Re: B. has a quiet graduation

[Guest guest]

,

North Carolina is a wonderful state for pediatric specialties. sees an

urologist in Chapel Hill, goes to CT in Durham,

there is UNC Chapel Hill children’s hospital, as well as Duke University

Children’s hospital in Durham.

I have had wonderful experiences living in this state with him. Since he was 6

weeks early due to my water breaking 18 weeks early and he’s here to hear

about it later, I will never complain about the wonderful medical treatment

that this state has to offer. I will say that I am not very happy with his

pediatrician, here in Fayetteville,

if I ever have any questions about anything, first he sends us for unnecessary

tests then he sends us 100 miles away to a specialist. I like that he’s

thorough enough to send us for all of the tests that most would tell me we don’t

need when I think we do, but I don’t like that he sends us so far to

specialists that give me the same answers that he would have given me.

I hope your experience

in Asheville is good, and now I know not to move

back to Florida with , we moved here from Bradenton right before I

got pregnant with him. Good luck with your move.

From: B.

[mailto:wbilling@...]

Sent: Friday, February 20, 2004

10:45 PM

plagio

Subject: B. has a

quiet graduation

Dear group members----For now, our plagio journey has come

to an end. We had a " home graduation " for about 10 days

ago. We skipped our last trip to Miami

after deciding that 2 weeks wasn't going to make a

difference. I thought I'd feel guilty about this, but after 6 mos.

in a band, I really don't. Phew...

So, three bands later... is no longer

asymmetrical. I don't notice ANY real asymmetry anymore, which initially

I was most aware of. However, he is still brachy enough to freak the

hair stylist out at Fantastic Sams. I took him for his first hair cut

last week to see if he would seem " rounder " with a little texture to

the back. Well, when the stylist was spraying his hair and combing

it back, she let out a gasp and asked me if his head was going to " stay

that way. " Oh---what to answer to that question...right? I

said that it probably would, most likely.

I'm still angry at the Tampa Bay

medical community. I feel very let down by the lack of attention to this

condition and completely ticked off that the 'so called' specialists haven't

done their homework regarding banding. Knowing that we started all of

this at 's 8 week appt---and that we didn't get a working band until he was

8 months old just fries my butt. And this was NOT due to insurance.

They had no part in the delay. It was the lousy docs, bad orthotist,

etc... Ugh. I could go crazy about this...but I realize I just have

to let it go. I know I did the best I could and I think that will

get that. I just feel bad knowing that he could have gotten better

correction had he started earlier. It just seems like a missed

opportunity that I was more than willing to take.

So---what seems left for us to address is 's upper

gumline/bite. The plagio or the tort---not sure which one, has caused his

upper gum to raise on the left side. It is unclear if he can chew on

the left side---if his top and bottom teeth meet. My ped. recommended

that we take to a ped. orthodontist---which, naturally, this backward

city doesn't have---but Miami

does. UGHhhhh. The GOOD news is that we are moving to Asheville, North Carolina

next weekend---not that Asheville is

a medical metropolis or anything, but it will be a nice change from our

difficulties in Tampa.

So, when we get settled up there, we will begin to check into this

process/specialist. AND--- will begin his new life in NC band-free!

So---aside from that, I just love my band-free little

guy. His hair cut is soooo cute and his personality will overshadow the

plagio. I feel sure of this. I just love kissing his sweet head.

I want to thank the group for all their support. I

have been certainly touched by the responses, concern and incredible knowledge

the people in this group have. I KNOW THAT ALEX HAS BENEFITED FROM THIS

and this makes me very happy.

I'm also thankful to the wonderful people at CT in Miami. I am sad

that we didn't get to terminate with all the people there. I'm not so

good at good-byes, and my life is just full of them these days. I guess I

took the easy way out.

I plan to stick around for awhile in hopes of helping some

future Floridians out, if needed.

Thanks again everyone!

B.

Mom to B.

STARBand drop out 8/03

DOCBand #1 9/4/03-12/18/03

DOCBand #2 12/18/03-2/10/04

Miami CT

For

more plagio info

[Guest guest]

Hi ,

Congratulations to you and . I'm glad he was able to get the assymetry resolved. I know what you mean about being frustrated with the medical community for not getting started earlier. We didn't get Matt in his band until 10 months and we started questioning them at 2 months. It seems the only support we got was from this list.

