Optic Neuritis

[Guest guest]

That's double vision, right? If so, it DOES go away! That was my first

sympton, too!

Sent from my BlackBerry wireless handheld.

optic neuritis

Hello Everyone,

I just joined this group today. I've been diagnosed with ms and I have

had optic neuritis in my right eye for about a year now. I don't want

to take the ms drugs and so i'm wondering what course of action i could

take for my eye--alternative treatment is what i want. i can see out

of the eye just see floaters and colors are washed out. thanks and hope

to get some great advice! julie

[Guest guest]

Hi

Here is some info on the eyes and O.N. I have compiled form other

people's experiences and their comments are also included. Check with

any relevant Doc/Neuro before trying anything. Hope this helps, Adam:

OPTIC NEURITIS

Steroids-My Brother had 1 Gram (100ml Solution/Bag) per day over 3

days of METHYLPREDNISONE

They do sometimes offer a follow-up dosage of Oral Steroids for 10-14 Days

IVIG-Immunoglobin and Vit B-12 and Folate for the eyes

If problem is Nystagmus Diplopia-Gabapentin (Neurontin) is thought to help

Blueberries are very good for the eyes

Anything that lowers levels of Interleukin 12 and raises levels of

Interleukin 10 are good generally for MS. This is Omegas 3 and 6-Fish

Oil, Flax Seed Oil, Evening Primrose Oil, Vitamin E etc in high Doses

Also Vitamin D

Calcium Orotate

Vitamin A is known to help the eyes

Devils' Claw-An anti-inflammatory/Antioxidant

Also Bromelain

Lutein is supposed to be very good for the eyes. Also Zeaxanthin and

Vitamin C.

Beta-Carotene, Zinc, Selenium and Copper

Vitamin B-1 and B-12

SIMVASTATIN-currently on trial

A cooled-down, used Tea Bag?

Certain nutrients such as lutein, zeaxanthin, vinpocetine, l-lysine, a

number of vitamins & enzymes, and fish oil may help Optic Nerve

Atrophy and preserve vision. Some research indicates that daily use of

Microcurrent Stimulation may help preserve vision as well.

Imuran?: I'll agree with that. Unfortunately, things happen really

fast when it comes to MS. I was told recently that I probably will

not be offered steroids again if/when I have another exacerbation (any

exacerbation); they believe I have had too many. Because of this my

Neurologist, who seems to be up on a lot of data, I have been taking

Imuran (azathioprine) for over a year. Luckily, I have only had

attacks of pain no new lesions on/around the optic nerve. I have been

told the eye pain may never go away. But, on the bright side the

Imuran has helped so much that my optic nerves have healed, my vision

has gotten much better and continues to improve. The doctors are

tracking this progress and have told me that many Neuro's and Optho's

are tracking the healing of optic nerves in those that have had severe

attacks (meaning the attack did damage to the nerve) of people who

have been put on Imuran in addition to whatever other disease

modifying agent they are taking. I've had more attacks than I care to

count, some of the attacks were not disclosed to myself or my parents

because of my age. I was 12 years old when I had my first optic

neuritis attack, though (luckily) it is in my medical record the cause

of my severe eye pain was never disclosed. Considering I have had ON

attacks since puberty and my eyes are healing I can only thank my dr's

and the advances in MS medicine.

I was asked a question about bilberry and forgot to respond. It is

impossible to overdose on it so 3x3 is a good idea. For maintenance

1x3. In the case of optic neuritis the calcium orotate is very

valuable because it helps seal the blood brain barrier. Hans Neiper

always prescribed it for people who had optic neuritis and it also

helps with any kind of arthritic inflammatory condition. It is not to

be taken in place or your regular calcium. It aids in the transport of

cell minerals and deposits itself outside the cell membrane to protect

you against auto-immune attack. It is taken in addition to your

regular calcium. Anyone who is interested in the calcium EAP should

contact the Brewer Science Library. It is not only good for ms but

also for gastritis, asthma, diabetes, and many other conditions. It

basically protects you against some of the oxidative stress we

encounter. in our daily lives which is so detrimental for people with

an auto-immune dis-ease.

