(Niko)//having a bad time

[Guest guest]

Dear (Niko),

I really hope you are feeling better since you posted

the note below on the 5th November. I am just now reading

it and it is the 10th November. Sorry to be so late in

my response. But, while I was reading your post, I saw

me a few years ago. I don't really know much about you.

For instance, How long have you had RSD?, Where is the RSD

located besides you dominate (Left) hand?, What type of

treatment have you been having besides, Blocks and MsContin?

Gosh, so many questions. But, you sounded just like me

in the beginning of this disease. That is why I wanted to

respond.

I have gone through many of time the same thing you are

going through on the 5th. I sure hope that has changed now

since it has been five days since you posted. Just hang in

there. It will pass. You have to fight the depression and

not let it bring you down. And think it is okay to drop things

You just have to concintrate a little hard on the area. Your

hand for instance. As I have to with my right hand. Don't give

up.

I am able now to do many things with my left hand. But, you

still have to keep exercising it. So it doesn't turn into a

claw. Yes, the blocks are only temporary. But, if they start

causing you more pain you need to stop getting the blocks in

that area. About the MsContin. I too take that. But, now

only for back up. When I have to go to work and the pain

seems to be higher. This is so I can make it through the day.

I have found if I rotate the pain meds and treatment, Lidocain

patch, and TEN's unit. I don't get use to one treatment. As

I have gotten use to the treatment and the pain just increases

no matter what. I don't know how long I can do this but, it

seems to work for now.

Back in 1998 it was recomment that I get the DCS and/or the

Pump. It was to advasive for me. As my spin was not hurting.

I didn't want anyone messing with my spin because of causing

more pain. And like you I heard to many negative information

about the DCS or some call it the SCS. I would stick with the

TEN's unit as it simulates the nevers from the outside and I

can remove it not like the SCS/DCS.

You might want to seek a second opinion on that one. I can

tell you too. That prayer and talking it out among other just

like us seems to help too.

I know I have more to say. But, I have lost my train of

thought. I guess that goes with the disease too. I also

ramble. I hope I haven't done to much rambling here. SMILE

Just you keep hanging in there and don't loose HOPE okay

. Peace be with you and God Bless.

always, Debbie G in MD

************

>From: kwj2158@...

>Subject: having a bad time

>Date: Mon, 5 Nov 2001 07:49:11 EST

>

>hi everyone ,,

>

> how is everyone doing ? i hope as fine as u can be

>..just having a bad time right now ,,, swelling , and alot of pain ,, and

>the

>depression is coming back now ,, i get very upset when i cant do something

>i

>used to be able to do ,, and have to have someone help me with it ,,, in

>the

>last 3 days now but yesterday the worst,, i keep dropping things ,, and im

>not holding it with my ( left hand with the rsd in it ) and my right hand (

>that is supposed to be my good hand now ,, but im left handed ) i cant open

>things ,, pick things up ,, and my fingers on my right hand turns bluish

>color now ,, and goes numb ,,i dont have a pain dr appt until friday ,, but

>i

>will tell him ,, and of course like others in the group im waiting for the

>report from the agreeded upon IME thru my lawyer and w/c 's lawyer,, its

>been

>oct 17 , 01 they said it takes 3-6 weeks just this waiting ,, ( i shouldnt

>complain atleast i get a w/c check, that many others dont ,, but dang its

>just the wating ,,) and i just laugh at that commusical i spelled that

>wrong

>sorry , on w/c saying W/C wants to get u help and back to work ,, yeah

>right

>) then there's SSI i applied in march of this year ,, and they SSI sent

>me

>paper work , then more paper work,, then in oct24,01 my case worker sent me

>another paper work and she said hopefully this is it ,, now we just wait,,,

>so i just wait .. and wait ,, and in between the waiting i go for blocks

>every 2 weeks ,, for injections im so tired of those to ,, and my pain dr

>knows it but he is waiting for the report from the IME to do anything else

>,,,,also now my pain dr doesnt know which inplant he is going to do yet ,,

>the SCS or the morphine pump.. i really dont want the SCS i've heard so

>many

>neg, about it ,, i mean i have read that the trial one might work for some

>but then when they put the real one in its doesnt work the same ,, and i

>still will have to have blocks done also ,, im sorry for ventiing ,, im

>just

>down , stressing , upset, and very scared,, of all this since im new re:

>this

>all, and just tired of getting blocks, and just tired of hurting mostly ,,

>he

>did up my dose of MScontin but that was on friday ,, and i cant tell the

>different ,, what does it take time to get working ,,,, u all have a great

>day as possible and thank u for letting me vent ,, cry ,, and thank u for

>just being here for me and others ,, karen ( niko)

>

>