Good luck with all your other issues and hopefully your move to NC wont be too stressful. (I just hate moving....it's so much work!)

and (DOCgrad 2-13-04/10-14mos./PA)" B." <wbilling@...> wrote:

Dear group members----For now, our plagio journey has come to an end. We had a "home graduation" for about 10 days ago. We skipped our last trip to Miami after deciding that 2 weeks wasn't going to make a difference. I thought I'd feel guilty about this, but after 6 mos. in a band, I really don't. Phew...

So, three bands later... is no longer asymmetrical. I don't notice ANY real asymmetry anymore, which initially I was most aware of. However, he is still brachy enough to freak the hair stylist out at Fantastic Sams. I took him for his first hair cut last week to see if he would seem "rounder" with a little texture to the back. Well, when the stylist was spraying his hair and combing it back, she let out a gasp and asked me if his head was going to "stay that way." Oh---what to answer to that question...right? I said that it probably would, most likely.

I'm still angry at the Tampa Bay medical community. I feel very let down by the lack of attention to this condition and completely ticked off that the 'so called' specialists haven't done their homework regarding banding. Knowing that we started all of this at 's 8 week appt---and that we didn't get a working band until he was 8 months old just fries my butt. And this was NOT due to insurance. They had no part in the delay. It was the lousy docs, bad orthotist, etc... Ugh. I could go crazy about this...but I realize I just have to let it go. I know I did the best I could and I think that will get that. I just feel bad knowing that he could have gotten better correction had he started earlier. It just seems like a missed opportunity that I was more than willing to take.

So---what seems left for us to address is 's upper gumline/bite. The plagio or the tort---not sure which one, has caused his upper gum to raise on the left side. It is unclear if he can chew on the left side---if his top and bottom teeth meet. My ped. recommended that we take to a ped. orthodontist---which, naturally, this backward city doesn't have---but Miami does. UGHhhhh. The GOOD news is that we are moving to Asheville, North Carolina next weekend---not that Asheville is a medical metropolis or anything, but it will be a nice change from our difficulties in Tampa. So, when we get settled up there, we will begin to check into this process/specialist. AND--- will begin his new life in NC band-free!

So---aside from that, I just love my band-free little guy. His hair cut is soooo cute and his personality will overshadow the plagio. I feel sure of this. I just love kissing his sweet head.

I want to thank the group for all their support. I have been certainly touched by the responses, concern and incredible knowledge the people in this group have. I KNOW THAT ALEX HAS BENEFITED FROM THIS and this makes me very happy.

I'm also thankful to the wonderful people at CT in Miami. I am sad that we didn't get to terminate with all the people there. I'm not so good at good-byes, and my life is just full of them these days. I guess I took the easy way out.

I plan to stick around for awhile in hopes of helping some future Floridians out, if needed.

Thanks again everyone!

B.Mom to B.STARBand drop out 8/03DOCBand #1 9/4/03-12/18/03DOCBand #2 12/18/03-2/10/04Miami CT

For more plagio info

[Guest guest]

Congratulations B. and !!!!

Angie and Jenna

B. has a quiet graduation

Dear group members----For now, our plagio journey has come to an end. We had a "home graduation" for about 10 days ago. We skipped our last trip to Miami after deciding that 2 weeks wasn't going to make a difference. I thought I'd feel guilty about this, but after 6 mos. in a band, I really don't. Phew...

So, three bands later... is no longer asymmetrical. I don't notice ANY real asymmetry anymore, which initially I was most aware of. However, he is still brachy enough to freak the hair stylist out at Fantastic Sams. I took him for his first hair cut last week to see if he would seem "rounder" with a little texture to the back. Well, when the stylist was spraying his hair and combing it back, she let out a gasp and asked me if his head was going to "stay that way." Oh---what to answer to that question...right? I said that it probably would, most likely.

I'm still angry at the Tampa Bay medical community. I feel very let down by the lack of attention to this condition and completely ticked off that the 'so called' specialists haven't done their homework regarding banding. Knowing that we started all of this at 's 8 week appt---and that we didn't get a working band until he was 8 months old just fries my butt. And this was NOT due to insurance. They had no part in the delay. It was the lousy docs, bad orthotist, etc... Ugh. I could go crazy about this...but I realize I just have to let it go. I know I did the best I could and I think that will get that. I just feel bad knowing that he could have gotten better correction had he started earlier. It just seems like a missed opportunity that I was more than willing to take.