Info for impaired vision

First and foremost, I always advise people to take advantage of their

residual vision. A lot can be done to help you see certain things

using the

right light and sometimes reverse screens on your computer, magnifying

software

with speech -- that sort of thing. In fact, if you got used to using a

magnifying program with speech, you would be better prepared as your

vision does

decrease -- if it does. a visual acuity 20/400 in each eye with corrective

lenses is considered legally blind. there's a lot of vision between

that and

nothing at all.

For me, it's all white -- like living in a heavy fog. Sometimes I

think I can

almost see movement -- especially if there's a lot of light.

Conversely, I'm

photophobic so too much light hurts and gives me a headache. I

suppose its

subjective whether my vision loss was fast or slow. In the space of

about 18

months my visual fields had reduced to what they are now -- or very

close to it.

I'm told that my optical nerves swelled to the point that blood flow

to my optic

disks was impeded or stopped -- either way, I would have white-outs

and then I'd

regain some vision but it would be worse each time. It's different for

everyone,

I'm told. I had some eye pain and that sort of thing. I still do now

and then.

One eye gets more light than the other.

The symptoms that made working hard for me were the dizziness and ataxia,

somewhat, but more so I just lost strength and energy so quickly. I

had to be in

a wheelchair all day because I just couldn't stand or walk after a

short time.

Even now, unless I rest in between a lot, I can't walk more than 50 or

so yards

on a good day. Being able to be productive without having to be up and

moving

all the time really slowed my symptoms down. I still have bad days, sure.

Mostly, though, the progression of my MS really has slowed down.

Earning a living, being productive, using my time in a valuable way,

those are

important to me and important to living longer with MS, in my

opinion-- not to

mention paying the bills. I certainly understand your quest to find a

way to do

that. Ask me anything and I'll help all I can.

- Omega-3 fats, one of the most critical nutritional substances for

your body, can prevent this common eye problem. You can reduce your

chances of having dry eyes and blindness by making certain you receive

enough.

Essential Fatty Acids: Fat You Can Use

By White; reviewed by Dr. Slonim

Many people find it difficult to believe that fat can be essential to

your health, but it's true. Fatty acids are the " building blocks " of

fat and some of them are called " essential " because your body needs

them, yet cannot make them; you must eat them.

Essential fatty acids (EFAs) make up polyunsaturated fats. The two

types are omega-3 fatty acids and omega-6. The main omega-3 is

alpha-linolenic acid (LNA). Its derivatives include: eicosapentaeonic

acid (EPA), docosahexaenoic acid (DHA) and a few others. The main

omega-6 is linoleic acid (LA). Like LNA, it also has derivatives, but

they are not relevant to the topic of vision.

How Fatty Acids Affect the Eyes

EFAs are connected with visual development in infants. Deficiencies in

adults (particularly omega-3) can lead to impaired vision, and studies

suggest that prolonged deficiencies might lead to retinal/macular

damage. A study published in the August 2001 issue of Archives of

Ophthalmology found that omega-6 fatty acids were associated with an

increased risk of advanced macular degeneration, but that omega-3

fatty acids protected against it (as long as LA intake was low).

Meanwhile, a 2003 study found omega-3 to decrease your risk of

developing dry eye syndrome, and other studies have found that LA and

gamma-linolenic acid (GLA) improve dry eye symptoms.

The body converts both types of EFAs into prostaglandins, whose

functions include helping the eye's aqueous humor to drain and

regulating intraocular pressure.

You're Eating Too Much Omega-6 Fatty Acid

How much fatty acid do you need? There is no RDA yet, but sources

agree that Americans do not get nearly enough omega-3, and way too

much omega-6.

