RE: RE: Re: New to all of this

[Guest guest]

Hi Hilly,

I'm so glad to hear Corbyn is adjusting well. The decorating you did is so

cute. I'm suprised you didn't get comments on how ready he is for valentine's

day : ) Oh I meant to comment on your post about the 2 yo wanting Corbyn's

band. Did you get him a bike helmet or little football helmet? Or did you

figure out what the problem was? LOL! With six kids what's one in a bike

helmet and one in a doc band, you've got your hands full not matter what!

I guess those paint pens worked great for you. What kind did you use? Mine

didn't seem to cover as well as your.

Take care,

mom to na

============================================================

From: " Hilly " <sbarlow@...>

Date: 2004/02/12 Thu PM 10:48:46 EST

<Plagiocephaly >

Subject: Re: Re: New to all of this

well corbyn has been in his band now day two and we went running around today

and i didnt notice any real looks or maybe i wasnt paying attention

but so far soo good

good luck

hilly orbys mom

Hi and welcome to the group! I'm sorry Klye has had so many

challenges in his life so far, but it sounds as if you're both doing

wonderful with everything! I wouldn't worry about the DOCband at

all. Cranial Tech is wonderful and most babies adjust very well to

their bands. The first couple days were harder on me than Hannah,

and she too hated hats! As far as other people's reactions, I found

it very helpful to have Hannah's name on her band. It worked as an

icebreaker and made peole more likely ask about her band than just

gawk at it. Let us know how everything goes. Good luck!

, mom to Hannah, DOCgrad

Cape Cod, Ma

> Hi, My name is , my son, is 5 1/2 months old, and was

> just diagnosed with positional plagio on Tuesday. The neuro

> recommended a DOC band, so I made the appointment for casting for

> next week with CTI in Durham, it's only a 2 hour drive, and since

he

> was born at Duke University and got to spend 10 days in their NICU

> it might be neat to go back and let them see how he's doing.

> was born 6 weeks early with holes in his lungs from prolonged low

> amniotic fluid. He is doing great, between all of the doctors we

> take him to they say that he doesn't have any developmental

delays,

> so we're hoping for the best at this point. I am worried about

> getting the DOC band, doesn't like to wear a hat at all, so I

> don't know how he'll do with the band, and from the pictures I've

> seen I'm not sure how it will stay on his head. I tried to do the

> repositioning before things got too bad, used a positioner and

> everything, but he just found a way to get himself turned to the

> flat side of his head. I would put him between the wedges with no

> room to move on his left side, since the right is the flat side,

he

> would scoot right out from between them and turn himself to his

back

> and just flop his right leg over the wedge. I worry about the way

> people will react to his helmet, but then with everything we've

been

> through just trying to make sure that he made it into this world

> safely, I don't think I'll have too many problems with it, other

> than the occassional urge to scream at people. Sorry for the long

> post, I haven't had much support with him and sometimes I just

need

> to get it all out. Thank you.

For more plagio info

[Guest guest]

,

Does this mean you are in Fayettville or near Camp LeJeune (my spelling is

terrible)? We're in Florence, SC. We go to the Charlotte office because it is

slightly closer than the Durham office.

mom to na

DOC #1 10-27 to 11-26

DOC #2 12-10 to ??

============================================================

From: " " <heather_f74@...>

Date: 2004/02/12 Thu PM 11:24:42 EST

<Plagiocephaly >

Subject: RE: Re: New to all of this

I am guessing that my worries about looks are unfounded for the most part,

with everything we went through with the hospitals and the looks I got every

time I took him out to the stores the first couple of months out of the

hospital with the oxygen tank, I worry because I have become quite short

tempered with the gawkers over the course of all of it. A lot of my worry

does come from the fact that we are in a military community and everyone is

from so many different cultures that everyone is curious about the little

differences. Since 's birth I have met 1 other woman in the community

that's gone through anything like what I have gone through and am still

going through with . I'm hoping that he does as well as everyone else's

children have done in theirs. I will keep everyone posted on how things go

as it happens, thank you all for the kind words.

_____

From: Hilly [mailto:sbarlow@...]

Sent: Thursday, February 12, 2004 10:49 PM

Plagiocephaly

Subject: Re: Re: New to all of this

well corbyn has been in his band now day two and we went running around

today and i didnt notice any real looks or maybe i wasnt paying attention

but so far soo good

good luck

hilly orbys mom

Hi and welcome to the group! I'm sorry Klye has had so many

challenges in his life so far, but it sounds as if you're both doing

wonderful with everything! I wouldn't worry about the DOCband at

all. Cranial Tech is wonderful and most babies adjust very well to

their bands. The first couple days were harder on me than Hannah,

and she too hated hats! As far as other people's reactions, I found

it very helpful to have Hannah's name on her band. It worked as an

icebreaker and made peole more likely ask about her band than just

gawk at it. Let us know how everything goes. Good luck!

, mom to Hannah, DOCgrad

Cape Cod, Ma

--- In Plagiocephaly , " " <heather_f74@e...>

wrote:

> Hi, My name is , my son, is 5 1/2 months old, and was

> just diagnosed with positional plagio on Tuesday. The neuro

> recommended a DOC band, so I made the appointment for casting for

> next week with CTI in Durham, it's only a 2 hour drive, and since

he

> was born at Duke University and got to spend 10 days in their NICU

> it might be neat to go back and let them see how he's doing.

