Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 I went to my neurologist for the first time in 2 years, and even though I am no longer participating on the PLS Line, I do fee, that I should share the outcome of my visit with him, as I asked him questions that have been asked by many of you people reading all the postings. First of all, he says I am doing just wonderful, and he wished all his patients would cope with there diseases as well as I have. But that he knows that many people, just can't do that. He also said that my attitude has so much to do with the fact that the progression of my PLS has stabilized pretty well. I asked him about retesting after the diagnoses has definitely been made that a person has PLS. He indicated to me that the only time he would retest, if a symptom came along that could be something else, but in his opinion, this is very rare with people who have been absolutely diagnosed with PLS. He said that all you can do is treat the symptoms as they occur, and that in my case, there is no reason for any further testing, as it would serve no purpose. He said to keep listening to my body, keep walking, and he will see me 2 years from now. He also warned me that there are a lot of people out there, who truly take advantage of people, who will do and take anything, that they think will help them to get well. You can take that for what it's worth. Hope this helps! Have a great summer. Rita Luv & Hugs! ************************************* Some people succeed in spite of their handicap. Others succeed because of them. Quote Link to comment Share on other sites More sharing options...
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