So---what seems left for us to address is 's upper gumline/bite. The plagio or the tort---not sure which one, has caused his upper gum to raise on the left side. It is unclear if he can chew on the left side---if his top and bottom teeth meet. My ped. recommended that we take to a ped. orthodontist---which, naturally, this backward city doesn't have---but Miami does. UGHhhhh. The GOOD news is that we are moving to Asheville, North Carolina next weekend---not that Asheville is a medical metropolis or anything, but it will be a nice change from our difficulties in Tampa. So, when we get settled up there, we will begin to check into this process/specialist. AND--- will begin his new life in NC band-free!

So---aside from that, I just love my band-free little guy. His hair cut is soooo cute and his personality will overshadow the plagio. I feel sure of this. I just love kissing his sweet head.

I want to thank the group for all their support. I have been certainly touched by the responses, concern and incredible knowledge the people in this group have. I KNOW THAT ALEX HAS BENEFITED FROM THIS and this makes me very happy.

I'm also thankful to the wonderful people at CT in Miami. I am sad that we didn't get to terminate with all the people there. I'm not so good at good-byes, and my life is just full of them these days. I guess I took the easy way out.

I plan to stick around for awhile in hopes of helping some future Floridians out, if needed.

Thanks again everyone!

B.Mom to B.STARBand drop out 8/03DOCBand #1 9/4/03-12/18/03DOCBand #2 12/18/03-2/10/04Miami CT

For more plagio info

[Guest guest]

Congratulations ! You did a great job getting the treatment he needed. I feel your frustration.

As for NC, I live in SC and go to the Charlotte CT office. I think Asheville is in the NW area of the state. It may be a couple of hours from Charlotte. They have a good medical community there. There is also the Raleigh Durham area. You;ll be in good hands I'm sure.

I'm still surprised Tampa doesn't have the specialists you need. Oh well, you'll be in NC soon. I hope your move goes well. Please keep us posted.

Are you going to take your own version of "after" pics? If so please post them for us : )

mom to na

B. has a quiet graduation

Dear group members----For now, our plagio journey has come to an end. We had a "home graduation" for about 10 days ago. We skipped our last trip to Miami after deciding that 2 weeks wasn't going to make a difference. I thought I'd feel guilty about this, but after 6 mos. in a band, I really don't. Phew...

So, three bands later... is no longer asymmetrical. I don't notice ANY real asymmetry anymore, which initially I was most aware of. However, he is still brachy enough to freak the hair stylist out at Fantastic Sams. I took him for his first hair cut last week to see if he would seem "rounder" with a little texture to the back. Well, when the stylist was spraying his hair and combing it back, she let out a gasp and asked me if his head was going to "stay that way." Oh---what to answer to that question...right? I said that it probably would, most likely.

I'm still angry at the Tampa Bay medical community. I feel very let down by the lack of attention to this condition and completely ticked off that the 'so called' specialists haven't done their homework regarding banding. Knowing that we started all of this at 's 8 week appt---and that we didn't get a working band until he was 8 months old just fries my butt. And this was NOT due to insurance. They had no part in the delay. It was the lousy docs, bad orthotist, etc... Ugh. I could go crazy about this...but I realize I just have to let it go. I know I did the best I could and I think that will get that. I just feel bad knowing that he could have gotten better correction had he started earlier. It just seems like a missed opportunity that I was more than willing to take.

So---what seems left for us to address is 's upper gumline/bite. The plagio or the tort---not sure which one, has caused his upper gum to raise on the left side. It is unclear if he can chew on the left side---if his top and bottom teeth meet. My ped. recommended that we take to a ped. orthodontist---which, naturally, this backward city doesn't have---but Miami does. UGHhhhh. The GOOD news is that we are moving to Asheville, North Carolina next weekend---not that Asheville is a medical metropolis or anything, but it will be a nice change from our difficulties in Tampa. So, when we get settled up there, we will begin to check into this process/specialist. AND--- will begin his new life in NC band-free!

So---aside from that, I just love my band-free little guy. His hair cut is soooo cute and his personality will overshadow the plagio. I feel sure of this. I just love kissing his sweet head.

I want to thank the group for all their support. I have been certainly touched by the responses, concern and incredible knowledge the people in this group have. I KNOW THAT ALEX HAS BENEFITED FROM THIS and this makes me very happy.

I'm also thankful to the wonderful people at CT in Miami. I am sad that we didn't get to terminate with all the people there. I'm not so good at good-byes, and my life is just full of them these days. I guess I took the easy way out.

I plan to stick around for awhile in hopes of helping some future Floridians out, if needed.

Thanks again everyone!

B.Mom to B.STARBand drop out 8/03DOCBand #1 9/4/03-12/18/03DOCBand #2 12/18/03-2/10/04Miami CT

For more plagio info