Doctors involved in the Workshop on the Essentiality of and

Recommended Dietary Intakes for Omega-6 and Omega-3 Fatty Acids*

suggest " adequate intakes " of each:

• omega-3: 0.65 g (grams) of EPA and DHA combined (with neither

falling below 0.22 g)

• omega-6: 4.44 g

Many sources look at a person's ratio of omega-6 fatty acids to

omega-3. Most people in Western cultures fall between 20:1 and 30:1;

however, the optimal ratio would be somewhere between 1:1 and 4:1.**

For most Americans, this means greatly reducing the omega-6 fatty

acids they consume, and probably increasing the number of omega-3

fatty acids

Some sites to look up more information.

http://www.allaboutvision.com/nutrition/fatty_acid_1.htm

these site have sponsors.

http://www.allaboutvision.com/conditions/dryeye.htm

Nano-scaffolds could help rebuild sight

* 18 March 2006

*

http://www.newscientist.com/channel/health/mg18925435.900.html;jsessionid=ANELLO\

\

PKHKMJ

* Marks

ANIMALS blinded following damage to their optic nerve have had their

vision partially restored with the help of an implanted nanoscale

scaffold that has encouraged nerve tissue to regrow. The technique,

likened by its inventors to the way a garden trellis encourages the

growth of ivy, holds out the hope that people with diseased or injured

optic nerves might one day recover their sight.

The optic nerve, which connects the eye to the brain, can be severed by

traumatic injuries such as those suffered in car crashes. It can also be

damaged by glaucoma, when excessive pressure in the eyeball causes

tissue at the back of the eye to collapse, pulling nerve fibres apart

and so causing progressive loss of vision.

Repairing the optic nerve requires the long, spidery branches of nerve

cells, called axons, to grow again and reconnect. Achieving this is a

" formidable barrier " , says Rutledge Ellis-Behnke, a biomedical engineer

at the Massachusetts Institute of Technology. Axons can be encouraged to

lengthen by exposing them to growth factors, but they rarely extend far

enough to bridge the gaps typical of most optic nerve injuries, he says.

To overcome this, Ellis-Behnke and colleagues from Hong Kong University

and the Institute for Neuroscience in Xi'an, China, created a

nerve-bridging scaffold, made up of nanoparticle fibres. They made these

fibres the same size as the sugar and protein complexes on the surface

of the torn axon, in the hope that this would encourage cell growth and

migration (Proceedings of the National Academy of Sciences, DOI:

10.1073/pnas.0600559103).

To make their scaffold, the team turned to a discovery from the early

1990s by Shuguang Zhang at MIT. He found that certain peptide sequences

can be made to self-assemble into mesh-like sheets of nanofibres by

immersing them in salt solutions at similar concentrations to those

found in the body.

To test whether this would help nerves to regenerate, the team took

hamsters whose optic nerves had been deliberately severed and injected a

peptide mixture into each animal's brain close to the injury site. After

six weeks, the animals had recovered some of their vision. " They could

see well enough to find their food, to function well, " says MIT team

member Gerald Schneider.

Schneider estimates that 30,000 axons had reconnected, compared with

only around 30 in previous experiments using other approaches such as

nerve growth factors. The scaffold appears to eventually break down

harmlessly.

Tissue engineer Shakesheff at the University of Nottingham, UK,

says the work is exciting, but urges caution. The surgical cut made in

the hamster's nerve is not representative of " more messy " injury or

disease in people, he warns, and other central nervous system work has

shown that species differences mean nerve regeneration in a rodent might

not translate into humans.

Shakesheff also notes that it remains unknown how the scaffold

regenerates tissue, and that it might ultimately be possible to use stem

cells to further boost the regenerative response.

The MIT team now plans to extend the work in the hope of developing

therapies for spinal cord injuries.

From issue 2543 of New Scientist magazine, 18 March 2006, page 30

What vaccine design can take from bones

Another type of nanotechnology is exploiting the way the body removes

bone fragments to deliver waterproof, timed-release payloads of vaccines

that would break down if not kept dry prior to release. The vaccine,

enclosed in mineral spheres, could be injected as a follow-up booster

dose at the same time as the initial dose.

