Christie - repo for Raegan?

[Guest guest]

Sorry - my son was having something similar to a febrile seizure it

turns out. he's fine now. Anyway, Raegan is 6 1/2 months old and

rolls and scoots constantly. She will probably be crawling by the

end of the week. She rolls all over her bed at night, so she is not

sleeping in the same position all night - I don't think. I'm just

worried that when we take the helmet off - she will develop the flat

spot again. The ortho scared me a little when they said they needed

to do an exit cast to be sure that in a couple months she didn't get

worse. Do you think I should worry about repo? If so do you have

any ideas?

Thanks!

mom to Bryce 3, Kaelyn 6mos, Raegan 6mos (DOC Band 12/22/03)

[Guest guest]

,

I hope your son is all right!!

Regarding post-helmet/band repo, this is really a new area for me!

Regression/reflattening is so rare, but probably should be a watch-

out for babies who are still quite young at " graduation. " Since

Raegan is up and moving about, I would guess that the biggest risk

factor by far would be sleeping in the same position for extended

periods of time. If you can intermittently monitor that fact that

she is rolling round in different positions in her bed, then you've

probably got a handle on that risk.

For daytime, it's great news that she is scooting all over! I doubt

she'd be satisfied playing on her back for extended periods of time

anyway, thankfully, so continued tummy play should be easy. Are you

still interested in using a bouncie or swing occasionally? If so

you may want to provide some cushioning with memory foam, or put

some regular foam behind the neck in the bouncie to keep the head

off of the bouncie (there is a photo of this in the FILES/REPO

HDQRTRS/REPO PHOTOS folder.) Daytime risks at her age could be

extended stroller or carseat time, so you may want to minimize the

times she is these devices to the " must " situations. Maybe you

could also have some cushioning or memory foam in the head area of

the stroller (a link to custom sized memory foam is in the

LINKS/REPO folder.) A soft, cushioning surface for the seat back of

the high chair could be another easy regression-preventive measure.

Rotating position during bottle/breastfeeding in a conscious manner

will also keep Raegan's head nice and round!

I think you will be fine with some broad, general watchouts, with

special care and concern to sleep position. You mentioned the appt.

with the ortho in a couple of months to measure if Raegan had gotten

any worse post-treatment; did they give you any prevention

guidelines, since the follow-up appt. is acknowledgement of a

regression risk? I would be interested in knowing what the ortho

felt was appropriate preventive regression measures.

Would you keep me posted on how Raegan is doing?

Take care,

Christie

> Sorry - my son was having something similar to a febrile seizure

it

> turns out. he's fine now. Anyway, Raegan is 6 1/2 months old and

> rolls and scoots constantly. She will probably be crawling by the

> end of the week. She rolls all over her bed at night, so she is

not

> sleeping in the same position all night - I don't think. I'm just

> worried that when we take the helmet off - she will develop the

flat

> spot again. The ortho scared me a little when they said they

needed

> to do an exit cast to be sure that in a couple months she didn't

get

> worse. Do you think I should worry about repo? If so do you have

> any ideas?

> Thanks!

> mom to Bryce 3, Kaelyn 6mos, Raegan 6mos (DOC Band 12/22/03)

[Guest guest]

they do that with all the babys, did they not tell you ahead of time?

they said that they can prove what their head shape was when they did grad in case the ydo reflatten at all but said its very rare for older babys to have these issues

good luck with the seizures, have you been seen at childerns for eegs?

we just were discharged for the 2nd time in two weeks its been rough for corbyn but i have to say how much i loved the new stuff they have done and all the new changes to their systems we were in 6 hanson and then at childerns south at 2 east such great people

hilly and orby

Sorry - my son was having something similar to a febrile seizure it turns out. he's fine now. Anyway, Raegan is 6 1/2 months old and rolls and scoots constantly. She will probably be crawling by the end of the week. She rolls all over her bed at night, so she is not sleeping in the same position all night - I don't think. I'm just worried that when we take the helmet off - she will develop the flat spot again. The ortho scared me a little when they said they needed to do an exit cast to be sure that in a couple months she didn't get worse. Do you think I should worry about repo? If so do you have any ideas?Thanks! mom to Bryce 3, Kaelyn 6mos, Raegan 6mos (DOC Band 12/22/03)For more plagio info

[Guest guest]

Hi ,

Our ortho just said (and I just saw it on the list recently, too) that there is only a 1% chance of reflattening after the band comes off....However, that doesn't stop me from going in to check to see how he's sleeping since it came off before I go to bed! :-)...Also, the older the baby, there is even less chance that it will reflatten since they are spending more and more time off their heads.

and (DOCgrad/10-7-03 to 2-13-04 @10mos./PA)brandikaiulani <jmitchell10@...> wrote:

Sorry - my son was having something similar to a febrile seizure it turns out. he's fine now. Anyway, Raegan is 6 1/2 months old and rolls and scoots constantly. She will probably be crawling by the end of the week. She rolls all over her bed at night, so she is not sleeping in the same position all night - I don't think. I'm just worried that when we take the helmet off - she will develop the flat spot again. The ortho scared me a little when they said they needed to do an exit cast to be sure that in a couple months she didn't get worse. Do you think I should worry about repo? If so do you have any ideas?Thanks! mom to Bryce 3, Kaelyn 6mos, Raegan 6mos (DOC Band 12/22/03)For more plagio info