Re: Moderate plagio confirmed- questions San Francisco

[Guest guest]

Hi! I too took my son o to CIRS Palo Alto.

I think $2800 is the price they quote to everyone.

on also has a 15mm asymmetry and our orthotist Amy said he

should see very good correction and she quoted 3 months. on was

4.5 month at the time. I think she may be on the optimistic side but

I'd be happy to see anything >50%, especially when we are having such

a hard time repo'ing him at night.

Best luck! Maybe we will run into each other at some appointment.

Cheryl/on, to be starbanded.

--- In Plagiocephaly , " durga8 " <holycowgal@s...>

wrote:

> Hi! Sorry I have been MIA for a while. I was out of commission

after

> an appendix rupture, then pneumonia and a wound infection. Things

are

> getting better now and just had Rowan seen by an orthotist called

Bob

> today at the Center for Rehabilitative Services in Palo Alto.

>

> According to him Rowan's plagio is moderate, with asymmetry at 15.0

> mm. He did recommend the helmet, though said it didn't assure

> correction. He scanned Rowan with the sock on his head which went

> better than I thought. According to him, we could expect upto 50%

> correction. Is that the norm? Also any comments on the 15mm

asymmetry?

>

> We are leaning toward getting the band, though am concerned how

well

> he would do in it. He has been cranky recently, so to top it off

with

> the helmet sounds like a bit more than he could handle. The star

band

> was quoted at 2800$. Is that the average price? Our insurance would

> most likely pay 50%, though after the deductible and of course the

> usual and customary price.

>

> Any recommendations on selection of the Star band? The print out of

> the graphics looked nothing like the actual helmets. The orthotist

> mentioned that the graphic gets stretched out and often the colors

> are different based on how they are cast.

>

> thanks for your thoughts!

> ALpana and Rowan 7m

[Guest guest]

Sorry to hear about all your recent medical problems! Just what you

need, huh? I'm sorry, I don't remember--how old is Rowan? From

what I've heard 15mm borders on the upper side of moderate. My

ortho said 15 and up was severe. Anyway, I am surprised that your

ortho said you would only get about 50% correction. If your baby is

on the younger side, I would definitely think you have a great

chance in getting it within normal measurements(under 5mm). For

some it takes 2 helmets though. I'm not too sure on STARband

prices, but it sounds like it would be within a reasonable range

(DOCbands are $3,000). I have heard other people who got

patterns/colors that have come out distorted or discolored (red

being pink or orange for example). Also, you could definitely

appeal your insurance decision to try and get it paid in full. Good

luck!

, mom to Hannah, DOCgrad

Cape Cod, Ma

--- In Plagiocephaly , " durga8 " <holycowgal@s...>

wrote:

> Hi! Sorry I have been MIA for a while. I was out of commission

after

> an appendix rupture, then pneumonia and a wound infection. Things

are

> getting better now and just had Rowan seen by an orthotist called

Bob

> today at the Center for Rehabilitative Services in Palo Alto.

>

> According to him Rowan's plagio is moderate, with asymmetry at

15.0

> mm. He did recommend the helmet, though said it didn't assure

> correction. He scanned Rowan with the sock on his head which went

> better than I thought. According to him, we could expect upto 50%

> correction. Is that the norm? Also any comments on the 15mm

asymmetry?

>

> We are leaning toward getting the band, though am concerned how

well

> he would do in it. He has been cranky recently, so to top it off

with

> the helmet sounds like a bit more than he could handle. The star

band

> was quoted at 2800$. Is that the average price? Our insurance

would

> most likely pay 50%, though after the deductible and of course the

> usual and customary price.

>

> Any recommendations on selection of the Star band? The print out

of

> the graphics looked nothing like the actual helmets. The orthotist

> mentioned that the graphic gets stretched out and often the colors

> are different based on how they are cast.

>

> thanks for your thoughts!

> ALpana and Rowan 7m

[Guest guest]

Hi,

I just want to second everything has said. You should see more

then 50% correction. My baby was a little over 11 months when she was

banded and she received 90+% correction.