The spheres, developed by Cambridge Biostability (CBL) in the UK, are

made of calcium phosphate, the main mineral constituent of bone. Cells

called osteoclasts mistake them for stray pieces of bone and dissolve

them, causing them to release their contents over a period of months.

To build the spheres, a mixture of vaccine and calcium phosphate

crystals within an aqueous solution is sprayed out of a nozzle into a

stream of gas at around 170 °C. The nanocrystals are surrounded by a

cloud of water molecules, which evaporate in the gas. As the water

molecules are removed, the nanocrystals draw closer together until they

partially fuse to form solid glassy spheres 5 micrometres in diameter,

with the vaccine embedded inside. The heat of the gas is absorbed by

evaporative cooling before it destroys the vaccine, says Bruce Roser

of CBL.

The microspheres protect the vaccine from water in the body, allowing

them to be used even with delicate payloads such as meningitis vaccine,

which is damaged by prolonged contact with water.

I Went on a 10 day juice fast

with only organics. Now I have no more tremors in my legs and my

fatigue is also better. I am by no means cured or even close, but I

feel much

better. My

eyesight is also excellent. That is what I noticed 1st. This is

truly the only

card we have to

play. Dr. and drugs don't help. Supplements and vitamins are not

much more

than rocks in our

stomachs or they are filled with preservatives. Save your $. Buy

food, good

food! Vegie and

Fruits. Only mother nature knows the answer. Sick, fat america does

not. but

she sure can spend money.

http://www.guardian.co.uk/science/story/0,,1774752,00.html

Discovered by chance: protein that repairs optic nerve

Ian Sample, science correspondent

Monday May 15, 2006

The Guardian

Neuroscientists have succeeded in repairing damage to optic nerves

using a

newly identified protein that encourages injured nerve fibres to

regenerate.

The chance discovery will boost hopes of a future treatment to reverse

blindness

caused by injuries to the optic nerve from accidents, tumours or

common eye

conditions such as glaucoma. The researchers hope it will also help the

development of therapies for other debilitating conditions, such as

stroke and

spinal cord injury. The optic nerve is part of the central nervous

system and,

unlike nerves in the peripheral nervous system - such as those in our

fingers

and feet - shows almost no ability to recover from injury. Scientists

believe

the central nervous system has evolved to prevent severed nerves repairing

themselves, as a harsh defence against potentially disastrous rewiring

that

could scramble important signals passing to and from the brain.

Neuroscientists Yuqin Yin and Larry Benowitz at Children's Hospital,

Boston, and Harvard medical school discovered the protein by chance

when they

noticed that injuries to the eye lens caused a chemical knock-on

effect in which

inflammatory cells began churning out molecules to repair the damage.

To see if

they might also help heal damaged nerves, they collected the

inflammatory cells,

grew them in petri dishes and isolated the proteins they secreted.

In lab

tests, Dr Benowitz discovered that treatment with the protein, called

oncomodulin, nearly doubled the growth of optic nerve fibres by

latching on to

them and switching on a suite of growth genes. In further tests, the

researchers treated rats with optic nerve damage and found that tiny

capsules

containing oncomodulin and another drug increased nerve regeneration

by five to

seven times. " Out of the blue, we found a molecule that causes more

nerve

regeneration than anything else ever studied, " said Dr Benowitz, whose

study was

published in the journal Nature Neuroscience yesterday.

