Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Hi, I checked out your son's pic, he's a cutie! He definitely has the brachy head shape. Good luck repoing. Keep us posted. --- In Plagiocephaly , " ashinsc " <ashinsc01@h...> wrote: > Thank you all so much! I feel so at home here, now! I think on > definitely may have Brachycephaly. Because his head shape is > definitely evenly flat in the back with a protruding forehead. About > tort...after reading about it, he may have it, but I'm not sure yet. > I created a new album with a picture of his head. > > We have an appointment with a craniofacial specialist on Feb. 17. So > we will find out more, then. I just hate that we have to wait a > whole month, though! We have been trying to place him on his side at > night and during the day, alternating each side. The first few times > were awful, because he seemed so miserable in that position. Today > has seemed to be a better day because he seems more comfortable on > his side, so I am hoping our repositioning efforts will see some > improvement soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Hi, I'm so glad you feel comfortable here. If you ever have any questions or concerns, we are here to help. I just looked at on's photo - it looks exactly like our daughter Remy when she was born! Remy was a big baby, 9 1/2 lbs. I think she just ran out of room, because the whole back side of her head was flat at birth. Was on's flatness noticeable at birth also? Remy developed plagio in addition to her brachy after she was born. I have some of her progress photos in the PHOTOS section, BEFORE AND AFTER folder, REPOSITIONED folder, if you would like to see what kind of flatness we were dealing with. She was 5 months old when we started repo. There is a new study that was just published this month that you may be interested in... it shows that brachycephaly may be more difficult to correct than plagiocephaly. You may want to take this into consideration when deciding what your repo deadline may be, and how early you would like to consider a helmet/band for your baby, if you are open to that option. This study is in the LINKS section, but I'll also copy and paste it here (if the link is 2 lines long, you may need to copy and paste the entire link to get directed properly.) Molding Helmet Therapy in the Treatment of Brachycephaly and Plagiocephaly. (pub. Jan 2004) Overall, the children with posterior plagiocephaly normalized their head shapes; however, the head shapes of the children with positional brachycephaly did not normalize despite statistically significant improvements in their Cephalic Index. It is concluded that molding helmet therapy is an effective treatment of position- induced head shape abnormalities. Helmet therapy is more effective in children with posterior positional plagiocephaly than in children with positional brachycephaly. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi? cmd=Retrieve & db=PubMed & list_uids=14704577 & dopt=Abstract Keep us posted on how on is doing, Christie (Mom to Repo'd Remy) --- In Plagiocephaly , " ashinsc " <ashinsc01@h...> wrote: > Thank you all so much! I feel so at home here, now! I think on > definitely may have Brachycephaly. Because his head shape is > definitely evenly flat in the back with a protruding forehead. About > tort...after reading about it, he may have it, but I'm not sure yet. > I created a new album with a picture of his head. > > We have an appointment with a craniofacial specialist on Feb. 17. So > we will find out more, then. I just hate that we have to wait a > whole month, though! We have been trying to place him on his side at > night and during the day, alternating each side. The first few times > were awful, because he seemed so miserable in that position. Today > has seemed to be a better day because he seems more comfortable on > his side, so I am hoping our repositioning efforts will see some > improvement soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Hi & welcome! I just checked out on's picture (love the name!), and I'd say he has brachycephaly as well. Definitely keep repositioning him as best as you can. Good luck at your appt next month. Please keep us posted. Also keep taking weekly or bi-weekly pictures of on's head to monitor progress. Debbie Abby's mom MI --- In Plagiocephaly , " ashinsc " <ashinsc01@h...> wrote: > Thank you all so much! I feel so at home here, now! I think on > definitely may have Brachycephaly. Because his head shape is > definitely evenly flat in the back with a protruding forehead. About > tort...after reading about it, he may have it, but I'm not sure yet. > I created a new album with a picture of his head. > > We have an appointment with a craniofacial specialist on Feb. 17. So > we will find out more, then. I just hate that we have to wait a > whole month, though! We have been trying to place him on his side at > night and during the day, alternating each side. The first few times > were awful, because he seemed so miserable in that position. Today > has seemed to be a better day because he seems more comfortable on > his side, so I am hoping our repositioning efforts will see some > improvement soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Christie, Thanks for your response. After you questioned whether or not this was noticable at birth, I looked back at some of my son's birth pictures, and wow, I DO see that he had this at birth! I added some pictures for others to see and maybe give me their opinion as to what they think. Even at birth, it looks like he had a flattening of the back of his head. I will take these pictures to the specialist when we go, so he can see and maybe give us better information as to how well he can be expected to respond to treatment. Thanks for enlightening me! --- In Plagiocephaly , " redlocks2003 " <redlocks@d...> wrote: > Hi, > > I'm so glad you feel comfortable here. If you ever have any > questions or concerns, we are here to help. > > I just looked at on's photo - it looks exactly like our > daughter Remy when she was born! Remy was a big baby, 9 1/2 lbs. I > think she just ran out of room, because the whole back side of her > head was flat at birth. Was on's flatness noticeable at birth > also? Remy developed plagio in addition to her brachy after she was > born. I have some of her progress photos in the PHOTOS section, > BEFORE AND AFTER folder, REPOSITIONED folder, if you would like to > see what kind of flatness we were dealing with. She was 5 months > old when we started repo. > > There is a new study that was just published this month that you may > be interested in... it shows that brachycephaly may be more > difficult to correct than plagiocephaly. You may want to take this > into consideration when deciding what your repo deadline may be, and > how early you would like to consider a helmet/band for your baby, if > you are open to that option. This study is in the LINKS section, > but I'll also copy and paste it here (if the link is 2 lines long, > you may need to copy and paste the entire link to get directed > properly.) > > Molding Helmet Therapy in the Treatment of Brachycephaly and > Plagiocephaly. (pub. Jan 2004) > Overall, the children with posterior plagiocephaly normalized their > head shapes; however, the head shapes of the children with > positional brachycephaly did not normalize despite statistically > significant improvements in their Cephalic Index. It is concluded > that molding helmet therapy is an effective treatment of position- > induced head shape abnormalities. Helmet therapy is more effective > in children with posterior positional plagiocephaly than in children > with positional brachycephaly. > http://www.ncbi.nlm.nih.gov/entrez/query.fcgi? > cmd=Retrieve & db=PubMed & list_uids=14704577 & dopt=Abstract > > Keep us posted on how on is doing, > > Christie (Mom to Repo'd Remy) > Quote Link to comment Share on other sites More sharing options...
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