(was) Welcome Kathi (now) Marilyn

[Guest guest]

I am so glad to see you, Marilyn. I was thinking about you several days ago -- and here up you pop! You are wrong when you say you have nothing to contribute to this group. You have learned how to manage some of the most troublesome symptoms MS can throw at us. How long has it been since you walked? What are your symptoms/disabilities at this stage?hugs))Sharon Welcome Kathi !

I am so glad you have joined us at MSers Life and are giving us the opportunity to get to know you. We are all 'family' here ~ united by the common bond of MS. I am another person who has had MS for more than thirty something... which makes my age double that! I don't walk and my progression has reached the 'advanced' stage. I am very thankful and have learned so much as a member of this group, though I don't have a lot to contribute.. . As a Canadian, I do not understand a lot about the American SSDI, medical system, or politics. I am not on any of the MS modifying drugs, so cannot even talk about that! My only contribution to this group is to pray for special needs that may arise from time to time - I am good at that! Hope to hear from you again soon. (((Hugs))) Marilyn

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[Guest guest]

I will keep both you and your husband in my prayers.

Hugs

nne

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Re:(was) Welcome Kathi (now) Marilyn

Thank you for thinking about me Sharon! I am so Blessed to be surrounded by angels to help with whatever I need. My dear Sam is still my primary caregiver, despite his own terminal cancer diagnosis. We keep each other going as well as we can. (I think I may have to die first, in order to free him to leave!)

Home Care Support gives us eight hours per week to help with meal preparation and my baths, but have offered much more when we require or want it. Our youngest daughter went down to a four day work week and gives us her Wednesdays to come and help with changing beds and housework that needs doing. She drives us to doctors' appointments and with Sam's 'chemo brain' and my 'MS brain' we definitely need her thinking and speaking skills! Liz and her husband, will help with anything we need done.

Life is too good to waste much time dwelling on MS or Cancer... we have 'good days' and 'not-so-good days,' but every day is filled with joy (the wildlife) and beauty (flowers Sam keeps blooming for me.) So I had to stop and think (ouch) to answer your questions.

A sudden, unexpected progression confined me to the wheelchair almost three years ago. I was thankful to have the chair - or I would have been stuck in bed. I have ceiling lifts in the bedroom and bathroom for transfering. Most of the progression has been gradual enough to adapt and learn to compensate as we adjust. The most troublesome present symptoms include cognitive difficulties, extreme fatigue, speech difficulties and choking... but I am working on them!!! My problems seem pretty minor when I read about what others have to cope with! "I have MS, but MS does not have me!" May God Bless us all! Love, Marilyn

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