He stressed that nerve repair achieved in the rats was only partial

and a

treatment for humans still had significant hurdles to clear. " We

could obtain

pretty dramatic regeneration. With this said, however, there is

another problem

looming, and that is getting the regenerating axons to form

connections with the

proper target cells in a way that preserves the proper mapping of the

visual

space on to the brain. "

>

> Hello Everyone,

> I just joined this group today. I've been diagnosed with ms and I have

> had optic neuritis in my right eye for about a year now. I don't want

> to take the ms drugs and so i'm wondering what course of action i could

> take for my eye--alternative treatment is what i want. i can see out

> of the eye just see floaters and colors are washed out. thanks and hope

> to get some great advice! julie

>

[Guest guest]

Steroids and other medications aren't recommended by this group. Sometimes the

side effects are worse than the original symptoms. (Moderator)

finnfan05 wrote: Hi

Here is some info on the eyes and O.N. I have compiled form other

people's experiences and their comments are also included. Check with

any relevant Doc/Neuro before trying anything. Hope this helps, Adam:

OPTIC NEURITIS

Steroids-My Brother had 1 Gram (100ml Solution/Bag) per day over 3

days of METHYLPREDNISONE

They do sometimes offer a follow-up dosage of Oral Steroids for 10-14 Days

IVIG-Immunoglobin and Vit B-12 and Folate for the eyes

If problem is Nystagmus Diplopia-Gabapentin (Neurontin) is thought to help

__________________________________________________

[Guest guest]

just more info on eye stuff

neurontin also causes the eyes to jerk

usually when on higher doses like 300 plus mg 3 x's a

day or more.....my ms experience and a friend that was

on it...she does not have ms

[Guest guest]

I agree that Interferons are BAD news, but since I can take LDN at the same

time, why not TRY Copaxone, too?

Sent from my BlackBerry wireless handheld.

Re: Re: optic neuritis

It's more than that. Copaxone is glatiramer acetate, a synthetic polypeptide

that consists of amino acids. It's a chemical that causes bad reactions for many

users, some members of this group included. It may be better than interferon

drugs, but its still a synthetic drug. If you prefer to use drugs, that's your

choice, but the purpose of this group is to offer alternatives.

mfisher150yahoo (DOT) : <mailto:mfisher150%40yahoo.com> com wrote: But Copaxone is a

series of 4 natural Amino Acids! What's so bad about that?

__________________________________________________

[Guest guest]

Dear ,

As a general rule, I think it is a mistake to zero in on specific MS

symptoms, and that what is really needed is a more comprehensive

approach that treats the entire condition. For, whatever helps a person

defeat MS will automatically help reduce or eliminate specific symptoms.

By the grace of God, I put my MS symptoms into remission using an

alternative treatment recommended by Edgar Cayce, a man many regard as

the father of modern holistic medicine.

Unfortunately, due to the complex, multifaceted nature of MS, Cayce's

treatment does not work for everyone. The same goes for every other

current approach (alternative or mainstream) to overcoming MS. What

works for one person does not necessarily work for another. People with

with MS need to find--usually by trial and error--what is effective for

them and then stick to it religiously.

Many MS patients have obtained varying degrees of symptomatic relief

with a diet low in saturated fat (e.g., the Best Bet Diet), food

supplements, exercise, detoxification, and a low stress lifestyle.

There are many other strategies, however, that have also benefited

MSers, including Low Dose Naltrexone (LDN), Glyconutrients, bee stings,

the Prokarin Patch, and colloidal silver.

For more information about these and other promising alternative

approaches to treating MS, visit

http://www.webspawner.com/users/directoryofmultalt/index.html

With best wishes,

Dudley Delany, R.N., M.A., D.C.

http://profiles.yahoo.com/dudley_delany

[Guest guest]

Because they both do the same thing, halt progression of symptoms. LDN has a

higher success rate and fewer cases of side effects. Neither is a cure for MS.

Your body has the ability to heal itself with the proper nutrients. Chemicals

interfere with the healing process. If you take both Copaxone and LDN, how will

you know which is halting the progression?

mfisher150@... wrote: I agree that Interferons are BAD news, but since I

can take LDN at the same time, why not TRY Copaxone, too?

Sent from my BlackBerry wireless handheld.