> was born 6 weeks early with holes in his lungs from prolonged low

> amniotic fluid. He is doing great, between all of the doctors we

> take him to they say that he doesn't have any developmental

delays,

> so we're hoping for the best at this point. I am worried about

> getting the DOC band, doesn't like to wear a hat at all, so I

> don't know how he'll do with the band, and from the pictures I've

> seen I'm not sure how it will stay on his head. I tried to do the

> repositioning before things got too bad, used a positioner and

> everything, but he just found a way to get himself turned to the

> flat side of his head. I would put him between the wedges with no

> room to move on his left side, since the right is the flat side,

he

> would scoot right out from between them and turn himself to his

back

> and just flop his right leg over the wedge. I worry about the way

> people will react to his helmet, but then with everything we've

been

> through just trying to make sure that he made it into this world

> safely, I don't think I'll have too many problems with it, other

> than the occassional urge to scream at people. Sorry for the long

> post, I haven't had much support with him and sometimes I just

need

> to get it all out. Thank you.

For more plagio info

[Guest guest]

, we are in

Fayetteville, ’s dad (we might even get married eventually) is in the

army, he just got home from Iraq a couple of weeks ago.

From:

filyaw@... [mailto:filyaw@...]

Sent: Friday, February 13, 2004

4:35 PM

Plagiocephaly

Subject: Re: RE: Re: New

to all of this

,

Does this mean you are in Fayettville or near Camp LeJeune

(my spelling is terrible)? We're in Florence,

SC. We go to the Charlotte office because it is slightly closer than the Durham office.

mom to na

DOC #1 10-27 to 11-26

DOC #2 12-10 to ??

============================================================

From: " "

<heather_f74@...>

Date: 2004/02/12 Thu PM 11:24:42 EST

<Plagiocephaly >

Subject: RE: Re: New to all of this

I am guessing that my worries about looks are

unfounded for the most part,

with everything we went through with the hospitals

and the looks I got every

time I took him out to the stores the first couple

of months out of the

hospital with the oxygen tank, I worry because I

have become quite short

tempered with the gawkers over the course of all

of it. A lot of my worry

does come from the fact that we are in a military

community and everyone is

from so many different cultures that everyone is

curious about the little

differences. Since 's birth I have met 1

other woman in the community

that's gone through anything like what I have gone

through and am still

going through with . I'm hoping that he

does as well as everyone else's

children have done in theirs. I will keep

everyone posted on how things go

as it happens, thank you all for the kind words.

_____

From: Hilly [mailto:sbarlow@...]

Sent: Thursday, February 12, 2004 10:49 PM

Plagiocephaly

Subject: Re: Re: New to all of this

well corbyn has been in his band now day two and

we went running around

today and i didnt notice any real looks or maybe i

wasnt paying attention

but so far soo good

good luck

hilly orbys mom

Hi and welcome to the group! I'm

sorry Klye has had so many

challenges in his life so far, but it sounds as if

you're both doing

wonderful with everything! I wouldn't worry

about the DOCband at

all. Cranial Tech is wonderful and most

babies adjust very well to

their bands. The first couple days were

harder on me than Hannah,

and she too hated hats! As far as other

people's reactions, I found

it very helpful to have Hannah's name on her

band. It worked as an

icebreaker and made peole more likely ask about

her band than just

gawk at it. Let us know how everything

goes. Good luck!

, mom to Hannah, DOCgrad

Cape Cod, Ma

--- In Plagiocephaly ,

" " <heather_f74@e...>

wrote:

> Hi, My name is , my son, is 5 1/2

months old, and was

> just diagnosed with positional plagio on

Tuesday. The neuro

> recommended a DOC band, so I made the

appointment for casting for

> next week with CTI in Durham,

it's only a 2 hour drive, and since

he

> was born at Duke University

and got to spend 10 days in their NICU

> it might be neat to go back and let them see

how he's doing.

> was born 6 weeks early with holes in his

lungs from prolonged low

> amniotic fluid. He is doing great,

between all of the doctors we

> take him to they say that he doesn't have any

developmental

delays,

> so we're hoping for the best at this

point. I am worried about

> getting the DOC band, doesn't like to

wear a hat at all, so I

> don't know how he'll do with the band, and

from the pictures I've

> seen I'm not sure how it will stay on his

head. I tried to do the

> repositioning before things got too bad, used

a positioner and

> everything, but he just found a way to get

himself turned to the

> flat side of his head. I would put him

between the wedges with no

> room to move on his left side, since the

right is the flat side,

he

> would scoot right out from between them and

turn himself to his

back

> and just flop his right leg over the

wedge. I worry about the way

> people will react to his helmet, but then

with everything we've

been

> through just trying to make sure that he made

it into this world

> safely, I don't think I'll have too many

problems with it, other

> than the occassional urge to scream at

people. Sorry for the long

> post, I haven't had much support with him and

sometimes I just

need

> to get it all out. Thank you.

For more plagio info, go to

www.plagiocephaly.org/support