

> turn? " " haven't I done enough? " and my biggest fear is " what will

> happen to my son if something happens to me? "

>

> For all those that have their kids on the road to recovery I am happy

> for them. If changing the diet worked for them, then great. I wish we

> could all be so fortunate. New year is a very sad time for me because

> I look back to see if we accomplished all the things I set out to do

> with my son. This time last year I was going to have him well on the

> way to recovery and it was supposed to be a wonderful christmas. No

> such luck, so I'll make the same promise to myself for next year.

>

> I have recently started enzymes, read Enzymes and Autism by

> DeFelice, (like I need another book to add to the autism library I

> already have). Anyhow, it's worth a try. She has a website

> www.enzymestuff.com

>

> I guess I don't have any message of hope and inspiration for you -

> just to let you know that I too am wondering " When is it my turn " ?

> and " why are others so fortunate by just changing the diet? "

> If only it were that simple.

>

> Feel free to contact me anytime.

>

> Warm regards,

>

> .

> PS we are in the process of changing our email address - reply to

> caneng@...

>

>

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

> Message: 2

> Date: Fri, 02 Jan 2004 15:01:03 -0000

>

> Subject: More Qs about honey

>

>

> > The honey should be filtered to remove the pollen, which can be an

> allergen

> > and/or aggravate the gut in some people. If the honey has been

> filtered

> > then it will be clear.

>

>

> Sorry t/b a pest guys, but how do i determine honey " clarity " ? Does

> unclear mean when it looks sugary/grainy, like when it gets cold? Or

> is the general kind from the grocery store different? My bottle

> doesn't indicate 'filtered', but i THINK it is clear...

>

> ....hmmm...I've got the BIRDS part (ie, i can roast a chicken), but

> am 'clearly' weak on knowledge of BEES....ok, not amusing

>

> God's loving care to you all in the New Year

> -Cheryl

>

>

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

>

>

>

> ------------------------------------------------------------------------

>

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