__________________________________________________

[Guest guest]

I'd take Copaxone alone first, then add LDN

Sent from my BlackBerry wireless handheld.

Re: Re: optic neuritis

Because they both do the same thing, halt progression of symptoms. LDN has a

higher success rate and fewer cases of side effects. Neither is a cure for MS.

Your body has the ability to heal itself with the proper nutrients. Chemicals

interfere with the healing process. If you take both Copaxone and LDN, how will

you know which is halting the progression?

mfisher150yahoo (DOT) : <mailto:mfisher150%40yahoo.com> com wrote: I agree that

Interferons are BAD news, but since I can take LDN at the same time, why not TRY

Copaxone, too?

Sent from my BlackBerry wireless handheld.

__________________________________________________

[Guest guest]

Make sure you do some research first.

mfisher150@... wrote: I'd take Copaxone alone first, then add LDN.

__________________________________________________

[Guest guest]

Copaxone hasn't been put to a blind test yet! That's why I can't trust it

alone!

Meredith

Sent from my BlackBerry wireless handheld.

Re: Re: optic neuritis

Make sure you do some research first.

mfisher150yahoo (DOT) : <mailto:mfisher150%40yahoo.com> com wrote: I'd take Copaxone

alone first, then add LDN.

__________________________________________________

[Guest guest]

I MEANT LDN, not haven't been tested!

Meredith

Sent from my BlackBerry wireless handheld.

Re: Re: optic neuritis

Make sure you do some research first.

mfisher150yahoo (DOT) : <mailto:mfisher150%40yahoo.com> com wrote: I'd take Copaxone

alone first, then add LDN.

__________________________________________________

[Guest guest]

I might be mistaken but the 2 yr clinical trial data is a

placebo/double bind test. The numbers still don't give me much

comfort in its ability to significantly help with the progression of

ms.

http://www.copaxone.com/ContentRoot/miscellaneous/pdfs/0102Gweb.pdf

Doug

I'd

take Copaxone alone first, then add LDN.

>

> __________________________________________________

>

[Guest guest]

Hi ,

That is great you are seeking alternatives to help yourself. The first

thing you have to realize when going this route is that the body does

not look at your eye problem as a separte problem. Your whole body is

not well and the eye is simply a manifestation of that. You have to

start looking at your diet and cleansing and ridding your body of some

of the toxins that have built up over time. I had severe eye problems

also never had it officially diagnosed as optic neuritis but everything

would get really blurry for days and then clear and then blurry again.

Its been years since I started to support all my body and I now see very

well. I have had a few minor flares and mostly I have related those to

going off my good diet and major stress! We are all here to offer

suggestions and answer questions, but you just have to dive in and start

educating your self on how your body works.

na Reitenbach wrote:

> Hello Everyone,

> I just joined this group today. I've been diagnosed with ms and I have

> had optic neuritis in my right eye for about a year now.

>

>

<http://us.lrd.yahoo.com/_ylc=X3oDMTJwamxka3FqBF9TAzk3MzU5NzE0BGdycElkAzEyNzMyMw\

RncnBzcElkAzE2MDAwNjE3NzIEbXNnSWQDMjAzMzIEc2VjA2Z0cgRzbGsDcnBseQRzdGltZQMxMTUwMj\

M4OTYx;_ylg=1/SIG=12e8dan13/**http%3a//groups.yahoo.com/group/mscured/post%3fact\

=reply%26messageNum=20332>

>

<http://us.lrd.yahoo.com/_ylc=X3oDMTJkZnRrM2NsBF9TAzk3MzU5NzE0BGdycElkAzEyNzMyMw\

RncnBzcElkAzE2MDAwNjE3NzIEc2VjA2Z0cgRzbGsDbnRwYwRzdGltZQMxMTUwMjM4OTYx;_ylg=1/SI\

G=11fip59l2/**http%3a//groups.yahoo.com/group/mscured/post>

>

> W

[Guest guest]

You need to consider yourself very fortunate that you had no problems.