> > Hi! Sorry I have been MIA for a while. I was out of commission

> after

> > an appendix rupture, then pneumonia and a wound infection. Things

> are

> > getting better now and just had Rowan seen by an orthotist called

> Bob

> > today at the Center for Rehabilitative Services in Palo Alto.

> >

> > According to him Rowan's plagio is moderate, with asymmetry at

> 15.0

> > mm. He did recommend the helmet, though said it didn't assure

> > correction. He scanned Rowan with the sock on his head which went

> > better than I thought. According to him, we could expect upto 50%

> > correction. Is that the norm? Also any comments on the 15mm

> asymmetry?

> >

> > We are leaning toward getting the band, though am concerned how

> well

> > he would do in it. He has been cranky recently, so to top it off

> with

> > the helmet sounds like a bit more than he could handle. The star

> band

> > was quoted at 2800$. Is that the average price? Our insurance

> would

> > most likely pay 50%, though after the deductible and of course

the

> > usual and customary price.

> >

> > Any recommendations on selection of the Star band? The print out

> of

> > the graphics looked nothing like the actual helmets. The

orthotist

> > mentioned that the graphic gets stretched out and often the

colors

> > are different based on how they are cast.

> >

> > thanks for your thoughts!

> > ALpana and Rowan 7m

[Guest guest]

Wow, they say trouble comes in threes and it sounds like you are

proof of that. Hope you are feeling better!

How old is Rowan? His age and therefore his growth will affect the

amount of correction he receives. To quote Dustie, I hate using the

numbers and percentages for the amount of correction because it is

so subjective. What exactly is 50% correction? I cannot tell you

what percent correction my son received, but I can tell you that it

is 100% better than if I had done nothing! There are no guarantees

on the treatment, but if Rowan does grow, and his STARband fits,

then he will receive correction!

As for the designs/graphics, I went with the plain white band and

decorated it. I knew we would have ours for Halloween, Christmas,

etc, and wanted to be able to use fun stickers. I also did not want

to worry about coordinating the clothes and colors in the band. My

orthotist was very enthusiastic about the grpahics, but did warn me

that the colors were a bit off of the examples, the direction of the

prints may be different (example, vertical in a picture, horizontal

in real life, etc.) They also offer a plain blue one that may be

the best of both worlds.

As for the cost, it was cheaper in MI, but they may have to do with

the cost of living. I think most everything costs less here,

including how much you get paid. LOL

My son's band did not make him any crankier than normal. He cut

half of his teeth with the band, suffered through two bouts of

pneumonia and learned to walk with it. It did not affect his mood

at all.

Good luck!

- mom to Aidan

STARgrad 2/4/04

GR MI

--- In Plagiocephaly , " durga8 " <holycowgal@s...>

wrote:

> Hi! Sorry I have been MIA for a while. I was out of commission

after

> an appendix rupture, then pneumonia and a wound infection. Things

are

> getting better now and just had Rowan seen by an orthotist called

Bob

> today at the Center for Rehabilitative Services in Palo Alto.

>

> According to him Rowan's plagio is moderate, with asymmetry at

15.0

> mm. He did recommend the helmet, though said it didn't assure

> correction. He scanned Rowan with the sock on his head which went

> better than I thought. According to him, we could expect upto 50%

> correction. Is that the norm? Also any comments on the 15mm

asymmetry?

>

> We are leaning toward getting the band, though am concerned how

well

> he would do in it. He has been cranky recently, so to top it off

with

> the helmet sounds like a bit more than he could handle. The star

band

> was quoted at 2800$. Is that the average price? Our insurance

would

> most likely pay 50%, though after the deductible and of course the

> usual and customary price.

>

> Any recommendations on selection of the Star band? The print out

of

> the graphics looked nothing like the actual helmets. The orthotist

> mentioned that the graphic gets stretched out and often the colors

> are different based on how they are cast.

>

> thanks for your thoughts!

> ALpana and Rowan 7m