Steroids are the most deadly drug out there as far as I am concerned.

There are times when it would be absolutely necessary like in brain

injuries but its prescribed just way too much. You also do not know the

condition of your bowels which is where steroids can really do damamge,

those things take time to show up and you would not even consider it a

side effect. Beware, there are better ways for sure.

mfisher150@... wrote:

>But I took steroids for all of my attacks, and NEVER had bad effects!

>Meredith

>Sent from my BlackBerry wireless handheld.

>

>--

>

>

[Guest guest]

Hi na, my name is Lynn and I also have optic neuritis in my right eye. This

all started for me in March. I went from great vision to " looking under water "

in four days. I didnt have any pain as, I have read, that most people do. My eye

sight is back to 85% normal now. If this is the only problem I get, I will be

eternally greatful!!!!! I am soooooo worried about my life and future. When all

the blood tests come back in about a week, I will probably be " officially "

diagnosed with MS. This group has been very helpful to me. I read and study all

the info I can. I talk to as many people as possible about what to do. My

nuerologist doesnt seem to like any " alternative " options, just likes to give

out those drugs. So I might need to find someone else. You said that you have

had this eye condition for about a year. Have you had anything else happen, or

is it just the eye? Is your eye getting any better? Sorry for the questions, but

I am scared and hope to know what to

expect.(hopefully) Thanks, Lynn

na Reitenbach wrote: Hello Everyone,

I just joined this group today. I've been diagnosed with ms and I have

had optic neuritis in my right eye for about a year now. I don't want

to take the ms drugs and so i'm wondering what course of action i could

take for my eye--alternative treatment is what i want. i can see out

of the eye just see floaters and colors are washed out. thanks and hope

to get some great advice! julie

__________________________________________________

[Guest guest]

I took Pygnogenol in a heavy dose for about 6 months

and improved my eye sight back to my orginal and put

my contacts back in ............

--- na Reitenbach wrote:

> Hello Everyone,

> I just joined this group today. I've been diagnosed

> with ms and I have

> had optic neuritis in my right eye for about a year

> now. I don't want

> to take the ms drugs and so i'm wondering what

> course of action i could

> take for my eye--alternative treatment is what i

> want. i can see out

> of the eye just see floaters and colors are washed

> out. thanks and hope

> to get some great advice! julie

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

, what eye problems did you have and for how long??

Doug

>

> > Hello Everyone,

> > I just joined this group today. I've been diagnosed

> > with ms and I have

> > had optic neuritis in my right eye for about a year

> > now. I don't want

> > to take the ms drugs and so i'm wondering what

> > course of action i could

> > take for my eye--alternative treatment is what i

> > want. i can see out

> > of the eye just see floaters and colors are washed

> > out. thanks and hope

> > to get some great advice! julie

> >

> >

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

My eye sight got worse and they took me off of my

contacts and gave me real stong and thick glasses

and I made a complete turn around and even got some

better..

--- msmonew wrote:

> , what eye problems did you have and for how

> long??

> Doug

>

>

>

> >

> > > Hello Everyone,

> > > I just joined this group today. I've been

> diagnosed

> > > with ms and I have

> > > had optic neuritis in my right eye for about a

> year

> > > now. I don't want

> > > to take the ms drugs and so i'm wondering what

> > > course of action i could

> > > take for my eye--alternative treatment is what i

> > > want. i can see out

> > > of the eye just see floaters and colors are

> washed

> > > out. thanks and hope

> > > to get some great advice! julie

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Kathy that's very patronizing. I use diet, sunlight, supplements, HBO

,yoga AND COPAXONE for my MS. I have used steroids. I would never bother

talking with the MS Society. There is a place for drugs in the treatment

of many PWMS and that surely should not preclude them from involvement

with this group.Drugs are out there that may or may not help us, we

can't ignore them.

Sorry but I feel strongly about this.

Steve

[Guest guest]

Hi Steve,

Every one of us wants to be cured, read all the good improvements and cures from

people who have achieved it with alternatives.

Now look for the same achievements with people who take drugs, that won't take

you very long.

.

Thanks Casey, I understand but I don't think anyone who is interested in

being cured of MS should be hounded from the group for using drugs.

Steve

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[Guest guest]

Whatyou have been saying makes sense to me Steve. I come to this board with an

open mind to learn from others, and I have learned lots here.

B

Steve wrote:

Thanks Casey, I understand but I don't think anyone who is interested

in

being cured of MS should be hounded from the group for using drugs.

Steve

Recruitment Solutions (South West) Ltd

48 Queen Street

Exeter

EX4 3SR

e: steve@...

w: www.recruitmentsolutionsexeter.co.uk

<http://www.recruitmentsolutionsexeter.co.uk/>

0044 (0)1392 430800

0044 (0)7974 671906

________________________________

From: >

>

[Guest guest]

Whatyou have been saying makes sense to me Steve. I come to this board with an

open mind to learn from others, and I have learned lots here.

B

Steve wrote:

Thanks Casey, I understand but I don't think anyone who is interested

in

being cured of MS should be hounded from the group for using drugs.

Steve

Recruitment Solutions (South West) Ltd

48 Queen Street

Exeter

EX4 3SR

e: steve@...

w: www.recruitmentsolutionsexeter.co.uk

<http://www.recruitmentsolutionsexeter.co.uk/>

0044 (0)1392 430800

0044 (0)7974 671906

________________________________

From: >

>

[Guest guest]

Thanks Bruce. I've just had my BBD friendly breakfast, supplements next,

a few yoga postures then my shot C******NE.

As Jelinek (Aussie MD with MS, great book) says, you have to have

everything that may be of benefit (remember the doctors philosophy,

" first do no harm " ) working in your favour when you have MS.

Steve

..

<http://geo.yahoo.com/serv?s=97359714 & grpId=127323 & grpspId=1600061772 & ms

gId=20391 & stime=1150409847>

[Guest guest]

I agree 100% but I don't think this is a group that wants to hear someone

actually sounding excited about using steroids or CRABS. I am open-minded but

think that kind of discussion sounds silly on a natural chatgroup and I'm not

talking about Steve with his intelligent well presented views. Whatever works

for someone thrills me because there is too much pain and suffering in our

world. Best, Kathy

RE: Re: optic neuritis

Whatyou have been saying makes sense to me Steve. I come to this board with an

open mind to learn from others, and I have learned lots here.

B

Steve wrote:

Thanks Casey, I understand but I don't think anyone who is interested in

being cured of MS should be hounded from the group for using drugs.

Steve

Recruitment Solutions (South West) Ltd

48 Queen Street

Exeter

EX4 3SR

e: steve@...

w: www.recruitmentsolutionsexeter.co.uk

<http://www.recruitmentsolutionsexeter.co.uk/>

0044 (0)1392 430800

0044 (0)7974 671906

________________________________

From: >

>

[Guest guest]

Steve, I apologize for coming across harshly . I feel you present your

experiences in a very intelligent manner.

I t was not directed at you but I don't think any of us here appreciate someone

exclaiming over and over how steroids

presented no side effects for them. It is rather ridiculous sounding. It would

be like me having chemo and sending a message

5 times one after another announcing to my " CureCancer Naturally Group " . " I took

chemo and had no side effects " !!!!!!!!!!!!!!!!

I very much enjoy reading your messages and look forward to hearing more from

you. Best, Kathy

RE: Re: optic neuritis

Kathy that's very patronizing. I use diet, sunlight, supplements, HBO

,yoga AND COPAXONE for my MS. I have used steroids. I would never bother

talking with the MS Society. There is a place for drugs in the treatment

of many PWMS and that surely should not preclude them from involvement

with this group.Drugs are out there that may or may not help us, we

can't ignore them.

Sorry but I feel strongly about this.

Steve